Caregiver decision-making concerning involuntary treatment in dementia care at home

1. Alzheimer’s Association . 2018 Alzheimer’s disease facts and figures. Alzheimer’s Dementia 2018; 14: 367–429.
Google Scholar | Crossref2. Forsund, LH, Grov, EK, Helvik, AS, et al. The experience of lived space in persons with dementia: a systematic meta-synthesis. BMC Geriatr 2018; 18: 33.
Google Scholar | Crossref | Medline3. van Wijngaarden, E, van der Wedden, H, Henning, Z, et al. Entangled in uncertainty: the experience of living with dementia from the perspective of family caregivers. PLoS ONE 2018; 13(6): e0198034.
Google Scholar | Crossref | Medline4. Braun, A, Trivedi, DP, Dickinson, A, et al. Managing behavioural and psychological symptoms in community dwelling older people with dementia: 2. Dementia (London) 2019; 18(7–8): 2950–2970.
Google Scholar | SAGE Journals5. Fetherstonhaugh, D, McAuliffe, L, Shanley, C, et al. ‘Did I make the right decision?’ The difficult and unpredictable journey of being a surrogate decision maker for a person living with dementia. Dementia (London) 2019; 18(5): 1601–1614.
Google Scholar | SAGE Journals6. Miller, LM, Whitlatch, CJ, Lyons, KS. Shared decision-making in dementia: a review of patient and family carer involvement. Dementia (London) 2016; 15(5): 1141–1157.
Google Scholar | SAGE Journals7. Rapaport, P, Burton, A, Leverton, M, et al. ‘I just keep thinking that I don’t want to rely on people’. A qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives. BMC Geriatr 2020; 20: 5.
Google Scholar | Crossref | Medline8. Smebye, KL, Kirkevold, M, Engedal, K. Ethical dilemmas concerning autonomy when persons with dementia wish to live at home: a qualitative, hermeneutic study. BMC Health Serv Res 2016; 16: 21.
Google Scholar | Crossref | Medline9. Haikio, K, Sagbakken, M, Rugkasa, J. Dementia and patient safety in the community: a qualitative study of family carers’ protective practices and implications for services. BMC Health Serv Res 2019; 19: 635.
Google Scholar | Crossref | Medline10. Scheepmans, K, Dierckx de Casterle, B, Paquay, L, et al. Restraint use in older adults in home care: a systematic review. Int J Nurs Stud 2017; 79: 122–136.
Google Scholar | Crossref | Medline11. Soilemezi, D, Drahota, A, Crossland, J, et al. The role of the home environment in dementia care and support: systematic review of qualitative research. Dementia (London) 2019; 18(4): 1237–1272.
Google Scholar | SAGE Journals12. Fazio, S, Pace, D, Flinner, J, et al. The fundamentals of person-centered care for individuals with dementia. Gerontologist 2018; 58: S10–S19.
Google Scholar | Crossref | Medline13. Kim, SK, Park, M. Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis. Clin Interv Aging 2017; 12: 381–397.
Google Scholar | Crossref | Medline14. Giertz, L, Emilsson, UM, Vingare, E-L. Family caregivers and decision-making for older people with dementia. J Soc Welfare Family Law 2019; 41: 321–338.
Google Scholar | Crossref15. Chiao, CY, Wu, HS, Hsiao, CY. Caregiver burden for informal caregivers of patients with dementia: a systematic review. Int Nurs Rev 2015; 62: 340–350.
Google Scholar | Crossref | Medline | ISI16. Kurata, S, Ojima, T. Knowledge, perceptions, and experiences of family caregivers and home care providers of physical restraint use with home-dwelling elders: a cross-sectional study in Japan. BMC Geriatrics 2014; 14: 1.
Google Scholar17. Lejman, E, Westerbotn, M, Pöder, U, et al. The ethics of coercive treatment of people with dementia. Nurs Ethics 2013; 20(3): 248–262.
Google Scholar | SAGE Journals | ISI18. Galik, E, Resnick, B, Vigne, E, et al. Reliability and validity of the Resistiveness to Care Scale among cognitively impaired older adults. J Am Med Dir Assoc 2017; 18(1): 59–64.
Google Scholar | Crossref | Medline19. Hamers, JP, Bleijlevens, MH, Gulpers, MJ, et al. Behind closed doors: involuntary treatment in care of persons with cognitive impairment at home in the Netherlands. J Am Geriatr Soc 2016; 64(2): 354–358.
