Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study

1. Jarvis, S, Parslow, RC, Carragher, P, et al. How many children and young people with life-limiting conditions are clinically unstable? A national data linkage study. Arch Dis Child 2017; 102: 131–138.
Google Scholar | Crossref | Medline2. Popejoy, E, Pollock, K, Almack, K, et al. Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis. Child Care Health Dev 2017; 43: 627–644.
Google Scholar | Crossref | Medline3. Storch, JL, Kenny, N. Shared moral work of nurses and physicians. Nurs Ethics 2007; 14(4): 478–491.
Google Scholar | SAGE Journals | ISI4. Baruch, G . Moral tales: parents’ stories of encounters with the health professions. Sociol Health Illn 1981; 3: 275–295.
Google Scholar | Crossref5. Coffey, M, Cohen, R, Faulkner, A, et al. Ordinary risks and accepted fictions: how contrasting and competing priorities work in risk assessment and mental health care planning. Health Expect 2017; 20: 471–483.
Google Scholar | Crossref | Medline6. Coulter, A . What’s happening around the world? In: Edwards, A, Elwyn, G (eds) Shared decision-making in health care: achieving evidence-based patient choice. Oxford: OUP, 2009, pp.37–52.
Google Scholar7. Park, ES, Cho, IY. Shared decision-making in the paediatric field: a literature review and concept analysis. Scand J Caring Sci 2018; 32: 478–489.
Google Scholar | Crossref | Medline8. Boland, L, Graham, ID, Légaré, F, et al. Barriers and facilitators of pediatric shared decision-making: a systematic review. Implement Sci 2019; 14: 7.
Google Scholar | Crossref | Medline9. Muirhead, P . When parents and physicians disagree: what is the ethical pathway? Paediatr Child Health 2004; 9: 85–86.
Google Scholar | Crossref | Medline10. Carnevale, FA, Teachman, G, Bogossian, A. A relational ethics framework for advancing practice with children with complex health care needs and their parents. Compr Child Adolesc Nurs 2017; 40: 268–284.
Google Scholar | Crossref | Medline11. Joseph-Williams, N, Edwards, A, Elwyn, G. Power imbalance prevents shared decision making. BMJ 2014; 348: g3178.
Google Scholar | Crossref | Medline12. Opel, DJ . A 4-step framework for shared decision-making in pediatrics. Pediatrics 2018; 142: S149–S56.
Google Scholar | Crossref13. Children Act . UK: The Stationary Office, 1989.
Google Scholar14. Committee on Bioethics . Informed consent, parental permission, and assent in pediatric practice. Pediatrics 1995; 95: 314–317.
Google Scholar | Crossref | Medline | ISI15. Savulescu, J . Rational non-interventional paternalism: why doctors ought to make judgments of what is best for their patients. J Med Ethics 1995; 21: 327–331.
Google Scholar | Crossref | Medline | ISI16. O’Keefe, DJ . Persuasion: theory and research. London: SAGE Publications, 2015.
Google Scholar17. Fisher, KA, Tan, ASL, Matlock, DD, et al. Keeping the patient in the center: common challenges in the practice of shared decision making. Patient Educ Couns 2018; 101: 2195–2201.
Google Scholar | Crossref | Medline18. Swindell, JS, McGuire, AL, Halpern, SD. Beneficent persuasion: techniques and ethical guidelines to improve patients’ decisions. Ann Fam Med 2010; 8: 260–264.
Google Scholar | Crossref | Medline | ISI19. Stake, RE . Multiple case study analysis. New York, NY: Guilford Press, 2006.
Google Scholar20. Berger, PL, Luckmann, T. The social construction of reality: a treatise in the sociology of knowledge. London: The Penguin Press, 1966.
Google Scholar21. Rubin, HJ, Rubin, IS. Qualitative interviewing: the art of hearing data. London: SAGE Publications Ltd, 2005.
Google Scholar | Crossref22. Caelli, K, Ray, L, Mill, J. ‘Clear as mud’: toward greater clarity in generic qualitative research. Int J Qual Methods 2003; 2: 1–13.
Google Scholar | SAGE Journals23. Smith, J, Bekker, H, Cheater, F. Theoretical versus pragmatic design in qualitative research. Nurse Res 2011; 18: 39–51.
Google Scholar | Crossref | Medline24. ACT and RCPCH . A guide to the development of children’s palliative care services. Bristol: Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) and Royal College of Paediatrics and Child Health (RCPCH), 1997.
