Majhail NS, Omondi NA, Denzen E, Murphy EA, Rizzo JD. Access to hematopoietic cell transplantation in the United States. Biol Blood Marrow Transplant. 2010;16:1070–5. https://doi.org/10.1016/j.bbmt.2009.12.529.

Article  PubMed  Google Scholar 

Hong S, Majhail NS. Increasing access to allotransplants in the United States: the impact of race, geography, and socioeconomics. Hematology. 2021;2021:275–80. https://doi.org/10.1182/hematology.2021000259.

Article  PubMed  PubMed Central  Google Scholar 

Hamilton BK, Rybicki L, Sekeres M, Kalaycio M, Hanna R, Sobecks R, et al. Racial differences in allogeneic hematopoietic cell transplantation outcomes among African Americans and whites. Bone Marrow Transplant. 2015;50:834–9. https://doi.org/10.1038/bmt.2015.44.

Article  CAS  PubMed  Google Scholar 

Hong S, Rybicki LA, Corrigan D, Schold JD, Majhail NS. Community risk score for evaluating health care disparities in hematopoietic cell transplantation. Biol Blood Marrow Transplant. 2018;24:877–9. https://doi.org/10.1016/j.bbmt.2017.12.800.

Article  PubMed  Google Scholar 

Joshua TV, Rizzo JD, Zhang MJ, Hari PN, Kurian S, Pasquini M, et al. Access to hematopoietic stem cell transplantation: effect of race and sex. Cancer. 2010;116:3469–76. https://doi.org/10.1002/cncr.25297.

Article  PubMed  Google Scholar 

Fiala MA, Wildes TM. Racial disparities in treatment use for multiple myeloma. Cancer. 2017;123:1590–6. https://doi.org/10.1002/cncr.30526.

Article  PubMed  Google Scholar 

Ailawadhi S, Parikh K, Abouzaid S, Zhou Z, Tang W, Clancy Z, et al. Racial disparities in treatment patterns and outcomes among patients with multiple myeloma: a SEER-Medicare analysis. Blood Adv. 2019;3:2986–94. https://doi.org/10.1182/bloodadvances.2019000308.

Article  PubMed  PubMed Central  Google Scholar 

Winestone LE, Li Q, Muffly LS, Getz KD, Alvarez E, Wun T, et al. Disparities in the use of allogeneic hematopoietic stem cell transplant among children, adolescents, and young adults with acute leukemia in California. Blood. 2020;136:4–5. https://doi.org/10.1182/blood-2020-142240.

Article  Google Scholar 

Pidala J, Craig BM, Lee SJ, Majhail N, Quinn G, Anasetti C. Practice variation in physician referral for allogeneic hematopoietic cell transplantation. Bone Marrow Transplant. 2013;48:63–7. https://doi.org/10.1038/bmt.2012.95.

Article  CAS  PubMed  Google Scholar 

Mitchell JM, Conklin EA. Factors affecting receipt of expensive cancer treatments and mortality: evidence from stem cell transplantation for leukemia and lymphoma. Health Serv Res. 2015;50:197–216. https://doi.org/10.1111/1475-6773.12208.

Article  PubMed  Google Scholar 

Kanate AS, Perales MA, Hamadani M. Eligibility criteria for patients undergoing allogeneic hematopoietic cell transplantation. J Natl Compr Cancer Netw. 2020;18:635–43. https://doi.org/10.6004/jnccn.2020.7559.

Article  CAS  Google Scholar 

Carreras E, Rambaldi A. Evaluation and counseling of candidates. In: Carreras E, Dufour C, Mohty M, Kröger N, editors. The EBMT handbook: hematopoietic stem cell transplantation and cellular therapies. 7th ed. Cham: Springer; 2019. Available from: https://www.ncbi.nlm.nih.gov/books/NBK553925/.

McQuellon RP, Duckworth KE. Psychosocial issues in hematopoietic cell transplantation. In: Forman SJ, Negrin RS, Antin, JH, Appelbaum FR editors. Thomas’ hematopoietic cell transplantation. Wiley; 2015. pp. 384–93. https://doi.org/10.1002/9781118416426.ch32.

Snyder DS. Ethical issues in hematopoietic cell transplantation. In: Forman SJ, Negrin RS, Antin, JH, Appelbaum FR editors. Thomas’ hematopoietic cell transplantation. Wiley; 2015. pp. 374–85. https://doi.org/10.1002/9781118416426.ch31.

Kuntz K, Weinland SR, Butt Z. Psychosocial challenges in solid organ transplantation. J Clin Psychol Med Settings. 2015;22:122–35. https://doi.org/10.1007/s10880-015-9435-6.

Article  PubMed  Google Scholar 

Olbrisch ME, Levenson JL, Hamer RM. The PACT: a rating scale for the study of clinical decision-making in psychosocial screening of organ transplant candidates. Clin Transplant. 1989;3:164–9.

Google Scholar 

Hitschfeld MJ, Schneekloth TD, Kennedy CC, Rummans TA, Niazi SK, Vasquez AR, et al. The psychosocial assessment of candidates for transplantation: a cohort study of its association with survival among lung transplant recipients. Psychosomatics. 2016;57:489–97. https://doi.org/10.1016/j.psym.2016.05.003.

