Abdelkader, R., Arabiat, D.H., Holmes, S.L., Hamdan-Mansour, A. (2016). Socio-demographic correlates of parents’ participation in care of a hospitalized child: A perspective from a developing country. Journal of Child Health Care: For Professionals Working with Children in the Hospital and Community, 20(3), 374–383.
https://doi.org/10/1177/1367493515598650 Google Scholar
Abdel-Latif, M. E., Boswell, D., Broom, M., Smith, J., Davis, D. (2015). Parental presence on neonatal intensive care unit clinical bedside rounds: Randomised trial and focus group discussion. Archives of Disease in Childhood: Fetal and Neonatal Edition, 100(3), F203–F209.
https://doi.org/10.1136/archdischild-2014-306724 Google Scholar
Aein, F., Alhani, F., Mohammadi, E., Kazemnejad, A. (2011). Struggling to create new boundaries: A grounded theory study of collaboration between nurses and parents in the care process in Iran. Journal of Advanced Nursing, 67(4), 841–853.
https://doi.org/10.1111/j.1365-2648.2010.05515.x Google Scholar
Agency for Healthcare Research and Quality . (2013). Guide to patient and family engagement.
https://www.ahrq.gov/research/findings/final-reports/ptfamilyscan/index.html Google Scholar
Agency for Healthcare Research and Quality . (2017). Guide to patient and family engagement in hospital quality and safety.
http://www.ahrq.gov/patient-safety/patients-families/engagingfamilies/index.html Google Scholar
American Academy of Pediatrics . (2012). Patient and family-centered care and the pediatrician’s role. Pediatrics, 129(2), 394–404.
http://doi.org/10.1542/peds.2011-3084 Google Scholar
Arksey, H., O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.
http://doi.org/10.1080/1364557032000119616 Google Scholar
Ashcraft, L. E., Asato, M., Houtrow, A. J., Kavalieratos, D., Miller, E., Ray, K. N. (2019). Parent empowerment in pediatric healthcare settings: A systematic review of observational studies. The Patient—Patient-Centered Outcomes Research, 12(2), 199–212.
https://doi.org/10.1007/s40271-018-0336-2 Google Scholar
Bastani, F., Abadi, T. A., Haghani, H. (2015). Effect of family-centered care on improving parental satisfaction and reducing readmission among premature infants: A randomized controlled trial. Journal of Clinical and Diagnostic Research, 9(1), SC04–SC08.
https://doi.org/10.7860/jcdr/2015/10356.5444 Google Scholar
Bavare, A. C., Thomas, J. K., Elliott, E. P., Morgan, A. C., Graf, J. M. (2018). Family-initiated pediatric rapid response: Characteristics, impetus, and outcomes. Journal for Healthcare Quality: Promoting Excellence in Healthcare, 40(2), 103–109.
https://doi.org/10.1097/jhq.0000000000000096 Google Scholar
Benzies, K. M. (2016). Relational communications strategies to support family-centered neonatal intensive care. The Journal of Perinatal & Neonatal Nursing, 30(3), 233–236.
https://doi.org/10.1097/jpn.0000000000000195 Google Scholar
Bourdieu, P. (1990). The logic of practice. Stanford University Press.
Google Scholar
Bracht, M., O’Leary, L., Lee, S. K., O’Brien, K. (2013). Implementing family-integrated care in the NICU: A parent education and support program. Advances in Neonatal Care: Official Journal of the National Association of Neonatal Nurses, 13(2), 115–126.
https://doi.org/10.1097/ANC.0b013e318285fb5b Google Scholar
Brosseau, M., Gagnon, D., Rohde, K., Schellinck, J. (2017). Integrating engagement and improvement work in a pediatric hospital. Healthcare Quarterly, 20(1), 67–72.
https://doi.org/10.12927/hcq.2017.25071 Google Scholar
Carman, K. L., Dardess, P., Maurer, M., Sofaer, S., Adams, K., Bechtel, C., Sweeney, J. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs, 32(2), 223–231.
