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Introduction and validation of the open symptom framework: a public domain modular framework for patient-reported measurement of symptoms related to cancer and its treatment
Introduction and validation of the open symptom framework: a public domain modular framework for patient-reported measurement of symptoms related to cancer and its treatment
We provide an initial description and validation of some public domain patient-reported outcome (PRO) items to assess canc...
Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review
Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review
Patient-report outcome measures (PROMs) have gained widespread support as a mechanism to improve healthcare quality. We ai...
Long-term effects of the COVID-19 pandemic for patients with cancer
Long-term effects of the COVID-19 pandemic for patients with cancer
Long COVID is defined as the continuation of symptoms, unexplainable by alternative diagnosis, longer than four weeks afte...
Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study
Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study
Post COVID-19 Condition (PCC), being persistent COVID-19 symptoms, is reminiscent of Myalgic Encephalomyelitis/Chronic Fat...
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries
Many older persons do not think of themselves as “patients” but as persons wishing to live as actively as poss...
Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic
Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic
People who were disabled from working reported substantially worse depression in recent research [1] despite adjustment fo...
Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery
Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery
Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific pediatric cardiac health-related quality of life...
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (...
Development of a PROMIS multidimensional cancer-related fatigue (mCRF) form using modern psychometric techniques
Development of a PROMIS multidimensional cancer-related fatigue (mCRF) form using modern psychometric techniques
To develop a PRO assessment of multidimensional cancer-related fatigue based on the PROMIS fatigue assessments. Cancer pat...
Stability and change in maternal wellbeing and illbeing from pregnancy to three years postpartum
Stability and change in maternal wellbeing and illbeing from pregnancy to three years postpartum
Motherhood affects women’s mental health, encompassing aspects of both wellbeing and illbeing. This study investigat...
Assessment of psychometric performance for the Chinese version of the Brief Inventory of Perceived Stress integrating exploratory graph analysis and confirmatory factor analysis
Assessment of psychometric performance for the Chinese version of the Brief Inventory of Perceived Stress integrating exploratory graph analysis and confirmatory factor analysis
This study was to evaluate measurement properties of the Chinese version of the Brief Inventory of Perceived Stress (BIPS-...
Health-related quality of life in ethnically diverse Black prostate cancer survivors: a convergent parallel mixed-methods approach
Health-related quality of life in ethnically diverse Black prostate cancer survivors: a convergent parallel mixed-methods approach
This study examined the health-related quality of life (HRQoL) among ethnically diverse Black men (BM) with prostate cance...
Health-related quality of life and utility values among patients with anxiety and/or depression in a low-income tertiary care setting: a cross-sectional analysis
Health-related quality of life and utility values among patients with anxiety and/or depression in a low-income tertiary care setting: a cross-sectional analysis
To describe the health-related quality of life (HRQoL), estimate the associated health state utility values (HSUVs) and ex...
Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries
Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries
Through interviews with 148 older persons from four countries and in four languages, the content for a 17-item measure of ...
The relationship between healthcare access and change in health-related quality-of-life among the general population of five countries during the COVID-19 pandemic
The relationship between healthcare access and change in health-related quality-of-life among the general population of five countries during the COVID-19 pandemic
To determine whether (1) healthcare access at onset of the pandemic and (2) age, gender, socioeconomic status (SES), and p...
Patient-reported outcome and experience domains for diagnostic excellence: a scoping review to inform future measure development
Patient-reported outcome and experience domains for diagnostic excellence: a scoping review to inform future measure development
“Diagnostic excellence,” as a relatively new construct centered on the diagnostic process and its health-relat...
What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study
What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study
To evaluate the patients’ perspectives on the use of patient- and outcome information tools in everyday care and to ...
Population-level norm values by EQ-5D-3L in Hungary - a comparison of survey results from 2022 with those from 2000
Population-level norm values by EQ-5D-3L in Hungary - a comparison of survey results from 2022 with those from 2000
Although population norms of the EQ-5D-3L instrument had been available in Hungary since 2000, their evaluation was based ...
Assessing uptake of the core outcome set in anxiety disorder clinical trials: a cross-sectional analysis
Assessing uptake of the core outcome set in anxiety disorder clinical trials: a cross-sectional analysis
Javaid, S. F., Hashim, I. J., Hashim, M. J., Stip, E., Samad, M. A., & Ahbabi, A. A. (2023). Epidemiology of anxiety d...
German adult population norm values of the short Warwick Edinburgh mental well-being scale (SWEMWBS)
German adult population norm values of the short Warwick Edinburgh mental well-being scale (SWEMWBS)
The Warwick-Edinburgh Mental Well-Being Scale represents an internationally established inventory to assess population men...
Mapping Kansas City cardiomyopathy, Seattle Angina, and minnesota living with heart failure to the MacNew-7D in patients with heart disease
Mapping Kansas City cardiomyopathy, Seattle Angina, and minnesota living with heart failure to the MacNew-7D in patients with heart disease
The Kansas City Cardiomyopathy Questionnaire (KCCQ), Seattle Angina Questionnaire (SAQ), and Minnesota Living with Heart F...
Health state utility values in patients with Ankylosing Spondylitis: a systematic review and meta-analysis
Health state utility values in patients with Ankylosing Spondylitis: a systematic review and meta-analysis
Ankylosing spondylitis (AS) is a chronic condition that requires lifelong treatment and results in a serious disease burde...
Time, age, gender and cultural measurement invariance of the CASP-12, a measure of psychological quality of life in adulthood
Time, age, gender and cultural measurement invariance of the CASP-12, a measure of psychological quality of life in adulthood
Whereas Quality of Life in older populations has long been conceptualized in regards to health or illness, the Control, Au...
Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study
Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study
Individuals with health conditions often use online patient forums to share their experiences. These patient data are free...
Optimization of alert notifications in electronic patient-reported outcome (ePRO) remote symptom monitoring systems (AFT-39)
Optimization of alert notifications in electronic patient-reported outcome (ePRO) remote symptom monitoring systems (AFT-39)
Clinical benefits result from electronic patient-reported outcome (ePRO) systems that enable remote symptom monitoring. Al...
Salivary, lacrimal and nasal (SALANS) measure to assess side effects following radioactive iodine treatment: development, psychometric properties, and factor structure
Salivary, lacrimal and nasal (SALANS) measure to assess side effects following radioactive iodine treatment: development, psychometric properties, and factor structure
This study aimed to develop and psychometrically evaluate a patient-reported outcome measure (PROM), SAlivary, LAcrimal, N...
Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany
Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany
Spinal muscular atrophy (SMA) is a rare, autosomal-recessive disease characterized by progressive muscular atrophy and wea...
Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders
Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders
To examine associations between Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales and PedsQL Infant Sca...
Undergoing Lung Surgery (PSA-Lung) was appropriate for symptom assessment after discharge
Undergoing Lung Surgery (PSA-Lung) was appropriate for symptom assessment after discharge
To examine whether a 7-day or 24-h recall period of Perioperative Symptom Assessment for Patients Undergoing Lung Surgery ...
Differences and common ground in the frameworks of health-related quality of life in traditional Chinese medicine and modern medicine: a systematic review
Differences and common ground in the frameworks of health-related quality of life in traditional Chinese medicine and modern medicine: a systematic review
This systematic review aims to explore the conceptualization of health-related quality of life (HRQoL) in China. With HRQo...
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