Heidenreich PA, Albert NM, Allen LA, Bluemke DA, Butler J, Fonarow GC, Ikonomidis JS, Khavjou O, Konstam MA, Maddox TM, Nichol G, Pham M, Piña IL, Trogdon JG, American Heart Association Advocacy Coordinating Committee; Council on Arteriosclerosis, Thrombosis and Vascular Biology; Council on Cardiovascular Radiology and Intervention; Council on Clinical Cardiology; Council on Epidemiology and Prevention; Stroke Council. Forecasting the impact of heart failure in the United States: a policy statement from the American Heart Association. Circ Heart Fail. 2013;6(3):606–19. https://doi.org/10.1161/HHF.0b013e318291329a. Epub 2013 Apr 24. PMID: 23616602; PMCID: PMC3908895.
Article CAS PubMed PubMed Central Google Scholar
Tsao CW, Aday AW, Almarzooq ZI, Anderson CAM, Arora P, Avery CL, Baker-Smith CM, Beaton AZ, Boehme AK, Buxton AE, Commodore-Mensah Y, Elkind MSV, Evenson KR, Eze-Nliam C, Fugar S, Generoso G, Heard DG, Hiremath S, Ho JE, Kalani R, Kazi DS, Ko D, Levine DA, Liu J, Ma J, Magnani JW, Michos ED, Mussolino ME, Navaneethan SD, Parikh NI, Poudel R, Rezk-Hanna M, Roth GA, Shah NS, St-Onge MP, Thacker EL, Virani SS, Voeks JH, Wang NY, Wong ND, Wong SS, Yaffe K, Martin SS, American Heart Association Council on Epidemiology and Prevention Statistics Committee and Stroke Statistics Subcommittee. Heart Disease and Stroke Statistics-2023 update: a Report from the American Heart Association. Circulation. 2023;147(8):e93–621. https://doi.org/10.1161/CIR.0000000000001123.
Evangelista LS, Strömberg A, Dionne-Odom JN. An integrated review of interventions to improve psychological outcomes in caregivers of patients with heart failure. Curr Opin Support Palliat Care. 2016;10(1):24–31. https://doi.org/10.1097/SPC.0000000000000182.
Article PubMed PubMed Central Google Scholar
Lovell J, Pham T, Noaman SQ, Davis MC, Johnson M, Ibrahim JE. Self-management of heart failure in dementia and cognitive impairment: a systematic review. BMC Cardiovasc Disord. 2019;19(1):99. https://doi.org/10.1186/s12872-019-1077-4.
Article PubMed PubMed Central Google Scholar
Suksatan W, Tankumpuan T, Davidson PM. Heart failure caregiver Burden and outcomes: a systematic review. J Prim Care Community Health. 2022;13:21501319221112584. https://doi.org/10.1177/21501319221112584.
Article PubMed PubMed Central Google Scholar
McIlfatrick S, Doherty LC, Murphy M, et al. The importance of planning for the future’: Burden and unmet needs of caregivers’ in advanced heart failure: a mixed methods study. Palliat Med. 2018;32(4):881–90. https://doi.org/10.1177/0269216317743958.
Hauser J. Communication in heart failure and palliative care. Heart Fail Rev. 2017;22(5):535–42. https://doi.org/10.1007/s10741-017-9643-2.
Hagedoorn EI, Keers JC, Jaarsma T, van der Schans CP, Luttik MLA, Paans W. The association of collaboration between family caregivers and nurses in the hospital and their preparedness for caregiving at home. Geriatr Nurs. 2020;41(4):373–80. https://doi.org/10.1016/j.gerinurse.2019.02.004.
Lowey SE. Palliative Care in the management of patients with Advanced Heart failure. Adv Exp Med Biol. 2018;1067:295–311. doi: 10.1007/5584_2017_115. PMID: 29030806.