https://doi.org/10.1377/hlthaff.2012.1133 Google Scholar
Celenza, J. F., Zayack, D., Buus-Frank, M., Horbar, J. D. (2017). Family involvement in quality improvement: From bedside advocate to system advisor. Clinics in Perinatology, 44(3), 553–566.
https://doi.org/10.1016/j.clp.2017.05.008 Google Scholar
Cené, C. W., Johnson, B. H., Wells, N., Baker, B., Davis, R., Turchi, R. (2016). A narrative review of patient and family engagement: The “foundation” of the medical “home.” Medical Care, 54(7), 697–705.
https://doi.org/10.1097/MLR.0000000000000548 Google Scholar
Chadwick, S., Miller, D. (2019). The impact of patient and family advisors in one hospital system. Pediatric Nursing, 45(1), 42–46.
Google Scholar
Coombs, M., Puntillo, K. A., Franck, L. S., Scruth, E. A., Harvey, M. A., Swoboda, S. M., Davidson, J. E. (2017). Implementing the SCCM family-centered care guidelines in critical care nursing practice. AACN Advanced Critical Care, 28(2), 138–147.
https://doi.org/10.4037/aacnacc2017766 Google Scholar
Cox, E. D., Jacobsohn, G. C., Rajamanickam, V. P., Carayon, P., Kelly, M. M., Wetterneck, T. B., Rathouz, P. J., Brown, R. L. (2017). A family-centered rounds checklist, family engagement, and patient safety: A randomized trial. Pediatrics, 139(5), Article e20161688.
https://doi.org/10.1542/peds.2016-1688 Google Scholar
Craig, J.W., Glick, C., Phillips, R., Hall, S.L., Smith, J., Browne, J. (2015). Recommendations for involving the family in developmental care of the NICU baby. Journal of Perinatology: Official Journal of the California Perinatal Association, 35(Supp1), S5–S8.
https://doi.org/10.1038/jp.2015.142 Google Scholar
Davidson, J. E., Aslakson, R., Long, A. C., Puntillo, K. A., Kross, E. K., Hart, J., Cox, C. E., Wunsch, H., Wickline, M. A., Nunnally, M. E., Netzer, G., Kentish-Barnes, N., Sprung, C. L., Hartog, C. S., Coombs, M., Gerritsen, R. T., Hopkins, R. O., Franck, L. S., Skrobik, Y., . . . Curtis, J. R. (2017). Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Critical Care Medicine, 45(1), 103–128.
https://doi.org/10.1097/CCM.0000000000002169 Google Scholar
Davies, B., Steele, R., Krueger, G., Albersheim, S., Baird, J., Bifirie, M., Cadell, S., Doane, G., Garga, D., Siden, H., Strahlendorf, C., Zhao, Y. (2017). Best practice in provider/parent interaction. Qualitative Health Research, 27(3), 406–420.
https://doi.org/10.1177/1049732316664712 Google Scholar
De Bernardo, G., Svelto, M., Giordano, M., Sordino, D., Riccitelli, M. (2017). Supporting parents in taking care of their infants admitted to a neonatal intensive care unit: A prospective cohort pilot study. Italian Journal of Pediatrics, 43(1), Article 36.
https://doi.org/10.1186/s13052-017-0352-1 Google Scholar
de Oliveira Alves, J. M. N., Amendoeira, J. J. P., Charepe, Z. B. (2017). The parental care partnership in the view of parents of children with special health needs. Revista Gaucha de Enfermagem, 38(4), e2016–e2070.
https://doi.org/10.1590/1983-1447.2017.04.2016-0070 Google Scholar
Everhart, J. L., Haskell, H., Khan, A. (2019). Patient- and family-centered care: Leveraging best practices to improve the care of hospitalized children. Pediatric Clinics of North America, 66(4), 775–789.
