1. World Health Organization . Dementia.
https://www.who.int/news-room/fact-sheets/detail/dementia. Updated September 21, 2020. Accessed June 28, 2021.
Google Scholar2. World Health Organization . Global Action Plan on the Public Health Response to Dementia 2017-2025. 2017.
https://apps.who.int/iris/bitstream/handle/10665/259615/9789241513487-eng.pdf. Accessed June 28, 2021.
Google Scholar3. Lunney, JR, Lynn, J, Foley, DJ, Lipson, S, Guralnik, JM. Patterns of functional decline at the end of life. JAMA. 2003;289(18):2387-2392. doi:
10.1001/jama.289.18.2387.
Google Scholar |
Crossref |
Medline |
ISI4. Stallard, E, Kinosian, B, Stern, Y. Personalized predictive modeling for patients with Alzheimer’s disease using an extension of Sullivan’s life table model. Alz Res Therapy. 2017;9:75. doi:
10.1186/s13195-017-0302-6.
Google Scholar |
Crossref5. Yadav, KN, Gabler, NB, Cooney, E, et al.. Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Aff. 2017;36(7):1244-1251. doi:
10.1377/hlthaff.2017.0175.
Google Scholar |
Crossref |
Medline6. Dixon, J, Karagiannidou, M, Knapp, M. The effectiveness of advance care planning in improving end-of-life outcomes for people with dementia and their carers: A systematic review and critical discussion. J Pain Symptom Manag. 2018;55(1):132-150. doi:
10.1016/j.jpainsymman.2017.04.009.
Google Scholar |
Crossref |
Medline7. Ornstein, KA, Kelley, AS, Bollens-Lund, E, Wolff, JL. A national profile of end-of-life caregiving in the United States. Health Aff. 2017;36(7):1184-1192. doi:
10.1377/hlthaff.2017.0134.
Google Scholar |
Crossref |
Medline8. U.S. Department of Health and Human Services . National Plan to Address Alzheimer's Disease: 2018 Update. 2018.
https://aspe.hhs.gov/system/files/pdf/259581/NatPlan2018.pdf. Accessed June 28, 2021.
Google Scholar9. NHATS. About NHATS & NSOC .
https://www.nhats.org/researcher/about.
https://www.nhats.org/researcher/about. Accessed June 28, 2021
Google Scholar10. Hunt, LJ, Lee, SJ, Harrison, KL, Smith, AK. Secondary analysis of existing datasets for dementia and palliative care research: high-value applications and key considerations. J Palliat Med. 2018;21(2):130-142. doi:
10.1089/jpm.2017.0309.
Google Scholar |
Crossref |
Medline11. Freedman, VA . Adopting the ICF language for studying late-life disability: A field of dreams?. J Gerontol A Biol Sci Med Sci. 2009;64A(11):1172-1174. doi:
10.1093/gerona/glp095.
Google Scholar |
Crossref12. Montaquila, J, Freedman, VA, Edwards, B, Kasper, JD. National Health and Aging Trends Study Round 1 Sample Design and Selection. NHATS Technical Paper #1; 2012.
https://www.nhats.org/sites/default/files/2021-01/NHATS%20Round%201%20Sample%20Design%2005_10_12_2.pdf. Accessed May 7, 2021.
Google Scholar13. Montaquila, J, Freedman, VA, Spillman, B, Kasper, JD. National Health and Aging Trends Study Development of Round 1 Survey Weights. NHATS Technical Paper #2; 2012.
https://www.nhats.org/sites/default/files/2021-01/NHATS%20Round%201%20Weighting%20Description_Nov2012_3.pdf. Accessed August 4, 2021.
Google Scholar14. Kasper, JD, Freedman, VA. National Health and Aging Trends Study (NHATS) User Guide: Rounds 1-9 Final Release; 2020.
https://www.nhats.org/sites/default/files/2021-04/NHATS_User_Guide_R9_Final_Release_0.pdf. Accessed June 28, 2021.
Google Scholar15. Freedman, VA, Skehan, ME, Hu, M, Wolff, J, Kasper, JD. National Study of Caregiving I-III User Guide.Version 5.0; 2020.
https://www.nhats.org/sites/default/files/2021-04/NSOC%20I-III%20USER%20GUIDE%20Version%205_Final.pdf. Accessed June 28, 2021
Google Scholar16. Amjad, H, Snyder, SH, Wolff, JL, Oh, E, Samus, QM. Before hospice: Symptom burden, dementia, and social participation in the last year of life. J Palliat Med. 2019;22(9):1106-1114. doi:
10.1089/jpm.2018.0479.
