Allende-Pérez S, García-Salamanca MF, Peña-Nieves A, Ramírez-Ibarguen A, Verástegui-Avilés E, Hernández-Lugo I, LeBlanc TW (2023) Palliative care in patients with hematological malignancies. We have a long way to go…. Am J Hosp Palliat Care. https://doi.org/10.1177/10499091221149150

Article  PubMed  Google Scholar 

Arias-Casais N, López-Fidalgo J, Garralda E, Pons JJ, Rhee JY, Lukas R, de Lima L, Centeno C (2020) Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14 years. Palliat Med 34(8):1044–1056. https://doi.org/10.1177/0269216320931341

Article  PubMed  PubMed Central  Google Scholar 

Bandieri E, Apolone G, Luppi M (2013) Early palliative and supportive care in hematology wards. Leuk Res 37(7):725–726. https://doi.org/10.1016/j.leukres.2013.03.007

Article  PubMed  Google Scholar 

Beaussant Y, Daguindau E, Chauchet A, Rochigneux P, Tournigand C, Aubry R, Morin L (2018) Hospital end-of-life care in haematological malignancies. BMJ Support Palliat Care 8(3):314–324. https://doi.org/10.1136/bmjspcare-2017-001446

Article  PubMed  Google Scholar 

Benchimol EI, Smeeth L, Guttmann A, Harron K, Hemkens LG, Moher D, Petersen I, Sørensen HT, von Elm E, Langan SM (2016) The REporting of studies Conducted using Observational Routinely-collected health Data (RECORD) statement. Z Evid Fortbild Qual Gesundhwes 115–116:33–48. https://doi.org/10.1016/j.zefq.2016.07.010

Article  PubMed  PubMed Central  Google Scholar 

Burstein R, Aviv A, Even-Zohar NG, Nachmias B, Haran A, Braun M, Rottenberg Y, Shaulov A (2023) Comparing end-of-life care of hematologic malignancy versus solid tumor patients in a tertiary care center. Eur J Haematol 111(4):528–535. https://doi.org/10.1111/ejh.14035

Article  CAS  PubMed  Google Scholar 

Charlson ME, Pompei P, Ales KL, MacKenzie CR (1987) A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 40(5):373–383. https://doi.org/10.1016/0021-9681(87)90171-8

Article  CAS  PubMed  Google Scholar 

Cheng WW, Willey J, Palmer JL, Zhang T, Bruera E (2005) Interval between palliative care referral and death among patients treated at a comprehensive cancer center. J Palliat Med 8(5):1025–1032. https://doi.org/10.1089/jpm.2005.8.1025

Article  PubMed  Google Scholar 

Cheng HW, Li CW, Chan KY, Au HY, Chan PF, Sin YC, Szeto Y, Sham MK (2015) End-of-life characteristics and palliative care provision for elderly patients suffering from acute myeloid leukemia. Support Care Cancer 23(1):111–116. https://doi.org/10.1007/s00520-014-2333-x

Article  PubMed  Google Scholar 

Dasch B, Kalies H, Feddersen B, Ruderer C, Hiddemann W, Bausewein C (2017) Care of cancer patients at the end of life in a German university hospital: a retrospective observational study from 2014. PLoS ONE 12(4):e0175124. https://doi.org/10.1371/journal.pone.0175124

Article  CAS  PubMed  PubMed Central  Google Scholar 

De Palma R, Fortuna D, Hegarty SE, Louis DZ, Melotti RM, Moro ML (2018) Effectiveness of palliative care services: A population-based study of end-of-life care for cancer patients. Palliat Med 32(8):1344–1352. https://doi.org/10.1177/0269216318778729

Article  PubMed  Google Scholar 

Ditscheid B, Meissner F, Gebel C, Hennig B, Marschall U, Meißner W, Wedding U, Freytag A (2023) Inanspruchnahme von Palliativversorgung am Lebensende in Deutschland: zeitlicher Verlauf (2016–2019) und regionale Variabilität. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 66(4):432–442. https://doi.org/10.1007/s00103-023-03683-7

