Communication about incurable illness and remaining life between spouses and patients with incurable illness receiving specialized home care: effects of a family caregiver-targeted web-based psycho-educational intervention

Ploeg J, Ali MU, Markle-Reid M, Valaitis R, Bartholomew A, Fitzpatrick-Lewis D, et al. Caregiver-focused, web-based interventions: systematic review and meta-analysis (part 2). J Med Internet Res. 2018;20(10):e11247.

Article  PubMed  PubMed Central  Google Scholar 

Becqué YN, van der Wel M, Aktan-Arslan M, Driel AGV, Rietjens JAC, van der Heide A, et al. Supportive interventions for family caregivers of patients with advanced cancer: A systematic review. Psychooncology. 2023;32(5):663–81.

Finucane AM, O’Donnell H, Lugton J, Gibson-Watt T, Swenson C, Pagliari C. Digital health interventions in palliative care: a systematic meta-review. NPJ digital Med. 2021;4(1):1–10.

Article  Google Scholar 

Northouse L, Schafenacker A, Barr KL, Katapodi M, Yoon H, Brittain K, et al. A tailored web-based psycho-educational intervention for cancer patients and their family caregivers. Cancer Nurs. 2014;37(5):321.

Article  PubMed  PubMed Central  Google Scholar 

Bruinsma J, Peetoom K, Bakker C, Boots L, Millenaar J, Verhey F, et al. Tailoring and evaluating the web-based “Partner in Balance” intervention for family caregivers of persons with young-onset dementia. Internet Interv. 2021;25:100390.

Article  PubMed  PubMed Central  Google Scholar 

Scheibl F, Boots L, Eley R, Fox C, Gracey F, Harrison Dening K, et al. Adapting a Dutch Web-Based Intervention to Support Family Caregivers of People With Dementia in the UK Context: Accelerated Experience-Based Co-Design. JMIR Form Res. 2024;8:e52389.

Article  PubMed  PubMed Central  Google Scholar 

Grande G, Stajduhar K, Aoun S, Toye C, Funk L, Addington-Hall J, et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med. 2009;23(4):339–44.

Article  CAS  PubMed  Google Scholar 

Funk LM, Stajduhar KI, Outcalt L. What family caregivers learn when providing care at the end of life: a qualitative secondary analysis of multiple datasets. Palliat Support Care. 2015;13(3):425–33.

Article  PubMed  Google Scholar 

Alam S, Hannon B, Zimmermann C. Palliative Care for Family Caregivers. J Clin Oncol. 2020;38(9):926–36.

Article  PubMed  Google Scholar 

Funk L, Stajduhar KI, Toye C, Aoun S, Grande GE, Todd CJ. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998–2008). Palliat Med. 2010;24(6):594–607.

Article  CAS  PubMed  Google Scholar 

Henriksson A, Årestedt K, Benzein E, Ternestedt B-M, Andershed B. Effects of a support group programme for patients with life-threatening illness during ongoing palliative care. Palliat Med. 2013;27(3):257–64.

Article  PubMed  Google Scholar 

Martín O-L, Saracíbar-Razquin,. The experience of family caregivers caring for a terminal patient at home: A research review. Int J Nurs Stud. 2016;64:1–12.

Article  PubMed  Google Scholar 

Etkind SN, Li J, Louca J, Hopkins SA, Kuhn I, Spathis A, et al. Total uncertainty: a systematic review and thematic synthesis of experiences of uncertainty in older people with advanced multimorbidity, their informal carers and health professionals. Age Ageing. 2022;51(8):1–11.

Pinquart M, Sörensen S. Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison. Psychol Aging. 2011;26(1):1.

Article  PubMed  PubMed Central  Google Scholar 

Norinder M, Årestedt K, Lind S, Axelsson L, Grande G, Ewing G, et al. Higher levels of unmet support needs in spouses are associated with poorer quality of life–a descriptive cross-sectional study in the context of palliative home care. BMC Palliat Care. 2021;20:1–11.

Article  Google Scholar 

Soyaslan BD, Oksuz E, editors. Investigation of Caregiver Burden, Anxiety, and Depression in Caregivers of the Palliative Patients According to Certain Variables. Int J Caring Sci. 2022;15(2):1233–41.

Liu Z, Heffernan C, Tan J. Caregiver burden: A concept analysis. Int J Nurs Sci. 2020;7(4):438–45.

Article  PubMed  PubMed Central  Google Scholar 

Wasilewski MB, Stinson JN, Cameron JI. Web-based health interventions for family caregivers of elderly individuals: A Scoping Review. Int J Med Informatics. 2017;103:109–38.

Article  Google Scholar 

Nagelschmidt K, Leppin N, Seifart C, Rief W, von Blanckenburg P. Systematic mixed-method review of barriers to end-of-life communication in the family context. BMJ Support Palliat Care. 2021;11(3):253–63.

Article  PubMed  Google Scholar 

Haaksman M, Ham L, Brom L, Baars A, van Basten JP, van den Borne B, et al. Open communication between patients and relatives about illness & death in advanced cancer-results of the eQuiPe Study. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 2024;32(4):214.