Google Scholar |
Crossref |
Medline17. Kasper, JD, Freedman, VA, Spillman, BC, Wolff, JL. The disproportionate impact of dementia on family and unpaid caregiving to older adults. Health Aff. 2015;34(10):1642-1649. doi:
10.1377/hlthaff.2015.0536.
Google Scholar |
Crossref |
Medline18. Vick, JB, Ornstein, KA, Szanton, SL, Dy, SM, Wolff, JL. Does caregiving strain increase as patients with and without dementia approach the end of life? J Pain Symptom Manag. 2019;57(2):199-208. e2. doi:
10.1016/j.jpainsymman.2018.11.00419.
Google Scholar |
Crossref |
Medline19. Kasper, JD, Freedman, VA, Spillman, BC. Classification of persons by dementia status in the National Health and Aging Trends Study. 2013. Technical Paper #5.
https://nhatspubdemo.westat.com/scripts/documents/NHATS_Dementia_Technical_Paper_5_Jul2013.pdf. Accessed June 28, 2021
Google Scholar20. Kasper, JD, Freedman, VA, Spillman, BC, Skehan, ME. Addendum to Classification of Persons by Dementia Status in the National Health and Aging Trends Study for Follow-Up Rounds; 2020.
https://www.nhats.org/researcher/nhats/methods-documentation?id=technical-papers. Accessed June 28, 2021.
Google Scholar21. Spillman, BC, Skehan, ME. SAS Programming Statements for Construction of Dementia Classification in the National Health and Aging Trends Study; 2013. Addendum to NHATS Technical Paper #5.
https://nhatspubdemo.westat.com/Scripts/documents/NHATS_Addendum_to_Technical_Paper_5_SAS_Programming_Statements_Jul2013.pdf. Accessed June 28, 2021.
Google Scholar22. Galvin, JE, Roe, CM, Powlishta, KK, Coats, MA, Muich, SJ, Grant, E, et al. The AD8: A brief informant interview to detect dementia. Neurology. 2005;65(4):559-564. doi:
10.1212/01.wnl.0000172958.95282.2a.
Google Scholar |
Crossref |
Medline |
ISI23. Galvin, JE, Roe, CM, Xiong, C, Morris, JC. Validity and reliability of the AD8 informant interview in dementia. Neurology. 2006;67(11):1942-1948. doi:
10.1212/01.wnl.0000247042.15547.eb.
Google Scholar |
Crossref |
Medline |
ISI24. Pristavec, T, Luth, EA. Informal caregiver burden, benefits, and older adult mortality: A survival analysis. J Gerontol B Psychol Sci Soc Sci. 2020;75(10):2193-2206. doi:
10.1093/geronb/gbaa001T.
Google Scholar |
Crossref |
Medline25. Spillman, BC, Wolff, JL, Freedman, VA, Kasper, JD. Informal caregiving for older Americans: An analysis of the 2011 National Survey of Caregiving. Washington, DC: Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation.
https://aspe.hhs.gov/system/files/pdf/77146/NHATS-IC.pdf. Accessed October 11, 2021.
Google Scholar26. Freedman, VA, Kasper, JD. Cohort Profile: The National Health and Aging Trends Study (NHATS). Int J Epidemiol. 2019;48(4):1044-1045g. doi:
10.1093/ije/dyz109.
Google Scholar |
Crossref |
Medline27. Alzheimer's Association . Facts and Figures; 2021.
https://www.alz.org/alzheimers-dementia/facts-figures. Accessed June 28, 2021.
Google Scholar28. Fetherstonhaugh, D, McAuliffe, L, Bauer, M, Shanley, C. Decision-making on behalf of people living with dementia: How do surrogate decision-makers decide? J Med Ethics. 2017;43(1):35-40. doi:
10.1136/medethics-2015-103301.
Google Scholar |
Crossref |
Medline29. Melis, RJF, Haaksma, ML, Muniz-Terrera, G. Understanding and predicting the longitudinal course of dementia. Curr Opin Psychiatry. 2019;32(2):123-129. doi:
10.1097/YCO.0000000000000482.
Google Scholar |
Crossref |
Medline
留言 (0)