In the Eye of the Beholder: Visualizing Strengths, Burdens and Desires Through the Lens of Neurodivergent Children, Their Parents, and Professionals Using the Yucel Method

Aasen, G., & Nærland, T. (2014). Enhancing activity by means of tactile symbols: A study of a heterogeneous group of pupils with congenital blindness, intellectual disability and autism spectrum disorder. Journal of Intellectual Disabilities, 18(1), 61–75. https://doi.org/10.1177/1744629514522142

Article  PubMed  Google Scholar 

Ahn, S. N., & Hwang, S. (2018). Cognitive rehabilitation of adaptive behavior in children with neurodevelopmental disorders: A meta-analysis. Occupational Therapy International, 2018. https://doi.org/10.1155/2018/5029571

Alemayehu, Y. H. (2019). Enhancing patient and family-centered care: A three-step strengths-based model. International Journal of Caring Sciences, 12(1), 584–590.

Google Scholar 

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596

Armstrong, T. (2015). The myth of the normal brain: Embracing neurodiversity. AMA Journal of Ethics, 17(4), 348–352. https://doi.org/10.1001/journalofethics.2015.17.4.msoc1-1504

Article  PubMed  Google Scholar 

Arthur-Kelly, M., Sigafoos, J., Green, V., Mathisen, B., & Arthur-Kelly, R. (2009). Issues in the use of visual supports to promote communication in individuals with autism spectrum disorder. Disability and Rehabilitation, 31(18), 1474–1486. https://doi.org/10.1080/09638280802590629

Article  PubMed  Google Scholar 

Astle, D. E., Holmes, J., Kievit, R., & Gathercole, S. E. (2021). Annual Research Review: The transdiagnostic revolution in neurodevelopmental disorders. Journal of Child Psychology and Psychiatry. https://doi.org/10.1111/jcpp.13589

Baier, A. L., Kline, A. C., & Feeny, N. C. (2020). Therapeutic alliance as a mediator of change: A systematic review and evaluation of research. Clinical Psychology Review, 82, 101921. https://doi.org/10.1016/j.cpr.2020.101921

Article  PubMed  Google Scholar 

Bailey, R., Willner, P., & Dymond, S. (2011). A visual aid to decision-making for people with intellectual disabilities. Research in Developmental Disabilities, 32(1), 37–46. https://doi.org/10.1016/j.ridd.2010.08.008

Article  PubMed  Google Scholar 

Barnová, S., & Tamášová, V. (2018). Risk and protective factors in the life of youth in relation to resilience. Psychology and Pathopsychology of Child, 52(1), 50–59. https://doi.org/10.2478/papd-2018-0001

Article  Google Scholar 

Bokhour, B. G., Fix, G. M., Mueller, N. M., Barker, A. M., Lavela, S. L., Hill, J. N., Solomon, J. L., & Lukas, C. V. (2018). How can healthcare organisations implement patient-centered care? Examining a large-scale cultural transformation. BMC Health Services Research, 18(1), 1–11. https://doi.org/10.1186/s12913-018-2949-5

Article  Google Scholar 

Cameron-Mathiassen, J., Leiper, J., Simpson, J., & McDermott, E. (2022). What was care like for me? A systematic review of the experiences of young people living in residential care. Children and Youth Services Review, 106524. https://doi.org/10.1016/j.childyouth.2022.106524

Carroll, C., & Twomey, M. (2020). Voices of children with neurodevelopmental disorders in qualitative research: A scoping review. Journal of Developmental and Physical Disabilities, 33(5), 709–724. https://doi.org/10.1007/s10882-020-09775-5

Article  Google Scholar 

Chapman, R. (2020). Neurodiversity, disability, wellbeing. In Neurodiversity studies (pp. 57–72). Routledge.

Chapter  Google Scholar 

Cohen, A., & Demchak, M. (2018). Use of visual supports to increase task independence in students with severe disabilities in inclusive educational settings. Education and Training in Autism and Developmental Disabilities, 53(1), 84–99.

