Andersen PM, Abrahams S, Borasio GD, De Carvalho M, Chio A, Van Damme P, EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis et al (2012) EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)—revised report of an EFNS task force. Eur J Neurol 19:360–375
Jimenez JV, Ackrivo J, Hsu JY, Wilson MW, Labaki WW, Hansen-Flaschen J et al (2023) Lowering PCO2 with non-invasive ventilation is associated with improved survival in chronic hypercapnic respiratory failure. Respir Care. https://doi.org/10.4187/respcare.10813
Article PubMed PubMed Central Google Scholar
Gonzalez-Bermejo J, Morelot-Panzini C, Arnol N, Meininger V, Kraoua S, Salachas F et al (2013) Prognostic value of efficiently correcting nocturnal desaturations after one month of non-invasive ventilation in amyotrophic lateral sclerosis: a retrospective monocentre observational cohort study. Amyotroph Lateral Scler Frontotemporal Degener 14(5–6):373–379
Khamankar N, Coan G, Weaver B, Mitchell CS (2018) Associative increases in amyotrophic lateral sclerosis survival duration with non-invasive ventilation initiation and usage protocols. Front Neurol 12(9):578. https://doi.org/10.3389/fneur.2018.00578
Ackrivo J, Hsu JY, Hansen-Flaschen J, Elman L, Kawut SM (2021) Noninvasive ventilation use is associated with better survival in amyotrophic lateral sclerosis. Ann Am Thorac Soc 18(3):486–494. https://doi.org/10.1513/AnnalsATS.202002-169OC
Article PubMed PubMed Central Google Scholar
Georges M, Attali V, Golmard JL, Morélot-Panzini C, Crevier-Buchman L, Collet JM et al (2016) Reduced survival in patients with ALS with upper airway obstructive events on non-invasive ventilation. J Neurol Neurosurg Psychiatr 87(10):1045–1050
Gonzalez J, Sharshar T, Hart N, Chadda K, Raphaël JC, Lofaso F (2003) Air leaks during mechanical ventilation as a cause of persistent hypercapnia in neuromuscular disorders. Intensive Care Med 29(4):596–602
Janssens JP, Borel JC, Pépin JL, Group S (2011) Nocturnal monitoring of home non-invasive ventilation: the contribution of simple tools such as pulse oximetry, capnography, built-in ventilator software and autonomic markers of sleep fragmentation. Thorax 66:438–445
Georges M, Perez T, Rabec C, Jacquin L, Finet-Monnier A, Ramos C et al (2022) Proposals from a French expert panel for respiratory care in ALS patients. Respir Med Res. 81:100901
Vitacca M, Montini A, Lunetta C, Banfi P, Bertella E, De Mattia E, Lizio A, Volpato E, Lax A, Morini R, Paneroni M, ALS RESPILOM Study Group (2018) Impact of an early respiratory care programme with non-invasive ventilation adaptation in patients with amyotrophic lateral sclerosis. Eur J Neurol 25(3):556-e33. https://doi.org/10.1111/ene.13547
Article CAS PubMed Google Scholar
Jacobs TL, Brown DL, Baek J, Migda EM, Funckes T, Gruis KL (2016) Trial of early noninvasive ventilation for ALS: a pilot placebo-controlled study. Neurology 87(18):1878–1883. https://doi.org/10.1212/WNL.0000000000003158
Article CAS PubMed PubMed Central Google Scholar
Vitacca M, Banfi P, Montini A, Paneroni M (2020) Does timing of initiation influence acceptance and adherence to NIV in patients with ALS? Pulmonology 26:45–48
Article CAS PubMed Google Scholar
Sarasate M, González N, Córdoba-Izquierdo A, Prats E, Gonzalez-Moro JMR, Martí S et al (2023) Impact of early non-invasive ventilation in amyotrophic lateral sclerosis: a multicenter randomized controlled trial. J Neuromuscul Dis 10(4):627–637. https://doi.org/10.3233/JND-221658
Article PubMed PubMed Central Google Scholar
Réginault T, Bouteleux B, Wibart P, Mathis S, Le Masson G, Pillet O et al (2023) At-home noninvasive ventilation initiation with telemonitoring in amyotrophic lateral sclerosis patients: a retrospective study. ERJ Open Res 9(1):00438–02022. https://doi.org/10.1183/23120541.00438-2022.PMID:36861058;PMCID:PMC9969309
Article PubMed PubMed Central Google Scholar
