Pickup JC. Insulin-pump therapy for type 1 diabetes mellitus. N Engl J Med. 2012;366(17):1616–24.

Article  CAS  PubMed  Google Scholar 

Nathan DM. Long-term complications of diabetes mellitus. N Engl J Med. 1993;328(23):1676–85.

Article  CAS  PubMed  Google Scholar 

Perantie DC, Lim A, Wu J, Weaver P, Warren SL, Sadler M, et al. Effects of prior hypoglycemia and hyperglycemia on cognition in children with type 1 diabetes mellitus. Pediatr Diabetes. 2008;9(2):87–95.

Article  PubMed  Google Scholar 

McCarthy AM, Lindgren S, Mengeling MA, Tsalikian E, Engvall JC. Effects of diabetes on learning in children. Pediatrics. 2002;109(1):e9–e.

Article  PubMed  Google Scholar 

Rydén A, Sörstadius E, Bergenheim K, Romanovschi A, Thorén F, Witt EA, et al. The humanistic burden of type 1 diabetes Mellitus in Europe: Examining Health outcomes and the role of complications. PLoS ONE. 2016;11(11):e0164977–e. PubMed PMID: 27812145. eng.

Article  PubMed  PubMed Central  Google Scholar 

Whittemore R, Jaser S, Chao A, Jang M, Grey M. Psychological experience of parents of children with type 1 diabetes: a systematic mixed-studies review. Diabetes Educ. 2012;38(4):562–79. PubMed PMID: 2012-19692-014.

Article  PubMed  PubMed Central  Google Scholar 

Cherkas A, Allen V, Bascle S, Kasireddy E, Min RC, Pushkarna D et al. Humanistic Burden of Informal Caregivers of Children and Young Adults with Newly Diagnosed Type 1 Diabetes (T1D): A Systematic Literature Review (SLR). Proceeding of the Shevchenko Scientific Society Medical Sciences. 2023;71(1).

Holmes AM, Deb P. The effect of chronic illness on the psychological health of family members. J Mental Health Policy Econ. 2003;6(1):13–22.

Google Scholar 

McClellan CB, Cohen LL. Family functioning in children with chronic illness compared with healthy controls: a critical review. J Pediatr. 2007;150(3):221–3. e2.

Article  PubMed  Google Scholar 

Müller-Godeffroy E, Treichel S, Wagner V, Therapy GWGPP. Investigation of quality of life and family burden issues during insulin pump therapy in children with type 1 diabetes mellitus—a large‐scale multicentre pilot study 1. Diabet Med. 2009;26(5):493–501.

Article  PubMed  Google Scholar 

Adolescent health WHO. 2021 [Available from: https://www.who.int/southeastasia/health-topics/adolescent-health#:~:text=WHO%20defines%20’Adolescents’%20as%20individuals,age%20range%2010%2D24%20years.

Chowdhury S. Puberty and type 1 diabetes. Indian J Endocrinol Metabol. 2015;19(Suppl 1):S51.

Article  Google Scholar 

Peper JS, Dahl RE. The teenage brain: surging hormones—brain-behavior interactions during puberty. Curr Dir Psychol Sci. 2013;22(2):134–9.

Article  PubMed  PubMed Central  Google Scholar 

Carroll NC. Adapting child-centered play therapy for children with type 1 diabetes. Int J Play Therapy. 2021;30(3):187–94. PubMed PMID: 2021-49898-003.

Article  Google Scholar 

Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. Int J Surg. 2021;88:105906.

Article  PubMed  Google Scholar 

Martino J, Pegg J, Frates EP. The connection prescription: using the Power of Social Interactions and the Deep Desire for connectedness to Empower Health and Wellness. American journal of lifestyle medicine. 2017 Nov-Dec;11(6):466–75. PubMed PMID: 30202372. PMCID: PMC6125010. Epub 2015/10/07. eng.

Girma D, Murugan R, Wondossen K, Yeshiwas S, Wale A, Tilahun S. Health-Related Quality of Life and its Associated factors in children and adolescents with Type1 diabetes, Addis Ababa, Ethiopia. Global Pediatr Health. 2021;8(no pagination). PubMed PMID: 2013114309. English.

