Cooke KR, Luznik L, Sarantopoulos S, Hakim FT, Jagasia M, Fowler DH, et al. The Biology of Chronic Graft-versus-Host Disease: A Task Force Report from the National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease. Biol Blood Marrow Transplant. 2017;23(2):211–34.

Article  PubMed  Google Scholar 

Atilla E, Atilla PA, Toprak SK, Demirer T. A review of late complications of allogeneic hematopoietic stem cell transplantations. Clin Transplant. 2017; 31(10).

Arai S, Arora M, Wang T, Spellman SR, He W, Couriel DR, et al. Increasing incidence of chronic graft-versus-host disease in allogeneic transplantation: a report from the Center for International Blood and Marrow Transplant Research. Biol Blood Marrow Transplant. 2015;21(2):266–74.

Article  PubMed  Google Scholar 

Flowers ME, Martin PJ. How we treat chronic graft-versus-host disease. Blood. 2015;125(4):606–15.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Brice L, Gilroy N, Dyer G, Kabir M, Greenwood M, Larsen S, et al. Predictors of quality of life in allogeneic hematopoietic stem cell transplantation survivors. J Psychosoc Oncol. 2021;39(4):534–52.

Article  PubMed  Google Scholar 

Cheon J, Lee YJ, Jo JC, Kweon K, Koh S, Min YJ, et al. Late complications and quality of life assessment for survivors receiving allogeneic hematopoietic stem cell transplantation. Support Care Cancer. 2021;29(2):975–86.

Article  PubMed  Google Scholar 

Hayakawa J, Miyamura D, Kimura SI, Gomyo A, Tamaki M, Akahoshi Y, et al. Negative impact of chronic graft-versus-host disease and glucocorticoid on the recovery of physical function after allogeneic hematopoietic stem cell transplantation. Bone Marrow Transplant. 2019;54(7):994–1003.

Article  CAS  PubMed  Google Scholar 

Kurosawa S, Yamaguchi T, Oshima K, Yanagisawa A, Fukuda T, Kanamori H, et al. Resolved versus Active Chronic Graft-versus-Host Disease: Impact on Post-Transplantation Quality of Life. Biol Blood Marrow Transplant. 2019;25(9):1851–8.

Article  PubMed  Google Scholar 

Yu J, Hamilton BK, Turnbull J, Stewart SK, Vernaya A, Bhatt V, et al Patient-reported symptom burden and impact on daily activities in chronic graft-versus-host disease. Cancer Med. 2023;12(3):3623–33.

Lynch Kelly D, Lyon DE, Ameringer SA, Elswick RK. Symptoms, Cytokines, and Quality of Life in Patients Diagnosed with Chronic Graft-Versus-Host Disease Following Allogeneic Hematopoietic Stem Cell Transplantation. Oncol Nurs Forum. 2015;42(3):265–75.

Article  PubMed  Google Scholar 

Pidala J, Kurland B, Chai X, Majhail N, Weisdorf DJ, Pavletic S, et al. Patient-reported quality of life is associated with severity of chronic graft-versus-host disease as measured by NIH criteria: report on baseline data from the Chronic GVHD Consortium. Blood. 2011;117(17):4651–7.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Wenzel F, Pralong A, Holtick U, Scheid C, Herling M, Simon ST. Burden and Needs of Patients with Severe GvHD from the Supportive and Palliative Care Perspective-A Literature Review. Cancers (Basel). 2021; 13(11).

Jim HS, Sutton SK, Jacobsen PB, Martin PJ, Flowers ME, Lee SJ. Risk factors for depression and fatigue among survivors of hematopoietic cell transplantation. Cancer. 2016;122(8):1290–7.

Article  PubMed  Google Scholar 

Baird K, Steinberg SM, Grkovic L, Pulanic D, Cowen EW, Mitchell SA, et al. National Institutes of Health chronic graft-versus-host disease staging in severely affected patients: organ and global scoring correlate with established indicators of disease severity and prognosis. Biol Blood Marrow Transplant. 2013;19(4):632–9.

