Peer Support Experienced by Mothers of Children With Congenital Heart Defects in Sweden

Bellander, T., Nikolaidou, Z. (2017). Building health knowledge online: Parents’ online information searching on congenital heart defects. Literacy and Numeracy Studies, 25(1), 4–19. https://doi.org/10.5130/Ins.v25i1.5358
Google Scholar Bernecker, S. L., Williams, J. J., Caporale-Berkowitz, N. A., Wasil, A. R., Constantino, M. J. (2020). Nonprofessional peer support to improve mental health: Randomized trial of a scalable web-based peer counseling course. Journal of Medical Internet Research, 22(9), e17164. https://doi.org/10.2196/17164
Google Scholar | Crossref Bratt, E.-L., Järvholm, S., Ekman-Joelsson, B.-M., Johannsmeyer, A., Carlsson, S.-Å., Mattsson, L.-Å., Mellander, M. (2019). Parental reactions, distress, and sense of coherence after prenatal versus postnatal diagnosis of complex congenital heart disease. Cardiology in the Young, 29(11), 1328–1334. https://doi.org/10.1017/S1047951119001781
Google Scholar | Crossref Bratt, E.-L., Järvholm, S., Ekman-Joelsson, B.-M., Mattson, L.-Å., Mellander, M. (2015). Parent’s experiences of counselling and their need for support following a prenatal diagnosis of congenital heart disease—A qualitative study in a Swedish context. BMC Pregnancy & Childbirth, 15, 171. https://doi.org/10.1186/s12884-015-0610-4
Google Scholar | Crossref Bruce, E., Lilja, C., Sundin, K. (2014). Mothers’ lived experiences of support when living with young children with congenital heart defects. Journal for Specialists in Pediatric Nursing, 19(1), 54–67. https://doi.org/10.1111/jspn.12049
Google Scholar | Crossref Bruce, E., Sundin, K. (2018). Pediatric nurses’ perception of support for families with children with congenital heart defects. Clinical Nursing Research, 27(8), 950–966. https://doi.org/10.1177/1054773817713419
Google Scholar | SAGE Journals Carlsson, T., Klarare, A., Mattsson, E. (2020). Peer support among parents of children with congenital heart defects: A qualitative analysis of written responses submitted via an online survey. Journal of Advanced Nursing, 76(12), 3528–3536. https://doi.org/10.1111/jan.14541
Google Scholar | Crossref Ewer, A. K. (2014). Pulse oximetry screening for critical congenital heart defects in newborn infants: Should it be routine? Archives of Disease in Childhood. Fetal and Neonatal Edition, 99(1), F93–F95. https://doi.org/10.1136/archdischild-2013-303968
Google Scholar | Crossref Forbes, T. H. (2014). Making the case for the nurse as the leader of care coordination. Nursing Forum, 49(3), 167–170. https://doi.org/10.1111/nuf.12064
Google Scholar | Crossref Franich-Ray, C., Bright, M. A., Anderson, V., Northam, E., Cochrane, A., Menahem, S., Jordan, B. (2013). Trauma reactions in mothers and fathers after their infant’s cardiac surgery. Journal of Pediatric Psychology, 38(5), 494–505. https://doi.org/10.1093/jpepsy/jst015
Google Scholar | Crossref Gramszlo, C., Karpyn, A., Demianczyk, A. C., Shillingford, A., Riegel, E., Kazak, A. E., Sood, E. (2020). Parent perspectives on family-based psychosocial interventions for congenital heart disease. The Journal of Pediatrics, 216, 51–57e2. https://doi.org/10.1016/j.jpeds.2019.09.059
Google Scholar | Crossref Hall, S. L., Ryan, D. J., Beatty, J., Grubbs, L. (2015). Recommendations for peer-to-peer support for NICU parents. Journal of Perinatology, Suppl, 351, S9–13. https://doi.org/10.1038/jp.2015.143
Google Scholar | Crossref Kukkola, L., Hovén, E., Cernvall, M., von Essen, L., Grönqvist, H. (2017). Perceptions of support among Swedish parents of children after end of successful cancer treatment: A prospective, longitudinal study. Acta Oncologica, 56(12), 1705–1711. https://doi.org/10.1080/0284186X.2017.1374554
