D.M. is the Svare Chair for Value and Impact in Child Health Research at the Cumming School of Medicine, University of Calgary. She was previously supported by the Arthur J. E. Child Chair in Rheumatology (2012-2022).

The authors thank Faye Schreiber for editorial comments.

The PAVE Consortium includes the following people:

Work Package 1 (Canada): Deborah A. Marshall, Brittany Gerber, Gillian R. Currie, Susanne M. Benseler, Tania Cellucci, Guillermo Fiebelkorn, Sara A. Kohut, Stacey A. Page, Jennifer N. Stinson, Elizabeth Stringer, Joost F. Swart, Nico Wulffraat, Rae S.M. Yeung.

Work Package 2 (Germany): Kirsten Minden, Jens Klotsche, Juliane Riess, Florian Milatz, Martina Niewerth, Claudia Sengler, Nadine Groesch, Ina Liedmann.

Work Package 3 (Switzerland): Rotraud K. Saurenmann, Michelle Dey, Sibylle Juvalta, Pascale Kurt, Julia Dratva, David Shaw, Eva Adank, Florence Aeschlimann, Elvira Cannizzaro, Christian Huemer, Daniela Kaiser, Felix Moerman, Klaus Tenbrock, Federica Vanoni, Andreas Wörner.

Work Package 4 (Spain): Jordi Antón, Laura Martinez Mifsut, Mercè Jabalera, Joan Vinyets, Elisabet Puiggros Ruiz, Sonia Carriquí Arenas, Nolvia Castillo Giron, Joan Calzada Hernandez, Estibaliz Iglesias Jiménez, Juan M. Mosquera, Andrea Montserrat Zacarias Crovato, Carolina Estepa Guillen, Patricia Ramírez Rodríguez, Marina Barraso Rodrigo, Jesús Díaz Cascajosa, Ana Isabel Díaz Cortés, Marta Morales Ballus, Marta Llorens Capdevila, Maria Crespo Bosch, Ariadna Riera Castello, Montserrat Salvado Gavalda, Marta Gonzalez Martinez, Alexia Reyes Segura.

Work Package 5 (Israel): Yosef Uziel, Amit Ziv, Lia Henan, Ruby Haviv, Shirley Alon, Merav Heshin, Irit Tirosh, Yonathon Butbul Aviel, Neta Aviran, Rotem Semo, Mohamad Hamad, Gil Amarylio, Chen Dagan.

Work Package 6 (Belgium): Carine Wouters, Lien De Somer, Lien Lijnen, Joanna Willen, Kristien Hens, Leni Van Goidsenhoven, Hilde De Tollenaere.

Patient Advocacy Organizations: Jennifer Wilson, David Porte, Tsipi Egert, Yona Egert, Christophe Normand