Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery

Virani, S. S., et al. (2020). Heart disease and stroke statistics-2020 update: a report from the american heart association. Circulation, 141(9), e139–e596.

Article  PubMed  Google Scholar 

Goldberg, C. S., et al. (2007). A randomized clinical trial of regional cerebral perfusion versus deep hypothermic circulatory arrest: Outcomes for infants with functional single ventricle. Journal of Thoracic and Cardiovascular Surgery, 133(4), 880–887.

Article  PubMed  Google Scholar 

Mahle, W. T., et al. (2000). Survival after reconstructive surgery for hypoplastic left heart syndrome: A 15-year experience from a single institution. Circulation, 102(19 Suppl 3), Iii136–Iii141.

CAS  PubMed  Google Scholar 

Landolt, M. A., Valsangiacomo Buechel, E. R., & Latal, B. (2008). Health-related quality of life in children and adolescents after open-heart surgery. Journal of Pediatrics, 152(3), 349–355.

Article  PubMed  Google Scholar 

Uzark, K., et al. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121(5), e1060–e1067.

Article  PubMed  Google Scholar 

Bellinger, D. C., et al. (2003). Neurodevelopmental status at eight years in children with dextro-transposition of the great arteries: The Boston Circulatory Arrest Trial. Journal of Thoracic and Cardiovascular Surgery, 126(5), 1385–1396.

Article  PubMed  Google Scholar 

Limperopoulos, C., et al. (2001). Functional limitations in young children with congenital heart defects after cardiac surgery. Pediatrics, 108(6), 1325–1331.

Article  CAS  PubMed  Google Scholar 

Mahle, W. T., et al. (2000). Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome. Pediatrics, 105(5), 1082–1089.

Article  CAS  PubMed  Google Scholar 

Marino, B. S., et al. (2016). The impact of neurodevelopmental and psychosocial outcomes on Health-related quality of life in survivors of congenital heart disease. Journal of Pediatrics, 174, 11–22e2.

Article  PubMed  Google Scholar 

Marino, B. S., et al. (2012). Neurodevelopmental outcomes in children with congenital heart disease: Evaluation and management: A scientific statement from the American Heart Association. Circulation, 126(9), 1143–1172.

Article  PubMed  Google Scholar 

Mellion, K., et al. (2014). Health-related quality of life outcomes in children and adolescents with congenital heart disease. Journal of Pediatrics, 164(4), 781–788e1.

Article  PubMed  Google Scholar 

Wernovsky, G., et al. (2000). Cognitive development after the Fontan operation. Circulation, 102(8), 883–889.

Article  CAS  PubMed  Google Scholar 

Wray, J., & Sensky, T. (2001). Congenital heart disease and cardiac surgery in childhood: Effects on cognitive function and academic ability. Heart, 85(6), 687–691.

Article  CAS  PubMed  PubMed Central  Google Scholar 

D, D. (1998). Measuring Health-related quality of life in children and adolescents. Mahwah, Lawrence Erlbaum Associates.

Marino, B. S., et al. (2010). Validation of the pediatric cardiac quality of life inventory. Pediatrics, 126(3), 498–508.

Article  PubMed  Google Scholar 

Uzark, K., et al. (2003). The pediatric quality of life inventory™ in children with heart disease. Progress in Pediatric Cardiology, 18(2), 141–149.

Article  Google Scholar 

Fayers, P. (2005). Assessing the Quality of Life in Clinical Trails: Methods and Practice (2nd Edition). Oxford, New York: Oxford University Press. 467.

Marino, B. S., et al. (2011). External validity of the pediatric cardiac quality of life inventory. Quality of Life Research, 20(2), 205–214.

Article  PubMed  Google Scholar 

Marino, B. S., et al. (2008). The development of the pediatric cardiac quality of life inventory: A quality of life measure for children and adolescents with heart disease. Quality of Life Research, 17(4), 613–626.

Article  PubMed  Google Scholar 

Marino, B. S., et al. (2009). Quality-of-life concerns differ among patients, parents, and medical providers in children and adolescents with congenital and acquired heart disease. Pediatrics, 123(4), e708–e715.

Article  PubMed  Google Scholar 

Marino, B. S., et al. (2010). Evaluation of quality of life in children with heart disease. Progress in Pediatric Cardiology, 29(2), 131–138.

Article  Google Scholar 

Wray, J., et al. (2011). Medical test results do not tell the whole story: Health-related quality of life offers a patient perspective on outcomes. World J Pediatr Congenit Heart Surg, 2(4), 566–575.

Article  PubMed  Google Scholar 

Wray, J., et al. (2012). Linguistic validation of a disease-specific quality of life measure for children and teenagers with cardiac disease. Cardiology in the Young, 22(1), 13–17.

Article  PubMed  Google Scholar 

Wray, J., et al. (2013). Testing the pediatric cardiac quality of life inventory in the United Kingdom. Acta Paediatrica, 102(2), e68–73.

Article  PubMed  Google Scholar 

Wray, J., et al. (2014). Assessing the generalisability of the pediatric cardiac quality of life inventory in the United Kingdom. Cardiology in the Young, 24(2), 220–228.

Article  PubMed  Google Scholar 

Cohen, J. (2013). Statistical power analysis for the behavioral sciences. Academic.

Norman, G. R., Sloan, J. A., & Wyrwich, K. W. (2004). The truly remarkable universality of half a standard deviation: Confirmation through another look. Expert Rev Pharmacoecon Outcomes Res, 4(5), 581–585.

Article  PubMed  Google Scholar 

Green, C. P., et al. (2000). Development and evaluation of the Kansas City Cardiomyopathy Questionnaire: A new health status measure for heart failure. Journal of the American College of Cardiology, 35(5), 1245–1255.

Article  CAS  PubMed  Google Scholar 

Oldridge, N., et al. (2014). The HeartQoL: Part II. Validation of a new core health-related quality of life questionnaire for patients with ischemic heart disease. Eur J Prev Cardiol, 21(1), 98–106.

Article  PubMed  Google Scholar 

Czosek, R. J., et al. (2015). Quality of life in pediatric patients affected by electrophysiologic disease. Heart Rhythm : The Official Journal of the Heart Rhythm Society, 12(5), 899–908.

Article  Google Scholar 

Strieper, M., et al. (2010). Does ablation of supraventricular tachycardia in children with a structurally normal heart improve quality of life? Congenital Heart Disease, 5(6), 587–593.

Article  PubMed  Google Scholar 

Ahmed, H., et al. (2020). US trends in pediatric VAD utilization - where are we now? The Journal of Heart and Lung Transplantation, 39(4, Supplement), pS220–pS221.

Article  Google Scholar 

Wray, J., et al. (2012). Perceived quality of life of children after successful bridging to heart transplantation. Journal of Heart and Lung Transplantation, 31(4), 381–386.

Article  Google Scholar 

Uzark, K., et al. (2012). Quality of life in pediatric heart transplant recipients: A comparison with children with and without heart disease. Journal of Heart and Lung Transplantation, 31(6), 571–578.

Article  Google Scholar 

Beacher, D., et al. (2021). Impact of valve type (Ross vs. mechanical) on health-related quality of life in children and young adults with Surgical aortic valve replacement. Pediatric Cardiology, 42(5), 1119–1125.

Article  PubMed  Google Scholar 

留言 (0)

沒有登入
gif