Baker, A., Barker, S., Sampson, A., Martin, C. (2017). Caregiver outcomes and interventions: A systematic scoping review of the traumatic brain injury and spinal cord injury literature. Clinical Rehabilitation, 31(1), 45–60.
https://doi.org/10.1177/0269215516639357 Google Scholar
Bermejo-Toro, L., Sánchez-Izquierdo, M., Calvete, E., Roldán, M. A. (2020). Quality of life, psychological well-being, and resilience in caregivers of people with acquired brain injury (ABI). Brain Injury, 34(4), 480–488.
https://doi.org/10.1080/02699052.2020.1725127 Google Scholar
Bleijenberg, N., de Man-van Ginkel, J. M., Trappenburg, J. C. A., Ettema, R. G. A., Sino, C. G., Heim, N., Hafsteindóttir, T. B., Richards, D. A., Schuurmans, M. J. (2018). Increasing value and reducing waste by optimizing the development of complex interventions: Enriching the development phase of the Medical Research Council (MRC) Framework. International Journal of Nursing Studies, 79, 86–93.
https://doi.org/10.1016/j.ijnurstu.2017.12.001 Google Scholar
Bogner, J., Hade, E. M., Peng, J., Beaulieu, C. L., Horn, S. D., Corrigan, J. D., Hammond, F. M., Dijkers, M. P., Montgomery, E., Gilchrist, K., Giuffrida, C., Lash, A., Timpson, M. (2019). Family involvement in traumatic brain injury inpatient rehabilitation: A propensity score analysis of effects on outcomes during the first year after discharge. Archives of Physical Medicine and Rehabilitation, 100(10), 1801–1809.
https://doi.org/10.1016/j.apmr.2019.04.008 Google Scholar
Boss, P. (2019). Building resilience: The example of ambiguous loss. In Huppertz, B. (Ed.), Approaches to psychic trauma: Theory and practice (pp. 91–106). Rowman & Littlefield.
Google Scholar
Bowen, D. J., Kreuter, M., Spring, B., Cofta-Woerpel, L., Linnan, L., Weiner, D., Bakken, S., Kaplan, C. P., Squiers, L., Fabrizio, C., Fernandez, M. (2009). How we design feasibility studies. American Journal of Preventive Medicine, 36(5), 452–457.
https://doi.org/10.1016/j.amepre.2009.02.002 Google Scholar
Capizzi, A., Woo, J., Verduzco-Gutierrez, M. (2020). Traumatic brain injury: An overview of epidemiology, pathophysiology, and medical management. Medical Clinics of North America, 104(2), 213–238.
https://doi.org/10.1016/j.mcna.2019.11.001 Google Scholar
Chesla, C. A. (2010). Do family interventions improve health? Journal of Family Nursing, 16(4), 355–377.
https://doi.org/10.1177/1074840710383145 Google Scholar
Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., Petticrew, M. (2013). Developing and evaluating complex interventions: The new Medical Research Council guidance. International Journal of Nursing Studies, 50(5), 587–592.
https://doi.org/10.1016/j.ijnurstu.2012.09.010 Google Scholar
Dawes, K., Carlino, A., van den Berg, M., Killington, M. (2020). Life altering effects on children when a family member has an acquired brain injury; A qualitative exploration of child and family perceptions. Disability and Rehabilitation.
https://doi.org/10.1080/09638288.2020.1766582 Google Scholar
Deek, H., Hamilton, S., Brown, N., Inglis, S. C., Digiacomo, M., Newton, P. J., Noureddine, S., MacDonald, P. S., Davidson, P. M. (2016). Family-centred approaches to healthcare interventions in chronic diseases in adults: A quantitative systematic review. Journal of Advanced Nursing, 72(5), 968–979.
https://doi.org/10.1111/jan.12885 Google Scholar
de Goumoëns, V., Didier, A., Mabire, C., Shaha, M., Diserens, K. (2019). Families’ needs of patients with acquired brain injury: Acute phase and rehabilitation. Rehabilitation Nursing Journal, 44(6), 319–327.
