Patient-reported outcome and experience domains for diagnostic excellence: a scoping review to inform future measure development

The National Academies of Sciences, Engineering, and, Medicine, & Institute of Medicine, Committee on Diagnostic Error in Health Care. (2015). Improving diagnosis in Health Care. National Academies.

Burstin, H., & Cosby, K. (2022). Measuring performance of the diagnostic process. Journal of the American Medical Association, 328(2), 143–144. https://doi.org/10.1001/jama.2022.10166

Article  PubMed  Google Scholar 

Yang, D., Fineberg, H. V., & Cosby, K. (2021). Diagnostic Excellence JAMA, 326(19), 1905–1906, https://doi.org/10.1001/jama.2021.19493

Article  PubMed  Google Scholar 

Jacobson, R. P., Kang, D., & Houck, J. (2020). Can patient-reported outcomes measurement information system® (PROMIS) measures accurately enhance understanding of acceptable symptoms and functioning in primary care? Journal of patient-reported Outcomes, 4(1), 39–39. https://doi.org/10.1186/s41687-020-00206-9

Article  PubMed  PubMed Central  Google Scholar 

Giardina, T. D., Shahid, U., Mushtaq, U., Upadhyay, D. K., Marinez, A., & Singh, H. (2022). Creating a learning health system for improving diagnostic safety: pragmatic insights from US health care organizations. Journal of General Internal Medicine, 37(15), 3965–3972. https://doi.org/10.1007/s11606-022-07554-w

Article  PubMed  PubMed Central  Google Scholar 

Williams, K., & Thompson, C. (2018). Patient-reported outcome measures: Stakeholder interviews. ACSQHC.

McDonald, K. M., Bryce, C. L., & Graber, M. L. (2013). The patient is in: Patient involvement strategies for diagnostic error mitigation. BMJ Quality & Safety, ii33–ii39. https://doi.org/10.1136/bmjqs-2012-001623. 22 Suppl 2.

Berwick, D. M. (2021). Diagnostic excellence through the Lens of patient-centeredness. Journal of the American Medical Association, 326(21), 2127–2128. https://doi.org/10.1001/jama.2021.19513

Article  PubMed  Google Scholar 

Trucco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., et al. (2018). PRISMA Extension for scoping reviews (PRISMA-Scry): Checklist and Explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850

Article  Google Scholar 

Bravata, D. M., McDonald, K. M., Shojania, K. G., Sundaram, V., & Owens, D. K. (2005). Challenges in systematic reviews: Synthesis of topics related to the delivery, organization, and financing of health care. Annals of Internal Medicine, 142(12 Pt 2), 1056–1065. https://doi.org/10.7326/0003-4819-142-12_part_2-200506211-00005

Article  PubMed  Google Scholar 

Lam, M. T., De Longhi, C., Turnbull, J., Lam, H. R., & Besa, R. (2018). Has embase replaced medline since coverage expansion? Journal of the Medical Library Association, 106(2), 227–234. https://doi.org/10.5195/jmla.2018.281

Article  PubMed  PubMed Central  Google Scholar 

National Quality Forum (2020). Improving diagnostic quality and safety/reducing diagnostic error: measurement considerations. Final Report. 1-110.

Organization for Economic Cooperation and Development (2019). Measuring what matters: the patient reported indicator surveys. Patient-reported indicators for assessing health system performance.

Agency for Healthcare Research and Quality. CAHPS clinician & group survey (2023). https://www.ahrq.gov/cahps/surveys-guidance/cg/index.html Accessed April 24.

Weinick, R. M., Becker, K., Parast, L., Stucky, B. D., Elliott, M. N., Mathews, M., et al. (2014). Emergency department patient experience of care survey: development and field test. Rand Health Quarterly, 4(3), 5.

PubMed  PubMed Central  Google Scholar 

Stegmann, M. E., Geerse, O. P., Tange, D., Richel, C., Brom, L., Engelen, V., et al. (2020). Experiences and needs of patients with incurable cancer regarding advance care planning: Results from a national cross-sectional survey. Supportive Care in Cancer, 28(9), 4211–4217. https://doi.org/10.1007/s00520-019-05285-z

Article  PubMed  Google Scholar 

López Seguí, F., Batlle Boada, A., García García, J. J., López Ulldemolins, A., Del Arco, A., Mas, A. A., C., et al. (2020). Families’ degree of satisfaction with pediatric telehomecare: Interventional prospective pilot study in Catalonia. JMIR Pediatrics and Parenting, 3(1), e17517. https://doi.org/10.2196/17517

Article  PubMed  PubMed Central  Google Scholar 

Speckens, A. E. M., Spinhoven, P., Van Hemert, A. M., & Bolk, J. H. (2000). The reassurance questionnaire (RQ): Psychometric properties of a self-report questionnaire to assess reassurability. Psychological Medicine, 30(4), 841–847. https://doi.org/10.1017/s0033291799002378

Article  Google Scholar 

Vaillancourt, S., Cullen, J. D., Dainty, K. N., Inrig, T., Laupacis, A., Linton, D., et al. (2020). PROM-ED: Development and testing of a patient-reported outcome measure for Emergency Department patients who are discharged home. Annals of Emergency Medicine, 76(2), 219–229. https://doi.org/10.1016/j.annemergmed.2019.12.023

Article  PubMed  Google Scholar 

Lee, W. S. (2008). Pre-admission consultation and late referral in infants with neonatal cholestasis. Journal of Paediatrics and Child Health, 44(1–2), 57–61. https://doi.org/10.1111/j.1440-1754.2007.01170.x