Haute Autorité de Santé. Ventilation mécanique à domicile. Dispositifs médicaux et prestations associées pour traitement de l’insuffisance respiratoire. 20 Novembre 2012. pp 59–63. Available from: https://www.has-sante.fr/upload/docs/application/pdf/2013-01rapport_ventilation_cnedimts_2013.pdf
Gauthier J, Wu QV, Gooley TA (2020) Cubic splines to model relationships between continuous variables and outcomes: a guide for clinicians. Bone Marrow Transpl 55(4):675–680. https://doi.org/10.1038/s41409-019-0679-x
Polkey MI, Lyall RA, Yang K, Johnson E, Leigh PN, Moxham J (2017) Respiratory muscle strength as a predictive biomarker for survival in amyotrophic lateral sclerosis. Am J Respir Crit Care Med 195(1):86–95. https://doi.org/10.1164/rccm.201604-0848OC.PMID:27494149;PMCID:PMC5214920
Article PubMed PubMed Central Google Scholar
Arnulf I, Similowski T, Salachas F, Garma L, Mehiri S, Attali V, Behin-Bellhesen V, Meininger V, Derenne JP (2000) Sleep disorders and diaphragmatic function in patients with amyotrophic lateral sclerosis. Am J Respir Crit Care Med 161(3 Pt 1):849–856. https://doi.org/10.1164/ajrccm.161.3.9805008. (PMID: 10712332)
Article CAS PubMed Google Scholar
Boentert M, Brenscheidt I, Glatz C, Young P (2015) Effects of non-invasive ventilation on objective sleep and nocturnal respiration in patients with amyotrophic lateral sclerosis. J Neurol 262(9):2073–82
Article CAS PubMed Google Scholar
Vrijsen B, Buyse B, Belge C, Robberecht W, Van Damme P, Decramer M et al (2015) Noninvasive ventilation improves sleep in amyotrophic lateral sclerosis: a prospective polysomnographic study. J Clin Sleep Med 11(5):559–66
Article PubMed PubMed Central Google Scholar
Katzberg HD, Selegiman A, Guion L, Yuan N, Cho SC, Katz JS et al (2013) Effects of noninvasive ventilation on sleep outcomes in amyotrophic lateral sclerosis. J Clin Sleep Med 9(4):345–51
Article PubMed PubMed Central Google Scholar
Vandoorne E, Vrijsen B, Belge C, Testelmans D, Buyse B (2016) Noninvasive ventilation in amyotrophic lateral sclerosis: effects on sleep quality and quality of life. Acta Clin Belg 71(6):389–94
Rault C, Sangaré A, Diaz V, Ragot S, Frat JP, Raux M, Similowski T, Robert R, Thille AW, Drouot X (2020) Impact of sleep deprivation on respiratory motor output and endurance. A physiological study. Am J Respir Crit Care Med 201(8):976–983. https://doi.org/10.1164/rccm.201904-0819OC
Chen HI, Tang YR (1989) Sleep loss impairs inspiratory muscle endurance. Am Rev Respir Dis 140(4):907–909. https://doi.org/10.1164/ajrccm/140.4.907. (PMID: 2802378)
Article CAS PubMed Google Scholar
Opp MR (2009) Sleeping to fuel the immune system: mammalian sleep and resistance to parasites. BMC Evol Biol 9(9):8
Article PubMed PubMed Central Google Scholar
Majde JA, Krueger JM (2005) Links between the innate immune system and sleep. J Allergy Clin Immunol 116(6):1188–1198
Article CAS PubMed Google Scholar
Sancho J, Martínez D, Bures E, Díaz JL, Ponz A, Servera E (2018) Bulbar impairment score and survival of stable amyotrophic lateral sclerosis patients after noninvasive ventilation initiation. ERJ Open Res 4(2):00159–02017. https://doi.org/10.1183/23120541.00159-2017.PMID:29670892;PMCID:PMC5900060
Article PubMed PubMed Central Google Scholar
Gonzalez Calzada N, Prats Soro E, Mateu Gomez L, Giro Bulta E, Cordoba Izquierdo A, PovedanoPanades M et al (2016) Factors predicting survival in amyotrophic lateral sclerosis patients on non-invasive ventilation. Amyotroph Lateral Scler Frontotemporal Degener 17:337–342
Lo Coco D, Marchese S, Pesco MC, La Bella V, Piccoli F, Lo CA (2006) Noninvasive positive-pressure ventilation in ALS: predictors of tolerance and survival. Neurology 67(5):761–765. https://doi.org/10.1212/01.wnl.0000227785.73714.64. (Epub 2006 Aug 9 PMID: 16899545)
Article CAS PubMed Google Scholar
Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ (2006) Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurol 5(2):140–147
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