AARP and the National Alliance for Caregiving (2020) 2020 Report: Caregiving in the US. Available at:
https://www.aarp.org/content/dam/aarp/ppi/2020/05/full-report-caregiving-in-the-united-states.doi.10.26419-2Fppi.00103.001.pdf (accessed 4 June 2020).
Google Scholar Anastas, J (2012) Eugenics: we can learn from history. NASW News 57(2): 62–80.
Google Scholar An, H (2006) Family resilience: implications for nursing practice. Journal of Nursing 15(1): 5–24.
Google Scholar Bagnail, A, Eyal, G (2016) Forever children and autonomous citizens: comparing the deinstitutionalizations of psychiatric patients and developmentally disables individuals in the United States. Advances in Medical Sociology 17: 27–61.
Google Scholar |
Crossref Bates-Harris, C (2012) Segregated and exploited: the failure of the disability service system to provide quality work. Journal of Vocational Rehabilitation 36(1): 39–64.
Google Scholar |
Crossref Bevans, MF, Stemberg, EM (2012) Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of the American Medical Association 307(4): 398–403.
Google Scholar |
Crossref |
Medline |
ISI Chiner, E, Gomez, M, Cardona, M (2017) Internet and people with intellectual disability: an approach to caregivers concerns, prevention strategies, and training needs. Journal of New Approaches in Educational Research 6(2): 153–158.
Google Scholar |
Crossref Chow, EOW, Ho, HC (2015) Caregiver strain, age, and psychological well-being of older spousal caregivers in Hong Kong. Journal of Social Work 15(5): 479–497.
Google Scholar |
SAGE Journals |
ISI Conrad, JA (2020) On intellectual and developmental disabilities in the United States: a historical perspective. Journal of Intellectual Disabilities 24(1): 85–101.
Google Scholar |
SAGE Journals |
ISI Dundar, GY, Cavdar, I (2020) Evaluating the care burden of caregivers of colon cancer patients. International Journal of Caring Sciences 13(1): 224–230.
Google Scholar Family Caregiver Alliance (2012, November) Selected Caregiver Statistics (Fact Sheet). Available at: www.caregiver.org (accessed 8 October 2021).
Google Scholar Fugino, N, Okamura, H (2009) Factors affecting the sense of burden felt by family members caring for patients with mental illness. Psychiatric Nursing 23(2): 128–137.
Google Scholar |
Crossref |
Medline Gillesse, E, Kollen, B, Zuidema, S, et al.(2018) The “more at home with dementia” program: a randomized study protocol to determine how caregiver training affects the well-being of patients and caregivers. BMC Geriatrics 18(1): 1–8.
Google Scholar |
Medline Gordon, J, Pruchno, R, Wilson-Genderson, M, Murphy, W, Rose, M (2012) Balancing caregiving and work: role conflict and role strain dynamics. Journal of Family Issues 33: 662–689.
Google Scholar |
SAGE Journals |
ISI Hagel, P, Alvariza, A, Westergren, A, et al.(2017) Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview. Journal of Pain and Symptom Management 53(2): 272–278.
Google Scholar |
Crossref |
Medline Harding, R, Gao, W, Jackson, D, et al.(2015) Comparative analysis of informal caregiver burden in advanced cancer, dementia, and acquired brain injury. Journal of Pain and Symptom Management 50(4): 445–452.
Google Scholar |
Crossref |
Medline Havercamp, S, Scott, H (2015) National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities. Disability and Health Journal 18(5): 165–172.
Google Scholar |
Crossref Hébert, R, Bravo, G, Préville, M (2000) Reliability, validity and reference values of the Zarit burden interview for assessing informal caregivers of community-dwelling older persons with dementia. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement 19(4): 494–507.
Google Scholar |
Crossref Hopps, M, Iadeluca, L, McDonald, M, et al.(2017) The burden of family caregiving in the United States: work productivity, health care resource utilization, and mental health among employed adults. Journal of Multidisciplinary Healthcare 10: 437–444.
Google Scholar |
Crossref |
Medline Kim, D (2017) Relationships between caregiving stress, depression, and self-esteem in family caregivers of adults with a disability. Occupational Therapy International22195–205.
Google Scholar Kim, J, Ingersoll-Dayton, B, Kwak, M (2013) Balancing eldercare and employment: the role of work interruptions and supportive employers. Journal of Applied Gerontology 32: 347–369.
Google Scholar |
SAGE Journals |
ISI Lerner, JG, Pollack, D (2015) Where have all the developmental centers gone? The federal push for community based services for people with intellectual and developmental disabilities. Capital University Law Review 43(4): 751–776.
Google Scholar Levine, C, Hunt, G, Halper, D, et al.(2005) Young adult caregivers: a first look at an unstudied population. American Journal of Public Health 95(11): 2071–2075.
Google Scholar |
Crossref |
Medline Losada, A, Márquez-González, M, Puente, C, et al.(2010) Development and validation of the caregiver guilt questionnaire. International Psychogeriatrics / IPA 22: 650–660.
Google Scholar |
Crossref |
Medline |
ISI Martz, K, Morse, JM (2017) The changing nature of guilt in family caregivers: living through care transitions of parents at the end of life. Qualitative Health Research 27(7): 1006–1022.
Google Scholar |
SAGE Journals Martz, K (2015) Actions of hospice nurses to alleviate guilt in family caregivers during residential care transitions. Journal of Hospice and Palliative Nursing 17: 48–55.
Google Scholar |
Crossref Nan L (2012) Measuring family member’s caregiver burden using the Zarit Burden Interview. In: 8th Family Research Network forum: Caregiving in Singapore: insights, highlights and experiences. Available at:
https://www.msf.gov.sg/research-and-data/Research-Conferences-Forums-and-Networks/Social-Family-Research-Network/Past-Forums-Materials/Pages/Caregiving-in-Singapore-Insights-Highlights-Experiences.aspx (accessed 7 May 2020).
Google Scholar Penning, M, Wu, Z (2016) Impact of caregiving relationship and gender. The Gerontologist 56: 1102–1113.
Google Scholar |
Crossref |
Medline Riley, T, Mollica, R (1996) The Arizona long term care system. Journal of Care Management 5(2): 78–82.
Google Scholar Saunders, M (2010) Working and caregiving: a comparison of employed and unemployed caregivers of older heart failure patients. Holistic Nursing Practice 24: 16–22.
Google Scholar |
Crossref |
Medline |
ISI Sheehan, N, Nuttall, P (1988) Conflict, emotion, and personal stain among family caregivers. National Council on Family Relations 37: 92–98.
Google Scholar |
Crossref Yilmaz, G, Cavdar, I (2020) Evaluating the care burden of caregivers of colon cancer patients. International Journal of Caring Sciences 13(1): 224–230.
Google Scholar Zachik, A, Naylor, M, Klaehn, R (2010) Child and adolescent psychiatry leadership in public mental health, child welfare, and developmental disability agencies. Child and Adolescent Psychiatric Clinics of North America 20: 47–61.
Google Scholar |
Crossref Zarit, SH, Reever, KE, Bach-Peterson, J (1980) Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20: 649–655.
Google Scholar |
Crossref |
Medline |
ISI Zarit, SH, Orr, NK, Zarit, JM (1985) The Hidden Victims of Alzheimer’s Disease: Families under Stress, New York: New York University Press.
Google Scholar Zarit, SH (2010) Family caregiving stress filled and isolating. Science Daily 22(12): 56–70.
Google Scholar
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