Validation of the Portuguese Version of the Adult Carers Quality of Life Questionnaire (AC-QoL) among Informal Carers of Stroke Survivors

Murphy, S.J.X. and Werring, D.J., Stroke: causes and clinical features, Medicine, 2020, vol. 48, no. 9, pp. 561–566.

Article  PubMed  Google Scholar 

Gorelick, P.B., The global burden of stroke: persistent and disabling, Lancet Neurol., 2019, vol. 18, no. 5, pp. 417–418.

Article  PubMed  Google Scholar 

Sennfält, S. and Ullberg, T., Informal caregivers in stroke: life impact, support, and psychological well-being—a Swedish Stroke Register (Riksstroke) study, Int. J. Stroke, 2020, vol. 15, no. 2, pp. 197–205.

Article  PubMed  Google Scholar 

Sidek, N.N., Kamalakannan, S., Tengku, I.T.A., Musa, K.I., Ibrahim, K.A., Abdul A.Z., and Papachristou, N.I., Experiences and needs of the caregivers of stroke survivors in Malaysia—a phenomenological exploration, Front. Neurol., 2022, vol. 13, p. 996620.

Article  PubMed  PubMed Central  Google Scholar 

Moura, A., Teixeira, F., Amorim, M., Henriques, A., Nogueira, C., and Alves, E., A scoping review on studies about the quality of life of informal caregivers of stroke survivors, Qual. Life Res., 2022, vol. 31, no. 4, pp. 1012–1032.

Article  Google Scholar 

Bucki, B., Spitz, E., and Baumann, M., Emotional and social repercussions of stroke on patient-family caregiver dyads: analysis of diverging attitudes and profiles of the differing dyads, PLoS One, 2019, vol. 14, no. 4, p. e0215425.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Pucciarelli, G., Ausili, D., Galbussera, A.A., Rebora, P., Savini, S., Simeone, S., Alvaro, R., and Vellone, E., Quality of life, anxiety, depression and burden among stroke caregivers: a longitudinal, observational multicentre study, J. Adv. Nurs., 2018, vol. 74, no. 8, pp. 1875–1887.

Article  Google Scholar 

Denham, A.M.J., Wynne, O., Baker, A.L., Spratt, N.J., Turner, A., Magin, P., Janssen, H., English, C., Loh, M., and Bonevski, B., “This is our life now. Our new normal”: a qualitative study of the unmet needs of carers of stroke survivors, PLoS One, 2019, vol. 14, no. 5, p. e0216682.

Article  PubMed  PubMed Central  Google Scholar 

Katan, M. and Luft, A., Global burden of stroke, Semin. Neurol., 2018, vol. 38, no. 2, pp. 208–211.

Article  PubMed  Google Scholar 

Béjot, Y., Delpont, B., and Giroud, M., Rising stroke incidence in young adults: more epidemiological evidence, more questions to be answered, J. Am. Heart Assoc., 2016, vol. 5, no. 5, p. e003661.

Article  PubMed  PubMed Central  Google Scholar 

Okoye, E.C., Okoro, S.C., Akosile, C.O., Onwuakagba, I.U., Inegihu, E.Y., and Ihegihu, C.C., Informal caregivers’ well-being and care recipients’ quality of life and community reintegration—findings from a stroke survivor sample, Scand. J. Caring Sci., 2019, vol. 33, no. 3, pp. 641–650.

Article  PubMed  Google Scholar 

Maltby, J., Hogervorst, E., Stephan, B., Sun, X., Tang, P., Law, E., and Mukaetova-Ladinska, E.B., The development of a quality of life scale for informal carers for older adults, Gerontol. Geriatr. Med., 2020, vol. 6, p. 2333721420920424.

Article  PubMed  PubMed Central  Google Scholar 

Joseph, S., Becker, S., Elwick, H., and Silburn, R., Adult carers quality of life questionnaire (AC-QoL): development of an evidence-based tool, Ment. Health Rev. J., 2012, vol. 17, no. 2, pp. 57–69.

Article  Google Scholar 

Chaknum, P., Harniratisai, T., Somprasert, C., and Chiang, L.C., Perception of the factors contributing to family happiness among caregivers of stroke survivors in a suburban community in Thailand: a qualitative study, Malays. Fam. Physician, 2023, vol. 18, p. 13.

Article  PubMed  PubMed Central  Google Scholar 

White, C., Wood-Dauphinee, S., Mayo, N., Lauzon, S., Yaffe, M., and Hanley, J., Reliability and validity of a measure of quality of life for family caregivers of stroke survivors, Stroke, 2002, vol. 33, no. 1, p. 343.

CAS  Google Scholar 

Mei, Y., Lin, B., Li, Y., Ding, C., and Zhang, Z., Validity and reliability of Chinese version of Adult Carer Quality of Life questionnaire (AC-QoL) in family caregivers of stroke survivors, PLoS One, 2017, vol. 12, no. 11, p. e0186680.

