Development of a questionnaire to assess the patient perspective regarding challenges in psoriatic arthritis treatment—a mixed-methods study

Parisi R, Iskandar IYK, Kontopantelis E, Augustin M, Griffiths CEM, Ashcroft DM. National, regional, and worldwide epidemiology of psoriasis: systematic analysis and modelling study. BMJ. 2020;369:m1590.

Alinaghi F, Calov M, Kristensen LE, Gladman DD, Coates LC, Jullien D, et al. Prevalence of psoriatic arthritis in patients with psoriasis: a systematic review and meta-analysis of observational and clinical studies. J Am Acad Dermatol. 2019;80:251–e26519.

Article  PubMed  Google Scholar 

Ritchlin CT, Colbert RA, Gladman DD. Psoriatic arthritis. N Engl J Med. 2017;376:957–70.

Article  PubMed  Google Scholar 

Ribeiro AL, Dullius L, Sartori NS, Azeredo-da-Silva A, Kohem CL, Coates L, et al. Challenges in the management of psoriatic arthritis in Latin America: a systematic review. Clin Ther. 2023;S0149–2918(23):00134–0.

Google Scholar 

Elmamoun M, Eraso M, Anderson M, Maharaj A, Coates L, Chandran V, et al. International League of associations for rheumatology recommendations for the management of psoriatic arthritis in resource-poor settings. Clin Rheumatol. 2020;39:1839–1839.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Espinoza LR, Toloza SMA, Valle-Onate R, Mease PJ. Global partnering opportunities and challenges of psoriasis and psoriatic arthritis in Latin America: a report from the GRAPPA 2010 annual meeting. The Journal of rheumatology. 2012;39:445–7.

Orbai A-M, Ogdie A. Patient reported outcomes in Psoriatic Arthritis. Rheum Dis Clin North Am. 2016;42:265–83.

Article  PubMed  PubMed Central  Google Scholar 

Van Nies JAB, Krabben A, Schoones JW, Huizinga TWJ, Kloppenburg M, Van Der Helm-Van Mil AHM. What is the evidence for the presence of a therapeutic window of opportunity in rheumatoid arthritis? A systematic literature review. Ann Rheum Dis. 2014;73:861–70.

Article  PubMed  Google Scholar 

Haroon M, Gallagher P, FitzGerald O. Diagnostic delay of more than 6 months contributes to poor radiographic and functional outcome in psoriatic arthritis. Ann Rheum Dis. 2015;74:1045–50.

Article  CAS  PubMed  Google Scholar 

Orbai A-M, de Wit M, Mease P, Shea JA, Gossec L, Leung YY, et al. International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. Ann Rheum Dis. 2017;76:673–80.

Article  PubMed  Google Scholar 

O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89:1245–51.

Article  PubMed  Google Scholar 

Taylor W, Gladman D, Helliwell P, Marchesoni A, Mease P, Mielants H, et al. Classification criteria for psoriatic arthritis: development of new criteria from a large international study. Arthritis Rheum. 2006;54:2665–73.

Article  PubMed  Google Scholar 

Greenbaum TL. The Handbook for Focus Group Research. SAGE Publications, Inc.; 1998 [cited 2023 Aug 22]. https://methods.sagepub.com/book/the-handbook-for-focus-group-research

Park MS, Kang KJ, Jang SJ, Lee JY, Chang SJ. Evaluating test-retest reliability in patient-reported outcome measures for older people: a systematic review. Int J Nurs Stud. 2018;79:58–69.

Article  PubMed  Google Scholar 

Perrot S, Bouhassira D, Fermanian J, CEDR (cercle d’Etude de la douleur en rhumatologie). Development and validation of the Fibromyalgia Rapid Screening Tool (FiRST). Pain. 2010;150:250–6.

Article  PubMed  Google Scholar 

Kroenke K, Spitzer RL, Williams JBW. The Patient Health Questionnaire-2: validity of a two-item depression screener. Med Care. 2003;41:1284–92.

Article  PubMed  Google Scholar 

Arnold LM, Crofford LJ, Mease PJ, Burgess SM, Palmer SC, Abetz L, et al. Patient perspectives on the impact of Fibromyalgia. Patient Educ Couns. 2008;73:114–20.

Article  PubMed  PubMed Central  Google Scholar 

Montesó-Curto P, Panisello-Chavarria ML, Sarrió-Colás L, Toussaint L. Nurses’ perceptions of patient Fibromyalgia Illness experiences after performing group-based problem-solving therapy: a qualitative research study. Healthcare. 2023;11:1531.

Article  PubMed  PubMed Central  Google Scholar 

Bojlén NS, Lunde IM. [Focus group interview as a qualitative research method]. Ugeskr Laeger. 1995;157:3315–8.

PubMed  Google Scholar 

Yaddanapudi S, Yaddanapudi LN. How to design a questionnaire. Indian J Anaesth. 2019;63:335–7.