Google Scholar 

D’Souza, H., & Karmiloff-Smith, A. (2017). Neurodevelopmental disorders. Wiley Interdisciplinary Reviews: Cognitive Science, 8(1-2), e1398. https://doi.org/10.1002/wcs.1398

Article  Google Scholar 

Darcy, S., & Dowse, L. (2013). In search of a level playing field–The constraints and benefits of sport participation for people with intellectual disability. Disability & Society, 28(3), 393–407. https://doi.org/10.1080/09687599.2012.714258

Article  Google Scholar 

Davis, S. D., Fife, S. T., Whiting, J. B., & Bradford, K. P. (2021). Way of being and the therapeutic pyramid: Expanding the application of a common factors meta-model. Journal of Marital and Family Therapy, 47(1), 69–84. https://doi.org/10.1111/jmft.12466

Article  PubMed  Google Scholar 

De Greef, M., Delsing, M. J., McLeod, B. D., Pijnenburg, H. M., Scholte, R. H., van Vugt, J., & van Hattum, M. J. (2019). Supervisory alliance: Key to positive alliances and outcomes in home-based parenting support? Journal of Child and Family Studies, 28(4), 993–1004. https://doi.org/10.1007/s10826-018-01317-0

Article  Google Scholar 

Duijvestijn, P. (2014). Sport als onderdeel van het jeugdbeleid: ontwikkelingen en kansen in beeld. Jeugdbeleid, 8(3-4), 33–38. https://doi.org/10.1007/s12451-014-0055-1

Article  Google Scholar 

Dyck, E., & Russell, G. (2020). Challenging psychiatric classification: Healthy autistic diversity and the neurodiversity movement. Healthy minds in the twentieth century: In and beyond the asylum, 167-187. https://doi.org/10.1007/978-3-030-27275-3_8

Ekblad, L. (2013). Autism, personality, and human diversity: Defining neurodiversity in an iterative process using Aspie Quiz. SAGE Open, 3(3). https://doi.org/10.1177/2158244013497722

Flores-Buils, R., & Andrés-Roqueta, C. (2022). Factors influencing resilience of parents with children with neurodevelopmental disorders: The role of structural language, social cognition, and social support. Frontiers in Psychiatry. https://doi.org/10.3389/fpsyt.2022.886590

Frielink, N., Schuengel, C., & Embregts, P. J. C. M. (2018). Autonomy support, need satisfaction, and motivation for support among adults with intellectual disability: Testing a self-determination theory model. American Journal on Intellectual and Developmental Disabilities, 123(1), 33–49. https://doi.org/10.1352/1944-7558-123.1.33

Article  PubMed  Google Scholar 

Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology, 13(1), 1–8. https://doi.org/10.1186/1471-2288-13-117

Article  Google Scholar 

Gardiner, E., Miller, A. R., & Lach, L. M. (2020). Service adequacy and the relation between child problems and negative family impact reported by primary caregivers of children with neurodevelopmental conditions. Research in Developmental Disabilities, 104, 103712. https://doi.org/10.1016/j.ridd.2020.103712

Article  PubMed  Google Scholar 

Garner, R. E., Arim, R. G., Kohen, D. E., Lach, L. M., Mackenzie, M. J., Brehaut, J. C., & Rosenbaum, P. L. (2013). Parenting children with neurodevelopmental disorders and/or behavior problems. Child: Care, Health and Development, 39(3), 412–421. https://doi.org/10.1111/j.1365-2214.2011.01347.x

Article  PubMed  Google Scholar 

Garzotto, F., Gelsomini, M., Gianotti, M., & Riccardi, F. (2019). Engaging children with neurodevelopmental disorder through multisensory interactive experiences in a smart space. Social Internet of Things, 167–184. https://doi.org/10.1007/978-3-319-94659-7_9

Hays-Grudo, J., & Morris, A. S. (2020). Adverse and protective childhood experiences: A developmental perspective. APA Press.

