Årestedt, L., Benzein, E., Persson, C. (2015). Families living with chronic illness: Beliefs about illness, family, and health care. Journal of Family Nursing, 21(2), 206–231.
https://doi.org/10.1177/1074840715576794 Google Scholar
Becqué, Y. N., Rietjens, J. A. C., van Driel, A. G., van der Heide, A., Witkamp, E. (2019). Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review. International Journal of Nursing Studies, 97, 28–39.
https://doi.org/10.1016/j.ijnurstu.2019.04.011 Google Scholar
Bold, C. (2012). Using narrative in research. SAGE.
Google Scholar |
Crossref
Bouchal, S. R., Rallison, L., Moules, N. J., Sinclair, S. (2015). Holding on and letting go: Families’ experiences of anticipatory mourning in terminal cancer. OMEGA: Journal of Death and Dying, 72(1), 42–68.
https://doi.org/10.1177/0030222815574700 Google Scholar
Brighton, L. J., Bristowe, K. (2016). Communication in palliative care: Talking about the end of life, before the end of life. Postgraduate Medical Journal, 92(1090), 466–470.
https://doi.org/10.1136/postgradmedj-2015-133368 Google Scholar
Carlander, I., Ternestedt, B. M., Sahlberg-Blom, E., Hellstrom, I., Sandberg, J. (2011). Being me and being us in a family living close to death at home. Qualitative Health Research, 21(5), 683–695.
https://doi.org/10.1177/1049732310396102 Google Scholar
Cronin, P. (2016). Compassionate communities in Shropshire, West Midlands, England. In Wegleitner, K., Heimerl, K., Kellehear, A. (Eds.), Compassionate communities: Case studies from Britain and Europe (pp. 30–46). Routledge.
Google Scholar
Eggenberger, S. K., Nelms, T. P. (2007). Family interviews as a method for family research. Journal of Advanced Nursing, 58(3), 282–292.
https://doi.org/10.1111/j.1365-2648.2007.04238.x Google Scholar
Ellington, L., Cloyes, K. G., Xu, J., Bellury, L., Berry, P. H., Reblin, M., Clayton, M. F. (2018). Supporting home hospice family caregivers: Insights from different perspectives. Palliative & Supportive Care, 16(2), 209–219.
https://doi.org/10.1017/S1478951517000219 Google Scholar
Fjose, M., Eilertsen, G., Kirkevold, M., Grov, E. K. (2016). A valuable but demanding time family life during advanced cancer in an elderly family member. Advances in Nursing Science, 39(4), 358–373.
https://doi.org/10.1097/ANS.0000000000000145 Google Scholar
Forbat, L., McManus, E., Haraldsdottir, E. (2012). Clinical implications for supporting caregivers at the end-of-life: Findings and from a qualitative study. Contemporary Family Therapy, 34(2), 282–292.
https://doi.org/10.1007/s10591-012-9194-6 Google Scholar
Fringer, A., Hechinger, M., Schnepp, W. (2018). Transitions as experienced by persons in palliative care circumstances and their families: A qualitative meta-synthesis. BMC Palliative Care, 17, Article 22.
https://doi.org/10.1186/s12904-018-0275-7 Google Scholar
García-Vivar, C. (2019). Cuidados centrados en la familia: una apuesta necesaria para la atención a la cronicidad [Family-centered care: A necessary commitment to address chronicity]. Metas de Enfermería, 22(2), 3.
https://doi.org/10.35667/MetasEnf.2019.22.1003081364 Google Scholar
Gott, M., Wiles, J., Moeke-Maxwell, T., Black, S., Williams, L., Kerse, N., Trussardi, G. (2018). What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers. Palliative Medicine, 32(1), 268–275.
https://doi.org/10.1177/0269216317735248 Google Scholar
Grande, G., Rowland, C., van den Berg, B., Hanratty, B. (2018). Psychological morbidity and general health among family caregivers during end-of-life cancer care: A retrospective census survey. Palliative Medicine, 32(10), 1605–1614.
https://doi.org/10.1177/0269216318793286 Google Scholar
Griffiths, J., Wilson, C., Ewing, G., Connolly, M., Grande, G. (2015). Improving communication with palliative care cancer patients at home: A pilot study of SAGE & THYME communication skills model. European Journal of Oncology Nursing, 19(5), 465–472.
https://doi.org/10.1016/j.ejon.2015.02.005 Google Scholar
Herrera, E., Álvarez, A., Muñoz, I., Librada, S., Mota, R., Donado, I. (2018). La visión de la nueva atención integrada como respuesta al reto asistencial de la cronicidad avanzada [The vision of the new integrated care as a response to the healthcare challenge of advanced chronicity]. In Limón, E., Meléndez, A. (Eds.), Cronicidad avanzada (Monografía SECPAL) (pp. 31–36). Inspira Network.
