Murphy, S.J.X. and Werring, D.J., Stroke: causes and clinical features, Medicine, 2020, vol. 48, no. 9, pp. 561–566.
Gorelick, P.B., The global burden of stroke: persistent and disabling, Lancet Neurol., 2019, vol. 18, no. 5, pp. 417–418.
Sennfält, S. and Ullberg, T., Informal caregivers in stroke: life impact, support, and psychological well-being—a Swedish Stroke Register (Riksstroke) study, Int. J. Stroke, 2020, vol. 15, no. 2, pp. 197–205.
Sidek, N.N., Kamalakannan, S., Tengku, I.T.A., Musa, K.I., Ibrahim, K.A., Abdul A.Z., and Papachristou, N.I., Experiences and needs of the caregivers of stroke survivors in Malaysia—a phenomenological exploration, Front. Neurol., 2022, vol. 13, p. 996620.
Article PubMed PubMed Central Google Scholar
Moura, A., Teixeira, F., Amorim, M., Henriques, A., Nogueira, C., and Alves, E., A scoping review on studies about the quality of life of informal caregivers of stroke survivors, Qual. Life Res., 2022, vol. 31, no. 4, pp. 1012–1032.
Bucki, B., Spitz, E., and Baumann, M., Emotional and social repercussions of stroke on patient-family caregiver dyads: analysis of diverging attitudes and profiles of the differing dyads, PLoS One, 2019, vol. 14, no. 4, p. e0215425.
Article PubMed PubMed Central CAS Google Scholar
Pucciarelli, G., Ausili, D., Galbussera, A.A., Rebora, P., Savini, S., Simeone, S., Alvaro, R., and Vellone, E., Quality of life, anxiety, depression and burden among stroke caregivers: a longitudinal, observational multicentre study, J. Adv. Nurs., 2018, vol. 74, no. 8, pp. 1875–1887.
Denham, A.M.J., Wynne, O., Baker, A.L., Spratt, N.J., Turner, A., Magin, P., Janssen, H., English, C., Loh, M., and Bonevski, B., “This is our life now. Our new normal”: a qualitative study of the unmet needs of carers of stroke survivors, PLoS One, 2019, vol. 14, no. 5, p. e0216682.
Article PubMed PubMed Central Google Scholar
Katan, M. and Luft, A., Global burden of stroke, Semin. Neurol., 2018, vol. 38, no. 2, pp. 208–211.
Béjot, Y., Delpont, B., and Giroud, M., Rising stroke incidence in young adults: more epidemiological evidence, more questions to be answered, J. Am. Heart Assoc., 2016, vol. 5, no. 5, p. e003661.
Article PubMed PubMed Central Google Scholar
Okoye, E.C., Okoro, S.C., Akosile, C.O., Onwuakagba, I.U., Inegihu, E.Y., and Ihegihu, C.C., Informal caregivers’ well-being and care recipients’ quality of life and community reintegration—findings from a stroke survivor sample, Scand. J. Caring Sci., 2019, vol. 33, no. 3, pp. 641–650.
Maltby, J., Hogervorst, E., Stephan, B., Sun, X., Tang, P., Law, E., and Mukaetova-Ladinska, E.B., The development of a quality of life scale for informal carers for older adults, Gerontol. Geriatr. Med., 2020, vol. 6, p. 2333721420920424.
Article PubMed PubMed Central Google Scholar
Joseph, S., Becker, S., Elwick, H., and Silburn, R., Adult carers quality of life questionnaire (AC-QoL): development of an evidence-based tool, Ment. Health Rev. J., 2012, vol. 17, no. 2, pp. 57–69.
Chaknum, P., Harniratisai, T., Somprasert, C., and Chiang, L.C., Perception of the factors contributing to family happiness among caregivers of stroke survivors in a suburban community in Thailand: a qualitative study, Malays. Fam. Physician, 2023, vol. 18, p. 13.
Article PubMed PubMed Central Google Scholar
White, C., Wood-Dauphinee, S., Mayo, N., Lauzon, S., Yaffe, M., and Hanley, J., Reliability and validity of a measure of quality of life for family caregivers of stroke survivors, Stroke, 2002, vol. 33, no. 1, p. 343.
Mei, Y., Lin, B., Li, Y., Ding, C., and Zhang, Z., Validity and reliability of Chinese version of Adult Carer Quality of Life questionnaire (AC-QoL) in family caregivers of stroke survivors, PLoS One, 2017, vol. 12, no. 11, p. e0186680.
