Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: An integrative review

Aujoulat, I, Simonelli, F, Deccache, A (2006) Health promotion needs of children and adolescents in hospitals: a review. Patient Education and Counseling 61(1): 23–32.
Google Scholar | Crossref | Medline Austin, S, Guay, F, Senécal, C, et al. (2013) Longitudinal testing of a dietary self-care motivational model in adolescents with diabetes. Journal of Psychosomatic Research 75(2): 153–159.
Google Scholar | Crossref | Medline Austin, S, Senécal, C, Guay, F, et al. (2011) Dietary self-care in adolescents with type 1 diabetes: report from the juvenile diabetes and dietary study. Canadian Journal of Diabetes 35(1): 39–45.
Google Scholar | Crossref Bee, P, Pedley, R, Rithalia, A, et al. (2018) Self-care support for children and adolescents with long-term conditions: the REfOCUS evidence synthesis. Health Services and Delivery Research 6(3).
Google Scholar | Crossref Bell, S (2004) Workshop: a nutrition and enzyme education programme for children with cystic fibrosis. In: 27th European cystic fibrosis conference, Birmingham, UK, . European Cystic Fibrosis Nutrition Group.
Google Scholar Boon, M, Calvo-Lerma, J, Claes, I, et al. (2020) Use of a mobile application for self-management of pancreatic enzyme replacement therapy is associated with improved gastro-intestinal related quality of life in children with cystic fibrosis. Journal of Cystic Fibrosis 19(4): 562–568.
Google Scholar | Crossref | Medline Calthorpe, RJ, Smith, SJ, Rowbotham, NJ, et al. (2020) What effective ways of motivation, support and technologies help people with cystic fibrosis improve and sustain adherence to treatment? BMJ Open Respiratory Research 7(1): e000601.
Google Scholar | Crossref | Medline Cave, L, Milnes, L, McHugh, G (2019) Self-care support of diet and the gut in the routine care of school-age children with long-term conditions: a systematic integrative review. Available at: www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019144941 (accessed November 2020).
Google Scholar CFRISE (2016) CF milestones. Available at: www.cfrise.com/cystic-fibrosis-milestones (accessed 04 August 2020).
Google Scholar Chaney, D, Coates, V, Shevlin, M (2010) Running a complex educational intervention for adolescents with type 1 diabetes–Lessons learnt. Journal of Diabetes Nursing 14: 370–379.
Google Scholar Christian, BJ, D’Auria, JP (2006) Building life skills for children with cystic fibrosis: effectiveness of an intervention. Nursing Research 55(5): 300–307.
Google Scholar | Crossref | Medline Christie, D, Thompson, R, Sawtell, M, et al. (2016) Effectiveness of a structured educational intervention using psychological delivery methods in children and adolescents with poorly controlled type 1 diabetes: a cluster-randomized controlled trial of the CASCADE intervention. BMJ Open Diabetes Research & Care 4(1): e000165.
Google Scholar | Crossref | Medline Coates, V, Chaney, D, Bunting, B, et al. (2013) Evaluation of the effectiveness of a structured diabetes education programme (CHOICE) on clinical outcomes for adolescents with type 1 diabetes: a randomised controlled trial. Journal of Diabetes and Metabolism 4(6): 2155–6156.
Google Scholar Connan, V, Marcon, MA, Mahmud, FH, et al. (2019) Online education for gluten‐free diet teaching: development and usability testing of an e‐learning module for children with concurrent celiac disease and type 1 diabetes. Pediatric Diabetes 20(3): 293–303.
Google Scholar | Crossref | Medline Cooper, H, Lancaster, GA, Gichuru, P, et al. (2018) A mixed methods study to evaluate the feasibility of using the adolescent diabetes needs assessment tool app in paediatric diabetes care in preparation for a longitudinal cohort study. Pilot and Feasibility Studies 4: 13.
Google Scholar | Crossref | Medline Cottrell, CK, Young, GA, Creer, TL, et al. (1996) The development and evaluation of a self-management program for cystic fibrosis. Pediatric Asthma, Allergy & Immunology 10(3): 109–118.
Google Scholar | Crossref Coyne, I, Hallström, I, Söderbäck, M (2016) Reframing the focus from a family-centred to a child-centred care approach for children’s healthcare. Journal of Child Health Care 20(4): 494–502.