Al-Hayek AA, Robert AA, Abbas HM, Itani MB, Al-Saeed AH, Juhani AE, et al. Assessment of health-related quality of life among adolescents with type 1 diabetes mellitus in Saudi Arabia. Saudi Med J. 2014 July;35(7):712–7. PubMed PMID: 373552276. English.

Lopez-Bastida J, Lopez-Siguero JP, Oliva-Moreno J, Vazquez LA, Aranda-Reneo I, Reviriego J, et al. Health-related quality of life in type 1 diabetes mellitus pediatric patients and their caregivers in Spain: an observational cross-sectional study. Curr Med Res Opin. 2019;35(9):1589–95. PubMed PMID: 627825971. English.

Article  PubMed  Google Scholar 

Saoji N, Palta M, Young HN, Moreno MA, Rajamanickam V, Cox ED. The relationship of type 1 diabetes self-management barriers to child and parent quality of life: a US cross-sectional study. Diabet Med. 2018 November;35(11):1523–30. PubMed PMID: 624535576. English.

Mulyasari R, Agustini N, Rustina Y. Coping strategies and quality of life of children with type 1 diabetes mellitus: a preliminary study. Compr Child Adolesc Nurs. 2019;42(Suppl 1):217–25. PubMed PMID: 2019-33989-025.

Article  PubMed  Google Scholar 

Nakamura N, Sasaki N, Kida K, Matsuura N. Health-related and diabetes-related quality of life in Japanese children and adolescents with type 1 and type 2 diabetes. Pediatr Int. 2010 April;52(2):224–9. PubMed PMID: 358538394. English.

Costa LM, Vieira SE. Quality of life of adolescents with type 1 diabetes. Clinics (Sao Paulo, Brazil). 2015 01 Mar;70(3):173–9. PubMed PMID: 613657216. English.

Jaser SS, Patel N, Xu M, Tamborlane WV, Grey M. Stress and coping predicts adjustment and glycemic control in adolescents with type 1 diabetes. Ann Behav Med. 2017;51(1):30–8. PubMed PMID: 2016-38778-001.

Article  PubMed  Google Scholar 

Alaqeel A, Almijmaj M, Almushaigeh A, Aldakheel Y, Almesned R, Al Ahmadi H. High rate of Depression among Saudi Children with type 1 diabetes. Int J Environ Res Public Health. 2021;11(081821):08. PubMed PMID: 34770232. English.

Google Scholar 

Sendela J, Zdunczyk B, Trippenbach-Dulska H, Szypowska A. Prevalence of depressive symptoms in school aged children with type 1 diabetes - a questionnaire study. Psychiatr Pol. 2015;49(5):1005–16. PubMed PMID: 26688850. English Polish.

Article  PubMed  Google Scholar 

Lašaitė L, Dobrovolskienė R, Danytė E, Stankutė I, Ražanskaitė-Virbickienė D, Schwitzgebel V et al. Diabetes distress in males and females with type 1 diabetes in adolescence and emerging adulthood. J Diabetes Complicat. 2016 2016/11/01/;30(8):1500–5.

Rawshani A, Sattar N, Franzén S, Rawshani A, Hattersley AT, Svensson A-M, et al. Excess mortality and cardiovascular disease in young adults with type 1 diabetes in relation to age at onset: a nationwide, register-based cohort study. Lancet. 2018;392(10146):477–86.

Article  PubMed  PubMed Central  Google Scholar 

Cheung RY, Chung KKH. Interparental conflict and mindful parenting practices: transactional effects between mothers and fathers. J Marriage Family. 2023;85(1):280–92.

Article  Google Scholar 

Schermerhorn AC, Cummings EM. Transactional family dynamics: A new framework for conceptualizing family influence processes. Advances in child development and behavior. 36: Elsevier; 2008. p. 187–250.

Fiese BH, Sameroff AJ. Family context in pediatric psychology: a transactional perspective. J Pediatr Psychol. 1989;14(2):293–314.