Article  PubMed  PubMed Central  Google Scholar 

Earle CC, Neville BA, Landrum MB, Souza JM, Weeks JC, Block SD, Grunfeld E, Ayanian JZ (2005) Evaluating claims-based indicators of the intensity of end-of-life cancer care. Int J Qual Health Care 17(6):505–509. https://doi.org/10.1093/intqhc/mzi061

Article  PubMed  Google Scholar 

Earp M, Cai P, Fong A, Blacklaws K, Pham TM, Shack L, Sinnarajah A (2021) Hospital-based acute care in the last 30 days of life among patients with chronic disease that received early, late or no specialist palliative care: a retrospective cohort study of eight chronic disease groups. BMJ Open 11(3):e044196. https://doi.org/10.1136/bmjopen-2020-044196

Article  PubMed  PubMed Central  Google Scholar 

Egan PC, Belanger E, Panagiotou OA, Rao VB, Pelcovits A, LeBlanc TW, Olszewski AJ (2020a) Comparison of end-of-life care quality outcomes and indicators of palliative needs between medicare beneficiaries with solid and hematologic malignancies. Blood 136:1–11. https://doi.org/10.1182/blood-2020-143078

Article  Google Scholar 

Egan PC, LeBlanc TW, Olszewski AJ (2020b) End-of-life care quality outcomes among Medicare beneficiaries with hematologic malignancies. Blood Adv 4(15):3606–3614. https://doi.org/10.1182/bloodadvances.2020001767

Article  PubMed  PubMed Central  Google Scholar 

Eichenauer DA, Golla H, Thielen I, Hallek M, Voltz R, Perrar KM (2019) Characteristics and course of patients with advanced hematologic malignancies receiving specialized inpatient palliative care at a German university hospital. Ann Hematol 98(11):2605–2607. https://doi.org/10.1007/s00277-019-03748-1

Article  PubMed  Google Scholar 

El-Jawahri A, Nelson AM, Gray TF, Lee SJ, LeBlanc TW (2020) Palliative and end-of-life care for patients with hematologic malignancies. J Clin Oncol 38(9):944–953. https://doi.org/10.1200/jco.18.02386

Article  PubMed  PubMed Central  Google Scholar 

El-Jawahri A, LeBlanc TW, Kavanaugh A, Webb JA, Jackson VA, Campbell TC, O’Connor N, Luger SM, Gafford E, Gustin J, Bhatnagar B, Walker AR, Fathi AT, Brunner AM, Hobbs GS, Nicholson S, Davis D, Addis H, Vaughn D, Horick N, Greer JA, Temel JS (2021) Effectiveness of integrated palliative and oncology care for patients with acute myeloid leukemia: a randomized clinical trial. JAMA Oncol 7(2):238–245. https://doi.org/10.1001/jamaoncol.2020.6343

Article  PubMed  Google Scholar 

Elliott E, Watson T, Singh D, Wong C, Lo SS (2021) Outcomes of specialty palliative care interventions for patients with hematologic malignancies: a systematic review. J Pain Symptom Manage 62(4):863–875. https://doi.org/10.1016/j.jpainsymman.2021.03.014

Article  PubMed  Google Scholar 

Freytag A, Meissner F, Krause M, Lehmann T, Jansky MK, Marschall U, Schmid A, Schneider N, Vollmar HC, Wedding U, Ditscheid B (2023) Ergebnisqualität und Kosten der allgemeinen und spezialisierten Palliativversorgung in Deutschland im regionalen Vergleich: eine GKV-Routinedatenstudie. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. https://doi.org/10.1007/s00103-023-03746-9

Article  PubMed  PubMed Central  Google Scholar 

Gerlach C (2020) Palliativmedizin bei hämatologischen Erkrankungen? Forum 35(3):233–238. https://doi.org/10.1007/s12312-020-00783-2

Article  Google Scholar 

Greiner F, Slagman A, Stallmann C, March S, Pollmanns J, Dröge P, Günster C, Rosenbusch ML, Heuer J, Drösler SE, Walcher F, Brammen D (2020) Routine data from emergency departments: varying documentation standards, billing modalities and data custodians at an identical unit of care. Gesundheitswesen 82(S01):S72–S82. https://doi.org/10.1055/a-0996-8371

