Italian pediatric and adult oncology communities join forces for a national project dedicated to adolescents and young adults with cancer

1. Barr, RD, Ferrari, A, Ries, L, et al. Cancer in adolescents and young adults: a narrative review of the current status and a view of the future. JAMA Pediatr 2016; 170: 495–501.
Google Scholar | Crossref | Medline2. Ferrari, A, Thomas, D, Franklin, AR, et al. Starting an adolescent and young adult program: some success stories and some obstacles to overcome. J Clin Oncol 2010; 28: 4850–4857.
Google Scholar | Crossref | Medline3. Ferrari, A, Barr, RD. International evolution in AYA oncology: current status and future expectations. Pediatr Blood Cancer 2017; 64: e26528.
Google Scholar | Crossref4. What should the age range be for AYA oncology? J Adolesc Young Adult Oncol 2011; 1: 3–10.
Google Scholar | Crossref | Medline5. Department of Health and Human Services, National Institutes of Health, National Cancer Institute, LiveStrong Young Adult Alliance . Closing the gap: research and care imperatives for adolescents and young adults with cancer: a report of the Adolescent and Young Adult Oncology Progress Review Group. Available at: https://www.livestrong.org/sites/default/files/what-we-do/reports/ayao_prg_report_2006_final.pdf
Google Scholar6. Trama, A, Botta, L, Steliarova-Foucher, E. Cancer burden in adolescents and young adults: a review of epidemiological evidence. Cancer J 2018; 24: 256–266.
Google Scholar | Crossref | Medline7. Bleyer, A, Ferrari, A, Whelan, J, Barr, RD. Global assessment of cancer incidence and survival in adolescents and young adults. Pediatr Blood Cancer 2017; 64.
Google Scholar | Medline8. Barr, RD, Ries, LAG, Trama, A, et al. A system for classifying cancers diagnosed in adolescents and young adults. Cancer 2020; 126: 4634–4659.
Google Scholar | Crossref | Medline9. Osborn, M, Johnson, R, Thompson, K, et al. Models of care for adolescent and young adult cancer programs. Pediatr Blood Cancer 2019; 66: e27991.
Google Scholar | Crossref | Medline10. Sironi, G, Barr, RD, Ferrari, A. Models of care: there is more than one way to deliver. Cancer J 2018; 24: 315–320.
Google Scholar | Crossref | Medline11. Sender, L, Zabokrtsky, KB. Adolescent and young adult patients with cancer: a milieu of unique features. Nat Rev Clin Oncol 2015; 12: 465–480.
Google Scholar | Crossref | Medline12. Ferrari, A, Stark, D, Peccatori, FA, et al. Adolescents and young adults (AYA) with cancer: a position paper from the AYA Working Group of the European Society for Medical Oncology (ESMO) and the European Society for Paediatric Oncology (SIOPE). ESMO Open 2021; Apr;6(2): 100096.
Google Scholar | Crossref13. Saloustros, E, Stark, DP, Michailidou, K, et al. The care of adolescents and young adults with cancer: results of the ESMO/SIOPE survey. ESMO Open 2017; 2: e000252.
Google Scholar | Crossref | Medline14. Trama, A, Botta, L, Foschi, R, et al. Survival of European adolescents and young adults diagnosed with cancer in 2000-2007: latest EUROCARE-5 results. Lancet Oncol 2016; 17: 896–906.
Google Scholar | Crossref | Medline15. Trama, A, Bernasconi, A, McCabe, MG, et al. Is the cancer survival improvement in European and American adolescent and young adults still lagging behind that in children? Pediatr Blood Cancer 2019; 66: e27407.
Google Scholar | Crossref | Medline16. Hough, R, Sandhu, S, Khan, M, et al. Are survival and mortality rates associated with recruitment to clinical trials in teenage and young adult patients with acute lymphoblastic leukaemia? A retrospective observational analysis in England. BMJ Open 2017; 7: e017052.
Google Scholar | Crossref | Medline17. Wolfson, JA, Richman, JS, Sun, CL, et al. Causes of inferior outcome in adolescents and young adults with acute lymphoblastic leukemia: across oncology services and regardless of clinical trial enrollment. Cancer Epidemiol Biomarkers Prev 2018; 27: 1133–1141.