Article  CAS  PubMed  Google Scholar 

Michel G, Bisegger C, Fuhr DC, Abel T, The Kg. Age and gender differences in health-related quality of life of children and adolescents in Europe: a multilevel analysis. Qual Life Res. 2009;18(9):1147. 2009/09/22.

Article  PubMed  Google Scholar 

Afifi M. Gender differences in mental health. Singapore Med J. 2007;48(5):385.

CAS  PubMed  Google Scholar 

Kumpfer KL, Bluth B. Parent/child transactional processes predictive of resilience or vulnerability to substance abuse disorders. Subst Use Misuse. 2004;39(5):671–98.

Article  PubMed  Google Scholar 

Nicholas DB, Gutwin C, Paterson B. Examining preferences for website support to parents of adolescents with diabetes. Soc Work Health Care. 2013;52(9):862–79. PubMed PMID: 2013-37088-005.

Article  PubMed  Google Scholar 

Commissariat PV, Laffel LM, Gonzalez JS. Identity and treatment adherence in predominantly ethnic minority teens and young adults with type 1 diabetes. Pediatr Diabetes. 2020;01(1):53–60. PubMed PMID: 2003524205. English.

Article  Google Scholar 

Hood KK, Polonsky WH, MacLeish SA, Levy CJ, Forlenza GP, Criego AB et al. Psychosocial Outcomes with the Omnipod® 5 Automated Insulin Delivery System in Children and Adolescents with Type 1 Diabetes and Their Caregivers. Pediatric Diabetes. 2023;2023.

Bornstein MH, Putnick DL. Cognitive and socioemotional caregiving in developing countries. Child development. 2012 Jan-Feb;83(1):46–61. PubMed PMID: 22277006. PMCID: PMC3270892. Epub 2012/01/27. eng.

Atay C, Kaya Mutlu E, Taskiran H, Ozgen IT. Comparison of Hand Function Between Children With Type 1 Diabetes Mellitus and Children Without Type 1 Diabetes Mellitus. Pediatric physical therapy: the official publication of the Section on Pediatrics of the American Physical Therapy Association. 2018 01 Jan;30(1):58–65. PubMed PMID: 622775497. English.

Butwicka A, Fendler W, Zalepa A, Szadkowska A, Zawodniak-Szalapska M, Gmitrowicz A et al. Psychiatric disorders and health-related quality of life in children with type 1 diabetes mellitus. Psychosomatics: Journal of Consultation and Liaison Psychiatry. 2016;57(2):185– 93. PubMed PMID: 2016-13594-009.

Caferoglu Z, Inanc N, Hatipoglu N, Kurtoglu S. Health-related quality of life and metabolic control in children and adolescents with type 1 diabetes mellitus. JCRPE J Clin Res Pediatr Endocrinol. 2016 March;8(1):67–73. PubMed PMID: 608695895. English.

Cobuz M, Cobuz C. Life quality of the child with diabetes mellitus. Romanian J Diabetes Nutr Metabolic Dis. 2016 September;23(3):289–98. PubMed PMID: 620517826. English.

Elissa K, Bratt E-L, Axelsson ÅB, Khatib S, Sparud-Lundin C. Self-perceived health status and sense of coherence in children with type 1 diabetes in the West Bank, Palestine. J Transcult Nurs. 2020;31(2):153–61. PubMed PMID: 2020-09991-007.

Article  PubMed  Google Scholar 

Lukacs A, Sasvari P, Torok A, Barkai L. Generic and disease-specific quality of life in adolescents with type 1 diabetes: comparison to age-matched healthy peers. J Pediatr Endocrinol Metabolism 2016 01 Jul;29(7):769–75. PubMed PMID: 611185365. English.

Naughton MJ, Yi-Frazier JP, Morgan TM, Seid M, Lawrence JM, Klingensmith GJ, et al. Longitudinal associations between sex, diabetes self-care, and health-related quality of life among youth with type 1 or type 2 diabetes mellitus. J Pediatr. 2014;164(6):1376–83. PubMed PMID: 2014-22215-040.

Article  PubMed  PubMed Central  Google Scholar 

Ozyazicioglu N, Avdal EU, Saglam H. A determination of the quality of life of children and adolescents with type 1 diabetes and their parents. Int J Nurs Sci 2017 10 Apr;4(2):94–8. PubMed PMID: 614372637. English.

