Reyna VF, Nelson WL, Han PK, Pignone MP. Decision making and cancer. Am Psychol. 2015;70(2):105–18. https://doi.org/10.1037/a0036834.
Article PubMed PubMed Central Google Scholar
National Cancer Institute. NCI dictionary of cancer terms: primary therapy [webpage on the internet].]. Available from: https://www.cancer.gov/publications/dictionaries/cancer-terms/def/primary-therapy. Accessed 30 May 2022.
Nekhlyudov L, Ganz PA, Arora NK, Rowland JH. Going beyond being lost in transition: a decade of progress in cancer survivorship. J Clin Oncol: Official J Am Society Clin Oncol. 2017;35(18):1978–81. https://doi.org/10.1200/JCO.2016.72.1373.
Halpern MT, McCabe MS, Burg MA. The cancer survivorship journey: models of care, disparities, barriers, and future directions. Am Soc Clin Oncol Educ Book. 2016;35:231–9. https://doi.org/10.1200/edbk_156039.
Gordon LG, Merollini KMD, Lowe A, Chan RJ. A systematic review of financial toxicity among cancer survivors: we can’t pay the co-pay. Patient. 2017;10(3):295–309. https://doi.org/10.1007/s40271-016-0204-x.
Chan RJ, Gordon LG, Tan CJ, Chan A, Bradford NK, Yates P, et al. Relationships between financial toxicity and symptom burden in cancer survivors: a systematic review. J Pain Symptom Manage. 2019;57(3):646-60 e1. https://doi.org/10.1016/j.jpainsymman.2018.12.003.
Shapiro CL. Cancer survivorship. N Engl J Med. 2018;379(25):2438–50. https://doi.org/10.1056/NEJMra1712502.
Andersen MR, Bowen DJ, Morea J, Stein KD, Baker F. Involvement in decision-making and breast cancer survivor quality of life. Health Psychol. 2009;28(1):29–37. https://doi.org/10.1037/0278-6133.28.1.29.
Howell D, Mayer DK, Fielding R, Eicher M, Verdonck-de Leeuw IM, Johansen C, et al. Management of cancer and health after the clinic visit: a call to action for self-management in cancer care. J Natl Cancer Inst. 2021;113(5):523–31. https://doi.org/10.1093/jnci/djaa083.
Coulter A, Collins A. Making shared decision making a reality. No decision about me, without me: The King’s Fund; 2011.
Fletcher C, Flight I, Chapman J, Fennell K, Wilson C. The information needs of adult cancer survivors across the cancer continuum: a scoping review. Patient Educ Couns. 2017;100(3):383–410. https://doi.org/10.1016/j.pec.2016.10.008.
Geller BM, Vacek PM, Flynn BS, Lord K, Cranmer D. What are cancer survivors’ needs and how well are they being met? J Fam Pract. 2014;63(10):E7-16.
Ankersmid JW, Drossaert CHC, van Riet YEA, Strobbe LJA, Siesling S, Santeon VBCG. Needs and preferences of breast cancer survivors regarding outcome-based shared decision-making about personalised post-treatment surveillance. J Cancer Surviv. 2022. https://doi.org/10.1007/s11764-022-01178-z.
Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361–7. https://doi.org/10.1007/s11606-012-2077-6.
Article PubMed PubMed Central Google Scholar
Barry MJ, Edgman-Levitan S. Shared decision making–pinnacle of patient-centered care. N Engl J Med. 2012;366(9):780–1. https://doi.org/10.1056/NEJMp1109283.
CAS Article PubMed Google Scholar
Legare F, Adekpedjou R, Stacey D, Turcotte S, Kryworuchko J, Graham ID, et al. Interventions for increasing the use of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2018;7:CD006732. https://doi.org/10.1002/14651858.CD006732.pub4.
An introduction to patient decision aids. BMJ. 2013;347:f4147. https://doi.org/10.1136/bmj.f4147.
McAlpine K, Lewis KB, Trevena LJ, Stacey D. What is the effectiveness of patient decision aids for cancer-related decisions? a systematic review subanalysis. JCO Clin Cancer Inform. 2018;2:1–13. https://doi.org/10.1200/cci.17.00148.
O’Brien MA, Whelan TJ, Villasis-Keever M, Gafni A, Charles C, Roberts R, et al. Are cancer-related decision aids effective? A systematic review and meta-analysis. J Clin Oncol: Official J Am Soc Clin Oncol. 2009;27(6):974–85. https://doi.org/10.1200/JCO.2007.16.0101.
Stacey D, Legare F, Lewis K, Barry MJ, Bennett CL, Eden KB, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2017;4:CD001431. https://doi.org/10.1002/14651858.CD001431.pub5.
de Ligt KM, van Egdom LSE, Koppert LB, Siesling S, van Til JA. Opportunities for personalised follow-up care among patients with breast cancer: a scoping review to identify preference-sensitive decisions. Eur J Cancer Care (Engl). 2019;28(3):e13092. https://doi.org/10.1111/ecc.13092.
Hibbard JH, Mahoney E, Sonet E. Does patient activation level affect the cancer patient journey? Patient Educ Couns. 2017;100(7):1276–9. https://doi.org/10.1016/j.pec.2017.03.019.
Hibbard JH. Patient activation and the use of information to support informed health decisions. Patient Educ Couns. 2017;100(1):5–7. https://doi.org/10.1016/j.pec.2016.07.006.
Nicholas Z, Butow P, Tesson S, Boyle F. A systematic review of decision aids for patients making a decision about treatment for early breast cancer. Breast. 2016;26:31–45. https://doi.org/10.1016/j.breast.2015.12.007.
