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Health state utility estimates for value assessments of novel treatments in Huntington’s disease: a systematic literature review
Health state utility estimates for value assessments of novel treatments in Huntington’s disease: a systematic literature review
Huntington’s disease (HD) is a progressive neurodegenerative disease with a devastating impact on patients and their...
Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
Long-term information on health-related quality of life (HRQOL) and mental health of non-hospitalized individuals with ...
Development and validation of the patient-reported outcome for older people living with HIV/AIDS in China (PROHIV-OLD)
Development and validation of the patient-reported outcome for older people living with HIV/AIDS in China (PROHIV-OLD)
The involvement of quality of life as the UNAIDS fourth 90 target to monitor the global HIV response highlighted the devel...
Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties
Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties
The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT)...
Acceptability and usefulness of the EORTC ‘Write In three Symptoms/Problems’ (WISP): a brief open-ended instrument for symptom assessment in cancer patients
Acceptability and usefulness of the EORTC ‘Write In three Symptoms/Problems’ (WISP): a brief open-ended instrument for symptom assessment in cancer patients
The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition o...
Fatigue in children who have recently completed treatment for acute lymphoblastic leukemia: a longitudinal study
Fatigue in children who have recently completed treatment for acute lymphoblastic leukemia: a longitudinal study
This study examined fatigue in patients treated for childhood acute lymphoblastic leukemia (ALL) over a 2-year period (3- ...
Health-related quality of life and its determinants among cancer patients: evidence from 12,148 patients of Indian database
Health-related quality of life and its determinants among cancer patients: evidence from 12,148 patients of Indian database
Cancer survivors experience a decrement in health-related quality of life (HRQoL) resulting from the disease as well as ad...
A time trade-off study to determine health-state utilities of transplant recipients with refractory cytomegalovirus infection with or without resistance
A time trade-off study to determine health-state utilities of transplant recipients with refractory cytomegalovirus infection with or without resistance
Health-state utility values (HSUVs) for post-transplant refractory cytomegalovirus (CMV) infection (with or without resist...
Associations of multimorbidity with body pain, sleep duration, and depression among middle-aged and older adults in China
Associations of multimorbidity with body pain, sleep duration, and depression among middle-aged and older adults in China
Multimorbidity, body pain, sleep disturbance, and depression are major clinical and public health challenges. This paper a...
Development and quality assessment of the psychometric properties of the Self-Efficacy in Lifestyle Counselling scale (SELC 20 + 20) using Rasch analysis
Development and quality assessment of the psychometric properties of the Self-Efficacy in Lifestyle Counselling scale (SELC 20 + 20) using Rasch analysis
Globally as well as in Sweden, diseases that are caused by unhealthy lifestyle habits are the most common causes of death ...
Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review
Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review
(1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; ...
Ignored and undervalued in public health: a systematic review of health state utility values associated with syphilis infection
Ignored and undervalued in public health: a systematic review of health state utility values associated with syphilis infection
Syphilis is a sexually transmitted infection causing significant global morbidity and mortality. To inform policymaking an...
Comparison of four value sets derived using different TTO and DCE approaches: application to the new region-specific PBM, AP-7D
Comparison of four value sets derived using different TTO and DCE approaches: application to the new region-specific PBM, AP-7D
AP-7D is a newly developed preference-based measure (PBM) in East and Southeast Asia. However, no value set has been estab...
Exploratory factor and confirmatory analyses of the polycystic ovary syndrome health-related quality of life questionnaire (PCOSQ-50)
Exploratory factor and confirmatory analyses of the polycystic ovary syndrome health-related quality of life questionnaire (PCOSQ-50)
A condition-specific instrument is necessary to measure the health-related quality of life among those with polycystic ova...
Impact of driving cessation on health-related quality of life trajectories
Impact of driving cessation on health-related quality of life trajectories
Trajectories of health-related quality of life (HRQoL) after driving cessation (DC) are thought to decline steeply, but fo...
The impact of chelation compliance in health outcome and health related quality of life in thalassaemia patients: a systematic review
The impact of chelation compliance in health outcome and health related quality of life in thalassaemia patients: a systematic review
Understanding consequences of poor chelation compliance is crucial given the enormous burden of post-transfusional iron ov...
