Caldeman C, Fogelström A, Oddsberg J, Mesas Burgos C, Löf GA (2021) National birth prevalence, associated anomalies and mortality for gastroschisis in Sweden. Acta Paediatr 110(9):2635–2640. https://doi.org/10.1111/apa.15954
Wright NJ, Sekabira J, Ade-Ajayi N (2018) Care of infants with gastroschisis in low-resource settings. Semin Pediatr Surg 27(5):321–326. https://doi.org/10.1053/j.sempedsurg.2018.08.004
Article PubMed PubMed Central Google Scholar
Bhat V, Moront M, Bhandari V (2020) Gastroschisis: a state-of-the-art review. Children 7(12):302. https://doi.org/10.3390/children7120302
Article PubMed PubMed Central Google Scholar
Molik KA, Gingalewski CA, West KW et al (2001) Gastroschisis: a plea for risk categorization. J Pediatr Surg 36(1):51–55. https://doi.org/10.1053/jpsu.2001.20004
Article CAS PubMed Google Scholar
Besner AS, Ferreira JL, Ow N et al (2022) Patient-reported outcome measures in pediatric surgery—A systematic review. J Pediatr Surg 57(5):798–812. https://doi.org/10.1016/j.jpedsurg.2021.12.036
Carpenter JL, Wiebe TL, Cass DL, Olutoye OO, Lee TC (2016) Assessing quality of life in pediatric gastroschisis patients using the pediatric quality of life inventory survey: an institutional study. J Pediatr Surg 51(5):726–729. https://doi.org/10.1016/j.jpedsurg.2016.02.012
De Bie F, Swaminathan V, Johnson G, Monos S, Adzick NS, Laje P (2021) Long-term core outcomes of patients with simple gastroschisis. J Pediatr Surg 56(8):1365–1369. https://doi.org/10.1016/j.jpedsurg.2020.09.008
Hijkoop A, Rietman AB, Wijnen RMH et al (2019) Gastroschisis at school age: what do parents report? Eur J Pediatr 178(9):1405–1412. https://doi.org/10.1007/s00431-019-03417-5
Article PubMed PubMed Central Google Scholar
Harris EL, Minutillo C, Hart S et al (2014) The long term physical consequences of gastroschisis. J Pediatr Surg 49(10):1466–1470. https://doi.org/10.1016/j.jpedsurg.2014.03.008
van Eijck FC, Wijnen RM, van Goor H (2008) The incidence and morbidity of adhesions after treatment of neonates with gastroschisis and omphalocele: a 30-year review. J Pediatr Surg 43(3):479–483. https://doi.org/10.1016/j.jpedsurg.2007.10.027
Allin BSR, Hall NJ, Ross AR, Marven SS, Kurinczuk JJ, Knight M (2019) Development of a gastroschisis core outcome set. Arch Dis Child Fetal Neonatal Ed 104(1):F76-f82. https://doi.org/10.1136/archdischild-2017-314560
Bräutigam M, Dellenmark-Blom M, Gatzinsky V, Bergström J, Abrahamsson K (2021) Linguistic and content validity of the Swedish version of the PedsQL™ gastrointestinal symptoms scales and symptoms module for paediatric patients. Acta Paediatr 110(11):3124–3130. https://doi.org/10.1111/apa.16066
Varni JW, Bendo CB, Denham J et al (2014) PedsQL gastrointestinal symptoms module: feasibility, reliability, and validity. J Pediatr Gastroenterol Nutr 59(3):347–355. https://doi.org/10.1097/mpg.0000000000000414
Varni JW, Kay MT, Limbers CA, Franciosi JP, Pohl JF (2012) PedsQL gastrointestinal symptoms module item development: qualitative methods. J Pediatr Gastroenterol Nutr 54(5):664–671. https://doi.org/10.1097/MPG.0b013e31823c9b88
Tauriainen A, Sankilampi U, Raitio A et al (2021) The association of perinatal and clinical factors with outcomes in infants with gastroschisis-a retrospective multicenter study in Finland. Eur J Pediatr 180(6):1875–1883. https://doi.org/10.1007/s00431-021-03964-w
Article PubMed PubMed Central Google Scholar