Article  PubMed  PubMed Central  Google Scholar 

Negri, L., Piazza, G., Sartori, R.D.G., Cocchi, M.G., and Delle, F.A., The adult carer quality of life questionnaire (AC-QoL): comparison with measures of burden and well-being, and Italian validation, Disabil. Rehabil., 2019, vol. 41, no. 10, pp. 1207–1216.

Article  PubMed  Google Scholar 

Zhang, J. and Lee, D.T.F., Meaning in stroke family caregiving: a literature review, Geriatr. Nurs., 2017, vol. 38, no. 1, pp. 48–56.

Article  PubMed  Google Scholar 

Pais-Ribeiro, J., Silva, I., Ferreira, T., Martins, A., Meneses, R., and Baltar, M., Validation study of a Portuguese version of the Hospital Anxiety and Depression Scale, Psychol. Health Med., 2007, vol. 12, no. 2, pp. 225–237.

Article  PubMed  CAS  Google Scholar 

Sequeira, C., Adaptação e validação da Escala de Sobrecarga do Cuidador de Zarit, Referência, 2010, vol. 2, no. 12, pp. 9–16.

Google Scholar 

Hutcheson, G. and Sofroniou, N., The Multivariate Social Scientist, London: SAGE Publications, 1999.

Book  Google Scholar 

Brown, T., Confirmatory Factor Analysis for Applied Research, New York: Guilford Publications, 2015.

Google Scholar 

Hu, L. and Bentler, P.M., Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives, Struct. Equation Model., 1999, vol. 6, no. 1, pp. 1–55.

Article  Google Scholar 

Taber, K.S., The use of Cronbach’s Alpha when developing and reporting research instruments in Science Education, Res. Sci. Educ., 2018, vol. 48, pp. 1273–1296.

Article  Google Scholar 

Kavga, A., Govina, O., Galanis, P., Kalemikerakis, I., Vlachou, E., Fotos, N., Tziaferi, S., and Kalokairinou, A., Determinants of health promotion behaviors among family caregivers of stroke survivors, Diseases, 2021, vol. 9, no. 1, p. 10.

Article  PubMed  PubMed Central  Google Scholar 

Rajsic, S., Gothe, H., Borba, H.H., Sroczynski, G., Vujicic, J., Toell, T., and Siebert, U., Economic burden of stroke: a systematic review on post-stroke care, Eur. J. Health Econ., 2019, vol. 20, no. 1, pp. 107–134.

Article  PubMed  CAS  Google Scholar 

Litzelman, K., Skinner, H.G., Gangnon, R.E., Nieto, F.J., Malecki, K., and Witt, W.P., The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin, Qual. Life Res., 2015, vol. 24, no. 6, pp. 1397–1406.

Article  PubMed  Google Scholar 

Willert, B. and Minnotte, K.L., Informal caregiving and strains: exploring the impacts of gender, race, and income, Appl. Res. Qual. Life, 2021, vol. 16, pp. 943–964.

Article  Google Scholar 

Tsai, Y., Lou, M., Feng, T., Chu, T., Chen, Y., and Liu, H., Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year, BMC Neurol., 2018, vol. 18, no. 1, p. 50.

Article  PubMed  PubMed Central  Google Scholar 

Campione, J.R. and Zebrak, K.A., Predictors of unmet need among informal caregivers, J. Gerontol., 2020, vol. 75, no. 10, pp. 2181–2192.

Article  Google Scholar 

Steenfeldt, V.Ø., Aagerup, L.C., Jacobsen, A.H., and Skjødt, U., Becoming a family caregiver to a person with dementia: a literature review on the needs of family caregivers, SAGE Open Nurs., 2021, vol. 7, p. 23779608211029073.

PubMed  PubMed Central  Google Scholar 

Varughese, T., Casameni, M.T., Engebretson, J., Savitz, S.I., Sharrief, A., and Beauchamp, J.E.S., A person-centered approach understanding stroke survivor and family caregiver emotional health, J. Neurosci. Nurs., 2022, vol. 54, no. 2, pp. 68–73.

Article  PubMed  Google Scholar 

Lopez–Anuarbe, M. and Kohli, P., Understanding male caregivers’ emotional, financial, and physical burden in the United States, Healthcare (Basel), 2019, vol. 7, no. 2, p. 72.

Article  PubMed  PubMed Central  Google Scholar 

Rahmani, F., Ranjbar, F., Hosseinzadeh, M., Razavi, S.S., Dickens, G.L., and Vahidi, M., Coping strategies of family caregivers of patients with schizophrenia in Iran: a cross-sectional survey, Int. J. Nurs. Sci., 2019, vol. 6, no. 2, pp. 148–153.

PubMed  PubMed Central  Google Scholar 

Zygouri, I., Cowdell, F., Ploumis, A., Gouva, M., and Mantzoukas, S., Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis, BMC Health Serv. Res., 2021, vol. 21, no. 1, p. 730.

Article  PubMed  PubMed Central 

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