https://doi.org/10.1016/j.pcl.2019.03.005 Google Scholar
Foster, M., Whitehead, L., Arabiat, D., Frost, L. (2018). Parents’ and staff perceptions of parental needs during a child’s hospital admission: An Australian study. Journal of Pediatric Nursing, 43, e2–e9.
https://doi.org/10.1016/j.pedn.2018.06.013 Google Scholar
Franck, L. S., O’Brien, K. (2019). The evolution of family-centered care: From supporting parent-delivered interventions to a model of family integrated care. Birth Defects Research, 111(15), 1044–1059.
https://doi.org/10.1002/bdr2.1521 Google Scholar
Gibson, C. H. (1991). A concept analysis of empowerment. Journal of Advanced Nursing, 16(3), 354–361.
https://doi.org/10.1111/j.1365-2648.1991.tb01660.x Google Scholar
Gruman, J., Rovner, M.H., French, M.E., Jeffress, D., Sofaer, S., Shaller, D., Prager, D.J. (2010). From patient education to patient engagement: Implications for the field of patient education. Patient Education and Counseling, 78(3). 350–356.
https://doi.org/10.1016/j.pec.2010.02.002 Google Scholar
He, S. W., Xiong, Y. E., Zhu, L. H., Lv, B., Gao, X. R., Xiong, H., Wang, H., Shi, H. R., Latour, J. M. (2018). Impact of family integrated care on infants’ clinical outcomes in two children’s hospitals in China: A pre-post intervention study. Italian Journal of Pediatrics, 44(1), 65.
https://doi.org/10.1186/s13052-018-0506-9 Google Scholar
Heo, Y. J., Oh, W. O. (2019). The effectiveness of a parent participation improvement program for parents on partnership, attachment infant growth in a neonatal intensive care unit: A randomized controlled trial. International Journal of Nursing Studies, 95, 19–27.
https://doi.org/10.1016/j.ijnurstu.2019.03.018 Google Scholar
Hernandez, N. L., Rubio Grillo, M. H., Lovera, A. (2016). Estrategias para el cuidado del desarrollo neonatal y el cuidado neonatal centrado en la familia [Strategies for neonatal developmental care and family-centered neonatal care]. Investigacion y Educacion en Enfermeria, 34(1), 104–112.
https://doi.org/10.17533/udea.iee.v34n1a12 Google Scholar
Higgins, T., Larson, E., Schnall, R. (2017). Unraveling the meaning of patient engagement: A concept analysis. Patient Education and Counseling, 100(1), 30–36.
https://doi.org/10.1016/j.pec.2016.09.002 Google Scholar
Hill, C., Knafl, K. A., Santacroce, S. J. (2018). Family-centered care from the perspective of parents of children cared for in a pediatric intensive care unit: An integrative review. Journal of Pediatric Nursing, 41, 22–33.
https://doi.org/10.1016/j.pedn.2017.11.007 Google Scholar
International Family Nursing Association . (2015). IFNA Position Statement on Generalist Competencies for Family Nursing Practice.
https://internationalfamilynursing.org/2015/07/31/ifna-position-statement-on-generalist-competencies-for-family-nursing-practice/ Google Scholar
International Family Nursing Association . (2017). IFNA Position Statement on Advanced Practice Competencies for Family Nursing.
https://internationalfamilynursing.org/2017/05/19/advanced-practice-competencies/ Google Scholar
Jackson, G.O., Robinson, J.R., Ingram, E., Masterman, M., Ivory, C., Holloway, D., Anders, S., Cronin, R.M. (2018). A technology-based patient and family engagement consult service for the pediatric hospital setting. Journal of the American Medical Informatics Association: JAMIA, 25(2), 167–174.
