Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, et al. Defining Advance Care planning for adults: a Consensus Definition from a Multidisciplinary Delphi Panel. J Pain Symptom Manag. 2017;53(5):821–e321.

Article  Google Scholar 

Rosa WE, Izumi S, Sullivan DR, Lakin J, Rosenberg AR, Creutzfeldt CJ, et al. Advance Care Planning in Serious Illness: a narrative review. J Pain Symptom Manag. 2023;65(1):e63–78.

Article  Google Scholar 

Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18(9):e543–51.

Article  PubMed  Google Scholar 

Brinkman-Stoppelenburg A, Rietjens JAC, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–25.

Article  PubMed  Google Scholar 

Detering KM, Buck K, Ruseckaite R, Kelly H, Sellars M, Sinclair C, et al. Prevalence and correlates of advance care directives among older australians accessing health and residential aged care services: multicentre audit study. BMJ Open. 2019;9(1):e025255.

Article  PubMed  PubMed Central  Google Scholar 

Ruseckaite R, Detering KM, Evans SM, Perera V, Walker L, Sinclair C, et al. Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia. BMJ Open. 2017;7(11):e018024.

Article  PubMed  PubMed Central  Google Scholar 

Johnson S, Butow P, Kerridge I, Tattersall M. Advance care planning for cancer patients: a systematic review of perceptions and experiences of patients, families, and healthcare providers. Psychooncology. 2016;25(4):362–86.

Article  PubMed  Google Scholar 

Licqurish S, Phillipson L, Chiang P, Walker J, Walter F, Emery J. Cancer beliefs in ethnic minority populations: a review and meta-synthesis of qualitative studies. Eur J Cancer Care. 2017;26(1):e12556.

Article  Google Scholar 

Spelten ER, Geerse O, van Vuuren J, Timmis J, Blanch B, Duijts S, et al. Factors influencing the engagement of cancer patients with advance care planning: a scoping review. Eur J Cancer Care (Engl). 2019;28(3):e13091.

Article  PubMed  Google Scholar 

Roeland EJ, Lindley LC, Gilbertson-White S, Saeidzadeh S, Currie ER, Friedman S, et al. End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020;126(4):886–93.

Article  PubMed  Google Scholar 

Australian Instiotut of Health and Welfare. Cultural and linguistic diversity measures in aged care: working paper. Canberra: AIHW; 2014.

Australian Institute of Health and Welfare. Australia’s Health 2018 Canberra AIHW; 2018.

Glyn-Blanco MB, Lucchetti G, Badanta B. How do cultural factors influence the provision of end-of-life care? A narrative review. Appl Nurs Res. 2023;73:151720.

Article  PubMed  Google Scholar 

Green A, Jerzmanowska N, Green M, Lobb EA. Death is difficult in any language’: a qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds. Palliat Med. 2018;32(8):1419–27.

Article  PubMed  Google Scholar 

Chauhan A, Walpola RL, Manias E, Seale H, Walton M, Wilson C, et al. How do health services engage culturally and linguistically diverse consumers? An analysis of consumer engagement frameworks in Australia. Health Expect. 2021;24(5):1747–62.

Article  PubMed  PubMed Central  Google Scholar 

Silva MD, Genoff M, Zaballa A, Jewell S, Stabler S, Gany FM, et al. Interpreting at the end of life: a systematic review of the impact of interpreters on the delivery of Palliative Care services to Cancer patients with Limited English proficiency. J Pain Symptom Manage. 2016;51(3):569–80.

Article  PubMed  Google Scholar 

Sinclair C, Sellars M, Buck K, Detering KM, White BP, Nolte L. Association between Region of Birth and Advance Care Planning Documentation among older Australian migrant communities: a Multicenter Audit Study. Journals Gerontology: Ser B. 2021;76(1):109–20.

Article  Google Scholar 

Harrison R, Walton M, Chitkara U, Manias E, Chauhan A, Latanik M, et al. Beyond translation: engaging with culturally and linguistically diverse consumers. Health Expect. 2020;23(1):159–68.

Article  PubMed  Google Scholar 

de Arruda-Colli MNF, Sansom-Daly U, Dos Santos MA, Wiener L. Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer. Clin Pract Pediatr Psychol. 2018;6(4):341–54.

PubMed  PubMed Central  Google Scholar 

Evans HE, Jessop S, Bedoya SZ, Lyon ME, Wiener L, Sansom-Daly UM. Examining the Cultural appropriateness of Advance Care Planning Tools for adolescents and Young adults with Cancer: an example of cross-cultural adaptation of the voicing my CHOiCES Tool. Curr Probl Cancer. 2023;47(5):101010.

Article  PubMed  Google Scholar 

Harley HYK, Joesph L, Delan D, Bridget C. Experience and perspectives on palliative or end-of-life care of Chinese people and their families as immigrants to high-income countries: a systematic review and thematic synthesis. BMJ Global Health. 2020;5(12):e003232.

Article  Google Scholar 

Francois K, Lobb E, Barclay S, Forbat L. The nature of conflict in palliative care: a qualitative exploration of the experiences of staff and family members. Patient Educ Couns. 2017;100(8):1459–65.