Article  PubMed  Google Scholar 

Miao, M., Dahm, M. R., Li, J., Thomas, J., & Georgiou, A. (2020). Managing uncertainty during the communication of diagnostic test information between patients and clinicians in Australian emergency care. Qualitative Health Research, 30(8), 1287–1300. https://doi.org/10.1177/1049732320913037

Article  PubMed  Google Scholar 

Morreale, M. K., Moore, T. F., Kim, S., Uphold, H. S., Mabunda, L. M., & Harper, F. W. K. (2020). Preferences for notification of imaging results in patients with metastatic cancer. Patient Education and Counseling, 103(2), 392–397. https://doi.org/10.1016/j.pec.2019.08.032

Article  PubMed  Google Scholar 

MacFarlane, L. A., Yang, H., Collins, J. E., Guermazi, A., Mandl, L. A., Levy, B. A., et al. (2019). Relationship between patient-reported swelling and magnetic resonance imaging-defined effusion-synovitis in patients with Meniscus tears and knee osteoarthritis. Arthritis Care & Research, 71(3), 385–389. https://doi.org/10.1002/acr.23592

Article  Google Scholar 

Jefferson, A. L., Paul, R. H., Ozonoff, A., & Cohen, R. A. (2006). Evaluating elements of executive functioning as predictors of instrumental activities of daily living (IADLs). Archives of Clinical Neuropsychology, 21(4), 311–320. https://doi.org/10.1016/j.acn.2006.03.007

Article  PubMed  Google Scholar 

Institute of Medicine, Committee on Future directions for the national healthcare quality and disparities reports. (2010). Future directions for the national healthcare quality and disparities reports. National Academies.

Ricci-Cabello, I., Gangannagaripalli, J., Mounce, L. T. A., & Valderas, J. M. (2021). Identifying factors leading to harm in English General practices: A mixed-methods study based on patient experiences integrating structural equation modeling and qualitative content analysis. Journal of Patient Safety, 17(1), e20–e27. https://doi.org/10.1097/PTS.0000000000000669

Article  PubMed  Google Scholar 

Sacco, A. Y., Self, Q. R., Worswick, E. L., Couperus, C. J., Kolli, S. S., Muñoz, S. A., et al. (2021). Patients’ perspectives of diagnostic error: A qualitative study. Journal of Patient Safety, 17(8), e1759–e1764. https://doi.org/10.1097/PTS.0000000000000642

Article  PubMed  Google Scholar 

Geraedts, M., Krause, S., Schneider, M., Ortwein, A., Leinert, J., & de Cruppé, W. (2020). Patient safety in ambulatory care from the patient’s perspective: A retrospective, representative telephone survey. BMJ open, 10(2), e034617. https://doi.org/10.1136/bmjopen-2019-034617

Article  PubMed  PubMed Central  Google Scholar 

Bova, C., Fennie, K. P., Watrous, E., Dieckhaus, K., & Williams, A. B. (2006). The health care relationship (HCR) trust scale: Development and psychometric evaluation. Research in Nursing & Health, 29(5), 477–488. https://doi.org/10.1002/nur.20158

Article  Google Scholar 

Anderson, L. A., & Dedrick, R. F. (1990). Development of the Trust in Physician scale: A measure to assess interpersonal trust in patient-physician relationships. Psychological Reports, 67(3 Pt 2), 1091–1100. https://doi.org/10.2466/pr0.1990.67.3f.1091

Article  CAS  PubMed  Google Scholar 

Golden, S. E., Ono, S. S., Thakurta, S. G., Wiener, R. S., Iaccarino, J. M., Melzer, A. C., et al. (2020). I’m putting my Trust in their hands: A qualitative study of patients’ views on clinician initial communication about Lung Cancer Screening. Chest, 158(3), 1260–1267. https://doi.org/10.1016/j.chest.2020.02.072

Article  PubMed  Google Scholar 

Lewis, S., Broom, A., Kenny, K., & Kirby, E. (2020). Cancer caregivers’ experiences of prognosis in Australia: A qualitative interview study. BMJ open, 10(1), e032361. https://doi.org/10.1136/bmjopen-2019-032361

Article  PubMed  PubMed Central  Google Scholar 

Mentrup, S., Harris, E., Gomersall, T., Köpke, S., & Astin, F. (2020). Patients’ experiences of cardiovascular health education and risk communication: A qualitative synthesis. Qualitative Health Research, 30(1), 88–104. https://doi.org/10.1177/1049732319887949

Article  PubMed  Google Scholar 

Hannawa, A. F. (2018). SACCIA safe communication: Five core competencies for safe and high-quality care, 23(3), 99–107.

Anestis, E., Eccles, F., Fletcher, I., French, M., & Simpson, J. (2020). Giving and receiving a diagnosis of a progressive neurological condition: A scoping review of doctors’ and patients’ perspectives. Patient Education and Counseling, 103(9), 1709–1723. https://doi.org/10.1016/j.pec.2020.03.023

Article  PubMed  Google Scholar 

Bell, S. K., Bourgeois, F., DesRoches, C. M., Dong, J., Harcourt, K., Liu, S. K., et al. (2022). Filling a gap in safety metrics: Development of a patient-centred framework to identify and categorise patient-reported breakdowns related to the diagnostic process in ambulatory care. BMJ Quality & Safety, 31(7), 526–540. https://doi.org/10.1136/bmjqs-2021-013672

Article  Google Scholar 

Lucchiari, C., & Pravettoni, G. (2013). The role of patient involvement in the diagnostic process in internal medicine: A cognitive approach. European Journal of Internal Medicine, 24(5), 411–415. https://doi.org/10.1016/j.ejim.2013.01.022

留言 (0)

沒有登入
gif