Google Scholar25. Miles, MB, Huberman, MA. Qualitative data analysis: an expanded sourcebook. London: SAGE Publications Ltd, 1994.
Google Scholar26. Carnevale, FA, Macdonald, ME, Bluebond-Langner, M, et al. Using participant observation in pediatric health care settings: ethical challenges and solutions. J Child Health Care 2008; 12(1): 18–32.
Google Scholar | SAGE Journals | ISI27. Stake, RE ; SAGE . The art of case study research. London: SAGE Publications, 1995.
Google Scholar28. Clandinin, DJ, Connelly, FM. Narrative inquiry: experience and story in qualitative research. San Fanscisco, CA: Jossey-Bass Publishers, 2000.
Google Scholar29. Sandelowski, M . Telling stories: narrative approaches in qualitative research. J Nurs Scholarsh 1991; 23: 161–166.
Google Scholar | Crossref30. Creswell, JW . Qualitative inquiry and research design: choosing among five approaches. London: SAGE Publications, 2013.
Google Scholar31. Modi, N, Vohra, J, Preston, J, et al. Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees. Arch Dis Child 2014; 99: 887–891.
Google Scholar | Crossref | Medline | ISI32. Bateman, LB, White, ML, Tofil, NM, et al. A qualitative examination of physician gender and parental status in pediatric end-of-life communication. Health Commun 2017; 32: 903–909.
Google Scholar | Crossref | Medline33. Richards, CA, Starks, H, O’Connor, MR, et al. Physicians perceptions of shared decision-making in neonatal and pediatric critical care. Am J Hosp Palliat Care 2018; 35: 669–676.
Google Scholar | SAGE Journals | ISI34. Wilkinson, DJ, Truog, RD. The luck of the draw: physician-related variability in end-of-life decision-making in intensive care. Intensive Care Med 2013; 39: 1128–1132.
Google Scholar | Crossref | Medline | ISI35. Marteau, TM . Framing of information: its influence upon decisions of doctors and patients. Br J Soc Psychol 1989; 28(1): 89–94.
Google Scholar | Crossref | Medline36. Haward, MF, John, LK, Lorenz, JM, et al. Effects of description of options on parental perinatal decision-making. Pediatrics 2012; 129: 891–902.
Google Scholar | Crossref | Medline37. Haward, MF, Murphy, RO, Lorenz, JM. Message framing and perinatal decisions. Pediatrics 2008; 122(1): 109–118.
Google Scholar | Crossref | Medline | ISI38. Gillam, L . The zone of parental discretion: an ethical tool for dealing with disagreement between parents and doctors about medical treatment for a child. Clin Ethics 2016; 11(1): 1–8.
Google Scholar | SAGE Journals39. Barilan, YM, Weintraub, M. Persuasion as respect for persons: an alternative view of autonomy and of the limits of discourse. J Med Philos 2001; 26: 13–34.
Google Scholar | Crossref | Medline40. Maclean, A . Autonomy, consent and persuasion. Eur J Health Law 2006; 13: 321–338.
Google Scholar | Crossref | Medline41. Smith, DH, Pettegrew, LS. Mutual persuasion as a model for doctor-patient communication. Theor Med 1986; 7: 127–146.
Google Scholar | Crossref | Medline42. Karnieli-Miller, O, Eisikovits, Z. Physician as partner or salesman? Shared decision-making in real-time encounters. Soc Sci Med 2009; 69(1): 1–8.
Google Scholar | Crossref | Medline | ISI43. Lipstein, EA, Dodds, CM, Britto, MT. Real life clinic visits do not match the ideals of shared decision making. J Pediatr 2014; 165: 178–183.e1.
Google Scholar | Crossref | Medline44. Power, KJ . How are ethical problems resolved in a paediatric intensive care unit? PhD Thesis, Faculty of Health and Life Sciences. De Montfort University, UK, 2012.
Google Scholar45. Fiks, AG, Hughes, CC, Gafen, A, et al. Contrasting parents’ and pediatricians’ perspectives on shared decision-making in ADHD. Pediatrics 2011; 127: e188–e196.
Google Scholar | Crossref | Medline | ISI46. Birchley, G, Gooberman-Hill, R, Deans, Z, et al. ‘Best interests’ in paediatric intensive care: an empirical ethics study. Arch Dis Child 2017; 102: 930–935.
Google Scholar | Crossref | Medline47. Sandman, L, Munthe, C. Shared decision making, paternalism and patient choice. Health Care Anal 2010; 18: 60–84.
Google Scholar | Crossref | Medline | ISI48. Kaldjian, LC . Communicating moral reasoning in medicine as an expression of respect for patients and integrity among professionals. Commun Med 2014; 10: 177–183.
Google Scholar | Crossref

留言 (0)

沒有登入
gif