Translation and cross-cultural adaptation of an Arabic version of PROMIS® of dyspnea activity motivation, requirement item pool and sleep-related impairments item bank
Translation and cross-cultural adaptation of an Arabic version of PROMIS® of dyspnea activity motivation, requirement item pool and sleep-related impairments item bank
Patient-Reported Outcomes Measurement Information System (PROMIS®) Dyspnea Activity Motivation & Requirement ...
How quality of life is measured in studies of nutritional intervention: a systematic review
How quality of life is measured in studies of nutritional intervention: a systematic review
Nutrition care can positively affect multiple aspects of patient’s health; outcomes are commonly evaluated on the ba...
Validation of the psychosocial consequences of screening in lung cancer questionnaire in the international lung screen trial Australian cohort
Validation of the psychosocial consequences of screening in lung cancer questionnaire in the international lung screen trial Australian cohort
Evaluation of psychosocial consequences of lung cancer screening with LDCT in high-risk populations has generally been per...
Perceptions regarding the concept and definition of patient-reported outcomes among healthcare stakeholders in Japan with relation to quality of life: a cross-sectional study
Perceptions regarding the concept and definition of patient-reported outcomes among healthcare stakeholders in Japan with relation to quality of life: a cross-sectional study
Patient-reported outcomes (PROs) are frequently used in a variety of settings, including clinical trials and clinical prac...
Mapping Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) to Recovering Quality of Life (ReQoL) to estimate health utilities
Mapping Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) to Recovering Quality of Life (ReQoL) to estimate health utilities
The Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) is a widely used non-preference-based measure of mental h...
The use of 12-item General Health Questionnaire (GHQ-12) in Ukrainian refugees: translation and validation study of the Ukrainian version
The use of 12-item General Health Questionnaire (GHQ-12) in Ukrainian refugees: translation and validation study of the Ukrainian version
Following the Russian-Ukrainian conflict, the well-being of millions of Ukrainians has been jeopardised. This study aims t...
Evaluating conceptual model measurement and psychometric properties of Oral health-related quality of life instruments available for older adults: a systematic review
Evaluating conceptual model measurement and psychometric properties of Oral health-related quality of life instruments available for older adults: a systematic review
Older adults present a variety of oral diseases and conditions, in addition to co-morbidities and limited access to dental...
Exploring older people’s understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia
Exploring older people’s understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia
Quality-of-life is an essential outcome for quality assessment and economic evaluation in health and social care. The-Qual...
Quality of life among people with eye cancer: a systematic review from 2012 to 2022
Quality of life among people with eye cancer: a systematic review from 2012 to 2022
Eye cancer is a serious eye disease that threatens patients’ lives. In the past decade, there have been more and mor...
Health-related quality of life in primary care patients: a comparison between EQ-5D-5L utility score and EQ-visual analogue scale
Health-related quality of life in primary care patients: a comparison between EQ-5D-5L utility score and EQ-visual analogue scale
The EQ-VAS is an important component of the EQ-5D questionnaire. However, there is limited evidence comparing its performa...
Health-related quality of life and experience measures, to assess patients’ experiences of peripheral intravenous catheters: a secondary data analysis
Health-related quality of life and experience measures, to assess patients’ experiences of peripheral intravenous catheters: a secondary data analysis
Peripheral intravenous catheters (PIVCs) are essential for successful administration of intravenous treatments. However, i...
Psychometric evaluation of the Spanish version of the Pediatric Quality of Life Eosinophilic Esophagitis Questionnaire (Peds QL-EoE Module ™)
Psychometric evaluation of the Spanish version of the Pediatric Quality of Life Eosinophilic Esophagitis Questionnaire (Peds QL-EoE Module ™)
The Paediatric Eosinophilic Oesophagitis Module (PedsQL-EoE) was developed in English as a valid and reliable questionnair...
QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia
QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia
Genomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best mea...
Cross-cultural adaptation and validation of the Chinese version of the Malocclusion Impact Scale for Early Childhood (MIS-EC/C)
Cross-cultural adaptation and validation of the Chinese version of the Malocclusion Impact Scale for Early Childhood (MIS-EC/C)
The Malocclusion Impact Scale for Early Childhood (MIS-EC) is a newly developed questionnaire used to measure the parental...
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