Exploring Specialist Palliative Care Practitioner Perspectives on the Face Validity of the Attitude to Health Change Scales in Assessing the Impact of Life-limiting Illness on Patients and Carers

1. Seligman, ME . Building human strength: Psychology's forgotten mission. American Psychological Association Monitor. 1998;29(1).
Google Scholar2. Horowitz, MJ . Stress response syndromes. 1997. Northvale, NJ: Aronson.
Google Scholar3. Bausewein, C, Daveson, BA, Currow, DC, et al. EAPC White paper on outcome measurement in palliative care: improving practice, attaining outcomes and delivering quality services – recommendations from the european association for palliative care (EAPC) task force on outcome measurement. Palliat Med. 2015;30(1):6‐22.
Google Scholar | SAGE Journals4. Aslakson, RA, Dy, SM, Wilson, RF, et al. Patient- and caregiver-reported assessment tools for palliative care: summary of the 2017 agency for healthcare research and quality technical brief. J Pain Symptom Manage. 2017;54(6):961–972.e916.
Google Scholar | Crossref | Medline5. Murtagh, FE, Ramsenthaler, C, Firth, A, et al. A brief, patient- and proxy-reported outcome measure in advanced illness: validity, reliability and responsiveness of the integrated palliative care outcome scale (IPOS). Palliat Med. 2019;33(8):1045‐1057.
Google Scholar | SAGE Journals | ISI6. Ewing, G, Brundle, C, Payne, S, Grande, G. The carer support needs assessment tool (CSNAT) for use in palliative and end-of-life care at home: a validation study. J Pain Symptom Manage. 2013;46(3):395‐405.
Google Scholar | Crossref | Medline | ISI7. Kroenke, K, Spitxer, RL, Williams, JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med. 2001;16(9):606‐613.
Google Scholar | Crossref | Medline | ISI8. Spitzer, RL, Kroenke, K, Williams, JB, Löwe, B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006;166(10):1092‐1097.
Google Scholar | Crossref | Medline9. Pask, S, Pinto, C, Bristowe, K, et al. A framework for complexity in palliative care: a qualitative study with patients, family carers and professionals. Palliat Med. 2018;32(6):1078‐1090.
Google Scholar | SAGE Journals | ISI10. Lazarus, RS, Folkman, S. Stress, Appraisal, and Coping. Springer publishing company; 1984.
Google Scholar11. Soto-Rubio, A, Perez-Marin, M, Miguel, JT, Martin, PB. Emotional distress of patients at end-of-life and their caregivers: interrelation and predictors. Frontiers of Psychology. 2018;9(2199). doi:10.3389/fpsyg.2018.02199
Google Scholar | Crossref | Medline12. Grassi, L, Rossi, E, Sabato, S, Cruciani, G, Zambelli, M. Diagnostic criteria for psychosomatic research and psychosocial variables in breast cancer patients. Psychosomatics. 2004;45(6):483‐491.
Google Scholar | Crossref | Medline13. Machin, L . Working with Loss and Grief: A Theoretical and Practical Approach. Sage; 2014.
Google Scholar | Crossref14. Sim, J, Machin, L, Bartlam, B. Identifying vulnerability in grief: psychometric properties of the adult attitude to grief scale. An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Research. 2014;23(4):1211‐1220.
Google Scholar15. Machin, L, Bartlam, R, Bartlam, B. Identifying levels of vulnerability in grief using the adult attitude to grief scale: from theory to practice. Bereave Care. 2015;34(2):59‐68.
Google Scholar | Crossref16. Mikulincer, M, Florian, V. The relationship between adult attachment styles and emotional and cognitive reactions to stressful events. In: Simpson, JA, Rholes, WS, eds. Attachment Theory and Close Relationships. Guildford Press; 1998:143‐165.
Google Scholar17. Greene, RR . Holocaust survivors: a study in resilience. J Gerontol Soc Work. 2002;37(1):3‐18.
