Albert RH. End-of-life care: managing common symptoms. Am Fam Physician. 2017;95(6):356–61.

PubMed  Google Scholar 

van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis. 2010;22(1):37–55.

Article  PubMed  Google Scholar 

Fleming J, Calloway R, Perrels A, Farquhar M, Barclay S, Brayne C, et al. Dying comfortably in very old age with or without dementia in different care settings - a representative “older old” population study. BMC Geriatr. 2017;17(1):222.

Article  PubMed  PubMed Central  Google Scholar 

Binda F, Clari M, Nicolo G, Gambazza S, Sappa B, Bosco P, et al. Quality of dying in hospital general wards: a cross-sectional study about the end-of-life care. BMC Palliat Care. 2021;20(1):153.

Article  PubMed  PubMed Central  Google Scholar 

Pivodic L, Smets T, Van den Noortgate N, Onwuteaka-Philipsen BD, Engels Y, Szczerbinska K, et al. Quality of dying and quality of end-of-life care of nursing home residents in six countries: an epidemiological study. Palliat Med. 2018;32(10):1584–95.

Article  PubMed  PubMed Central  Google Scholar 

Hui D, Dev R, Bruera E. The last days of life: symptom burden and impact on nutrition and hydration in cancer patients. Curr Opin Support Palliat Care. 2015;9(4):346–54.

Article  PubMed  PubMed Central  Google Scholar 

Koppitz A, Bosshard G, Schuster DH, Hediger H, Imhof L. Type and course of symptoms demonstrated in the terminal and dying phases by people with dementia in nursing homes. Z Gerontol Geriatr. 2015;48(2):176–83.

Article  CAS  PubMed  Google Scholar 

Su A, Lief L, Berlin D, Cooper Z, Ouyang D, Holmes J, et al. Beyond pain: nurses’ assessment of patient suffering, dignity, and dying in the intensive care unit. J Pain Symptom Manage. 2018;55(6):1591–8.

Article  PubMed  PubMed Central  Google Scholar 

Agar M, Bush SH. Delirium at the end of life. Med Clin N Am. 2020;104(3):491-+.

Article  PubMed  Google Scholar 

Knoepfel S, Bode L, Gehrke S, Spiller T, Fuchs S, Ernst J, et al. Delirium at the end of life. Palliat Support Care. 2021;19(3):268–73.

Article  PubMed  Google Scholar 

Radbruch L, De Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, et al. Redefining palliative care-a new consensus-based definition. J Pain Symptom Manage. 2020;60(4):754–64.

Article  PubMed  PubMed Central  Google Scholar 

Soto-Rubio AL, Miguel JMT, Perez-Marin M, Martin PB. Patients with limited communication in end-of-life situations: Initial psychometric properties of a discomfort observation scale. J Health Psychol. 2019;24(12):1734–43.

Article  PubMed  Google Scholar 

O’Connor T, Paterson C, Gibson J, Strickland K. The conscious state of the dying patient: an integrative review. Palliat Support Care. 2021;20(5):731–43.

National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care. 4th ed. Richmond: National Coalition for Hospice and Palliative Care; 2018.

Google Scholar 

Bouajram RH, Sebat CM, Love D, Louie EL, Wilson MD, Duby JJ. Comparison of self-reported and behavioral pain assessment tools in critically Ill patients. J Intensive Care Med. 2020;35(5):453–60.

Article  PubMed  Google Scholar 

Six S, Laureys S, Poelaert J, Mairesse O, Theuns P, Bilsen J, et al. Neurophysiological assessments during continuous sedation until death put validity of observational assessments into question: a prospective observational study. Pain Ther. 2021;10(1):377–90.

Article  PubMed  Google Scholar 

Brant JM, Fink RM, Thompson C, Li YH, Rassouli M, Majima T, et al. Global survey of the roles, satisfaction, and barriers of home health care nurses on the provision of palliative care. J Palliat Med. 2019;22(8):945–60.

Article  PubMed  Google Scholar 

Khan SS, Ye B, Taati B, Mihailidis A. Detecting agitation and aggression in people with dementia using sensors-a systematic review. Alzheimers Dementia. 2018;14(6):824–32.

Article  Google Scholar 

Nair P, Subha V, editors. Facial expression analysis for distress detection. In: 2018 Second International Conference on Electronics, Communication and Aerospace Technology (ICECA). 2018 Mar 29-31; Coimbatore, India. New York City: United States of America: IEEE; 2018. p. 1652–55.

Ledowski T. Objective monitoring of nociception: a review of current commercial solutions. Br J Anaesth. 2019;123(2):e312–21.

Article  PubMed  PubMed Central  Google Scholar 

Barbato M, Barclay G, Potter J, Yeo W, Chung J. Correlation between observational scales of sedation and comfort and Bispectral index scores. J Pain Symptom Manag. 2017;54(2):186–93.

Article  Google Scholar 

Cherny NI, Radbruch L, Ca BEAP. European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care. Palliat Med. 2009;23(7):581–93.

Article  PubMed  Google Scholar 

Dieudonne Rahm N, Morawska G, Pautex S, Elia N. Monitoring nociception and awareness during palliative sedation: a systematic review. Palliat Med. 2021;35(8):1407–20.