Article  PubMed  Google Scholar 

Shorten A, Smith J. Mixed methods research: expanding the evidence base. Evid Based Nurs. 2017;20(3):74.

Article  PubMed  Google Scholar 

Tashakkori A, Creswell JW. Editorial: the New era of mixed methods. J Mixed Methods Res. 2007;1(1):3–7.

Article  Google Scholar 

Chauhan A. Consumer engagement for patient safety: strategies for consumer engagement for culturally and linguistically diverse consumers in cancer services. Macquarie University; 2023.

Australian Bureau of Statistics. Data by region ABS; 2023.

Johnston KM, Lakzadeh P, Donato BMK, Szabo SM. Methods of sample size calculation in descriptive retrospective burden of illness studies. BMC Med Res Methodol. 2019;19(1):9.

Article  PubMed  PubMed Central  Google Scholar 

Australian Bureau of Statistics. Latest release: standards for statistics on Cultural and Language Diversity. Canberra, ACT: ABS; 2022.

Google Scholar 

Bujang MA, Sa’at N, Sidik T, Joo LC. Sample size guidelines for logistic regression from Observational studies with large Population: emphasis on the Accuracy between statistics and parameters based on Real Life Clinical Data. Malays J Med Sci. 2018;25(4):122–30.

PubMed  PubMed Central  Google Scholar 

Cancer Australia. National Cancer Control indicators - five-year relative survival by stage at diagnosis for childhood cancers. Sydney, Australia: Cancer Australia; 2021.

Google Scholar 

Cancer Australia. National Cancer Control indicators – 5-year relative survival from diagnosis. 2022. Sydney, Australia: Cancer Australia; 2022.

Google Scholar 

Altheide DL, Qualitative Media A. 1996 2020/09/01. Thousand Oaks, California: SAGE Publications, Inc. https://methods.sagepub.com/book/qualitative-media-analysis.

Esbati A, Barnes M, Henderson A, Taylor J. Legislation, policies and guidelines related to breastfeeding and the Baby Friendly Health Initiative in Australia: a document analysis. Aust Health Rev. 2018;42(1):72–81.

Article  PubMed  Google Scholar 

Tran J, Sellars M, Nolte L, White BP, Sinclair C, Fetherstonhaugh D, et al. Systematic review and content analysis of Australian health care substitute decision making online resources. Aust Health Rev. 2021;45(3):317–27.

Article  PubMed  Google Scholar 

Pereira-Salgado A, Mader P, Boyd LM. Advance care planning, culture and religion: an environmental scan of Australian-based online resources. Aust Health Rev. 2018;42(2):152–63.

Article  PubMed  Google Scholar 

Morgan D. Focus Groups as Qualitative Research. Thousand Oaks, California1997. https://methods.sagepub.com/book/focus-groups-as-qualitative-research.

Jamshed S. Qualitative research method-interviewing and observation. J Basic Clin Pharm. 2014;5(4):87–8.

Article  PubMed  PubMed Central  Google Scholar 

Krueger RA. Focus groups: a practical guide for applied research. California: Sage; 2014.

Google Scholar 

Harrison R, Walton M, Manias E, Wilson C, Girgis A, Chin M, et al. Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol. BMJ Open. 2021;11(8):e048389.

Article  PubMed  PubMed Central  Google Scholar 

McGowan LJ, Powell R, French DP. How can use of the theoretical domains Framework be optimized in qualitative research? A rapid systematic review. Br J Health Psychol. 2020;25(3):677–94.

Article  PubMed  Google Scholar 

Francis JJ, O’Connor D, Curran J. Theories of behaviour change synthesised into a set of theoretical groupings: introducing a thematic series on the theoretical domains framework. Implement Sci. 2012;7(1):35.

Article  PubMed  PubMed Central  Google Scholar 

Atkins L, Francis J, Islam R, O’Connor D, Patey A, Ivers N, et al. A guide to using the theoretical domains Framework of behaviour change to investigate implementation problems. Implement Sci. 2017;12(1):77.

Article  PubMed  PubMed Central  Google Scholar 

Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13(1):117.

Article  PubMed  PubMed Central  Google Scholar 

Chauhan A, Newman B, Roberto E, Walpola RL, Seale H, Chin M, et al. Making it meaningful’: co-designing an intervention to improve medication safety for people from culturally and linguistically diverse backgrounds accessing cancer services. Patient Experience J. 2023;10(2):34–48.

Article  Google Scholar 

Chauhan A, Leefe J, She EN, Harrison R. Optimising co-design with ethnic minority consumers. Int J Equity Health. 2021;20(1):240.

Article  PubMed  PubMed Central  Google Scholar 

Easpaig BRNG, Shé ÉN, Chauhan A, Newman B, Joseph K, Tieu NT et al. Enabling the space and conditions for co-leadership in co-design: an evaluation of co-facilitator training for CALD consumers. Public Health Res Pract. 2022.

Health Consumers NSW. Remuneration and reimbursement guidelines for consumer involvement in health and medical research. Sydney: Health Consumers NSW; 2022.

Google Scholar 

Health Consumers NSW. Remuneration and reimbursement of health consumers. Sydney: Health Consumers NSW; 2022.