World Health Organization (WHO). Sixty-seventh World Health Assembly. Strengthening of palliative care as a component of comprehensive care throughout the life course. 2014. Consulted at: https://apps.who.int/gb/ebwha/pdf_files/WHA67/A67_R19-en.pdf.

Government of Quebec. Act respecting end-of-life care. 2015. Consulted at: http://legisquebec.gouv.qc.ca/en/ShowDoc/cs/S-32.0001. (accessed 8 Jul 2021).

Cohen-Mansfield J, Skornick-Bouchbinder M, Brill S. Trajectories of end of life: a systematic review. Journals Gerontology: Ser B. 2018;73(4):564–72.

Article  Google Scholar 

Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ. 2005;330(7498):1007–11.

Article  PubMed  PubMed Central  Google Scholar 

Budhwani S, Gill A, Scott M, Wodchis WP, Kim J, Tanuseputro P. Measuring indicators of health system performance for palliative and end-of-life care using health administrative data: a scoping review. F1000Research. 2020;9:1438.

Article  Google Scholar 

Cohen, J., Bilsen, J., Miccinesi, G., Löfmark, R., Addington-Hall, J., Kaasa, S.,(… Deliens, L. Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses. BMC Public Health, 2007;7(1):1–9.

De Schreye R, Houttekier D, Deliens L, Cohen J. Developing indicators of appropriate and inappropriate end-of-life care in people with Alzheimer’s disease, cancer or chronic obstructive pulmonary disease for population-level administrative databases: a RAND/UCLA appropriateness study. Palliat Med. 2017;31(10):932–45.

Article  PubMed  Google Scholar 

Grunfeld, E., Urquhart, R., Mykhalovskiy, E., Folkes, A., Johnston, G., Burge, F. I., (...) & Dent, S. Toward population-based indicators of quality end‐of‐life care: Testing stakeholder agreement. Cancer, 2008;112(10), 2301–2308.

Virdun C, Luckett T, Lorenz KA, Phillips J. National quality indicators and policies from 15 countries leading in adult end-of-life care: a systematic environmental scan. BMJ Supportive Palliat Care. 2018;8(2):145–54.

Article  Google Scholar 

Canadian Institute for Health Information. Access to Palliative Care in Canada, 2023. Ottawa, ON: CIHI; 2023.

Google Scholar 

Guertin MH, Tremblay M, Allard E, Pucella E, Hamel D, Duhoux A. Indicateurs De Soins palliatifs: mise à jour des résultats pour la population adulte Du Québec (2002–2016). Institut national de santé publique du Québec (INSPQ). 2021.https://www.inspq.qc.ca/publications/2727 (accessed 8 Jul 2021).

Canuel M, Gosselin P, Duhoux A, Brunet A, et, Lesage A. Boîte à outils pour la surveillance post-sinistre des impacts sur la santé mentale. Institut national de santé publique du Québec (INSPQ). 2019 https://www.inspq.qc.ca/publications/2523 (accessed 8 Jul 2021).

Seow H, O’Leary E, Perez R, Tanuseputro P. Access to palliative care by disease trajectory: a population-based cohort of Ontario decedents. BMJ Open, 2018;8(4), e021147.

Costa, V., Earle, C. C., Esplen, M. J., Fowler, R., Goldman, R., Grossman, D., (...) & You, J. J. The determinants of home and nursing home death: a systematic review and meta-analysis. BMC Palliative Care, 2016;15, 1–15.

Pivodic, L., Pardon, K., Morin, L., Addington-Hall, J., Miccinesi, G., Cardenas-Turanzas, M., (...) & Cohen, J. Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries. Journal of Epidemiology & Community Health, 2016;70(1), 17–24.

Forero, R., McDonnell, G., Gallego, B., McCarthy, S., Mohsin, M., Shanley, C., (...) & Hillman, K. A literature review on care at the end-of-life in the emergency department. Emergency Medicine International, 2012, 486516.

George N, Bowman J, Aaronson E, Ouchi K. Past, present, and future of palliative care in emergency medicine in the USA. Acute Med Surg, 2020;7(1), e497.

Sadler K, Abudari G, Aljawi D, Snelling D. Deaths in the emergency department: an assessment of patient’s end-of-life trajectory and quality of care. Indian J Palliat Care. 2020;26(3):352.

Article  PubMed  PubMed Central  Google Scholar 

Teno, J. M., Gozalo, P. L., Bynum, J. P., Leland, N. E., Miller, S. C., Morden, N. E., (...) & Mor, V. Change in end-of-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000, 2005, and 2009. JAMA, 309(5), 2013;470–477.

Fleischmann-Struzek, C., Mikolajetz, A., Reinhart, K., Curtis, J. R., Haase, U., Thomas-Rüddel, D., (...) & Hartog, C. S. Hospitalization and Intensive Therapy at the End of Life: A National Analysis of DRG Statistics From 2007 to 2015. Deutsches Ärzteblatt International, 2019;116(39), 653.

Lau C, Meaney C, Morgan M, Cook R, Zimmermann C, Wentlandt K. Disparities in access to palliative care facilities for patients with and without cancer: a retrospective review. Palliat Med. 2021;35(6):1191–201.

Article  PubMed  PubMed Central  Google Scholar 

Dalkin SM, Lhussier M, Philipson P, Jones D, Cunningham W. Reducing inequalities in care for patients with non-malignant diseases: insights from a realist evaluation of an integrated palliative care pathway. Palliat Med. 2016;30(7):690–7.

Article  PubMed  Google Scholar 

Oishi A, Murtagh FE. The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: a systematic review of views from patients, carers and health-care professionals. Palliat Med. 2014;28(9):1081–98.

Article  PubMed  PubMed Central  Google Scholar 

Aldridge MD, Bradley EH. Epidemiology and patterns of care at the end of life: rising complexity, shifts in care patterns and sites of death. Health Aff. 2017;36(7):1175–83.

Article  Google Scholar 

Xu W, Wu C, Fletcher J. Assessment of changes in place of death of older adults who died from dementia in the United States, 2000–2014: a time-series cross-sectional analysis. BMC Public Health. 2020;20:1–13.

Article  Google Scholar 

Higginson IJ, Daveson BA, Morrison RS, Yi D, Meier D, Smith M, Ryan K, McQuillan R, Johnston BM, Normand C,BuildCARE. Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries. BMC Geriatr. 2017;17(1):271.

Article  PubMed  PubMed Central  Google Scholar 

Khandelwal N, Curtis JR, Freedman VA, Kasper JD, Gozalo P, Engelberg RA, Teno JM. How often is end-of-life care in the United States inconsistent with patients’ goals of care? J Palliat Med. 2017;20(12):1400–4.

Article  PubMed  PubMed Central  Google Scholar 

Fleming Jiin. Dying comfortably in very old age with or without dementia in different care Settings–a Representative Older Old Population Study. BMC Geriatr, 2017;17.

Midtbust MH, Alnes RE, Gjengedal E, Lykkeslet E. Perceived barriers and facilitators in providing palliative care for people with severe dementia: the healthcare professionals’ experiences. BMC Health Serv Res. 2018;18(1):1–10.

Article  Google Scholar