Article  PubMed  PubMed Central  Google Scholar 

Kurosawa S, Oshima K, Yamaguchi T, Yanagisawa A, Fukuda T, Kanamori H, et al. Quality of Life after Allogeneic Hematopoietic Cell Transplantation According to Affected Organ and Severity of Chronic Graft-versus-Host Disease. Biol Blood Marrow Transplant. 2017;23(10):1749–58.

Article  PubMed  Google Scholar 

El-Jawahri A, Pidala J, Khera N, Wood WA, Arora M, Carpenter PA, et al. Impact of Psychological Distress on Quality of Life, Functional Status, and Survival in Patients with Chronic Graft-versus-Host Disease. Biol Blood Marrow Transplant. 2018;24(11):2285–92.

Article  PubMed  Google Scholar 

Jacobs JM, Fishman S, Sommer R, Sereno I, Fenech A, Jankowski AL, et al. Coping and Modifiable Psychosocial Factors are Associated with Mood and Quality of Life in Patients with Chronic Graft-versus-Host Disease. Biol Blood Marrow Transplant. 2019;25(11):2234–42.

Article  PubMed  Google Scholar 

Gruber I, Koelbl O, Herr W, Holler E, Edinger M, Wolff D. Impact of chronic graft-versus-host disease on quality of life and cognitive function of long-term transplant survivors after allogeneic hematopoietic stem cell transplantation with total body irradiation. Radiat Oncol. 2022;17(1):195.

Article  PubMed  PubMed Central  Google Scholar 

Wolff D, Herzberg PY, Herrmann A, Pavletic SZ, Heussner P, Mumm F, et al. Post-transplant multimorbidity index and quality of life in patients with chronic graft-versus-host disease-results from a joint evaluation of a prospective German multicenter validation trial and a cohort from the National Institutes of Health. Bone Marrow Transplant. 2021;56(1):243–56.

Article  PubMed  Google Scholar 

Kelly DL, Syrjala K, Taylor M, Rentscher KE, Hashmi S, Wood WA, et al. Biobehavioral Research and Hematopoietic Stem Cell Transplantation: Expert Review from the Biobehavioral Research Special Interest Group of the American Society for Transplantation and Cellular Therapy. Transplant Cell Ther. 2021;27(9):747–57.

Article  PubMed  PubMed Central  Google Scholar 

Watson D, O’Hara MW, Simms LJ, Kotov R, Chmielewski M, McDade-Montez EA, et al. Development and validation of the Inventory of Depression and Anxiety Symptoms (IDAS). Psychol Assess. 2007;19(3):253–68.

Article  PubMed  Google Scholar 

Larson AG, Morris KJ, Juckett MB, Coe CL, Broman AT, Costanzo ES. Mindfulness, Experiential Avoidance, and Recovery From Hematopoietic Stem Cell Transplantation. Ann Behav Med. 2019;53(10):886–95.

Article  PubMed  PubMed Central  Google Scholar 

Nelson AM, Juckett MB, Coe CL, Costanzo ES. Illness perceptions predict health practices and mental health following hematopoietic stem cell transplantation. Psychooncology. 2019;28(6):1252–60.

Article  PubMed  PubMed Central  Google Scholar 

Rentscher KE, Carroll JE, Juckett MB, Coe CL, Broman AT, Rathouz PJ, et al. Sleep Disruption, Fatigue, and Depression as Predictors of 6-Year Clinical Outcomes Following Allogeneic Hematopoietic Cell Transplantation. J Natl Cancer Inst. 2021;113(10):1405–14.

Article  PubMed  PubMed Central  Google Scholar 

Hann DM, Denniston MM, Baker F. Measurement of fatigue in cancer patients: further validation of the Fatigue Symptom Inventory. Qual Life Res. 2000;9(7):847–54.