https://doi.org/10.1097/rnj.0000000000000122 Google Scholar
de Goumoëns, V., Grandjean, C., Joye, D., Bettex, Y.-O., Ryvlin, P., Ramelet, A.-S. (2020). Analyse du contexte clinique dans le développement et l’implantation d’une intervention de soutien pour les familles de patients atteints de lésions cérébrales acquises: une étude qualitative [Analysis of the clinical context in the development and implementation of a supportive intervention for families of patients with acquired brain injury: A qualitative study]. Science Infirmière et Pratiques en Santé [Science of Nursing and Health Practices], 3(1), 1–13.
https://doi.org/10.31770/2561-7516.1062 Google Scholar
de Goumoëns, V., Rio, L. M., Jaques, C., Ramelet, A.-S. (2018). Family-oriented interventions for adults with acquired brain injury and their families: A scoping review. JBI Database of Systematic Reviews and Implementation Reports, 16(12), 2330–2367.
https://doi.org/10.11124/JBISRIR-2017-003846 Google Scholar
Dewan, M. C., Rattani, A., Gupta, S., Baticulon, R. E., Hung, Y.-C., Punchak, M., Agrawal, A., Adeleye, A. O., Shrime, M. G., Rubiano, A. M., Rosenfeld, J. V., Park, K. B. (2018). Estimating the global incidence of traumatic brain injury. Journal of Neurosurgery, 130(4), 1080–1097.
https://doi.org/10.3171/2017.10.JNS17352 Google Scholar
Dharma, K.-K., Halina-Rahayu (2021). The effective post-stroke adaptation behavior model requires a family support system. Enfermería Clínica. Advance online publication.
https://doi.org/10.1016/j.enfcli.2020.11.001 Google Scholar
Duhamel, F. (Ed.) (2015). La sante et la famille: Une approche systémique en soins infirmiers [Health and the family: A systematic approach to nursing] (3rd ed.). Chenelière Education.
Google Scholar
Duncan, E., O’Cathain, A., Rousseau, N., Croot, L., Sworn, K., Turner, K. M., Yardley, L., Hoddinott, P. (2020). Guidance for reporting intervention development studies in health research (GUIDED): An evidence-based consensus study. BMJ Open, 10(4), Article e033516.
https://doi.org/10.1136/bmjopen-2019-033516 Google Scholar
Feigin, V. L., Krishnamurthi, R. V., Parmar, P., Norrving, B., Mensah, G. A., Bennett, D. A., Barker-Collo, S., Moran, A. E., Sacco, R. L., Truelsen, T., Davis, S., Pandian, J. D., Naghavi, M., Forouzanfar, M. H., Nguyen, G., Johnson, C. O., Vos, T., Meretoja, A., Murray, C. J. L.. . ., GBD 2013 Writing Group and GBD 2013 Stroke Panel Experts Group . (2015). Update on the global burden of ischemic and hemorrhagic stroke in 1990-2013: The GBD 2013 study. Neuroepidemiology, 45(3), 161–176.
https://doi.org/10.1159/000441085 Google Scholar
Fisher, A., Bellon, M., Lawn, S., Lennon, S. (2021). Family perspectives on the acceptability and usefulness of the FAB Positive Behaviour Support program: A pilot study. Brain Injury, 35(5), 609–619.
https://doi.org/10.1080/02699052.2021.1894479 Google Scholar
Gilliss, C. L., Pan, W., Davis, L. L. (2019). Family involvement in adult chronic disease care: Reviewing the systematic reviews. Journal of Family Nursing, 25(1), 3–27.
https://doi.org/10.1177/1074840718822365 Google Scholar
Gitlin, L. N. (2013). Introducing a new intervention: An overview of research phases and common challenges. The American Journal of Occupational Therapy, 67(2), 177–184.
https://doi.org/10.5014/ajot.2013.006742 Google Scholar
Gray, J., Grove, S. K., Sutherland, S. (2017). Burns and Grove’s the practice of nursing research: Appraisal, synthesis, and generation of evidence. Elsevier.
