1. Yadav, K. N., Gabler, N. B., Cooney, E., et al. Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Aff. 2017;36(7):1244-1251. doi:10.1377/HLTHAFF.2017.0175.
Google Scholar | Crossref | Medline2. Kavalieratos, D., Ernecoff, N. C., Keim-Malpass, J., Degenholtz, H. B.. Knowledge, attitudes, and preferences of healthy young adults regarding advance care planning: a focus group study of university students in Pittsburgh, USA. BMC Publ Health, 2015;15:197. 10.1186/s12889-015-1575-y.
Google Scholar | Crossref | Medline | ISI3. Schnur, K., Radhakrishnan, K.. Young adult knowledge and readiness to engage in advance care planning behaviors. J Hospice Palliat Nurs. 2019;21(1):54-60. doi:10.1097/NJH.0000000000000487.
Google Scholar | Crossref | Medline4. Kazmerski, T. M., Weiner, D. J., Matisko, J., et al. Advance care planning in adolescents with cystic fibrosis: A quality improvement project. Pediatr Pulmonol. 2016;51(12):1304-1310. doi:10.1002/PPUL.23559.
Google Scholar | Crossref | Medline5. Geshell, L., Kwak, J., Radhakrishnan, K.. Perspectives and Experiences of Persons With Dementia With Advance Care Planning: An Integrative Literature Review. J Geriatr Psychiatr Neurol. 2019;32(5):231-245. doi:10.1177/0891988719853040.
Google Scholar | SAGE Journals | ISI6. Kass-Bartelmes, B. L., Hughes, R.. Advance care planning. J Pain Palliat Care Pharmacother. 2004;18(1):87-109. https://pubmed.ncbi.nlm.nih.gov/15148012/. Accessed August 16, 2021.
Google Scholar | Medline7. Beck, E.-R., McIlfatrick, S., Hasson, F., Leavey, G.. Health care professionals' perspectives of advance care planning for people with dementia living in long-term care settings: A narrative review of the literature. Dementia. 2015;16(4):486-512. doi:10.1177/1471301215604997.
Google Scholar | SAGE Journals8. Kelly, A. J., Luckett, T., Clayton, J. M., Gabb, L., Kochovska, S., Agar, M.. Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis. Palliat Support Care. 2019;17(6):707-719. doi:10.1017/S1478951519000257.
Google Scholar | Crossref | Medline9. CDC NC for HS . FastStats - Accidents or Unintentional Injuries. CDC NC for HS; 2021. https://www.cdc.gov/nchs/fastats/accidental-injury.htm. Accessed August 16, 2021.
Google Scholar10. Hou, P. Y., Lai, C. K. Y., Chung, C. S., Sham, A. K. K., Yeung, C. L.. Young adults' experiences of their parents caring for a relative with dementia. Geriatr Gerontol Int. 2016;16(7):873-879. doi:10.1111/GGI.12559.
Google Scholar | Crossref | Medline11. Hutchinson, K., Roberts, C., Kurrle, S., Daly, M.. The emotional well-being of young people having a parent with younger onset dementia. Dementia. 2016;15(4):609-628. doi:10.1177/1471301214532111.
Google Scholar | SAGE Journals | ISI12. Tripken, J. L., Elrod, C. S.. Young adults' perspectives on advance care planning. Am J Hospice Palliat Med. 2017;35(4):627-634. doi:10.1177/1049909117727456.
Google Scholar | SAGE Journals13. Kass-Bartelmes, B, Hughes, R. Advance Care Planning: Preferences for Care at the End of Life. J Pain Palliat Care Pharmacother. 2004;18(1):87-109. https://pubmed.ncbi.nlm.nih.gov/15148012/. Accessed July 22, 2021.
Google Scholar | Medline14. Emanuel, L. L., Barry, M. J., Emanuel, E. J., Stoeckle, J. D.. Advance directives: Can patients?? Stated treatment choices be used to infer unstated choices? Med Care. 1994;32(2):95-105. doi:10.1097/00005650-199402000-00001.
Google Scholar | Crossref | Medline15. Patrick, D. L., Pearlman, R. A., Starks, H. E., et al. Validation of preferences for life-sustaining treatment: Implications for advance care planning. Ann Intern Med. 1997;127(7):509-517. doi:10.7326/0003-4819-127-7-199710010-00002.
Google Scholar | Crossref | Medline16. Emanuel, L. L., Emanuel, E. J., Stoeckle, J. D., Hummel, L. R., Barry, M. J.. Advance directives. Arch Intern Med. 1994;154(2):209-217. doi:10.1001/ARCHINTE.154.2.209.
Google Scholar | Crossref | Medline17. Nicholas, L. H., Langa, K. M., Iwashyna, T. J., Weir, D. R.. Regional variation in the association between advance directives and end-of-life medicare expenditures. JAMA. 2011;306(13):1447-1453. doi:10.1001/JAMA.2011.1410.
Google Scholar | Crossref | Medline | ISI18. Silveira, M. J., Kim, S. Y. H., Langa, K. M.. Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010;362(13):1211-1218. doi:10.1056/NEJMSA0907901.
Google Scholar | Crossref | Medline | ISI19. Teno, J. M., Gruneir, A., Schwartz, Z., Nanda, A., Wetle, T., Ave, S. Association between advance directives and quality of end-of-life care: A national study. J Am Geriatr Soc. 2007;55:189-194. doi:10.1111/j.1532-5415.2007.01045.x.
Google Scholar | Crossref | Medline | ISI20. Aging with Dignity. Accessed July 20, 2021. https://agingwithdignity.org/
Google Scholar21. Respecting Choices . Person-Centered Care. Respecting Choices; 2021. Accessed July 20, 2021. https://respectingchoices.org/
Google Scholar22. Koch, K. A. . Patient self-determination act. J Fla Med Assoc. 1992;79(4):240-3.
Google Scholar | Medline23. H.R. 4449 - 101st Congress Patient Self Determination Act of 1990. Congress.gov, Library of Congress. 1989-1990. https://www.congress.gov/bill/101st-congress/house-bill/4449/text. Accessed July 20, 2021.
Google Scholar24. Mackenzie, M. A., Smith-Howell, E., Bomba, P. A., Meghani, S. H.. Respecting choices and related models of advance care planning: A systematic review of published evidence. Am J Hospice Palliat Med, 2018;35:897-907. 10.1177/1049909117745789.
Google Scholar | SAGE Journals | ISI25. Sanders, S., Robinson, E. L.. Engaging college undergraduates in advance care planning. Omega J Death Dying. 2017;74(3):329-344. doi:10.1177/0030222815598912.
Google Scholar | SAGE Journals | ISI26. Halpern, J., Arnold, R. M.. Affective forecasting: An unrecognized challenge in making serious health decisions. J Gen Intern Med. 2008;23(10):1708-1712. doi:10.1007/S11606-008-0719-5.
Google Scholar | Crossref | Medline | ISI27. Ahmad, F. B., Anderson, R. N.. The leading causes of death in the US for 2020. JAMA. 2021;325(18):1829-1830. doi:10.1001/JAMA.2021.5469.
Google Scholar | Crossref | Medline28. Woolf, S. H., Chapman, D. A., Lee, J. H.. COVID-19 as the Leading Cause of Death in the United States. JAMA. 2021;325(2):123-124. 10.1001/jama.2020.24865.
Google Scholar | Crossref | Medline