Article PubMed PubMed Central Google Scholar
Negri, L., Piazza, G., Sartori, R.D.G., Cocchi, M.G., and Delle, F.A., The adult carer quality of life questionnaire (AC-QoL): comparison with measures of burden and well-being, and Italian validation, Disabil. Rehabil., 2019, vol. 41, no. 10, pp. 1207–1216.
Zhang, J. and Lee, D.T.F., Meaning in stroke family caregiving: a literature review, Geriatr. Nurs., 2017, vol. 38, no. 1, pp. 48–56.
Pais-Ribeiro, J., Silva, I., Ferreira, T., Martins, A., Meneses, R., and Baltar, M., Validation study of a Portuguese version of the Hospital Anxiety and Depression Scale, Psychol. Health Med., 2007, vol. 12, no. 2, pp. 225–237.
Article PubMed CAS Google Scholar
Sequeira, C., Adaptação e validação da Escala de Sobrecarga do Cuidador de Zarit, Referência, 2010, vol. 2, no. 12, pp. 9–16.
Hutcheson, G. and Sofroniou, N., The Multivariate Social Scientist, London: SAGE Publications, 1999.
Brown, T., Confirmatory Factor Analysis for Applied Research, New York: Guilford Publications, 2015.
Hu, L. and Bentler, P.M., Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives, Struct. Equation Model., 1999, vol. 6, no. 1, pp. 1–55.
Taber, K.S., The use of Cronbach’s Alpha when developing and reporting research instruments in Science Education, Res. Sci. Educ., 2018, vol. 48, pp. 1273–1296.
Kavga, A., Govina, O., Galanis, P., Kalemikerakis, I., Vlachou, E., Fotos, N., Tziaferi, S., and Kalokairinou, A., Determinants of health promotion behaviors among family caregivers of stroke survivors, Diseases, 2021, vol. 9, no. 1, p. 10.
Article PubMed PubMed Central Google Scholar
Rajsic, S., Gothe, H., Borba, H.H., Sroczynski, G., Vujicic, J., Toell, T., and Siebert, U., Economic burden of stroke: a systematic review on post-stroke care, Eur. J. Health Econ., 2019, vol. 20, no. 1, pp. 107–134.
Article PubMed CAS Google Scholar
Litzelman, K., Skinner, H.G., Gangnon, R.E., Nieto, F.J., Malecki, K., and Witt, W.P., The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin, Qual. Life Res., 2015, vol. 24, no. 6, pp. 1397–1406.
Willert, B. and Minnotte, K.L., Informal caregiving and strains: exploring the impacts of gender, race, and income, Appl. Res. Qual. Life, 2021, vol. 16, pp. 943–964.
Tsai, Y., Lou, M., Feng, T., Chu, T., Chen, Y., and Liu, H., Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year, BMC Neurol., 2018, vol. 18, no. 1, p. 50.
Article PubMed PubMed Central Google Scholar
Campione, J.R. and Zebrak, K.A., Predictors of unmet need among informal caregivers, J. Gerontol., 2020, vol. 75, no. 10, pp. 2181–2192.
Steenfeldt, V.Ø., Aagerup, L.C., Jacobsen, A.H., and Skjødt, U., Becoming a family caregiver to a person with dementia: a literature review on the needs of family caregivers, SAGE Open Nurs., 2021, vol. 7, p. 23779608211029073.
PubMed PubMed Central Google Scholar
Varughese, T., Casameni, M.T., Engebretson, J., Savitz, S.I., Sharrief, A., and Beauchamp, J.E.S., A person-centered approach understanding stroke survivor and family caregiver emotional health, J. Neurosci. Nurs., 2022, vol. 54, no. 2, pp. 68–73.
Lopez–Anuarbe, M. and Kohli, P., Understanding male caregivers’ emotional, financial, and physical burden in the United States, Healthcare (Basel), 2019, vol. 7, no. 2, p. 72.
Article PubMed PubMed Central Google Scholar
Rahmani, F., Ranjbar, F., Hosseinzadeh, M., Razavi, S.S., Dickens, G.L., and Vahidi, M., Coping strategies of family caregivers of patients with schizophrenia in Iran: a cross-sectional survey, Int. J. Nurs. Sci., 2019, vol. 6, no. 2, pp. 148–153.
PubMed PubMed Central Google Scholar
Zygouri, I., Cowdell, F., Ploumis, A., Gouva, M., and Mantzoukas, S., Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis, BMC Health Serv. Res., 2021, vol. 21, no. 1, p. 730.
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