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Psychometric evaluation of the Functional Assessment of chronic illness therapy–fatigue (FACIT-Fatigue) in adults with moderately to severely active Crohn’s disease
Psychometric evaluation of the Functional Assessment of chronic illness therapy–fatigue (FACIT-Fatigue) in adults with moderately to severely active Crohn’s disease
To provide further evidence on the psychometric properties of the Functional Assessment of Chronic Illness Therapy–F...
Impact of sleep quality on health-related quality of life domains and the mediating effects of symptoms in people with multiple sclerosis
Impact of sleep quality on health-related quality of life domains and the mediating effects of symptoms in people with multiple sclerosis
Many people living with multiple sclerosis (PwMS) experience poor sleep, which is associated with diminished overall healt...
Comparison of the early childhood oral health impact scale (ECOHIS-4D) and EuroQol-5D-Y for measuring oral health-related quality of life utility in children
Comparison of the early childhood oral health impact scale (ECOHIS-4D) and EuroQol-5D-Y for measuring oral health-related quality of life utility in children
The psychometric properties of the Early Childhood Oral Health Impact Scale (ECOHIS-4D), an oral health-related quality-of...
Development of a prediction model for clinically-relevant fatigue: a multi-cancer approach
Development of a prediction model for clinically-relevant fatigue: a multi-cancer approach
Fatigue is the most prevalent symptom across cancer types. To support clinicians in providing fatigue-related supportive c...
Agreement of PROMIS Preference (PROPr) scores generated from the PROMIS-29 + 2 and the PROMIS-16
Agreement of PROMIS Preference (PROPr) scores generated from the PROMIS-29 + 2 and the PROMIS-16
Preference-based summary scores are used to quantify values, differences, and changes in health-related quality of life (H...
Symptom burden and quality of life among patient and family caregiver dyads in advanced cancer
Symptom burden and quality of life among patient and family caregiver dyads in advanced cancer
Symptom management among patients diagnosed with advanced cancer is a high priority in clinical care that often involves t...
Identification of meaningful individual-level change thresholds for worsening on the patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE®)
Identification of meaningful individual-level change thresholds for worsening on the patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE®)
We derived meaningful individual-level change thresholds for worsening in selected patient-reported outcomes version of th...
Symptom prevalence in patients with advanced heart failure and its association with quality of life and activities of daily living
Symptom prevalence in patients with advanced heart failure and its association with quality of life and activities of daily living
Quality of life (QOL) and functional status are two key outcomes for patients with advanced heart failure (HF). We examine...
Health-related quality of life due to malaria: a systematic review
Health-related quality of life due to malaria: a systematic review
This paper aims to conduct a systematic review (SR) to assess Health-Related Quality of Life (HRQoL) of malaria-exposed po...
Norms for the EQ-5D-5L among the general adult population in Alberta, Canada
Norms for the EQ-5D-5L among the general adult population in Alberta, Canada
To present EQ-5D-5L population norms for the general adult population in Alberta, Canada. We analyzed data from 11 populat...
Norwegian and Swedish value sets for the EORTC QLU-C10D utility instrument
Norwegian and Swedish value sets for the EORTC QLU-C10D utility instrument
This study aimed to develop utility weights for the European Organization for Research and Treatment of Cancer (EORTC) QLU...
Health-related quality of life dynamics: modeling insights from immunotherapy
Health-related quality of life dynamics: modeling insights from immunotherapy
Understanding health-related quality of life (HRQoL) dynamics is essential for assessing and improving treatment experienc...
Uncovering the story within the story: a scoping review of response shift in qualitative research
Uncovering the story within the story: a scoping review of response shift in qualitative research
The role of qualitative research in response-shift research has not been well characterized. This scoping review summarize...
Psychometric properties of self-reported measures of psychological birth trauma in puerperae: A COSMIN systematic review
Psychometric properties of self-reported measures of psychological birth trauma in puerperae: A COSMIN systematic review
To identify and evaluate the psychometric properties of available patient-reported outcome measures (PROMs) of psychologic...
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
This study aimed to examine the trajectory in health-related quality of life (HRQoL) during and after hospitalisation for ...
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
For patients with celiac disease (CeD), the only current management option is adherence to a strict gluten-free diet (GFD)...
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
This cross-sectional survey study quantified the humanistic burden of immunoglobulin A nephropathy (IgAN), in terms of phy...
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
This study aimed to document utility values and the Visual Analog Scale (VAS) with the 5-level version of the EQ-5D questi...
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
The EQ-5D has been used to assess health related quality of life (HRQoL) in respiratory conditions. However, the core desc...
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
A substantial number of people experience a persisting impact on health-related quality of life (HRQoL) after COVID-19. Th...
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Arthrogryposis multiplex congenita (AMC) describes a heterogeneous group of rare congenital conditions. Health-related qua...
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Maxillofacial reconstruction with dental implants in microvascular tissue flaps aims to improve mastication. However, the ...
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Patient reported outcome measures (PROMs) are increasingly used in oncology care, but pharmacists providing direct patient...
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Hepatocellular carcinoma (HCC) is the third-leading cause of cancer-related deaths globally. Patients are often diagnosed ...
Bidirectional association between frailty and quality of life within English longitudinal study of aging
Bidirectional association between frailty and quality of life within English longitudinal study of aging
The relationship between quality of life (QoL) and frailty has previously been investigated cross-sectionally and longitud...
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Despite advancements in antiretroviral therapy (ART) that extend life expectancy, older adults with HIV (OAHIV) face eleva...
Mild to moderate cognitive impairment does not bias the Geriatric Depression Scale in a large US sample of older adults
Mild to moderate cognitive impairment does not bias the Geriatric Depression Scale in a large US sample of older adults
The Geriatric Depression Scale (GDS) is widely used to screen for depression in clinical practice and to assess symptoms o...
Professional reintegration of stroke survivors and their mental health, quality of life and community integration
Professional reintegration of stroke survivors and their mental health, quality of life and community integration
To assess the association between professional reintegration and mental health, quality of life (QoL) and community reinte...
Conceptualizing meaningful between-group difference in change over time: a demonstration of possible viewpoints
Conceptualizing meaningful between-group difference in change over time: a demonstration of possible viewpoints
Determining if group-level differences in health outcomes are meaningful has recently been neglected in favour of determin...
Patient-reported outcomes (PROs) in NRG Oncology RTOG 0436: a phase III trial evaluating the addition of cetuximab to paclitaxel, cisplatin, and radiation for esophageal cancer treated without surgery
Patient-reported outcomes (PROs) in NRG Oncology RTOG 0436: a phase III trial evaluating the addition of cetuximab to paclitaxel, cisplatin, and radiation for esophageal cancer treated without surgery
NRG/RTOG 0436 evaluated cetuximab added to chemoradiation (CRT) for non-operative esophageal cancer management. PRO object...
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