Google Scholar |
Crossref |
Medline
Jerofke-Owen, T. A., Garnier-Villareal, M., Fial, A., Tobiano, G. (2020). Systematic review of psychometric properties of instruments measuring patient preferences for engagement in healthcare. Journal of Advanced Nursing, 76(8), 1988–2004.
https://doi.org/10.1111/jan.14402 Google Scholar
Johnson, B. H., Abraham, M. R. (2012). Partnering with patients, residents, and families: A resource for leaders of hospitals, ambulatory care settings, and long-term care communities. Institute for Patient and Family-Centered Care.
Google Scholar
Jolley, J., Shields, L. (2009). The evolution of family-centered care. Journal of Pediatric Nursing, 24(2), 164–170.
https://doi.org/10.1016/j.pedn.2008.03.010 Google Scholar
Kelly, M. M., Dean, S. M., Carayon, P., Wetterneck, T. B., Hoonakker, P. L. (2017). Healthcare team perceptions of a portal for parents of hospitalized children before and after implementation. Applied Clinical Informatics, 8(1), 265–278.
https://doi.org/10.4338/ACI-2016-11-RA-0194 Google Scholar
Kelly, M. M., Hoonakker, P. L., Dean, S. M. (2017). Using an inpatient portal to engage families in pediatric hospital care. Journal of the American Medical Informatics Association, 24(1), 153–161.
https://doi.org/10.1093/jamia/ocw070 Google Scholar
Khan, A., Spector, N. D., Baird, J. D., Ashland, M., Starmer, A. J., Rosenbluth, G., Garcia, B. M., Litterer, K. P., Rogers, J. E., Dalal, A. K., Lipsitz, S., Yoon, C. S., Zigmont, K. R., Guiot, A., O’Toole, J. K., Patel, A., Bismilla, Z., Coffey, M., Langrish, K., . . . Landrigan, C. P. (2018). Patient safety after implementation of a coproduced family centered communication programme: Multicenter before and after intervention study. British Medical Journal, 363, Article k4764.
https://doi.org/10.1136/bmj.k4764 Google Scholar
Kleinpell, R., Heyland, D. K., Lipman, J., Sprung, C. L., Levy, M., Mer, M., Koh, Y., Davidson, J., Taha, A., Curtis, J. R. (2018). Patient and family engagement in the ICU: Report from the task force of the World Federation of Societies of Intensive and Critical Care Medicine. Journal of Critical Care, 48, 251–256.
https://doi.org/10.1016/j.jcrc.2018.09.006 Google Scholar
Kokorelias, K. M., Gignac, M. A. M., Naglie, G., Cameron, J. I. (2019). Towards a universal model of family centered care: A scoping review. BMC Health Services Research, 19, Article 564.
https://doi.org/10.1186/s12913-019-4394-5 Google Scholar
Krisnana, I., Sulistyarini, H., Rachmawati, P.D., Arief, Y.S., Kurnia, I.D. (2019). Reducing acute stress disorders in mothers of leukemic children by means of the family centered empowerment module (face). Central European Journal of Nursing& Midwifery, 10(2), 1035–1040.
https://doi.org/10.15452/CEJNM.2019.10.0011 Google Scholar
Kuo, D.Z., Sisterhen, L.L., Sigrest, T.E., Biazo, J.M., Aitken, M.E., Smith, C.E. (2012). Family experiences and pediatric health services use associated with family-centered rounds. Pediatrics, 130(2), 299–305.
https://doi.org/10.1542/peds.2011-2623 Google Scholar
Ladak, L. A., Premji, S. S., Amanullah, M. M., Haque, A., Ajani, K., Siddiqui, F. J. (2013). Family-centered rounds in Pakistani pediatric intensive care settings: Non-randomized pre- and post-study design. International Journal of Nursing Studies, 50(6), 717–726.
https://doi.org/10.1016/j.ijnurstu.2012.05.009 Google Scholar
Lee, T. Y., Wang, M. M., Lin, K. C., Kao, C. H. (2013). The effectiveness of early intervention on paternal stress for fathers of premature infants admitted to a neonatal intensive care unit. Journal of Advanced Nursing, 69(5), 1085–1095.
