Identifying and Validating Indices of Happiness and Unhappiness in Autistic Children and Examining Them as Quality of Life Indicators During Presession Pairing

Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D. (2018). A systematic review of quality of life of adults on the autism spectrum. Autism, 22(7), 774–783. https://doi.org/10.1177/1362361317714988

Article  PubMed  Google Scholar 

Barneveld, P. S., Swaab, H., Fagel, S., van Engeland, H., & de Sonneville, L. M. J. (2014). Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood. Comprehensive Psychiatry, 55(2), 302–310. https://doi.org/10.1016/j.comppsych.2013.08.001

Article  PubMed  Google Scholar 

Biggs, E. E., & Carter, E. W. (2016). Quality of life for transition-age youth with autism or intellectual disability. Journal of Autism and Developmental Disorders, 46(1), 190–204. https://doi.org/10.1007/s10803-015-2563-x

Article  PubMed  Google Scholar 

Billstedt, E., Gillberg, I. C., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism, 15(1), 7–20. https://doi.org/10.1177/1362361309346066

Article  PubMed  Google Scholar 

Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful Outcomes. Child and Adolescent Mental Health, 12(2), 80–86. https://doi.org/10.1111/j.1475-3588.2006.00432.x

Article  PubMed  Google Scholar 

Carbone, V. J., Morgenstern, B., Zecchin-Tirri, G., & Kolberg, L. (2010). The role of the reflexive-conditioned motivating operation (CMO-R) during discrete trial instruction of children with autism. Focus on Autism and Other Developmental Disabilities, 25(2), 110–124. https://doi.org/10.1177/1088357610364393

Article  Google Scholar 

Cariveau, T., Shillingsburg, M. A., Alamoudi, A., Thompson, T., Bartlett, B., Gillespie, S., & Scahill, L. (2020). A structured intervention to increase response allocation to instructional settings for children with autism spectrum disorder. Journal of Behavioral Education, 29(4), 699–716. https://doi.org/10.1007/s10864-019-09340-x

Article  Google Scholar 

Carr, E. G. (2007). The expanding vision of positive behavior support: Research perspectives on happiness, helpfulness, hopefulness. Journal of Positive Behavior Interventions, 9(1), 3–14. https://doi.org/10.1177/10983007070090010201

Article  Google Scholar 

Chiang, H., & Wineman, I. (2014). Factors associated with quality of life in individuals with autism spectrum disorders: A review of literature. Research in Autism Spectrum Disorders, 8(8), 974–986. https://doi.org/10.1016/j.rasd.2014.05.003

Article  Google Scholar 

Daniolou, S., Pandis, N., & Znoj, H. (2022). The efficacy of early interventions for children with autism spectrum disorders: A systematic review and meta-analysis. Journal of Clinical Medicine, 11(17), 5100–5128. https://doi.org/10.3390/jcm11175100

Article  PubMed  PubMed Central  Google Scholar 

Dawson-Squibb, J., & de Vries, P. J. (2019). Developing an evaluation framework for parent education and training in autism spectrum disorder: Results of a multi-stakeholder process. Journal of Autism and Developmental Disorders, 49(11), 4468–4481. https://doi.org/10.1007/s10803-019-04176-w

Article  PubMed  Google Scholar 

Dillon, C. M., & Carr, J. E. (2007). Assessing indices of happiness and unhappiness in individuals with developmental disabilities: A review. Behavioral Interventions, 22(3), 229–244. https://doi.org/10.1002/bin.240

Article  Google Scholar 

Egilson, S. T., Ólafsdóttir, L. B., Leósdóttir, T., & Saemundsen, E. (2017). Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports. Autism, 21(2), 133–141. https://doi.org/10.1177/1362361316630881

Article  PubMed  Google Scholar 

Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16(1), 51–74. https://doi.org/10.1016/0891-4222(94)00028-8

Article  PubMed  Google Scholar 

Fingerhut, J., Xu, X., & Moeyaert, M. (2021). Selecting the proper Tau-U measure for single-case experimental designs: Development and application of a decision flowchart. Evidence-Based Communication Assessment and Intervention, 15(3), 99–114. https://doi.org/10.1080/17489539.2021.1937851

Article  Google Scholar 

Geiger, K. B., Carr, J. E., LeBlanc, L. A., Hanney, N. M., Polick, A. S., & Heinicke, M. R. (2012). Teaching receptive discriminations to children with autism: A comparison of traditional and embedded discrete trial teaching. Behavior Analysis in Practice, 5(2), 49–59. https://doi.org/10.1007/bf03391823

Article  PubMed  PubMed Central  Google Scholar 

Gormley, L., Penrose, H., Bracken, M., & Barron, B. (2020). Training behavioural therapists in presession pairing skills to evaluate the impact on children’s life skill acquisition rates. International Journal of Developmental Disabilities, 66(5), 339–347. https://doi.org/10.1080/20473869.2020.1827209

Article  PubMed  PubMed Central  Google Scholar 

Green, C. W., & Reid, D. H. (1996). Defining, validating, and increasing indices of happiness among people with profound multiple disabilities. Journal of Applied Behavior Analysis, 29(1), 67–78. https://doi.org/10.1901/jaba.1996.29-67

Article  PubMed  PubMed Central  Google Scholar 

Health Information and Quality Authority. (2019). Guidance on a human rights-based approach in health and social care services. https://www.hiqa.ie/sites/default/files/2019-11/Human-Rights-Based-Approach-Guide.PDF