Article  PubMed  Google Scholar 

McDonald H, Browne J, Perruzza J, Svarc R, Davis C, Adams K, et al. Transformative effects of Aboriginal health placements for medical, nursing, and allied health students: A systematic review. Nurs Health Sci. 2018;20(2):154–64.

Article  PubMed  Google Scholar 

O’Donnell EA, Van Citters AD, Khayal IS, Wilson MM, Gustafson D, Barnato AE, et al. A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study. JMIR Hum Factors. 2024;11:e53194.

Article  PubMed  PubMed Central  Google Scholar 

Tibell LH, Alvariza A, Kreicbergs U, Wallin V, Steineck G, Holm M. Web-based support for spouses of patients with life-threatening illness cared for in specialized home care–A feasibility study. Palliat Support Care. 2022;22(4):1–9.

Hauksdóttir A, Steineck G, Fürst CJ, Valdimarsdóttir U. Long-term harm of low preparedness for a wife’s death from cancer—a population-based study of widowers 4–5 years after the loss. Am J Epidemiol. 2010;172(4):389–96.

Article  PubMed  Google Scholar 

Hauksdóttir A, Valdimarsdóttir U, Fürst CJ, Steineck G. Long-term mental health of men who lose a wife to cancer—a population-based follow-up. Psychooncology. 2013;22(2):352–61.

Article  PubMed  Google Scholar 

Holm M, Årestedt K, Carlander I, Fürst CJ, Wengström Y, Öhlen J, et al. Short-term and long-term effects of a psycho-educational group intervention for family caregivers in palliative home care–results from a randomized control trial. Psychooncology. 2016;25(7):795–802.

Article  PubMed  Google Scholar 

Holm M, Carlander I, Fürst C-J, Wengström Y, Årestedt K, Öhlen J, et al. Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers. BMC Palliat Care. 2015;14(1):1–10.

Article  Google Scholar 

Valdimarsdóttir U, Helgason ÁR, Fürst C-J, Adolfsson J, Steineck G. Long-term effects of widowhood after terminal cancer: a Swedish nationwide follow-up. Scandinavian J pub health. 2003;31(1):31–6.

Article  PubMed  Google Scholar 

Andershed B, Ternestedt B-M. Development of a theoretical framework describing relatives’ involvement in palliative care. J Adv Nurs. 2001;34(4):554–62.

Article  CAS  PubMed  Google Scholar 

Jonasson JM, Hauksdóttir A, Nemes S, Surkan PJ, Valdimarsdóttir U, Onelöv E, et al. Couples' communication before the wife's death to cancer and the widower's feelings of guilt or regret after the loss - a population-based investigation. European journal of cancer (Oxford, England : 1990). 2011;47(10):1564–70.

Omerov P, Steineck G, Runeson B, Christensson A, Kreicbergs U, Pettersén R, et al. Preparatory studies to a population-based survey of suicide-bereaved parents in Sweden. Crisis. 2013;34(3):200–10.

Article  PubMed  Google Scholar 

Valdimarsdóttir U, Helgason ÁR, Fürst C-J, Adolfsson J, Steineck G. Awareness of husband’s impending death from cancer and long-term anxiety in widowhood: a nationwide follow-up. Palliat Med. 2004;18(5):432–43.

Article  PubMed  Google Scholar 

Cohen J. Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum; 1988.

An E, Wennberg E, Nissim R, Lo C, Hales S, Rodin G. Death talk and relief of death-related distress in patients with advanced cancer. BMJ Support Palliat Care. 2020;10(2):e19.

Article  PubMed  Google Scholar 

Öhrling C, Benkel I, Molander U, Sernbo E, Olsson A, Nyblom S. Sharing Bad News: Communication Between Patients and Their Loved Ones in a Palliative Care Context. Am J Hosp Palliat Med®. 2023;40(10):1141–6.

Google Scholar 

Jeon H, Kim S, Lee I. “The communication I had with him back then is still stuck in my mind.” Bereaved families of cancer patients’ experiences for end-of-life communication. Supportive Care in Cancer. 2023;31(5):277.

Article  PubMed  PubMed Central  Google Scholar 

Carmel S, Singer Y, Yosef-Sela N, Bachner YG. Open communication between caregivers’ and terminally ill cancer patients about illness and death: The role of gender - A correlational study. Eur J Oncol Nurs. 2020;49:1–6.

Islam Z, Pollock K, Patterson A, Hanjari M, Wallace L, Mururajani I, Conroy S, Faull C. Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds. Health Soc Care Deliv Res. 2023;11(7):1–135.

Article  PubMed  Google Scholar 

Fenton A, Fletcher KM, Kizildag D, Borstelmann NA, Kessler D, Cronin C, et al. Cancer Caregivers’ Prognostic and End-of-Life Communication Needs and Experiences and their Impact. J Pain Symptom Manage. 2023;65(1):16–25.

Article  PubMed 

留言 (0)

沒有登入
gif