Article  PubMed  Google Scholar 

Moyle W. The promise of technology in the future of dementia care. Nat Rev Neurol. 2019;15(6):353–9.

Article  PubMed  Google Scholar 

Patel S, Park H, Bonato P, Chan L, Rodgers M. A review of wearable sensors and systems with application in rehabilitation. J Neuroeng Rehabil. 2012;9:21.

Article  PubMed  PubMed Central  Google Scholar 

Wang ZH, Yang ZC, Dong T. A review of wearable technologies for elderly care that can accurately track indoor position, recognize physical activities and monitor vital signs in real time. Sensors. 2017;17(2):341.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Husebo BS, Heintz HL, Berge LI, Owoyemi P, Rahman AT, Vahia IV. Sensing technology to monitor behavioral and psychological symptoms and to assess treatment response in people with dementia. A systematic review. Front Pharmacol. 2019;10:1699.

Article  PubMed  Google Scholar 

Naslund JA, Marsch LA, McHugo GJ, Bartels SJ. Emerging mHealth and eHealth interventions for serious mental illness: a review of the literature. J Ment Health. 2015;24(5):320–31.

Article  Google Scholar 

Widberg C, Wiklund B, Klarare A. Patients’ experiences of eHealth in palliative care: an integrative review. BMC Palliat Care. 2020;19(1):158.

Article  PubMed  PubMed Central  Google Scholar 

Peters MDJ, Godfrey C, McInerney P, Munn Z, Tricco AC, Khalil H. Chapter 11: Scoping reviews (2020 version). In: Aromataris E MZE, editor. JBI Manual for Evidence Synthesis. JBI. 2020. Available from: https://synthesismanual.jbi.global, https://doi.org/10.46658/JBIMES-20-01.

Munn Z, Peters MDJ, Stern C, Tufanaru C, McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018;18(1):143.

Article  PubMed  PubMed Central  Google Scholar 

Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467-+.

Article  PubMed  Google Scholar 

Xu J, van der Steen JT, Smaling HJA, Achterberg WP. Non-invasive monitoring technologies to identify discomfort and distressing symptoms in persons with limited communication at the end of life: protocol of a scoping review. 2022.

Google Scholar 

Tura A, Maran A, Pacini G. Non-invasive glucose monitoring: assessment of technologies and devices according to quantitative criteria. Diabetes Res Clin Pr. 2007;77(1):16–40.

Article  CAS  Google Scholar 

Mandrekar JN. Receiver operating characteristic curve in diagnostic test assessment. J Thorac Oncol. 2010;5(9):1315–6.

Article  PubMed  Google Scholar 

Sheldrick RC, Benneyan JC, Kiss IG, Briggs-Gowan MJ, Copeland W, Carter AS. Thresholds and accuracy in screening tools for early detection of psychopathology. J Child Psychol Psychiatry. 2015;56(9):936–48.

Article  PubMed  PubMed Central  Google Scholar 

Anusha G, Sujatha V, Swarnalatha M, Hema B, Lakshmi DM. An advanced nursing homes activity tracking for elderly care support. J Cardiovasc Dis Res. 2021;12(3):3319–23.

Google Scholar 

Cicceri G, De Vita F, Bruneo D, Merlino G, Puliafito A. A deep learning approach for pressure ulcer prevention using wearable computing. Human-centric Comput Inf Sci. 2020;10(1):21.

Article  Google Scholar 

Chikhaoui B, Ye B, Mihailidis A. Ensemble learning-based algorithms for aggressive and agitated behavior recognition. In: García CR, Caballero-Gil P, Burmester M, Quesada-Arencibia A, editors. Ubiquitous Computing and Ambient Intelligence. 2016 Nov 29-Dec 2, San Bartolomé de Tirajana, Spain. Cham (CH): Springer; 2016. p. 9–20.

Delaney L, Litton E, Melehan K, Huang HC, Lopez V, Van Haren F. The feasibility and reliability of actigraphy to monitor sleep in intensive care patients: an observational study. Crit Care. 2021;25(1):1–12.

Article  Google Scholar 

Blytt KM, Bjorvatn B, Husebo B, Flo E. Clinically significant discrepancies between sleep problems assessed by standard clinical tools and actigraphy. BMC Geriatr. 2017;17(1):253.

Article  PubMed  PubMed Central  Google Scholar 

Most EI, Aboudan S, Scheltens P, Van Someren EJ. Discrepancy between subjective and objective sleep disturbances in early- and moderate-stage Alzheimer disease. Am J Geriatr Psychiatry. 2012;20(6):460–7.

Article  PubMed  Google Scholar 

Maskevich S, Jumabhoy R, Dao PDM, Stout JC, Drummond SPA. Pilot validation of ambulatory activity monitors for sleep measurement in Huntington’s disease gene carriers. J Huntingtons Dis. 2017;6(3):249–53.

Article  PubMed  Google Scholar 

Svetnik V, Wang TC, Ceesay P, Snyder E, Ceren O, Bliwise D, et al. Pilot evaluation of a consumer wearable device to assess sleep in a clinical polysomnography trial of suvorexant for treating insomnia in patients with Alzheimer’s disease. J Sleep Res. 2021;30(6):e13328.

Article  PubMed