https://doi.org/10.1111/j.1365-2648.2012.06097.x Google Scholar
LeGrow, K., Hodnett, E., Stremler, R., Cohen, E. (2014). Evaluating the feasibility of a parent-briefing intervention in a pediatric acute care setting. Journal for Specialists in Pediatric Nursing: JSPN, 19(3), 219–228.
https://doi.org/10.1111/jspn.12073 Google Scholar
Lester, B. M., Hawes, K., Abar, B., Sullivan, M., Miller, R., Bigsby, R., Laptook, A., Salisbury, A., Taub, M., Lagasse, L. L., Padbury, J. F. (2014). Single-family room care and neurobehavioral and medical outcomes in preterm infants. Pediatrics, 134(4), 754–760.
https://doi.org/10.1542/peds.2013-4252 Google Scholar
Lv, B., Gao, X. R., Sun, J., Li, T. T., Liu, Z. Y., Zhu, L. H., Latour, J. M. (2019). Family-centered care improves clinical outcomes of very-low-birth-weight infants: A quasi-experimental study. Frontiers in Pediatrics, 7, Article 138.
https://doi.org/10.3389/fped.2019.00138 Google Scholar
Mann, D. (2016). Design, implementation, and early outcome indicators of a new family-integrated neonatal unit. Nursing for Women’s Health, 20(2), 158–166.
https://doi.org/10.1016/j.nwh.2016.01.007 Google Scholar
Mannix, T., Parry, Y., Roderick, A. (2017). Improving clinical handover in a paediatric ward: Implications for nursing management. Journal of Nursing Management, 25(3), 215–222.
https://doi.org/10.1111/jonm.12462 Google Scholar
Mastro, K. A., Flynn, L., Preuster, C. (2014). Patient- and family-centered care: A call to action for new knowledge and innovation. The Journal of Nursing Administration, 44(9), 446–451.
https://doi.org/10.1097/NNA.0000000000000099 Google Scholar
Maurer, M., Dardess, P., Carman, K. L., Frazier, K., Smeeding, L. (2012). Guide to patient and family engagement: Environmental scan report (Agency for Healthcare Research and Quality Publication No. 12-0042-EF). Agency for Healthcare Research and Quality.
Google Scholar
Mikkelsen, G., Frederiksen, K. (2011). Family-centred care of children in hospital—A concept analysis. Journal of Advanced Nursing, 67(5), 1152–1162.
https://doi.org/10.1111/j.1365-2648.2010.05574.x Google Scholar
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group . (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLOS Medicine, 6(7), Article e1000097.
https://doi.org/10.1371/journal.pmed1000097 Google Scholar
Morelius, E., Brostrom, E.B., Westrup, B., Sarman, I., Ortenstrand, A. (2012). The stockholm neonatal family-centered care study: Effects on salivary cortisol in infants and their mothers. Early Human Development, 88(7), 575–581.
https://doi.org/10.1016/j.earlhumdev.2011.12.033 Google Scholar
Munn, Z., Peters, M. D. J., Stern, C., Tufanaru, C., McArthur, A., Aromataris, E. (2018). Systematic review of scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Medical Research Methodology, 18, Article 143.
https://doi.org/10.1186/s12874-018-0611-x Google Scholar
O’Brien, K., Robson, K., Bracht, M., Cruz, M., Lui, K., Alvaro, R., da Silva, O., Monterrosa, L., Narvey, M., Ng, E., Soraisham, A., Ye, X. Y., Mirea, L., Tarnow-Mordi, W., Lee, S. K. FICare Study Group | FICare Parent Advisory Board . (2018). Effectiveness of family integrated care in neonatal intensive care units on infant and parent outcomes: A multicentre, multinational, cluster-randomised controlled trial. The Lancet Child & Adolescent Health, 2(4), 245–254.
https://doi.org/10.1016/S2352-4642(18)30039-7 Google Scholar
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