Google Scholar | SAGE Journals | ISI Culhane, S (2013) Development of an in-clinic education tool for pediatric cystic fibrosis patients. Journal of the Academy of Nutrition and Dietetics 113(9): A32.
Google Scholar | Crossref Culhane, S, George, C, Pearo, B, et al. (2013) Malnutrition in cystic fibrosis. Nutrition in Clinical Practice 28(6): 676–683.
Google Scholar | Crossref | Medline Davis, MA, Quittner, AL, Stack, CM, et al. (2004) Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with cystic fibrosis. Journal of Pediatric Psychology 29(4): 259–267.
Google Scholar | Crossref | Medline | ISI Day, H (2020) The use of app-based technology to promote self-management within paediatric diabetes. Diabetes Care for Children & Young People 9(3): DCCYP054.
Google Scholar de Wit, M, Versloot, J, Zenlea, I, et al. (2020) Using person-reported outcomes (PROs) to motivate young people with diabetes. Current Diabetes Reports 20(7): 23–23.
Google Scholar | Crossref | Medline Department of Health and Department for Education and Skills (2004) National Service Framework for Children, Young People and Maternity Services: Children and Young People Who Are Ill. London: Department of Health.
Google Scholar Eaton, S, Roberts, S, Turner, B (2015) Delivering person centred care in long term conditions. BMJ 350: h181.
Google Scholar | Crossref | Medline Evans, S, Daly, A, Hopkins, V, et al. (2009) The impact of visual media to encourage low protein cooking in inherited metabolic disorders. Journal of Human Nutrition and Dietetics 22(5): 409–413.
Google Scholar | Crossref | Medline Feillet, F, MacDonald, A, Hartung, D, et al. (2010) Outcomes beyond phenylalanine: an international perspective. Molecular Genetics and Metabolism 99(Suppl 1): S79–S85.
Google Scholar | Crossref | Medline Fiallo-Scharer, R, Palta, M, Chewning, BA, et al. (2019) Impact of family-centered tailoring of pediatric diabetes self-management resources. Pediatric Diabetes 20(7): 1016–1024.
Google Scholar | Crossref | Medline Fishman, LN, Kearney, J, DeGroote, M, et al. (2018) Creation of experience-based Celiac Benchmarks. Journal of Pediatric Gastroenterology and Nutrition 67(1): e6–e10.
Google Scholar | Crossref | Medline Frøisland, DH, Årsand, E (2015) Integrating visual dietary documentation in mobile-phone-based self-management application for adolescents with type 1 diabetes. Journal of Diabetes Science and Technology 9(3): 541–548.
Google Scholar | SAGE Journals Fung, CY (2020) Dr. Me project: teaching children self-care for self-limiting illnesses in primary schools. Future Healthcare Journal 7(2): 105–108.
Google Scholar | Crossref | Medline Hong, QN, Fàbregues, S, Bartlett, G, et al. (2018) The mixed methods appraisal tool (MMAT) version 2018 for information professionals and researchers. Education for Information 34: 1–7.
Google Scholar | Crossref Hoo, ZH, Gardner, B, Arden, MA, et al. (2019) Role of habit in treatment adherence among adults with cystic fibrosis. Thorax 74: 197–199.
Google Scholar | Crossref | Medline Houts, PS, Doak, CC, Doak, LG, et al. (2006) The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence. Patient Education and Counseling 61(2): 173–190.
Google Scholar | Crossref | Medline | ISI Kirk, S, Beatty, S, Callery, P, et al. (2010) Evaluating self-care support for children and young people with long-term conditions. Southampton: National Institute for Health Research Service Delivery and Organisation Programme.
Google Scholar Kirk, S, Beatty, S, Callery, P, et al. (2013) The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review. Child: Care, Health and Development 39(3): 305–324.
Google Scholar | Crossref | Medline Kyngäs, H, Hentinen, M, Barlow, JH (1998) Adolescents’ perceptions of physicians, nurses, parents and friends: help or hindrance in compliance with diabetes self‐care? Journal of Advanced Nursing 27(4): 760–769.