Ferreira RG, Mendonça CR, Gonçalves Ramos LL, de Abreu Tacon FS, do Amaral WN, Ruano R (2022) Gastroschisis: a systematic review of diagnosis, prognosis and treatment. J Matern Fetal Neonatal Med 35(25):6199–6212. https://doi.org/10.1080/14767058.2021.1909563
Article CAS PubMed Google Scholar
Bräutigam M, Abrahamsson K, Gatzinsky V et al (2024) The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric performance. Acta Paediatr 113(12):2564–2572. https://doi.org/10.1111/apa.17371
Tosello B, Zahed M, Guimond F et al (2017) Neurodevelopment and health-related quality of life in infants born with gastroschisis: a 6-year retrospective french study. Eur J Pediatr Surg 27(4):352–360. https://doi.org/10.1055/s-0036-1597268
Frybova B, Kokesova A, Zemkova D, Mixa V, Vlk R, Rygl M (2017) Quality of life in patients with gastroschisis is comparable with the general population: a questionnaire survey. Biomed Pap Med Fac Univ Palacky Olomouc Czech Repub 161(1):75–79. https://doi.org/10.5507/bp.2016.059
Arnold HE, Baxter KJ, Short HL et al (2018) Short-term and family-reported long-term outcomes of simple versus complicated gastroschisis. J Surg Res 224:79–88. https://doi.org/10.1016/j.jss.2017.11.054
Matza LS, Patrick DL, Riley AW et al (2013) Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force. Value Health 16(4):461–479. https://doi.org/10.1016/j.jval.2013.04.004
Holstein BE, Damsgaard MT, Ammitzbøll J, Madsen KR, Pedersen TP, Rasmussen M (2021) Recurrent abdominal pain among adolescents: trends and social inequality 1991–2018. Scand J Pain 21(1):95–102. https://doi.org/10.1515/sjpain-2020-0062
Reijneveld SA, de Meer G, Wiefferink CH, Crone MR (2008) Parents’ concerns about children are highly prevalent but often not confirmed by child doctors and nurses. BMC Public Health 8(1):124. https://doi.org/10.1186/1471-2458-8-124
Article PubMed PubMed Central Google Scholar
Kamity R, Kapavarapu PK, Chandel A (2021) Feeding problems and long-term outcomes in preterm infants—A systematic approach to evaluation and management. Children 8(12):1158. https://doi.org/10.3390/children8121158
Article PubMed PubMed Central Google Scholar
Grossbauer A, Mnatsakanian A, Costeloe A, Thottam PJ (2023) The effects of untreated reflux on the incidence of dysphagia, oral aversion, and feeding difficulty in the NICU population. Int J Pediatr Otorhinolaryngol 174:111734. https://doi.org/10.1016/j.ijporl.2023.111734
Koivusalo A, Rintala R, Lindahl H (1999) Gastroesophageal reflux in children with a congenital abdominal wall defect. J Pediatr Surg 34(7):1127–1129. https://doi.org/10.1016/s0022-3468(99)90582-1
Article CAS PubMed Google Scholar
Harris J, Poirier J, Selip D et al (2015) Early closure of gastroschisis after silo placement correlates with earlier enteral feeding. J Neonatal Surg 4(3):28
Article PubMed PubMed Central Google Scholar
Hawkins RB, Raymond SL, St Peter SD et al (2020) Immediate versus silo closure for gastroschisis: results of a large multicenter study. J Pediatr Surg 55(7):1280–1285. https://doi.org/10.1016/j.jpedsurg.2019.08.002
Aljahdali A, Mohajerani N, Skarsgard ED (2013) Effect of timing of enteral feeding on outcome in gastroschisis. J Pediatr Surg 48(5):971–976. https://doi.org/10.1016/j.jpedsurg.2013.02.014
Lee S, Marshall J, Clarke M, Smith CH (2024) Feeding and swallowing outcomes in children who use long-term ventilation: a scoping review. Dysphagia 39(4):666–683. https://doi.org/10.1007/s00455-023-10648-0
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