Article  CAS  PubMed  Google Scholar 

Donovan KA, Jacobsen PB, Small BJ, Munster PN, Andrykowski MA. Identifying clinically meaningful fatigue with the Fatigue Symptom Inventory. J Pain Symptom Manag. 2008;36(5):480–7.

Article  PubMed  PubMed Central  Google Scholar 

Cleeland CS, Ryan KM. Pain assessment: global use of the Brief Pain Inventory. Ann Acad Med Singap. 1994;23(2):129–38.

CAS  PubMed  Google Scholar 

Bastien CH, Vallières A, Morin CM. Validation of the Insomnia Severity Index as an outcome measure for insomnia research. Sleep Med. 2001;2(4):297–307.

Article  PubMed  Google Scholar 

Savard MH, Savard J, Simard S, Ivers H. Empirical validation of the Insomnia Severity Index in cancer patients. Psychooncology. 2005;14(6):429–41.

Article  PubMed  Google Scholar 

Lai JS, Wagner LI, Jacobsen PB, Cella D. Self-reported cognitive concerns and abilities: two sides of one coin? Psychooncology. 2014;23(10):1133–41.

Article  PubMed  PubMed Central  Google Scholar 

Saffer BY, Lanting SC, Koehle MS, Klonsky ED, Iverson GL. Assessing cognitive impairment using PROMIS(®) applied cognition-abilities scales in a medical outpatient sample. Psychiatry Res. 2015;226(1):169–72.

Article  PubMed  Google Scholar 

Flynn KE, Lin L, Cyranowski JM, Reeve BB, Reese JB, Jeffery DD, et al Development of the NIH PROMIS ® Sexual Function and Satisfaction measures in patients with cancer. J Sex Med. 2013; 10 Suppl 1(0 1):43–52.

Lee S, Cook EF, Soiffer R, Antin JH. Development and validation of a scale to measure symptoms of chronic graft-versus-host disease. Biol Blood Marrow Transplant. 2002;8(8):444–52.

Article  PubMed  Google Scholar 

Jagasia MH, Greinix HT, Arora M, Williams KM, Wolff D, Cowen EW, et al National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: I. The 2014 Diagnosis and Staging Working Group report. Biol Blood Marrow Transplant. 2015;21(3):389–401.e1.

Benjamini Y, Hochberg Y. Controlling the false discovery rate - A practical and powerful approach to multiple testing. J Royal Statist Soc. Series B. 1995;57:289–300. https://doi.org/10.2307/2346101.

Article  Google Scholar 

Bevans M, El-Jawahri A, Tierney DK, Wiener L, Wood WA, Hoodin F, et al. National Institutes of Health Hematopoietic Cell Transplantation Late Effects Initiative: The Patient-Centered Outcomes Working Group Report. Biol Blood Marrow Transplant. 2017;23(4):538–51.

Article  PubMed  Google Scholar 

Duong N, Davis H, Robinson PD, Oberoi S, Cataudella D, Culos-Reed SN, et al. Mind and body practices for fatigue reduction in patients with cancer and hematopoietic stem cell transplant recipients: A systematic review and meta-analysis. Crit Rev Oncol Hematol. 2017;120:210–6.

Article  PubMed  Google Scholar 

Johnson JA, Garland SN, Carlson LE, Savard J, Simpson JSA, Ancoli-Israel S, et al. Bright light therapy improves cancer-related fatigue in cancer survivors: a randomized controlled trial. J Cancer Surviv. 2018;12(2):206–15.

Article  PubMed  Google Scholar 

Valdimarsdottir HB, Figueiro MG, Holden W, Lutgendorf S, Wu LM, Ancoli-Israel S, et al. Programmed environmental illumination during autologous stem cell transplantation hospitalization for the treatment of multiple myeloma reduces severity of depression: A preliminary randomized controlled trial. Cancer Med. 2018;7(9):4345–53.

Article  CAS  PubMed  PubMed Central  Google Scholar