Google Scholar | Crossref | Medline | ISI La Banca, RO, Brandão, MCdM, Sparapani, VdC, et al. (2020) A fun way to learn about diabetes: using therapeutic play in a Brazilian camp. Journal of Pediatric Nursing 53: e35–e40.
Google Scholar | Crossref | Medline Lally, P, Gardner, B (2013) Promoting habit formation. Health Psychology Review 7(sup1): S137–S158.
Google Scholar | Crossref Leeman, J, Voils, CI, Sandelowski, M (2015) Conducting mixed methods literature reviews: synthesising the evidence needed to develop and implement complex social and health interventions. In: Hesse-Biber, S, Burke Johnson, R (eds) The Oxford Handbook of Multimethod and Mixed Methods Research Inquiry. New York: Oxford University Press.
Google Scholar McDonald, CM, Alvarez, JA, Bailey, J, et al. (2020) Academy of nutrition and dietetics: 2020 cystic fibrosis evidence analysis center evidence-based nutrition practice guideline. Journal of the Academy of Nutrition and Dietetics. Epub ahead of print 2020 June 23. DOI: 10.1016/j.jand.2020.03.015
Google Scholar | Crossref Moher, D, Liberati, A, Tetzlaff, J, et al. (2009) Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ 339: b2535–b2535.
Google Scholar | Crossref | Medline Moosa, F, Segal, D (2011) Assessing maths literacy skills in type 1 diabetic children and their caregivers. Journal of Endocrinology, Metabolism and Diabetes of South Africa 16(3): 146–153.
Google Scholar | Crossref Mulvaney, SA, Lilley, JS, Cavanaugh, KL, et al. (2013) Validation of the diabetes numeracy test with adolescents with type 1 diabetes. Journal of Health Communication 18(7): 795–804.
Google Scholar | Crossref | Medline | ISI Nabors, LA, Kichler, JC, Burbage, ML, et al. (2014) Children’s learning and goal-setting at a diabetes camp. Diabetes Spectrum 27(4): 257–263.
Google Scholar | Crossref | Medline NHS England (2014) The NHS five year forward view. Available at: www.england.nhs.uk/publication/nhs-five-year-forward-view/ (accessed March 2020).
Google Scholar NHS England (2019) The NHS long-term plan. Available at: www.longtermplan.nhs.uk/publication/nhs-long-term-plan/ (accessed 20 March 2020).
Google Scholar Owen, E, Bryon, M, Prasad, A, et al. (2013) 282 Evaluation of nutrition education in a group of children with moderate to severe cystic fibrosis (CF). Journal of Cystic Fibrosis 12: S120.
Google Scholar | Crossref Pawson, R, Greenhalgh, T, Harvey, G, et al. (2005) Realist review -a new method of systematic review designed for complex policy interventions. Journal of Health Services Research & Policy 10(Suppl 1): 21–34.
Google Scholar | SAGE Journals Pelicand, J, Fournier, C, Le Rhun, A, et al. (2013) Self-care support in paediatric patients with type 1 diabetes: bridging the gap between patient education and health promotion? A review. Health Expectations 18(3): 303–311.
Google Scholar | Crossref | Medline Price, KJ, Knowles, JA, Fox, M, et al. (2016) Effectiveness of the kids in control of food (KICk-OFF) structured education course for 11-16 year olds with Type 1 diabetes. Diabetic Medicine 33(2): 192–203.
Google Scholar | Crossref | Medline Rankin, D, Harden, J, Barnard, K, et al. (2018a) Barriers and facilitators to taking on diabetes self-management tasks in pre-adolescent children with type 1 diabetes: a qualitative study. BMC Endocrine Disorders 18(1): 71.
Google Scholar | Crossref | Medline Rankin, D, Harden, J, Barnard, KD, et al. (2018b) Pre-adolescent children’s experiences of receiving diabetes-related support from friends and peers: a qualitative study. Health Expectations 21(5): 870–877.
Google Scholar | Crossref | Medline Revert, K, Audran, L, Pengam, J, et al. (2018) A quality improvement program to improve nutritional status of children with cystic fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany. Orphanet Journal of Rare Diseases 13(Suppl 1): 8.
Google Scholar | Crossref | Medline Rocha, JC, van Spronsen, FJ, Almeida, MF, et al. (2013) Early dietary treated patients with

留言 (0)

沒有登入
gif