Reid AM, Balkhi AM, St. Amant J, McNamara JPH, Silverstein JH, Navia L, et al. Relations between quality of life, family factors, adherence, and glycemic control in pediatric patients with type 1 diabetes mellitus. Children’s Health Care. 2013;42(4):295–310. PubMed PMID: 2013-41935-002.

Article  Google Scholar 

Yayan EH, Zengin M, Erden Karabulut Y, Akıncı A. The relationship between the quality of life and depression levels of young people with type I diabetes. Perspect Psychiatr Care. 2019;55(2):291–9. PubMed PMID: 2019-01277-001.

Article  PubMed  Google Scholar 

AlBuhairan F, Nasim M, Al Otaibi A, Shaheen NA, Al Jaser S, Al Alwan I. Health related quality of life and family impact of type 1 diabetes among adolescents in Saudi Arabia. Diabetes Res Clin Pract. 2016;01:173–9. PubMed PMID: 607978132. English.

Article  Google Scholar 

Boo S, Ahn Y, Lee JE, Kang N, Kang H, Sohn M. Diabetes-specific quality of life of Korean children and adolescents with type 1 diabetes. Int J Nurs Knowl 2016 01 Feb;27(2):62–9. PubMed PMID: 615256237. English.

Boogerd EA, Damhuis AMA, van Alfen-van JAEM, Steeghs MCCH, Noordam C, Verhaak CM, et al. Assessment of psychosocial problems in children with type 1 diabetes and their families: the added value of using standardised questionnaires in addition to clinical estimations of nurses and paediatricians. J Clin Nurs. 2015;24(15–16):2143–51. PubMed PMID: 2015-10865-001.

Article  PubMed  Google Scholar 

Fortenberry KT, Berg CA, King PS, Stump T, Butler JM, Pham PK, et al. Longitudinal trajectories of illness perceptions among adolescents with type 1 diabetes. J Pediatr Psychol. 2014;39(7):687–96. PubMed PMID: 2014-31368-003.

Article  PubMed  PubMed Central  Google Scholar 

Harrington KR, Shapira A, Volkening LK, Butler DA, Anderson BJ, Wasserman RM et al. Associations of diabetes self-management characteristics, HbA1c, and psychosocial outcomes with depressive symptoms in a contemporary sample of adolescents with type 1 diabetes. J Diabetes its Complications 2021 March;35(3) (no pagination)(107838). PubMed PMID: 2010619323. English.

Hilliard ME, Herzer M, Dolan LM, Hood KK. Psychological screening in adolescents with type 1 diabetes predicts outcomes one year later. Diabetes Res Clin Pract 2011 October;94(1):39–44. PubMed PMID: 51470247. English.

Ingerski LM, Laffel L, Drotar D, Repaske D, Hood KK. Correlates of glycemic control and quality of life outcomes in adolescents with type 1 diabetes. Pediatr Diabetes. 2010 December;11(8):563–71. PubMed PMID: 360095916. English.

Kalyva E, Abdul-Rasoul M, Kehl D, Barkai L, Lukacs A. A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus. J Diabetes its Complications 2016 01 Apr;30(3):482–7. PubMed PMID: 607899142. English.

Kamody RC, Berlin KS, Rybak TM, Klages KL, Banks GG, Ali JS, et al. Psychological flexibility among youth with type 1 diabetes: relating patterns of acceptance, adherence, and stress to adaptation. Behav Med. 2018;44(4):271–9. PubMed PMID: 2018-49970-002.

Article  PubMed  Google Scholar 

Lukacs A, Mayer K, Sasvari P, Barkai L. Health-related quality of life of adolescents with type 1 diabetes in the context of resilience. Pediatr Diabetes. 2018 December;19(8):1481–6. English.

Lukács A, Varga B, Kiss-Tóth E, Soós A, Barkai L. Factors influencing the diabetes-specific health-related quality of life in children and adolescents with type 1 diabetes mellitus. J Child Health Care. 2014;18(3):253–60. PubMed PMID: 2014-36305-006.