Article  PubMed  Google Scholar 

Haun MW, Estel S, Rücker G, Friederich HC, Villalobos M, Thomas M, Hartmann M (2017) Early palliative care for adults with advanced cancer. Cochrane Database Syst Rev 6(6):CD011129. https://doi.org/10.1002/14651858.CD011129.pub2

Article  PubMed  Google Scholar 

Hochman MJ, Yu Y, Wolf SP, Samsa GP, Kamal AH, LeBlanc TW (2018) Comparing the palliative care needs of patients with hematologic and solid malignancies. J Pain Symptom Manage 55(1):82-88.e1. https://doi.org/10.1016/j.jpainsymman.2017.08.030

Article  PubMed  Google Scholar 

Howell DA, Roman E, Cox H, Smith AG, Patmore R, Garry AC, Howard MR (2010a) Destined to die in hospital? Systematic review and meta-analysis of place of death in haematological malignancy. BMC Palliat Care 9:9. https://doi.org/10.1186/1472-684x-9-9

Article  PubMed  PubMed Central  Google Scholar 

Howell DA, Shellens R, Roman E, Garry AC, Patmore R, Howard MR (2010b) Haematological malignancy: are patients appropriately referred for specialist palliative and hospice care? A systematic review and meta-analysis of published data. Palliat Med 25(6):630–641. https://doi.org/10.1177/0269216310391692

Article  Google Scholar 

Howell DA, Wang HI, Roman E, Smith AG, Patmore R, Johnson MJ, Garry AC, Howard MR (2015) Variations in specialist palliative care referrals: findings from a population-based patient cohort of acute myeloid leukaemia, diffuse large B-cell lymphoma and myeloma. BMJ Support Palliat Care 5(5):496–502. https://doi.org/10.1136/bmjspcare-2013-000578

Article  CAS  PubMed  Google Scholar 

Hui D, Didwaniya N, Vidal M, Shin SH, Chisholm G, Roquemore J, Bruera E (2014) Quality of end-of-life care in patients with hematologic malignancies: a retrospective cohort study. Cancer 120(10):1572–1578. https://doi.org/10.1002/cncr.28614

Article  PubMed  Google Scholar 

Ishida T, Ohashi K, Okina C, Ohashi S, Okina S, Miyazaki K, Suzuki T (2019) Characteristics of palliative home care for patients with hematological tumors compared to those of patients with solid tumors. Int J Hematol 110(2):237–243. https://doi.org/10.1007/s12185-019-02673-3

Article  PubMed  Google Scholar 

Jackson I, Etuk A, Jackson N (2023) Prevalence and predictors of palliative care utilization among hospitalized patients with diffuse large B-cell lymphoma. J Palliat Care 38(2):167–174. https://doi.org/10.1177/08258597211073226

Article  PubMed  Google Scholar 

Kirtane K, Downey L, Lee SJ, Curtis JR, Engelberg RA (2018) Intensity of end-of-life care for patients with hematologic malignancies and the role of race/ethnicity. J Palliat Med 21(10):1466–1471. https://doi.org/10.1089/jpm.2018.0152

Article  PubMed  PubMed Central  Google Scholar 

Krankenkassen.net (2024) Größte gesetzliche Krankenkassen in Deutschland nach der Mitgliederanzahl in den Jahren 2017 bis 2022 (in Millionen) Statista. Retrieved 13 März 2024 from https://de.statista.com/statistik/daten/studie/218457/umfrage/groesste-gesetzliche-krankenkassen-nach-anzahl-der-versicherten/

Krause M, Ditscheid B, Lehmann T, Jansky M, Marschall U, Meißner W, Nauck F, Wedding U, Freytag A (2021) Effectiveness of two types of palliative home care in cancer and non-cancer patients: a retrospective population-based study using claims data. Palliat Med 35(6):1158–1169. https://doi.org/10.1177/02692163211013666