SEER. Cancer Statistics Review, 1975-2017 [Internet]: National Cancer Institute. Available from: https://seer.cancer.gov/csr/1975_2017/
Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT, Friedman DL, Marina N, Hobbie W, Kadan-Lottick NS, Schwartz CL, Leisenring W, Robison LL. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006;355(15):1572–82. https://doi.org/10.1056/NEJMsa060185.
Article CAS PubMed Google Scholar
Hudson MM, Ness KK, Gurney JG, Mulrooney DA, Chemaitilly W, Krull KR, Green DM, Armstrong GT, Nottage KA, Jones KE, Sklar CA, Srivastava DK, Robison LL. Clinical ascertainment of health outcomes among adults treated for childhood cancer. JAMA. 2013;309(22):2371–81. https://doi.org/10.1001/jama.2013.6296.
Article CAS PubMed PubMed Central Google Scholar
Children’s Oncology Group. Long-term follow-up guidelines for survivors of childhood, adolescent and young adult cancers. Version 5.0. Monrovia, CA; 2018. Available online: http://www.survivorshipguidelines.org/.
Council IoMatNR. In: Hewitt M, Greenfield S, Stovall E, editors. From cancer patient to cancer survivor: lost in transition. Washington, DC: National Academies Press; 2006.
Mertens AC, Liu Q, Neglia JP, Wasilewski K, Leisenring W, Armstrong GT, Robison LL, Yasui Y. Cause-specific late mortality among 5-year survivors of childhood cancer: the Childhood Cancer Survivor study. J Natl Cancer Inst. 2008;100(19):1368–79. https://doi.org/10.1093/jnci/djn310.
Article PubMed PubMed Central Google Scholar
Schwartz L, Tuchman L, Hobbie W, Ginsberg J. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child Care Health Dev. 2011;37(6):883–95. https://doi.org/10.1111/j.1365-2214.2011.01282.x.
Article CAS PubMed Google Scholar
Freyer DR. Transition of care for young adult survivors of childhood and adolescent cancer: rationale and approaches. J Clin Oncol. 2010;28(32):4810–8. https://doi.org/10.1200/JCO.2009.23.4278.
Article PubMed PubMed Central Google Scholar
Oeffinger KC, Mertens AC, Hudson MM, Gurney JG, Casillas J, Chen H, Whitton J, Yeazel M, Yasui Y, Robison LL. Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor study. Ann Fam Med. 2004;2(1):61–70. https://doi.org/10.1370/afm.26.
Article PubMed PubMed Central Google Scholar
Ford JS, Tonorezos ES, Mertens AC, Hudson MM, Casillas J, Foster BM, Moskowitz CS, Smith SM, Chou JF, Buchanan G, Robison LL, Oeffinger KC. Barriers and facilitators of risk-based health care for adult survivors of childhood cancer: a report from the Childhood Cancer Survivor study. Cancer. 2020;126(3):619–27. https://doi.org/10.1002/cncr.32568.
Nathan PC, Greenberg ML, Ness KK, Hudson MM, Mertens AC, Mahoney MC, Gurney JG, Donaldson SS, Leisenring WM, Robison LL, Oeffinger KC. Medical care in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor study. J Clin Oncol. 2008;26(27):4401–9. https://doi.org/10.1200/JCO.2008.16.9607.
Article PubMed PubMed Central Google Scholar
Sadak KT, Szalda D, Lindgren BR, Kinahan KE, Eshelman-Kent D, Schwartz LA, Henderson T, Freyer DR. Transitional care practices, services, and delivery in childhood cancer survivor programs: a survey study of U.S. survivorship providers. Pediatr Blood Cancer. 2019;66(8):e27793. https://doi.org/10.1002/pbc.27793.
Article PubMed PubMed Central Google Scholar
Eshelman-Kent D, Kinahan K, Hobbie W, Landier W, Teal S, Friedman D, Nagarajan R, Freyer D. Cancer survivorship practices, services, and delivery: a report from the Children’s Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees. J Cancer Surviv. 2011;5(4):345–57. https://doi.org/10.1007/s11764-011-0192-8.