Google Scholar | Crossref18. Dunleavy, L, Walshe, C, Machin, L. Exploring the psychological impact of life-limiting illness using the attitude to health change scales: a qualitative focus group study in a hospice palliative care setting. Eur J Cancer Care (Engl). 2020;29(6):e13302. doi:10.1111/ecc.13302
Google Scholar | Crossref | Medline19. Mokkink, LB, Terwee, CB, Patrick, DL, et al. The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol. 2010;63(7):737‐745.
Google Scholar | Crossref | Medline | ISI20. Terwee, CB, Prinsen, C, Chiarotto, A, et al.. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. Quality of Life Research. 2018);27(5):1159-1170. doi:10.1007/s11136-018-1829-0
Google Scholar | Crossref | Medline21. Morgan, D, Krueger, R. When to use focus groups and why. In: Morgan, D , ed. Successful Focus Groups: Advancing the State of the art. Sage; 1993:3‐20.
Google Scholar | Crossref22. Dillman, DA, Smyth, JD, Christian, LM. Internet, Mail and Mixed-Mode Surveys. The Tailored Design Method. Third edition ed. John Wiley & Sons; 2009.
Google Scholar23. Ritchie, J, Spencer, L. Qualitative data analysis for applied policy research. In: Bryman, A, Burgess, RG, (eds), Analysing Qualitative Data. Routeledge; 1994:179-194.
Google Scholar | Crossref24. McCaffrey, G, Raffin-Bouchal, S, Moules, NJ. Hermeneutics as research approach: a reappraisal. Int J Qual Methods. 2012;11(3):214‐229.
Google Scholar | SAGE Journals | ISI25. Aslakson, RA, Dy, SM, Wilson, RF, et al. Patient-and caregiver-reported assessment tools for palliative care: summary of the 2017 agency for healthcare research and quality technical brief. J Pain Symptom Manage. 2017;54(6):961–972. e916.
Google Scholar | Crossref | Medline26. Grassi, L, Caruso, R, Sabato, S. Massarenti S, Nanni MG. the UniFe psychiatry working group coauthors.(2015). Psychosocial screening and assessment in oncology and palliative care settings. Front Psychol. 7(5):1485. doi:10.3389/fpsyg.2014.01485
Google Scholar | Medline27. Sirri, L, Fava, GA. Diagnostic criteria for psychosomatic research and somatic symptom disorders. Int Rev Psychiatry. 2013;25(1):19‐30.
Google Scholar | Crossref | Medline28. Watson, M, Greer, S, Young, J, Inayat, Q, Burgess, C, Robertson, B. Development of a questionnaire measure of adjustment to cancer: the MAC scale. Psychol Med. 1988;18(1):203‐209.
Google Scholar | Crossref | Medline | ISI29. Czerw, AI, Marek, E, Deptała, A. Use of the mini-MAC scale in the evaluation of mental adjustment to cancer. Contemp Oncol. 2015;19(5):414.
Google Scholar30. Zanatta, F, Maffoni, M, Giardini, A. Resilience in palliative healthcare professionals: a systematic review. Support Care Cancer. 2019;28(3):971-978.
Google Scholar | Crossref | Medline31. Powell, MJ, Froggatt, K, Giga, S. Resilience in inpatient palliative care nursing: a qualitative systematic review. BMJ Support Palliat Care. 2020;10(1):79‐90.
Google Scholar | Crossref | Medline32. Gillman, L, Adams, J, Kovac, R, Kilcullen, A, House, A, Doyle, C. Strategies to promote coping and resilience in oncology and palliative care nurses caring for adult patients with malignancy: a comprehensive systematic review. JBI Evidence Synthesis. 2015;13(5):131‐204.
Google Scholar33. Røen, I, Stifoss-Hanssen, H, Grande, G, et al. Resilience for family carers of advanced cancer patients—how can health care providers contribute? A qualitative interview study with carers. Palliat Med. 2018;32(8):1410‐1418.
Google Scholar | SAGE Journals | ISI34. MacArtney, JI, Broom, A, Kirby, E, et al. On resilience and acceptance in the transition to palliative care at the end of life. Health. 2015;19(3):263‐279.
Google Scholar | SAGE Journals | ISI35. Antunes, B, Harding, R, Higginson, IJ. Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers. Palliat Med. 2014;28(2):158‐175.
Google Scholar | SAGE Journals | ISI

留言 (0)

沒有登入
gif