Google Scholar
Gustavsson, A., Svensson, M., Jacobi, F., Allgulander, C., Alonso, J., Beghi, E., Dodel, R., Ekman, M., Faravelli, C., Fratiglioni, L., Gannon, B., Jones, D. H., Jennum, P., Jordanova, A., Jönsson, L., Karampampa, K., Knapp, M., Kobelt, G., Kurth, T., . . . CDBE2010Study Group . (2011). Cost of disorders of the brain in Europe 2010. European Neuropsychopharmacology: The Journal of the European College of Neuropsychopharmacology, 21(10), 718–779.
https://doi.org/10.1016/j.euroneuro.2011.08.008 Google Scholar
Harding, R., Gao, W., Jackson, D., Pearson, C., Murray, J., Higginson, I. J. (2015). Comparative analysis of informal caregiver burden in advanced cancer, dementia, and acquired brain injury. Journal of Pain and Symptom Management, 50(4), 445–452.
https://doi.org/10.1016/j.jpainsymman.2015.04.005 Google Scholar
Heron, M. (2017). Deaths: Leading causes for 2015. National Vital Statistics Reports, 66(5), 1–76.
https://stacks.cdc.gov/view/cdc/50010 Google Scholar
Hoffmann, T. C., Glasziou, P. P., Boutron, I., Milne, R., Perera, R., Moher, D., Altman, D. G., Barbour, V., Macdonald, H., Johnston, M. (2014). Better reporting of interventions: Template for intervention description and replication (TIDieR) checklist and guide. British Medical Journal, 348, Article g1687.
https://doi.org/10.1136/bmj.g1687 Google Scholar
International Family Nursing Association . (2017). IFNA Position Statement on Advanced Practice Competencies for Family Nursing.
https://internationalfamilynursing.org/2017/05/19/advanced-practice-competencies/ Google Scholar
Karpa, J., Chernomas, W., Roger, K., Heinonen, T. (2020). Families’ experiences living with acquired brain injury: “Thinking family”—A nursing pathway for family-centered care. Nursing Research and Practice, 2020, 8866534.
https://doi.org/10.1155/2020/8866534 Google Scholar
Kreutzer, J., Marwitz, J. (1989). The family needs questionnaire. The National Resource Center for Traumatic Brain Injury.
Google Scholar
Kreutzer, J., Marwitz, J. H., Sima, A. P., Godwin, E. E. (2015). Efficacy of the brain injury family intervention: Impact on family members. The Journal of Head Trauma Rehabilitation, 30(4), 249–260.
https://doi.org/10.1097/HTR.0000000000000144 Google Scholar
Mayring, P. (2004). Qualitative content analysis. In Flick, U., von Kardoff, E., Steinke, I. (Eds.), A companion to qualitative research (Vol. 1, pp. 159–176). SAGE.
Google Scholar
McAndrew, N. S., Leske, J., Schroeter, K. (2018). Moral distress in critical care nursing: The state of the science. Nursing Ethics, 25(5), 552–570.
https://doi.org/10.1177/0969733016664975 Google Scholar
Melnyk, B. (2014). Evidence-based practice in nursing & healthcare: A guide to best practice. Wolters Kluwer Health.
Google Scholar
Montoro-Gurich, C., Garcia-Vivar, C. (2019). The family in Europe: Structure, intergenerational solidarity, and new challenges to family health. Journal of Family Nursing, 25(2), 170–189.
https://doi.org/10.1177/1074840719841404 Google Scholar
Moriarty, H., Winter, L., Short, T. H., True, G. (2018). Exploration of factors related to depressive symptomatology in family members of military veterans with traumatic brain injury. Journal of Family Nursing, 24(2), 184–216.
https://doi.org/10.1177/1074840718773470 Google Scholar
Naef, R., Massarotto, P., Petry, H. (2020). Family and health professional experience with a nurse-led family support intervention in ICU: A qualitative evaluation study. Intensive and Critical Care Nursing, 61, Article 102916.
https://doi.org/10.1016/j.iccn.2020.102916 Google Scholar
Norup, A., Perrin, P. B., Cuberos-Urbano, G., Anke, A., Andelic, N., Doyle, S. T., Cristina Quijano, M., Caracuel, A., Mar, D., Guadalupe Espinosa Jove, I., Carlos Arango-Lasprilla, J. (2015). Family needs after brain injury: A cross cultural study. NeuroRehabilitation, 36(2), 203–214.