Hong, J., Bishop-Fitzpatrick, L., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016). Factors associated with subjective quality of life of adults with autism spectrum disorder: Self-report versus maternal reports. Journal of Autism and Developmental Disorders, 46(4), 1368–1378. https://doi.org/10.1007/s10803-015-2678-0

Article  PubMed  PubMed Central  Google Scholar 

Hume, K., Steinbrenner, J. R., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., Szendrey, S., McIntyre, N. S., Yücesoy-Özkan, S., & Savage, M. N. (2021). Evidence-based practices for children, youth, and young adults with autism: Third generation review. Journal of Autism and Developmental Disorders, 51(11), 4013–4032. https://doi.org/10.1007/s10803-020-04844-2

Article  PubMed  PubMed Central  Google Scholar 

Ikeda, E., Hinckson, E., & Krägeloh, C. (2014). Assessment of quality of life in children and youth with autism spectrum disorder: A critical review. Quality of Life Research, 23(4), 1069–1085. https://doi.org/10.1007/s11136-013-0591-6

Article  PubMed  Google Scholar 

Kamp-Becker, I., Schröder, J., Muehlan, H., Remschmidt, H., Becker, K., & Bachmann, C. J. (2011). Health-related quality of life in children and adolescents with autism spectrum disorder. Zeitschrift für Kinder-und Jugendpsychiatrie und Psychotherapie, 39(2), 123–131. https://doi.org/10.1024/1422-4917/a000098

Article  PubMed  Google Scholar 

Kamp-Becker, I., Schröder, J., Remschmidt, H., & Bachmann, C. J. (2010). Health-related quality of life in adolescents and young adults with high functioning autism-spectrum disorder. GMS Psycho-Social-Medicine, 7, 1–10. https://doi.org/10.3205/psm000065

Article  Google Scholar 

Kelly, A. N., Axe, J. B., Allen, R. F., & Maguire, R. W. (2015). Effects of presession pairing on the challenging behavior and academic responding of children with autism. Behavioral Interventions, 30(2), 135–156. https://doi.org/10.1002/bin.1408

Article  Google Scholar 

Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. https://doi.org/10.1007/s10803-010-1140-6

Article  PubMed  Google Scholar 

Lancioni, G. E., Singh, N. N., O’Reilly, M. F., Oliva, D., & Basili, G. (2005). An overview of research on increasing indices of happiness of people with severe/profound intellectual and multiple disabilities. Disability & Rehabilitation, 27(3), 83–93. https://doi.org/10.1080/09638280400007406

Article  Google Scholar 

Lattimore, L. P., Parsons, M. B., & Reid, D. H. (2009). Rapid training of a community job skill to nonvocal adults with autism: An extension of intensive teaching. Behavior Analysis in Practice, 2(1), 34–42. https://doi.org/10.1007/bf03391735

Article  PubMed  PubMed Central  Google Scholar 

Lee, J. B., & Cherney, L. R. (2018). Tau-U: A quantitative approach for analysis of single-case experimental data in aphasia. American Journal of Speech-Language Pathology, 27(1S), 495–503. https://doi.org/10.1044/2017_ajslp-16-0197

Article  PubMed  Google Scholar 

Lugo, A. M., King, M. L., Lamphere, J. C., & McArdle, P. E. (2017). Developing procedures to improve therapist–child rapport in early intervention. Behavior Analysis in Practice, 10(4), 395–401. https://doi.org/10.1007/s40617-016-0165-5

Article  PubMed  PubMed Central  Google Scholar 

Lugo, A. M., McArdle, P. E., King, M. L., Lamphere, J. C., Peck, J. A., & Beck, H. J. (2019). Effects of presession pairing on preference for therapeutic conditions and challenging behavior. Behavior Analysis in Practice, 12(1), 188–193. https://doi.org/10.1007/s40617-018-0268-2

Article  PubMed  Google Scholar 

Maggin, D. M., O'Keeffe, B. V., & Johnson, A. H. (2011). A quantitative synthesis of methodology in the meta-analysis of single-subject research for students with disabilities: 1985–2009. Exceptionality, 19(2), 109–135. https://doi.org/10.1080/09362835.2011.565725

Article  Google Scholar 

Makrygianni, M. K., Gena, A., Katoudi, S., & Galanis, P. (2018). The effectiveness of applied behavior analytic interventions for children with autism spectrum disorder: A meta-analytic study. Research in Autism Spectrum Disorders, 51, 18–31. https://doi.org/10.1016/j.rasd.2018.03.006

Article  Google Scholar 

Mason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018). Predictors of quality of life for autistic adults. Autism Research, 11(8), 1138–1147. https://doi.org/10.1002/aur.1965

Article  PubMed  PubMed Central  Google Scholar 

McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2018). Enhancing the validity of a quality of life measure for autistic people. Journal of Autism and Developmental Disorders, 48(5), 1596–1611. https://doi.org/10.1007/s10803-017-3402-z

Article  PubMed  Google Scholar 

McGill, P. (1999). Establishing operations: Implications for the assessment, treatment, and prevention of problem behavior. Journal of Applied Behavior Analysis, 32(3), 393–418. https://doi.org/10.1901/jaba.1999.32-393

Article  PubMed Central  Google Scholar 

McLaughlin, D. M., & Carr, E. G. (2005). Quality of rapport as a setting event for problem behavior: Assessment and intervention. Journal of Positive Behavior Interventions, 7(2), 68–91.

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