Google Scholar | Crossref | Medline20. Van der Meulen, APS, Hermsen, MA, Embregts, PJ. Restraints in daily care for people with moderate intellectual disabilities. Nurs Ethics 2018; 25(1): 54–68.
Google Scholar | SAGE Journals | ISI21. Mengelers, A, Moermans, VRA, Bleijlevens, MHC, et al. Involuntary treatment in dementia care at home: results from the Netherlands and Belgium. J Clin Nurs. Epub ahead of print 11 August 2020. DOI: 10.1111/jocn.15457.
Google Scholar22. Mengelers, AM, Bleijlevens, MH, Verbeek, H, et al. Professional and family caregivers’ attitudes towards involuntary treatment in community-dwelling people with dementia. J Adv Nurs 2019; 75(1): 96–107.
Google Scholar | Crossref | Medline23. Hofmann, H, Hahn, S. Characteristics of nursing home residents and physical restraint: a systematic literature review. J Clin Nurs 2014; 23(21–22): 3012–3024.
Google Scholar | Crossref | Medline24. Kim, H, Sefcik, JS, Bradway, C. Characteristics of qualitative descriptive studies: a systematic review. Res Nurs Health 2017; 40(1): 23–42.
Google Scholar | Crossref | Medline | ISI25. Toledano-Toledano, F, Rodríguez-Rey, R, de la Rubia, JM, et al. A Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease. BMC Psychology 2019; 7: 1–11.
Google Scholar | Crossref | Medline26. Palinkas, LA, Horwitz, SM, Green, CA, et al. Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Adm Policy Ment Health 2015; 42(5): 533–544.
Google Scholar | Crossref | Medline | ISI27. Dierckx de Casterle, B, Gastmans, C, Bryon, E, et al. QUAGOL: a guide for qualitative data analysis. Int J Nurs Stud 2012; 49(3): 360–371.
Google Scholar | Crossref | Medline | ISI28. Polit, DF, Beck, CT. Nursing research: generating and assessing evidence for nursing practice. Philadelphia, PA: Lippincott Williams & Wilkins, 2012.
Google Scholar29. Tronto, JC . An ethic of care. Generations 1998; 22: 15–20.
Google Scholar | Medline | ISI30. McCarty, EF, Hendricks, CS, Hendricks, DL, et al. Ethical dimensions and filial caregiving. Online J Health Ethics 2008; 5(1): 81.
Google Scholar | Medline31. Stephan, A, Bieber, A, Hopper, L, et al. Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries. BMC Geriatrics 2018; 18: 131.
Google Scholar | Crossref | Medline32. Boots, LM, Wolfs, CA, Verhey, FR, et al. Qualitative study on needs and wishes of early-stage dementia caregivers: the paradox between needing and accepting help. Int Psychogeriatr 2015; 27(6): 927–936.
Google Scholar | Crossref | Medline33. Abrahams, R, Liu, KP, Bissett, M, et al. Effectiveness of interventions for co-residing family caregivers of people with dementia: systematic review and meta-analysis. Aust Occup Ther J 2018; 65(3): 208–224.
Google Scholar | Crossref | Medline34. McCabe, M, You, E, Tatangelo, G. Hearing their voice: a systematic review of dementia family caregivers’ needs. Gerontologist 2016; 56(5): e70–e88.
Google Scholar | Crossref | Medline35. Whitlatch, CJ, Orsulic-Jeras, S. Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers. Gerontologist 2018; 58: S58–S73.
Google Scholar | Medline36. Moermans, VR, Bleijlevens, MH, Verbeek, H, et al. The use of involuntary treatment among older adults with cognitive impairment receiving nursing care at home: a cross-sectional study. Int J Nurs Stud 2018; 88: 135–142.
Google Scholar | Crossref | Medline37. Goethals, S, Dierckx de Casterle, B, Gastmans, C. Nurses’ decision-making in cases of physical restraint: a synthesis of qualitative evidence. J Adv Nurs 2012; 68(6): 1198–1210.
Google Scholar | Crossref | Medline | ISI38. Gulpers, MJ, Bleijlevens, MH, Ambergen, T, et al. Reduction of belt restraint use: long-term effects of the EXBELT intervention. J Am Geriatr Soc 2013; 61(1): 107–112.
Google Scholar | Crossref | Medline39. Scheepmans, K, Dierckx de Casterle, B, Paquay, L, et al. Reducing physical restraints by older adults in home care: development of an evidence-based guideline. BMC Geriatr 2020; 20: 169.
Google Scholar | Crossref | Medline

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