Article  PubMed  PubMed Central  Google Scholar 

Willis GB, Artino AR. What do our respondents think we’re asking? Using Cognitive interviewing to improve medical education surveys. J Grad Med Educ. 2013;5:353–6.

Article  PubMed  PubMed Central  Google Scholar 

Rooney MK, Santiago G, Perni S, Horowitz DP, McCall AR, Einstein AJ, et al. Readability of patient education materials from high-impact medical journals: a 20-Year analysis. J Patient Exp. 2021;8:2374373521998847.

PubMed  PubMed Central  Google Scholar 

Associação Brasileira de Empresas de Pesquisa (ABEP). Critério de Classificação Econômica Brasil. 2022 [cited 2024 Jan 5]. https://www.abep.org/criterio-brasil

Standards for reporting. qualitative research: a synthesis of recommendations| EQUATOR Network. [cited 2023 Mar 3]. https://www.equator-network.org/reporting-guidelines/srqr/

Boers M, Kirwan JR, Wells G, Beaton D, Gossec L, d’Agostino M-A, et al. Developing core outcome measurement sets for clinical trials: OMERACT filter 2.0. J Clin Epidemiol. 2014;67:745–53.

Article  PubMed  Google Scholar 

Iannone F, Nivuori M, Fornaro M, Venerito V, Cacciapaglia F, Lopalco G. Comorbid fibromyalgia impairs the effectiveness of biologic drugs in patients with psoriatic arthritis. Rheumatology (Oxford). 2020;59:1599–606.

Article  CAS  PubMed  Google Scholar 

Ulus Y, Akyol Y, Bilgici A, Kuru O. The impact of the presence of fibromyalgia on fatigue in patients with psoriatic arthritis: comparison with controls. Adv Rheumatol. 2019;60:1.

Article  PubMed  Google Scholar 

de Sousa AP, de Arruda GT, Pontes-Silva A, de Souza MC, Driusso P, Avila MA. Measurement properties of the Brazilian online version of the Fibromyalgia Rapid Screening Tool (FiRST). Adv Rheumatol. 2022;62:39.

Article  PubMed  PubMed Central  Google Scholar 

Llàdser A-N, Montesó-Curto P, López C, Rosselló L, Lear S, Toussaint L, et al. Multidisciplinary rehabilitation treatments for patients with fibromyalgia: a systematic review. Eur J Phys Rehabil Med. 2022;58:76–84.

Article  PubMed  Google Scholar 

Berger A, Dukes E, Martin S, Edelsberg J, Oster G. Characteristics and healthcare costs of patients with fibromyalgia syndrome. Int J Clin Pract. 2007;61:1498–508.

Article  CAS  PubMed  Google Scholar 

Coates LC, Soriano ER, Corp N, Bertheussen H, Callis Duffin K, Campanholo CB, et al. Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA): updated treatment recommendations for psoriatic arthritis 2021. Nat Rev Rheumatol. 2022;18:465–79.

Article  PubMed  PubMed Central  Google Scholar 

Piovesan DM, Busato VB, da Silveira RG, do Prado AD, Molina-Bastos CG, Hickmann S, et al. Quality of referrals to a rheumatology service before and after implementation of a triage system with telemedicine support. Adv Rheumatol (London, England). 2021;61. https://pubmed.ncbi.nlm.nih.gov/34284822/

Patel KB, Turner K, Alishahi Tabriz A, Gonzalez BD, Oswald LB, Nguyen OT, et al. Estimated indirect cost savings of using Telehealth among nonelderly patients with Cancer. JAMA Netw Open. 2023;6:e2250211.

Article  PubMed  PubMed Central  Google Scholar 

Villeneuve E, Nam JL, Bell MJ, Deighton CM, Felson DT, Hazes JM, et al. A systematic literature review of strategies promoting early referral and reducing delays in the diagnosis and management of inflammatory arthritis. Ann Rheum Dis. 2013;72:13–22.

Article  PubMed  Google Scholar 

van Onna M, Gorter S, Maiburg B, Waagenaar G, van Tubergen A. Education improves referral of patients suspected of having spondyloarthritis by general practitioners: a study with unannounced standardised patients in daily practice. RMD Open. 2015;1:e000152.

Article  PubMed  PubMed Central  Google Scholar 

Tom BDM, Chandran V, Farewell VT, Rosen CF, Gladman DD. Validation of the Toronto Psoriatic Arthritis Screen Version 2 (ToPAS 2). J Rheumatol. 2015;42:841–6.

Article  PubMed  Google Scholar 

Macinko J, Harris MJ. Brazil’s Family Health Strategy — Delivering Community-based primary care in a Universal Health System. N Engl J Med. 2015;372:2177–81.

Article  CAS  PubMed 

留言 (0)

沒有登入
gif