Google Scholar | Crossref Liu, Y., Chen, S., Zülke, L., Black, G. C., Choy, M.-K., Li, N., Keavney, B. D. (2019). Global birth prevalence of congenital heart defects 1970-2017: Updated systematic review and meta-analysis of 260 studies. International Journal of Epidemiology, 48(2), 455–463. https://doi.org/10.1093/ije/dyz009
Google Scholar | Crossref Lytzen, R., Vejlstrup, N., Bjerre, J., Bjørn Petersen, O., Leenskjold, S., Keith Dodd, J., Stener Jørgensen, F., Søndergaard, L. (2019). The accuracy of prenatal diagnosis of major congenital heart disease is increasing. Journal of Obstetrics and Gynaecology, 40(3), 308–315. https://doi.org/10.1080/01443615.2019.1621814
Google Scholar | Crossref Malterud, K. (2012). Systematic text condensation: A strategy for qualitative analysis. Scandinavian Journal of Public Health, 40(8), 795–805. https://doi.org/10.1177/1403494812465030
Google Scholar | SAGE Journals Miranović, V. (2016). The incidence of congenital heart defects in the world regarding the severity of the defect. Military Medical and Pharmaceutical Journal of Serbia, 73(2), 159–164. https://doi.org/10.2298/vsp140917033m
Google Scholar | Crossref Nakikj, D. (2019). Investigating and supporting sensemaking within online health communities [Doctoral thesis]. Columbia University Libraries.
Google Scholar Niela-Vilén, H., Axelin, A., Salanterä, S., Melender, H.-L. (2014). Internet-based peer support for parents: A systematic integrative review. International Journal of Nursing Studies, 51(11), 1524–1537. https://doi.org/10.1016/j.ijnurstu.2014.06.009
Google Scholar | Crossref Opdenakker, R. (2006). Advantages and disadvantages of four interview techniques in qualitative research. Forum: Qualitative Social Research, 7(4), 11. https://doi.org/10.17169/fqs-7.4.175
Google Scholar Pelentsov, L. J., Fielder, A. L., Laws, T. A., Esterman, A. J. (2016). The supportive care needs of parents with a child with a rare disease: Results of an online survey. BMC Family Practice, 17, Article 88. https://doi.org/10.1186/s12875-016-0488-x
Google Scholar | Crossref Shilling, V., Morris, C., Thompson-Coon, J., Ukoumunne, O., Rogers, M., Logan, S. (2013). Peer support for parents of children with chronic disabling conditions: A systematic review of quantitative and qualitative studies. Developmental Medicine and Child Neurology, 55(7), 602–609. https://doi.org/10.1111/dmcn.12091
Google Scholar | Crossref Sood, E., Karpyn, A., Demianczyk, A. C., Ryan, J., Delaplane, E. A., Neely, T., Frazier, A. H., Kazak, A. E. (2018). Mothers and fathers experience stress of congenital heart disease differently: Recommendations for pediatric critical care. Pediatric Critical Care Medicine, 19(7), 626–634. https://doi.org/10.1097/PCC.0000000000001528
Google Scholar | Crossref Sturges, J. E., Hanrahan, K. J. (2004). Comparing telephone and face-to-face qualitative interviewing: A research note. Qualitative Research, 4(1), 107–118. https://doi.org/10.1177/1468794104041110
Google Scholar | SAGE Journals Watson, E. (2019). The mechanisms underpinning peer support: A literature review. Journal of Mental Health, 28(6), 677–688. https://doi.org/10.1080/09638237.2017.1417559
Google Scholar | Crossref Wei, H., Roscigno, C. I., Hanson, C. C., Swanson, K. M. (2015). Families of children with congenital heart disease: A literature review. Heart & Lung, 44(6), 494–511. https://doi.org/10.1016/j.hrtlng.2015.08.005
Google Scholar | Crossref

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