Article PubMed PubMed Central Google Scholar
Kenney LB, Melvin P, Fishman LN, O'Sullivan-Oliveira J, Sawicki GS, Ziniel S, Diller L, Fernandes SM. Transition and transfer of childhood cancer survivors to adult care: a national survey of pediatric oncologists. Pediatr Blood Cancer. 2017;64(2):346–52. https://doi.org/10.1002/pbc.26156.
TO H, Friedman DL, Meadows AT. Childhood cancer survivors: transition to adult-focused risk-based care. Pediatrics. 2010;126(1):129–36. https://doi.org/10.1542/peds.2009-2802.
Otth M, Denzler S, Koenig C, Koehler H, Scheinemann K. Transition from pediatric to adult follow-up care in childhood cancer survivors-a systematic review. J Cancer Surviv. 2021;15(1):151–62. https://doi.org/10.1007/s11764-020-00920-9.
Rosenberg-Yunger ZR, Klassen AF, Amin L, Granek L, D'Agostino NM, Boydell KM, Greenberg M, Barr RD, Nathan PC. Barriers and facilitators of transition from pediatric to adult long-term follow-up care in childhood cancer survivors. J Adolesc Young Adult Oncol. 2013;2(3):104–11. https://doi.org/10.1089/jayao.2013.0003.
Casillas J, Kahn KL, Doose M, Landier W, Bhatia S, Hernandez J, Zeltzer LK. Transitioning childhood cancer survivors to adult-centered healthcare: insights from parents, adolescent, and young adult survivors. Psycho-Oncology. 2010;19(9):982–90.
Nandakumar BS, Fardell JE, Wakefield CE, Signorelli C, McLoone JK, Skeen J, Maguire AM, Cohn RJ. Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care. Support Care Cancer. 2018;26(8):2743–50. https://doi.org/10.1007/s00520-018-4077-5.
White PH, Cooley WC. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2018;142(5). https://doi.org/10.1542/peds.2018-2587.
Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182–200. https://doi.org/10.1542/peds.2011-0969.
John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M. Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement from the American Heart Association. J Am Heart Assoc. 2022;11(7):e025278. https://doi.org/10.1161/jaha.122.025278.
Article PubMed PubMed Central Google Scholar
Medicine SfAHa. Transition to adulthood for youth with chronic conditions and special health care needs. J Adolesc Health. 2020;66(5):631–4. https://doi.org/10.1016/j.jadohealth.2020.02.006.
Bryant R, Porter JS, Sobota A. Association of Pediatric Hematology/Oncology N, American Society of Pediatri Hematology O. APHON/ASPHO policy statement for the transition of patients with sickle cell disease from pediatric to adult health care. J Pediatr Oncol Nurs. 2015;32(6):355–9. https://doi.org/10.1177/1043454215591954.
Rocque BG, Weprin BE, Blount JP, Hopson BD, Drake JM, Hamilton MG, Williams MA, White PH, Orrico KO, Martin JE. Health care transition in pediatric neurosurgery: a consensus statement from the American Society of Pediatric Neurosurgeons. J Neurosurg Pediatr. 2020;25:555–63. https://doi.org/10.3171/2019.12.Peds19524.
Gabriel P, McManus M, Rogers K, White P. Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review. J Pediatr. 2017;188:263–9.e15. https://doi.org/10.1016/j.jpeds.2017.05.066.
Schmidt A, Ilango SM, McManus MA, Rogers KK, White PH. Outcomes of pediatric to adult health care transition interventions: an updated systematic review. J Pediatr Nurs. 2020;51:92–107. https://doi.org/10.1016/j.pedn.2020.01.002.
Effinger KE, Haardörfer R, Marchak JG, Escoffery C, Landier W, Kommajosula A, Hendershot E, Sadak KT, Eshelman-Kent D, Kinahan K, Freyer DR, Chow EJ, Mertens AC. Current pediatric cancer survivorship practices: a report from the Children’s Oncology Group. J Cancer Surviv. 2022:1–10. https://doi.org/10.1007/s11764-021-01157-w.