Google Scholar | Crossref | Medline18. Bleyer, A, Montello, M, Budd, T, et al. National survival trends of young adults with sarcoma: lack of progress is associated with lack of clinical trial participation. Cancer 2005; 103: 1891–1897.
Google Scholar | Crossref | Medline19. Bleyer, WA, Tejeda, H, Murphy, SB, et al. National cancer clinical trials: children have equal access; adolescents do not. J Adolesc Health 1997; 21: 366–373.
Google Scholar | Crossref | Medline20. Ferrari, A, Montello, M, Budd, T, et al. The challenges of clinical trials for adolescents and young adults with cancer. Pediatr Blood Cancer 2008; 50: 1101–1104.
Google Scholar | Crossref | Medline21. Ferrari, A, Bleyer, A. Participation of adolescents with cancer in clinical trials. Cancer Treat Rev 2007; 33: 603–608.
Google Scholar | Crossref | Medline22. Fern, L, Davies, S, Eden, T, et al. Rates of inclusion of teenagers and young adults in England into National Cancer Research Network clinical trials: report from the National Cancer Research Institute (NCRI) Teenage and Young Adult Clinical Studies Development Group. Br J Cancer 2008; 99: 1967–1974.
Google Scholar | Crossref | Medline23. Ferrari, A, Trama, A, De Paoli, A, et al. Access to clinical trials for adolescents with soft tissue sarcomas: enrollment in European Pediatric Soft Tissue Sarcoma Study Group (EpSSG) protocols. Pediatr Blood Cancer 2017; 64.
Google Scholar | Medline24. Smith, MA, Seibel, NL, Altekruse, SF, et al. Outcomes for children and adolescents with cancer: challenges for the twenty-first century. J Clin Oncol 2010; 28: 2625–2634.
Google Scholar | Crossref | Medline25. Veneroni, L, Mariani, L, Vullo, SL, et al. Symptom interval in pediatric patients with solid tumors: adolescents are at greater risk of late diagnosis. Pediatr Blood Cancer 2013; 60: 605–610.
Google Scholar | Crossref | Medline26. Fern, LA, Lewandowski, JA, Coxon, KM, et al. Available, accessible, aware, appropriate, and acceptable: a strategy to improve participation of teenagers and young adults in cancer trials. Lancet Oncol 2014; 15: e341–e350.
Google Scholar | Crossref | Medline27. Tai, E, Buchanan, N, Westervelt, L, et al. Treatment setting, clinical trial enrollment, and subsequent outcomes among adolescents with cancer: a literature review. Pediatrics 2014; 133 (Suppl 3): S91–S97.
Google Scholar | Crossref | Medline28. de Rojas, T, Neven, A, Terada, M, et al. Access to clinical trials for adolescents and young adults with cancer: a meta-research analysis. JNCI Cancer Spectr 2019; 3: pkz057.
Google Scholar | Crossref | Medline29. Gaspar, N, Marshall, LV, Binner, D, et al. Joint adolescent-adult early phase clinical trials to improve access to new drugs for adolescents with cancer: proposals from the multi-stakeholder platform-ACCELERATE. Ann Oncol 2018; 29: 766–771.
Google Scholar | Crossref | Medline30. Chuk, MK, Mulugeta, Y, Roth-Cline, M, et al. Enrolling adolescents in disease/target-appropriate adult oncology clinical trials of investigational agents. Clin Cancer Res 2017; 23: 9–12.
Google Scholar | Crossref | Medline31. Pearson, AD, Herold, R, Rousseau, R, et al. Implementation of mechanism of action biology-driven early drug development for children with cancer. Eur J Cancer 2016; 62: 124–131.
Google Scholar | Crossref | Medline32. Pearson, AD, Heenen, D, Kearns, PR, et al. 10-year report on the European Paediatric Regulation and its impact on new drugs for children's cancers. Lancet Oncol 2018; 19: 285–287.
Google Scholar | Crossref | Medline33. Gore, L, Ivy, SP, Balis, FM, et al. Modernizing clinical trial eligibility: recommendations of the American Society of Clinical Oncology–Friends of Cancer Research Minimum Age Working Group. J Clin Oncol 2017; 35: 3781–3787.