Article  PubMed  Google Scholar 

Hong S, Rybicki L, Corrigan D, Dabney J, Hamilton BK, Kalaycio M, et al. Psychosocial Assessment of Candidates for Transplant (PACT) as a tool for psychological and social evaluation of allogeneic hematopoietic cell transplantation recipients. Bone Marrow Transplant. 2019;54:1443–52. https://doi.org/10.1038/s41409-019-0455-y.

Article  PubMed  PubMed Central  Google Scholar 

Harashima S, Yoneda R, Horie T, Fujioka Y, Nakamura F, Kurokawa M, et al. Psychosocial Assessment of Candidates for Transplantation scale (PACT) and survival after allogeneic hematopoietic stem cell transplantation. Bone Marrow Transplant. 2019;54:1013–21. https://doi.org/10.1038/s41409-018-0371-6.

Article  PubMed  Google Scholar 

Solh MM, Speckhart D, Solomon SR, Bashey A, Morris LE, Zhang X, et al. The Transplant Evaluation Rating Scale predicts overall survival after allogeneic hematopoietic stem cell transplantation. Blood Adv. 2020;4:4812–21. https://doi.org/10.1182/bloodadvances.2020002204.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Foster LW, McLellan L, Rybicki L, Dabney J, Visnosky M, Bolwell B. Utility of the psychosocial assessment of candidates for transplantation (PACT) scale in allogeneic BMT. Bone Marrow Transplant. 2009;44:375–80. https://doi.org/10.1038/bmt.2009.37.

Article  CAS  PubMed  Google Scholar 

Broers S, Hengeveld MW, Kaptein AA, Le Cessie S, van de Loo F, de Vries T. Are pretransplant psychological variables related to survival after bone marrow transplantation? A prospective study of 123 consecutive patients. J Psychosom Res. 1998;45:341–51. https://doi.org/10.1016/s0022-3999(98)00003-8.

Article  CAS  PubMed  Google Scholar 

Cooper RS, Nadkarni GN, Ogedegbe G. Race, ancestry, and reporting in medical journals. JAMA. 2018;320:1531–2. https://doi.org/10.1001/jama.2018.10960.

Article  PubMed  Google Scholar 

Flanagin A, Frey T, Christiansen SL. Updated guidance on the reporting of race and ethnicity in medical and science journals. JAMA. 2021;326:621–7. https://doi.org/10.1001/jama.2021.13304.

Article  PubMed  Google Scholar 

2018 Introduction to the NIS. Healthcare Cost and Utilization Project (HCUP). Rockville, MD: Agency for Healthcare Research and Quality; 2021. www.hcup-us.ahrq.gov/db/nation/nis/NIS_Introduction_2018.jsp. Accessed 21 Nov 2023.

Kind AJH, Buckingham WR. Making neighborhood-disadvantage metrics accessible - the neighborhood atlas. N Engl J Med. 2018;378:2456–8. https://doi.org/10.1056/NEJMp1802313.

Article  PubMed  PubMed Central  Google Scholar 

Majhail NS. Long-term complications after hematopoietic cell transplantation. Hematol Oncol Stem Cell Ther. 2017;10:220–7. https://doi.org/10.1016/j.hemonc.2017.05.009.

Article  PubMed  PubMed Central  Google Scholar 

Sorror ML, Maris MB, Storb R, Baron F, Sandmaier BM, Maloney DG, et al. Hematopoietic cell transplantation (HCT)-specific comorbidity index: a new tool for risk assessment before allogeneic HCT. Blood. 2005;106:2912–9. https://doi.org/10.1182/blood-2005-05-2004.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Foster LW, McLellan LJ, Rybicki LA, Dabney J, Welsh E, Bolwell BJ. Allogeneic BMT and patient eligibility based on psychosocial criteria: a survey of BMT professionals. Bone Marrow Transplant. 2006;37:223–8. https://doi.org/10.1038/sj.bmt.1705219.

Article  CAS  PubMed  Google Scholar 

WHO. 3, Household crowding. In: Housing and health guidelines. Geneva: World Health Organization; 2018. Available from: https://www.ncbi.nlm.nih.gov/books/NBK535289/.

Applebaum AJ, Bevans M, Son T, Evans K, Hernandez M, Giralt S, et al. A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions. Bone Marrow Transplant. 2016;51:1416–22. https://doi.org/10.1038/bmt.2016.164.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Auletta JJ, Sandmaier BM, Jensen E, Majhail NS, Knutson J, Nemecek E, et al. The ASTCT-NMDP ACCESS initiative: a collaboration to address and sustain equal outcomes for all across the hematopoietic cell transplantation and cellular therapy ecosystem. Transplant Cell Ther Off Publ Am Soc Transplant Cell Ther. 2022;28:802–9. https://doi.org/10.1016/j.jtct.2022.09.020.

Article  Google Scholar 

D’Souza A, Fretham C, Lee SJ, Arora M, Brunner J, Chhabra S, et al. Current use of and trends in hematopoietic cell transplantation in the United States. Biol Blood Marrow Transplant. 2020;26:e177–e182. https://doi.org/10.1016/j.bbmt.2020.04.013.