Iyer NS, Mitchell HR, Zheng DJ, Ross WL, Kadan-Lottick NS. Experiences with the survivorship care plan in primary care providers of childhood cancer survivors: a mixed methods approach. Support Care Cancer. 2017;25(5):1547–55. https://doi.org/10.1007/s00520-016-3544-0.
Suh E, Daugherty CK, Wroblewski K, Lee H, Kigin ML, Rasinski KA, Ford JS, Tonorezos ES, Nathan PC, Oeffinger KC, TO H. General internists’ preferences and knowledge about the care of adult survivors of childhood cancer: a cross-sectional survey. Ann Intern Med. 2014;160(1):11–7. https://doi.org/10.7326/m13-1941.
Article PubMed PubMed Central Google Scholar
Signorelli C, Wakefield CE, Fardell JE, Foreman T, Johnston KA, Emery J, Thornton-Benko E, Girgis A, Lie HC, Cohn RJ. The role of primary care physicians in childhood cancer survivorship care: multiperspective interviews. Oncologist. 2018. https://doi.org/10.1634/theoncologist.2018-0103.
Hudson MM, Bhatia S, Casillas J, Landier W. Long-term follow-up care for childhood, adolescent, and young adult cancer survivors. Pediatrics. 2021;148(3). https://doi.org/10.1542/peds.2021-053127.
White P, Schmidt A, Ilango S, Shorr J, Beck D, McManus M. Six core elements of Health Care Transition™ 3.0: an implementation guide. Washington, DC: Got Transition, The National Alliance to Advance Adolescent Health; 2020.
Schwartz LA, Daniel LC, Brumley LD, Barakat LP, Wesley KM, Tuchman LK. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development. J Pediatr Psychol. 2014. https://doi.org/10.1093/jpepsy/jsu028.
South K, George M, Smaldone A. Gaps in transition readiness measurement: a comparison of instruments to a conceptual model. J Transit Med. 2022;4(1):20220002. https://doi.org/10.1515/jtm-2022-0002.
Article PubMed PubMed Central Google Scholar
Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang I. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2009. Epub December 29, 2009. https://doi.org/10.1093/jpepsy/jsp128.
Wood DL, Sawicki GS, Miller MD, Smotherman C, Lukens-Bull K, Livingood WC, Ferris M, Kraemer DF. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. 2014;14(4):415–22. https://doi.org/10.1016/j.acap.2014.03.008.
Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, Gipson DS, McCoy LP, Hooper SR. A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale. Ren Fail. 2012;34(6):744–53. https://doi.org/10.3109/0886022x.2012.678171.
Ferris M, Cohen S, Haberman C, Javalkar K, Massengill S, Mahan JD, Kim S, Bickford K, Cantu G, Medeiros M, Phillips A, Ferris MT, Hooper SR. Self-management and transition readiness assessment: development, reliability, and factor structure of the STARx Questionnaire. J Pediatr Nurs. 2015;30(5):691–9. https://doi.org/10.1016/j.pedn.2015.05.009.
Article CAS PubMed Google Scholar
Marchak JG, Reed-Knight B, Amaral S, Mee L, Blount RL. Providers’ assessment of transition readiness among adolescent and young adult kidney transplant recipients. Pediatr Transplant. 2015;19(8):849–57. https://doi.org/10.1111/petr.12615.
Gilleland J, Amaral S, Mee L, Blount R. Getting ready to leave: transition readiness in adolescent kidney transplant recipients. J Pediatr Psychol. 2012;37(1):85–96. https://doi.org/10.1093/jpepsy/jsr049.
Haarbauer-Krupa J, Alexander NM, Mee L, Johnson A, Wise J, Gupta NA, Schechter MS, Wasilewski-Masker K, Marchak JG. Readiness for transition and healthcare satisfaction in adolescents with complex medical conditions. Child Care Health Dev. 2019. https://doi.org/10.1111/cch.12656.
Klassen AF, Grant C, Barr R, Brill H, Kraus de Camargo O, Ronen GM, Samaan MC, Mondal T, Cano SJ, Schlatman A, Tsangaris E, Athale U, Wickert N, Gorter JW. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015;41(4):547–58. https://doi.org/10.1111/cch.12207.
留言 (0)