Book  Google Scholar 

Heslon, K., Hanson, J. H., & Ogourtsova, T. (2024). Mental health in children with disabilities and their families: Red flags, services’ impact, facilitators, barriers, and proposed solutions. Frontiers in Rehabilitation Sciences, 5, 1347412. https://doi.org/10.3389/fresc.2024.1347412

Article  PubMed  PubMed Central  Google Scholar 

Jayadevappa, R., & Chhatre, S. (2011). Patient centered care - A conceptual model and review of the state of the art. The Open Health Services and Policy Journal, 4(1). https://doi.org/10.2174/1874924001104010015

Knotter, M. (2019). The Whole is More. A Contextual Perspective on Attitudes and Reactions of Staff Towards Aggressive Behavior of Clients with ID in Residential Institutions. Retrieved March 7, 2023, from: https://pure.uva.nl/ws/files/31587457/Thesis.pdf

Köhne, A. C., & van Os, J. (2021). Precision psychiatry: Promise for the future or rehash of a fossilised foundation? Psychological Medicine, 51(9), 1409–1411. https://doi.org/10.1017/S0033291721000271

Article  PubMed  Google Scholar 

Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. biometrics, 159–174. https://doi.org/10.2307/2529310

Lehman, B. J., David, D. M., & Gruber, J. A. (2017). Rethinking the biopsychosocial model of health: Understanding health as a dynamic system. Social and Personality Psychology Compass, 11(8). https://doi.org/10.1111/spc3.12328

Lerner, R. M. (2006). Resilience as an attribute of the developmental system: Comments on the papers of Professors Masten & Wachs. In B. M. Lester, A. S. Masten, & B. McEwen (Eds.), Resilience in children (pp. 40–51). Blackwell. https://doi.org/10.1196/annals.1376.005

Chapter  Google Scholar 

Márquez-Caraveo, M. E., Rodríguez-Valentín, R., Pérez-Barrón, V., Vázquez-Salas, R. A., Sánchez-Ferrer, J. C., De Castro, F., et al. (2021). Children and adolescents with neurodevelopmental disorders show cognitive heterogeneity and require a person-centered approach. Scientific Reports, 11(1). https://doi.org/10.1038/s41598-021-97551-6

Masefield, S. C., Prady, S. L., Sheldon, T. A., Small, N., Jarvis, S., & Pickett, K. E. (2020). The caregiver health effects of caring for young children with developmental disabilities: A meta-analysis. Maternal and Child Health Journal, 24, 561–574. https://doi.org/10.1007/s10995-020-02896-5

Article  PubMed  PubMed Central  Google Scholar 

Matos, A., Rocha, T., Cabral, L., & Bessa, M. (2015). Multi-sensory storytelling to support learning for people with intellectual disability: an exploratory didactic study. Procedia Computer Science, 67, 12–18. https://doi.org/10.1016/j.procs.2015.09.244

Article  Google Scholar 

Moonen, X. (2021). Easy language in the Netherlands. In C. Lindholm & U. Vanhatalo (Eds.), Handbook of Easy Languages in Europe (pp. 345–370). Frank & Timme.

Google Scholar 

Morris, A. S., Hays-Grudo, J., Zapata, M. I., Treat, A., & Kerr, K. L. (2021). Adverse and protective childhood experiences and parenting attitudes: The role of cumulative protection in understanding resilience. Adversity and Resilience Science, 2, 181–192. https://doi.org/10.1007/s42844-021-00036-8

Article  PubMed  PubMed Central  Google Scholar 

Niemiec, R. M., Shogren, K. A., & Wehmeyer, M. L. (2017). Character strengths and intellectual and developmental disability: A strengths-based approach from positive psychology. Education and Training in Autism and Developmental Disabilities, 52(1), 13–25.

Google Scholar 

Nooteboom, L. A., Kuiper, C. H., Mulder, E. A., Roetman, P. J., Eilander, J., & Vermeiren, R. R. (2020). What do parents expect in the 21st century? A qualitative analysis of integrated youth care. International Journal of Integrated Care, 20(3). https://doi.org/10.5334/ijic.5613

Olivier-Pijpers, V. C., Cramm, J. M., & Nieboer, A. P. (2019). Influence of the organizational environment on challenging behavior in people with intellectual disabilities: Professionals’ views. Journal of Applied Research in Intellectual Disabilities, 32(3), 610–621. https://doi.org/10.1016/j.alter.2018.06.004

Article  PubMed  Google Scholar 

Otterman, D. L., Koopman-Verhoeff, M. E., White, T. J., Tiemeier, H., Bolhuis, K., & Jansen, P. W. (2019). Executive functioning and neurodevelopmental disorders in early childhood: A prospective population-based

留言 (0)

沒有登入
gif