Heidenreich PA, Bozkurt B, Aguilar D, Allen LA, Byun JJ, Colvin MM, Deswal A, Drazner MH, Dunlay SM, Evers LR, Fang JC, Fedson SE, Fonarow GC, Hayek SS, Hernandez AF, Khazanie P, Kittleson MM, Lee CS, Link MS, Milano CA, Nnacheta LC, Sandhu AT, Stevenson LW, Vardeny O, Vest AR, Yancy CW. 2022 AHA/ACC/HFSA Guideline for the Management of Heart Failure: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Circulation. 2022;145(18):e895-e1032. doi: 10.1161/CIR.0000000000001063. Epub 2022 Apr 1. Erratum in: Circulation. 2022;145(18):e1033. Erratum in: Circulation. 2022;146(13):e185. Erratum in: Circulation. 2023;147(14):e674. PMID: 35363499.
Piamjariyakul U, Petitte T, Smothers A, et al. Study protocol of coaching end-of-life palliative care for advanced heart failure patients and their family caregivers in rural Appalachia: a randomized controlled trial. BMC Palliat Care. 2019;18(1):119. https://doi.org/10.1186/s12904-019-0500-z. Published 2019 Dec 29.
Article PubMed PubMed Central Google Scholar
Palliative Care. The relief you need when you have a serious illness. [Internet]. National Institute of Nursing Research (NINR). [cited 2023Aug15]. https://www.ninr.nih.gov/sites/default/files/docs/palliative-care-brochure.pdf
Ferrell BR, Twaddle ML, Melnick A, Meier DE. National Consensus Project Clinical Practice Guidelines for Quality Palliative Care guidelines, 4th Edition. J Palliat Med. 2018;21(12):1684–9. https://doi.org/10.1089/jpm.2018.0431.
Pierce JB, Shah NS, Petito LC, Pool L, Lloyd-Jones DM, Feinglass J, Khan SS. Trends in heart failure-related cardiovascular mortality in rural versus urban United States counties, 2011–2018: a cross-sectional study. PLoS ONE. 2021;16(3). https://doi.org/10.1371/journal.pone.0246813. e0246813.
Health in America. How has the death rate changed in the US? [Internet]. USAFACTS. [cited 2024 Mar 15]. https://usafacts.org/topics/health#how-has-the-death-rate-changed-in-the-us
CDC WONDER online database. About Underlying Cause of Death, 1999–2020. U.S. [Internet]. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics. [cited Aug 1st ]. http://wonder.cdc.gov/ucd-icd10.html
Vipperman A, Savla J, Roberto KA, Burns D. Correction: Barriers to Service Use Among Dementia Family Caregivers in Rural Appalachia: Implications for Reducing Caregiver Overload. Prev Sci. 2023;24(5):961. https://doi.org/10.1007/s11121-023-01528-y. Erratum for: Prev Sci. 2023;24(5):950–960. PMID: 36988731.
Fornehed MLC, Mixer SJ, Lindley LC. Families’ Decision Making at End of Life in Rural Appalachia. J Hosp Palliat Nurs. 2020;22(3):188–195. https://doi.org/10.1097/NJH.0000000000000642. PMID: 32168088.
Piamjariyakul U, Smith CE, Werkowitch M, et al. Designing and Testing an end-of-life discussion intervention for African American patients with heart failure and their families. J Hosp Palliat Nurs. 2016;18(6):528–35. https://doi.org/10.1097/NJH.0000000000000290.
Article PubMed PubMed Central Google Scholar
Hong I, Wilson B, Gross T, Conley J, Powers T. Challenging terrains: socio-spatial analysis of Primary Health Care Access disparities in West Virginia. Appl Spat Anal Policy. 2023;16(1):141–61. https://doi.org/10.1007/s12061-022-09472-0. Epub 2022 Aug 10. PMID: 35967757; PMCID: PMC9363866.
Cassidy L, Hill L, Fitzsimons D, McGaughey J. The impact of psychoeducational interventions on the outcomes of caregivers of patients with heart failure: a systematic review and meta-analysis. Int J Nurs Stud. 2021;114:103806. https://doi.org/10.1016/j.ijnurstu.2020.103806.
Rogers JG, Patel CB, Mentz RJ, et al. Palliative Care in Heart failure: the PAL-HF Randomized, Controlled Clinical Trial. J Am Coll Cardiol. 2017;70(3):331–41. https://doi.org/10.1016/j.jacc.2017.05.030.