https://doi.org/10.3233/NRE-151208 Google Scholar
Peters, M. D. J., Godfrey, C. M., McInerney, P., Parker, D., Baldini Soares, C. (2015). Guidance for conducting systematic scoping reviews. International Journal of Evidence Based Healthcare, 13(3), 141–146.
https://doi.org/10.1097/XEB.0000000000000050 Google Scholar
Rasmussen, M. S., Andelic, N., Pripp, A. H., Nordenmark, T. H., Soberg, H. L. (2021). The effectiveness of a family-centred intervention after traumatic brain injury: A pragmatic randomised controlled trial. Clinical Rehabilitation. Advance online publication.
https://doi.org/10.1177/02692155211010369 Google Scholar
Rasmussen, M. S., Arango-Lasprilla, J. C., Andelic, N., Nordenmark, T. H., Soberg, H. L. (2020). Mental health and family functioning in patients and their family members after traumatic brain injury: A cross-sectional study. Brain Sciences, 10(10), 670.
https://doi.org/10.3390/brainsci10100670 Google Scholar
Richards, D. A., Hallberg, I. R. (2015). Complex interventions in health: An overview of methods. Routledge.
Google Scholar |
Crossref
Rowat, A., Pollock, A., St George, B., Cowey, E., Booth, J., Lawrence, M., & Scottish Stroke Nurses Forum . (2016). Top 10 research priorities relating to stroke nursing: A rigorous approach to establish a national nurse-led research agenda. Journal of Advanced Nursing, 72(11), 2831–2843.
https://doi.org/10.1111/jan.13048 Google Scholar
Russell, A. C. (2012). Moral distress in neuroscience nursing: An evolutionary concept analysis. Journal of Neuroscience Nursing, 44(1), 15–24.
https://doi.org/10.1097/JNN.0b013e31823ae4cb Google Scholar
Shajani, Z., Snell, D. (2019). Wright and Leahey’s nurses and families: A guide to family assessment and intervention (7th ed.). F.A. Davis.
Google Scholar
Timmis, A., Townsend, N., Gale, C., Grobbee, R., Maniadakis, N., Flather, M., Wilkins, E., Wright, L., Vos, R., Bax, J., Blum, M., Pinto, F., Vardas, P., & ESC Scientific Document Group . (2018). European society of cardiology: Cardiovascular disease statistics 2017. European Heart Journal, 39(7), 508–579.
https://doi.org/10.1093/eurheartj/ehx628 Google Scholar
Vaughn, S., Mauk, K. L., Jacelon, C. S., Larsen, P. D., Rye, J., Wintersgill, W., Cave, C. E., Dufresne, D. (2016). The competency model for professional rehabilitation nursing. Rehabilitation Nursing, 41(1), 33–44.
https://doi.org/10.1002/rnj.225 Google Scholar
Walker, M. F., Hoffmann, T. C., Brady, M. C., Dean, C. M., Eng, J. J., Farrin, A. J., Felix, C., Forster, A., Langhorne, P., Lynch, E. A., Radford, K. A., Sunnerhagen, K. S., Watkins, C. L. (2017). Improving the development, monitoring and reporting of stroke rehabilitation research: Consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable. International Journal of Stroke, 12(5), 472–479.
https://doi.org/10.1177/1747493017711815 Google Scholar
World Health Organization . (2016). Framework on integrated, people-centred health services.
http://apps.who.int/gb/ebwha/pdf_files/WHA69/A69_39-en.pdf?ua=1&ua=1 Google Scholar
Wright, L. M. (2017). Suffering and spirituality: The path to illness healing. 4th Floor Press.
Google Scholar
Wright, L. M., Bell, J. M. (2009). Beliefs and illness: A model for healing. 4th Floor Press.
Google Scholar
Wright, L. M., Leahey, M. (2013). Nurses and families: A guide to family assessment and intervention (6th ed.). F.A. Davis.
Google Scholar
留言 (0)