Weitzenkamp DA, Whiteneck GG, Lammertse DP. Predictors of personal care assistance for people with spinal cord injury. Arch Phys Med Rehabil. 2002;83:1399–405.

Article  PubMed  Google Scholar 

Samsa GP, Hoenig H, Branch LG. Relationship between self-reported disability and caregiver hours. Am J Phys Med Rehabil. 2001;80:674–84.

Article  CAS  PubMed  Google Scholar 

Robinson-Whelen S, Rintala DH. Informal care providers for veterans with sci: who are they and how are they doing? J Rehabil Res Dev. 2003;40:511–6.

Article  PubMed  Google Scholar 

Walker EA, Cao Y, Edles PA, Acuna J, Sligh-Conway C, Krause JS. Racial-ethnic variations in paid and unpaid caregiving: findings among persons with traumatic spinal cord injury. Disabil Health J. 2015;8:527–34.

Article  PubMed  Google Scholar 

Gemperli A, Rubinelli S, Zanini C, Huang J, Brach M, Pacheco Barzallo D. Living situation of family caregivers of persons with spinal cord injury. J Rehabil Med. 2020;52:jrm00124.

Article  PubMed  Google Scholar 

Lundström U, Wahman K, Seiger Å, Gray DB, Isaksson G, Lilja M. Participation in activities and secondary health complications among persons aging with traumatic spinal cord injury. Spinal Cord. 2017;55:367–72.

Article  PubMed  Google Scholar 

Savic G, Frankel HL, Jamous MA, Soni BM, Charlifue S. Participation restriction and assistance needs in people with spinal cord injuries of more than 40 year duration. Spinal Cord Ser Cases. 2018;4:1–7.

Article  Google Scholar 

Ivie CS 3rd, DeVivo MJ. Predicting unplanned hospitalizations in persons with spinal cord injury. Arch Phys Med Rehabil. 1994;75:1182–8.

Article  PubMed  Google Scholar 

Kroll T, Neri MT, Ho PS. Secondary conditions in spinal cord injury: results from a prospective survey. Disabil Rehabil. 2007;29:1229–37.

Article  PubMed  Google Scholar 

Braaf SC, Lennox A, Nunn A, Gabbe BJ. Experiences of hospital readmission and receiving formal carer services following spinal cord injury: a qualitative study to identify needs. Disabil Rehabil. 2018;40:1893–9.

Article  PubMed  Google Scholar 

Prince JM, Manley MS, Whiteneck GG. Self-managed versus agency-provided personal assistance care for individuals with high level tetraplegia. Arch Phys Med Rehabil. 1995;76:919–23.

Article  CAS  PubMed  Google Scholar 

Hagglund K, Clark M, Farmer J, Sherman A. A comparison of consumer-directed and agency-directed personal assistance services programmes. Disabil Rehabil. 2004;26:518–27.

Article  PubMed  Google Scholar 

Clark MJ, Hagglund KJ, Sherman AK. A longitudinal comparison of consumer-directed and agency-directed personal assistance service programmes among persons with physical disabilities. Disabil Rehabil. 2008;30:689–95.

Article  PubMed  Google Scholar 

Fleming-Castaldy RP. Are satisfaction with and self-management of personal assistance services associated with the life satisfaction of persons with physical disabilities? Disabil Rehabil. 2011;33:1447–59.

Article  PubMed  Google Scholar 

Mattson-Prince J. A rational approach to long-term care: comparing the independent living model with agency-based care for persons with high spinal cord injuries. Spinal Cord. 1997;35:326–31.

Article  CAS  PubMed  Google Scholar 

Charlifue SB, Botticello A, Kolakowsky-Hayner SA, Richards JS, Tulsky DS. Family caregivers of individuals with spinal cord injury: exploring the stresses and benefits. Spinal Cord. 2016;54:732–6.

Article  CAS  PubMed  Google Scholar 

Scholten EWM, Kieftenbelt A, Hillebregt CF, de Groot S, Ketelaar M, Visser-Meily JMA, et al. Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation. Spinal Cord. 2018;56:436–46.

Article  PubMed  Google Scholar 

Lavis T, Goetz LL. Comprehensive care for persons with spinal cord injury. Phys Med Rehabil Clin N Am. 2019;30:55–72.

Article  PubMed  Google Scholar 

Spoltore TA, O’Brien AM. Rehabilitation of the spinal cord injured patient. Orthop Nurs. 1995;14:7–14.

Article  CAS  PubMed  Google Scholar 

Hill CE, Knox S, Thompson BJ, Williams EN, Hess SA, Ladany N. Consensual qualitative research: an update. J Couns Psychol. 2005;52:196–205.

Article  Google Scholar 

van Wyk K, Backwell A, Townson A. A narrative literature review to direct spinal cord injury patient education programming. Top Spinal Cord Inj Rehabil. 2015;21:49–60.

Article  PubMed  PubMed Central  Google Scholar 

van Diemen T, Scholten EW, van Nes IJ, Geertzen JH, Post MW. Self-management and self-efficacy in patients with acute spinal cord injuries: protocol for a longitudinal cohort study. JMIR Res Protoc. 2018;7:e68.

Article  PubMed  PubMed Central  Google Scholar