Article PubMed PubMed Central Google Scholar
Piamjariyakul U, Young S, Shafique S, Palmer N, Wang K. Spiritual well-being in Appalachian Family caregivers. Online Rural Nurs Health. 2024;24(1):103–30. https://doi.org/10.14574/ojrnhc.v24i1.757.
Meghani SH, Hinds PS. Policy brief: the Institute of Medicine report Dying in America: Improving quality and honoring individual preferences near the end of life. Nurs Outlook. 2015 Jan-Feb;63(1):51 – 9. doi: 10.1016/j.outlook.2014.11.007. Epub 2014 Dec 11. PMID: 25645482.
Buck HG, Howland C, Stawnychy MA, et al. Caregivers’ Contributions to Heart Failure Self-care: An Updated Systematic Review. J Cardiovasc Nurs Published Online Febr. 2024;1. https://doi.org/10.1097/JCN.0000000000001060.
Piamjariyakul U, Smothers A, Young S, Krupp JE, Smith CE. Palliative Care Coaching for Family Caregivers & Patients with Rare Advanced Lung Disease Poster session presented at: Public Health Research in Palliative Care Seminar. 2018 Oct 25–26; Brussels, Belgium.
Piamjariyakul U, Smith CE, Russell C, Werkowitch M, Elyachar A. The feasibility of a telephone coaching program on heart failure home management for family caregivers. Heart Lung. 2013;42(1):32–9. https://doi.org/10.1016/j.hrtlng.2012.08.004.
Strange KE, Troutman-Jordan M, Mixer SJ. Influence of spiritual Engagement on Appalachian older adults’ health: a systematic review. J Psychosoc Nurs Ment Health Serv. 2023;61(5):45–52. https://doi.org/10.3928/02793695-20221026-02.
Piamjariyakul U, Smothers A, Young S, et al. Verifying intervention fidelity procedures for a palliative home care intervention with pilot study results. Res Nurs Health. 2021;44(5):854–63. https://doi.org/10.1002/nur.22166.
Article PubMed PubMed Central Google Scholar
Hoffmann TC, Glasziou PP, Boutron I, Milne R, Perera R, Moher D, Altman DG, Barbour V, et al. Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide. BMJ. 2014;348:g1687. https://doi.org/10.1136/bmj.g1687.
Melnyk BM, Fineout-Overholt E. Evidence-Based Practice in Nursing & Healthcare: A guide to Best Practice (5th edition). Wolters Kluwer, Philadelphia, 2023.
Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillside, NJ: Lawrence Erlbaum Associates; 1988.
Mentz RJ, Tulsky JA, Granger BB, et al. The palliative care in heart failure trial: rationale and design. Am Heart J. 2014;168(5):645–e6511. https://doi.org/10.1016/j.ahj.2014.07.018.
Article PubMed PubMed Central Google Scholar
Wongpiriyayothar A, Piamjariyakul U, Williams PD. Effects of coaching using telephone on dyspnea and physical functioning among persons with chronic heart failure. Appl Nurs Res. 2011;24:e59–66. https://doi.org/10.1016/j.apnr.2010.02.007.
Smothers A, Buck J. An evaluation of a practice change to increase understanding of the Use of Nonpharmacological interventions for the treatment of Dyspnea in Hospice patients. J Hospice Palliat Nurs. 2012;14(8):524–32. https://doi.org/10.1097/NJH.0b013e31825c7b2a.
Sadeghi B, Walling AM, Romano PS, Ahluwalia SC, Ong MK. A hospital-based Advance Care Planning intervention for patients with heart failure: a feasibility study. J Palliat Med. 2016;19(4):451–5. https://doi.org/10.1089/jpm.2015.0269.
Article PubMed PubMed Central Google Scholar
Institute for Healthcare Improvement Initiatives. Conversation Ready. [Internet]. Available from: Institute of Healthcare Improvement. [cited 2023 Aug 1st ]. http://www.ihi.org/engage/initiatives/ConversationProject/Pages/ConversationReady.aspx
Bellg AJ, Borrelli B, Resnick B, et al. Enhancing treatment fidelity in health behavior change studies: best practices and recommendations from the NIH Behavior Change Consortium. Health Psychol. 2004;23(5):443–51. https://doi.org/10.1037/0278-6133.23.5.443.
留言 (0)