Wang Y, Anazodo A, Logan S. Systematic review of fertility preservation patient decision aids for cancer patients. Psychooncology. 2019;28(3):459–67. https://doi.org/10.1002/pon.4961.
CAS Article PubMed Google Scholar
Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ. 2021;372:n71. https://doi.org/10.1136/bmj.n71.
Article PubMed PubMed Central Google Scholar
Pyke-Grimm KA, Schulz GL, Pearson H, Kelly KP. Treatment decision making. Pediatric Oncology Nursing. Pediatric Oncology2020. 169–90.
Laidsaar-Powell R, Butow P, Charles C, Gafni A, Entwistle V, Epstein R, et al. The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making. Patient Educ Couns. 2017;100(11):2035–46. https://doi.org/10.1016/j.pec.2017.05.014.
Nekhlyudov L, Mollica MA, Jacobsen PB, Mayer DK, Shulman LN, Geiger AM. Developing a quality of cancer survivorship care framework: implications for clinical care, research, and policy. J Natl Cancer Inst. 2019;111(11):1120–30. https://doi.org/10.1093/jnci/djz089.
Article PubMed PubMed Central Google Scholar
Witteman HO, Scherer LD, Gavaruzzi T, Pieterse AH, Fuhrel-Forbis A, Chipenda Dansokho S, et al. Design features of explicit values clarification methods: a systematic review. Med Decis Making. 2016;36(4):453–71. https://doi.org/10.1177/0272989X15626397.
Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4:50. https://doi.org/10.1186/1748-5908-4-50.
Article PubMed PubMed Central Google Scholar
Scholl I, Koelewijn-van Loon M, Sepucha K, Elwyn G, Légaré F, Härter M, et al. Measurement of shared decision making - a review of instruments. Z Evid Fortbild Qual Gesundhwes. 2011;105(4):313–24. https://doi.org/10.1016/j.zefq.2011.04.012.
Sterne JAC, Savović J, Page MJ, Elbers RG, Blencowe NS, Boutron I, et al. RoB 2: a revised tool for assessing risk of bias in randomised trials. BMJ. 2019;366:l4898. https://doi.org/10.1136/bmj.l4898.
Sterne JA, Hernán MA, Reeves BC, Savović J, Berkman ND, Viswanathan M, et al. ROBINS-I: a tool for assessing risk of bias in non-randomised studies of interventions. BMJ. 2016;355:i4919. https://doi.org/10.1136/bmj.i4919.
Article PubMed PubMed Central Google Scholar
Aromataris E, Munn Z (Editors). JBI manual for evidence synthesis. JBI, 2020. Available from https://synthesismanual.jbi.global. Accessed 11 Jan 2022.
Critical Appraisal Skills Programme (2018). CASP qualitative checklist [Internet]. Available from: https://casp-uk.net/wp-content/uploads/2018/01/CASP-Qualitative-Checklist-2018.pdf. Accessed 11 Jan 2022.
Hong QN, Pluye P, Fàbregues S, Bartlett G, Boardman F, Cargo M, et al. Improving the content validity of the mixed methods appraisal tool: a modified e-Delphi study. J Clin Epidemiol. 2019;111:49-59.e1. https://doi.org/10.1016/j.jclinepi.2019.03.008.
Benedict C, Dauber-Decker KL, King D, Hahn A, Ford JS, Diefenbach M. A decision aid intervention for family building after cancer: developmental study on the initial steps to consider when designing a web-based prototype. JMIR Form Res. 2021;5(1):e20841. https://doi.org/10.2196/20841.
Article PubMed PubMed Central Google Scholar
Benedict C, Ford JS, Schapira L, Simon P, Spiegel D, Diefenbach M. Family-building decision aid and planning tool for young adult women after cancer treatment: protocol for preliminary testing of a web-based decision support intervention in a single-arm pilot study. BMJ Open. 2019;9(12):e033630. https://doi.org/10.1136/bmjopen-2019-033630.
Article PubMed PubMed Central Google Scholar
Broadbent R, Seale T, Armitage CJ, Linton K. development and preliminary testing of a decision aid to support Hodgkin lymphoma survivors considering lung cancer screening. Res Sq 2021 https://doi.org/10.21203/rs.3.rs-956153/v1
Culver JO, MacDonald DJ, Thornton AA, Sand SR, Grant M, Bowen DJ, et al. Development and evaluation of a decision aid for BRCA carriers with breast cancer. J Genet Couns. 2011;20(3):294–307. https://doi.org/10.1007/s10897-011-9350-4.
Article PubMed PubMed Central Google Scholar
Green MJ, Levi BH. Development of an interactive computer program for advance care planning. Health Expect. 2009;12(1):60–9. https://doi.org/10.1111/j.1369-7625.2008.00517.x.
Hollen PJ, Tyc VL, Donnangelo SF, Shannon SV, O’Laughlen MC, Hinton I, et al. A substance use decision aid for medically at-risk adolescents: results of a randomized controlled trial for cancer-surviving adolescents. Cancer Nurs. 2013;36(5):355–67. https://doi.org/10.1097/NCC.0b013e31827910ba.
Article PubMed PubMed Central Google Scholar
Kautz-Freimuth S, Redaelli M, Rhiem K, Vodermaier A, Krassuski L, Nicolai K, et al. Development of decision aids for female BRCA1 and BRCA2 mutation carriers in Germany to support preference-sensitive decision-making. BMC Med Inform Decis Mak. 2021;21(1):180. https://doi.org/10.1186/s12911-021-01528-4.
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