Google Scholar | Crossref | Medline34. Taylor, RM, Solanki, A, Aslam, N, et al. A participatory study of teenagers and young adults views on access and participation in cancer research. Eur J Oncol Nurs 2016; 20: 156–164.
Google Scholar | Crossref | Medline35. Taylor, RM, Aslam, N, Lea, S, et al. Optimizing a retention strategy with young people for BRIGHTLIGHT, a longitudinal cohort study examining the value of specialist cancer care for young people. J Adolesc Young Adult Oncol 2017; 6: 459–469.
Google Scholar | Crossref | Medline36. Abrams, AN, Hazen, EP, Penson, RT. Psychosocial issues in adolescents with cancer. Cancer Treat Rev 2007; 33: 622–630.
Google Scholar | Crossref | Medline37. Clerici, CA, Massimino, M, Casanova, M, et al. Psychological referral and consultation for adolescents and young adults with cancer treated at a pediatric oncology unit. Pediatr Blood Cancer 2008; 51: 105–109.
Google Scholar | Crossref | Medline38. Mascarin, M, Milano, GM, Bertolotti, M, et al. Discussing communication issues and needs with adolescents suffering from cancer. Tumori 2021; 107: 360–363.
Google Scholar | SAGE Journals39. Morgan, S, Davies, S, Palmer, S, et al. Sex, drugs, and rock 'n' roll: caring for adolescents and young adults with cancer. J Clin Oncol 2010; 28: 4825–4830.
Google Scholar | Crossref | Medline40. Silva, M, Barretta, F, Luksch, R, et al. Adolescents with cancer on privacy: a fact-finding survey on the need for confidentiality and space. Tumori 2021; 107: 452–457.
Google Scholar | SAGE Journals41. Jakes, AD, Marec-Berard, P, Phillips, RS, et al. Critical review of clinical practice guidelines for fertility preservation in teenagers and young adults with cancer. J Adolesc Young Adult Oncol 2014; 3: 144–152.
Google Scholar | Crossref | Medline42. Veneroni, L, Bagliacca, EP, Sironi, G, et al. Investigating sexuality in adolescents with cancer: patients talk of their experiences. Pediatr Hematol Oncol 2020; 37: 223–234.
Google Scholar | Crossref | Medline43. Taylor, RM, Fern, LA, Barber, J, et al. Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study. BMJ Open 2020; 10: e038471.
Google Scholar | Crossref | Medline44. Hayes-Lattin, B, Mathews-Bradshaw, B, Siegel, S. Adolescent and young adult oncology training for health professionals: a position statement. J Clin Oncol 2010; 28: 4858–4861.
Google Scholar | Crossref | Medline45. Stark, D, Bielack, S, Brugieres, L, et al. Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project. Eur J Cancer Care 2016; 25: 419–427.
Google Scholar | Crossref | Medline46. Bozovic-Spasojevic, I, Balsat, M, Blondeel, A, et al. A European network for teenagers and young adults with cancer. J Adolesc Young Adult Oncol 2021; 10: 117–119.
Google Scholar | Crossref | Medline47. Ferrari, A, Dama, E, Pession, A, et al. Adolescents with cancer in Italy: entry into the National Cooperative Pediatric Oncology Group AIEOP trials. Eur J Cancer 2009; 45: 328–334.
Google Scholar | Crossref | Medline48. Ferrari, A, Aricò, M, Dini, G, et al. Upper age limits for accessing pediatric oncology centers in Italy: a barrier preventing adolescents with cancer from entering national cooperative AIEOP trials. Pediatr Hematol Oncol 2012; 29: 55–61.
Google Scholar | Crossref | Medline49. Ferrari, A, Rondelli, R, Pession, A, et al. Adolescents with cancer in Italy: improving access to national cooperative pediatric oncology group (AIEOP) centers. Pediatr Blood Cancer 2016; 63: 1116–1119.
Google Scholar | Crossref | Medline50. Ferrari, A . The challenge of access to care for adolescents with cancer in Italy: national and local pediatric oncology programs: international perspectives on AYAO, part 2. J Adolesc Young Adult Oncol 2013; 2: 112–117.

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