Google Scholar
Holloway, I., Freshwater, D. (2007). Narrative research in nursing. Blackwell.
Google Scholar
Hov, R., Bjørsland, B., Kjøs, B. Ø., Wilde-Larsson, B. (2020). A sense of security in palliative homecare in a Norwegian municipality; Dyadic comparisons of the perceptions of patients and relatives: A quantitative study. BMC Palliative Care, 19(1), Article 7.
https://doi.org/10.1186/s12904-020-0513-7 Google Scholar
Hunt, K., Lathlean, J. (2015). Sampling. In Gerrish, K., Lacey, A. (Eds.), The research process in nursing (pp. 173–184). Wiley-Blackwell.
Google Scholar
International Family Nursing Association . (2015). IFNA Position Statement on Generalist Competencies for Family Nursing Practice.
https://internationalfamilynursing.org/2015/07/31/ifna-position-statement-on-generalist-competencies-for-family-nursing-practice/ Google Scholar
International Family Nursing Association . (2017). IFNA Position Statement on Advanced Practice Competencies for Family Nursing.
https://internationalfamilynursing.org/2017/05/19/advanced-practice-competencies/ Google Scholar
Johnston, B., Rogerson, L., Macijauskiene, J., Blazeviciene, A., Cholewka, P. (2014). An exploration of self-management support in the context of palliative nursing: A modified concept analysis. BMC Nursing, 13, Article 21.
https://doi.org/10.1186/1472-6955-13-21 Google Scholar
Kim, H. S. (1999). Critical reflective inquiry for knowledge development in nursing practice. Journal of Advanced Nursing, 29(5), 1205–1212.
https://doi.org/10.1046/j.1365-2648.1999.01005.x Google Scholar
Lambert, S. D., Loiselle, C. G. (2008). Combining individual interviews and focus groups to enhance data richness. Journal of Advanced Nursing, 62(2), 228–237.
https://doi.org/10.1111/j.1365-2648.2007.04559.x Google Scholar
Lee, H. T., Melia, K. M., Yao, C. A., Lin, C. J., Chiu, T. Y., Hu, W. Y. (2014). Providing hospice home care to the terminally ill elderly people with cancer in Taiwan: Family experiences and needs. The American Journal of Hospice & Palliative Care, 31(6), 628–635.
https://doi.org/10.1177/1049909113499603 Google Scholar
Lee, M. K., Yun, Y. H. (2018). Family functioning predicts end-of-life care quality in patients with cancer: Multicenter prospective cohort study. Cancer Nursing, 41(3), E1–E10.
https://doi.org/10.1097/NCC.0000000000000495 Google Scholar
Leow, M. Q., Chan, S. W. (2017). The challenges, emotions, coping, and gains of family caregivers caring for patients with advanced cancer in Singapore: A qualitative study. Cancer Nursing, 40 (1), 22–30.
Google Scholar |
Crossref |
Medline
Lieblich, A., Tuval-Mashiach, R., Zilber, T. (1998). Narrative research: Reading, analysis, and interpretation. SAGE.
Google Scholar |
Crossref
Lincoln, Y. S., Guba, E. G. (1985). Naturalistic inquiry. SAGE.
Google Scholar |
Crossref
Lyons, N. (2007). What possible future influence on policy or practice? In Clandinin, J. (Ed.), Handbook of narrative inquiry: Mapping a methodology (pp. 600–631). SAGE.
Google Scholar |
Crossref
Martin, J. M., Olano-Lizarraga, M., Saracibar-Razquin, M. (2016). The experience of family caregivers caring for a terminal patient at home: A research review. International Journal of Nursing Studies, 64, 1–12.
https://doi.org/10.1016/j.ijnurstu.2016.09.010 Google Scholar
McLoughlin, K., Rhatigan, J., McGilloway, S., Kellehear, A., Lucey, M., Twomey, F., Conroy, M., Herrera-Molina, E., Kumar, S., Furlong, M., Callinan, J., Watson, M., Currow, D., Bailey, C. (2015). INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness. BMC Palliative Care, 14, Article 65.
https://doi.org/10.1186/s12904-015-0060-9 Google Scholar
McNamara, B., Rosenwax, L. K., Holman, C. D. A. J. (2006). A method for defining and estimating the palliative care population. Journal of Pain and Symptom Management, 32(1), 5–12.
https://doi.org/10.1016/j.jpainsymman.2005.12.018 Google Scholar
Morris, S. M., King, C., Turner, M., Payne, S. (2015). Family carers providing support to a person dying in the home setting: A narrative literature review. Palliative Medicine, 29(6), 487–495.
https://doi.org/10.1177/0269216314565706 Google Scholar
Newman, M. A., Smith, M. C., Pharris, M. D., Jones, D. (2008). The focus of the discipline revisited. Advances in Nursing Science, 31(1), E16–E27.
https://doi.org/10.1097/01.ANS.0000311533.65941.f1 Google Scholar
O’Brien, B. C., Harris, I. B., Beckman, T. J., Reed, D. A., Cook, D. A. (2014). Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine: Journal of the Association of American Medical Colleges, 89(9), 1245–1251.
https://doi.org/10.1097/ACM.0000000000000388 Google Scholar
Olano-Lizarraga, M., Martín-Martín, J., Oroviogoicoechea, C., Saracíbar-Razquin, M. (2021). Unexplored aspects of the meaning of living with chronic heart failure: A phenomenological study within the framework of the model of interpersonal relationship between the nurse and the person/family cared for. Clinical Nursing Research, 30(2), 171–182.
https://doi.org/10.1177/1054773819898825 Google Scholar
Olano-Lizarraga, M., Zaragoza-Salcedo, A., Martín-Martín, J., Saracíbar-Razquin, M. (2020). Redefining a “new normality”: A hermeneutic phenomenological study of the experiences of patients with chronic heart failure. Journal of Advanced Nursing, 76(1), 275–286.
https://doi.org/10.1111/jan.14237 Google Scholar
Penrod, J., Hupcey, J. E., Shipley, P. Z., Loeb, S. J., Baney, B. (2012). A model of caregiving through the end of life: Seeking normal. Western Journal of Nursing Research, 34(2), 174–193.
https://doi.org/10.1177/0193945911400920 Google Scholar
Reczek, C. (2014). Conducting a multi family member interview study. Family Process, 53(2), 318–335.
https://doi.org/10.1111/famp.12060 Google Scholar
Reymond, L., Parker, G., Gilles, L., Cooper, K. (2018). Home based palliative care. Australian Journal for General Practitioners, 47, 747–752.
https://doi.org/10.31128/AJGP-06-18-4607 Google Scholar
Riessman, C. K. (2008). Narrative methods for the human sciences. SAGE.
Google Scholar
Saracíbar-Razquin, M. I. (2009). About the nature of the relationship between the nurse and the ill person. Understanding its meaning [Unpublished doctoral dissertation]. University of Navarra.
Google Scholar
Sarmento, V. P., Gysels, M., Higginson, I. J., Gomes, B. (2017). Home palliative care works: But how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Supportive & Palliative Care, 7, 390–403.
https://doi.org/10.1136/bmjspcare-2016-001141 Google Scholar
Shanley, C., Russell, C., Middleton, H., Simpson-Young, V. (2011). Living through end-stage dementia: The experiences and expressed needs of family carers. Dementia, 10(3), 325–340.
https://doi.org/10.1177/1471301211407794 Google Scholar
Spagnola, M., Fiese, B. H. (2007). Family routines and rituals: A context for development in the lives of young children. Infants & Young Children, 20(4), 284–299.
https://doi.org/10.1097/01.IYC.0000290352.32170.5a Google Scholar
Steele, R., Davies, B. (2015). Supporting families in palliative care. In Ferrell, B. R., Coyle, N., Paice, J. (Eds.), Oxford textbook of palliative nursing (pp. 500–514). Oxford University Press.
Google Scholar |
Crossref
Vidal, M., Rodriguez-Nunez, A., Hui, D., Allo, J., Williams, J. L., Park, M., Liu, D., Bruera, E. (2020). Place-of-death preferences among patients with cancer and family caregivers in inpatient and outpatient palliative care. BMJ Supportive & Palliative Care. Advance online publication.
https://doi.org/10.1136/bmjspcare-2019-002019 Google Scholar
Woodman, C., Baillie, J., Sivell, S. (2016). The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive & Palliative Care, 6(4), 418–429.
https://doi.org/10.1136/bmjspcare-2014-000794 Google Scholar
World Medical Association . (2018). Declaration of Helsinki: Ethical principles for medical research involving human subjects.
https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Google Scholar
留言 (0)