The Pediatric Palliative Improvement Network: a national healthcare learning collaborative

American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care

Palliative care for children.

Pediatrics. 2000; 106: 351-357National Consensus Project Guidelines for Quality Palliative Care

Clinical Practice Guidelines for Quality Palliative Care.

3rd Ed. 2015 (Published 2013. Accessed August 19)

Clinical Practice Guidelines for Quality Palliative Care.

4th edition. National Coalition for Hospice and Palliative Care, Richmond, VA2018 (Accessed August 28, 2019)Levy M.H. Smith T. Alvarez-Perez A. et al.

Palliative care, Version 1.2014. Featured updates to the NCCN Guidelines.

Journal of the National Comprehensive Cancer Network: JNCCN. 2014; 12: 1379-1388

Standards of practice for pediatric palliative care: professional development and resource series.

2019Section On H. Palliative M.

Committee On Hospital C. Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations.

Pediatrics. 2013; 132: 966-972

The new economics for industry.

Government, Education, Massachusetts Institute of Technology, Cambridge, MA1993

Out of the Crisis.

MIT Center for Advanced Engineering Study, 1986Institute of Medicine (U.S.)

Committee on Quality of Health Care in America.

Crossing the quality chasm: a new health system for the 21st century. National Academy Press, Washington, D.C.2001Kugler J.D. Beekman Iii R.H. Rosenthal G.L. et al.

Development of a pediatric cardiology quality improvement collaborative: from inception to implementation. From the Joint Council on Congenital Heart Disease Quality Improvement Task Force.

Congenital heart disease. 2009; 4: 318-328O'Connor G.T. Plume S.K. Olmstead E.M. et al.

A regional intervention to improve the hospital mortality associated with coronary artery bypass graft surgery.

Jama. 1996; 275: 841-846

Palliative and end of life care performance measures. http://www.qualityforum.org. Published 2012. Accessed August 19 , 2015.

Dy S.M. Kiley K.B. Ast K. et al.

Measuring what matters: top-ranked quality indicators for hospice and palliative care from the american academy of hospice and palliative medicine and hospice and palliative nurses association.

Journal of pain and symptom management. 2015; 49: 773-781Kamal A.H. Gradison M. Maguire J.M. Taylor D. Abernethy A.P.

Quality measures for palliative care in patients with cancer: a systematic review.

Journal of oncology practice. 2014; 10: 281-287Schenck A.P. Rokoske F.S. Durham D.D. Cagle J.G. Hanson L.C.

The PEACE Project: identification of quality measures for hospice and palliative care.

Journal of palliative medicine. 2010; 13: 1451-1459

Center to advance palliative care inpatient unit operational metrics: consensus recommendations.

Journal of palliative medicine. 2009; 12: 21-25Weissman D.E. Meier D.E. Spragens L.H.

Center to Advance Palliative Care palliative care consultation service metrics: consensus recommendations.

Journal of palliative medicine. 2008; 11: 1294-1298Mahoney D.P. Brook I. Fossa M. Kang T.

Attempting to Define Clinical Productivity Metrics among Pediatric Palliative Care Services at Academic Children's Hospitals.

Journal of palliative medicine. 2020; 23: 397-400Thienprayoon R. Alessandrini E. Frimpong-Manso M. Grossoehme D.

Defining Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network.

Journal of palliative medicine. 2018; Thienprayoon R. Grossoehme D. Humphrey L. et al.

"There's Just No Way to Help, and They Did." Parents Name Compassionate Care as a New Domain of Quality in Pediatric Home-Based Hospice and Palliative Care.

Journal of palliative medicine. 2020; 23: 767-776Thienprayoon R. Mark M.S.J. Grossoehme D.

Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network.

Journal of palliative medicine. 2017; Hinds P.S. Brandon J. Allen C. Hijiya N. Newsome R. Kane J.R.

Patient-reported outcomes in end-of-life research in pediatric oncology.

J Pediatr Psychol. 2007; 32: 1079-1088Johnston E.E. Rosenberg A.R. Kamal A.H.

Pediatric-specific end-of-life care quality measures: an unmet need of a vulnerable population.

Journal of Oncology Practice. 2017; 13: e874-e880Nagoya Y. Miyashita M. Irie W. Yotani N. Shiwaku H.

Development of a Proxy Quality-of-Life Rating Scale for the End-of-Life Care of Pediatric Cancer Patients Evaluated from a Nurse's Perspective.

Journal of palliative medicine. 2020; 23: 82-89Nagoya Y. Miyashita M. Shiwaku H.

Pediatric Cancer Patients' Important End-of-Life Issues, Including Quality of Life: A Survey of Pediatric Oncologists and Nurses in Japan.

Journal of palliative medicine. 2017; 20: 487-493

Improving the Quality of End-of-Life Care in Pediatric Oncology Patients Through the Early Implementation of Palliative Care.

Journal of pediatric oncology nursing: official journal of the Association of Pediatric Oncology Nurses. 2017; 34: 374-380Revon-Riviere G. Szepetowski S. Saultier P. Andre N.

First step toward high-intensity end-of-life care definition in pediatric oncology: Response to bereaved parents' views on end-of-life care for children with cancer: Quality marker implications.

Cancer. 2020;

Priorities for quality care in pediatric oncology supportive care.

Journal of oncology practice /American Society of Clinical Oncology. 2015; 11: 187-189Feudtner C. Kang T.I. Hexem K.R. et al.

Pediatric palliative care patients: a prospective multicenter cohort study.

Pediatrics. 2011; 127: 1094-1101Rogers M. Williams C. Friebert S. Klick J. Heitner R.

Results on Inpatient Pediatric Palliative Care Programs from the National Palliative Care Registry.

CAPC National Seminar 2019, Atlanta, GA2019Rogers M. Friebert S. Williams C. Humphrey L. Thienprayoon R. Klick J.

Pediatric Palliative Care in U.S. Hospitals.

Pediatrics. 2021 (Provisionally accepted for publication, 2020 (December 28)Rogers M. Meier D.E. Heitner R. et al.

The National Palliative Care Registry: A Decade of Supporting Growth and Sustainability of Palliative Care Programs.

Journal of palliative medicine. 2019; 22: 1026-1031Pantilat S.Z. Marks A.K. Bischoff K.E. Bragg A.R. O'Riordan D.L.

The palliative care quality network: improving the quality of caring.

Journal of palliative medicine. 2017; 20: 862-868Kamal A. Nicolla J. Friedman F. et al.

Formation of an international quality improvement collaborative for palliative care: The Global Palliative Care Quality Alliance (GPCQA).

American Society of Clinical Oncology. 2014Davies B. Sehring S.A. Partridge J.C. et al.

Barriers to palliative care for children: perceptions of pediatric health care providers.

Pediatrics. 2008; 121: 282-288Bogetz J.F. Root M.C. Purser L. Torkildson C.

Comparing Health Care Provider-Perceived Barriers to Pediatric Palliative Care Fifteen Years Ago and Today.

Journal of palliative medicine. 2019; 22: 145-151

Contemporary Pediatric Palliative Care: Myths and Barriers to Integration into Clinical Care.

Curr Pediatr Rev. 2017; 13: 8-12Dalberg T. Jacob-Files E. Carney P.A. Meyrowitz J. Fromme E.K. Thomas G.

Pediatric oncology providers' perceptions of barriers and facilitators to early integration of pediatric palliative care.

Pediatric blood & cancer. 2013; 60: 1875-1881Dalberg T. McNinch N.L. Friebert S.

Perceptions of barriers and facilitators to early integration of pediatric palliative care: A national survey of pediatric oncology providers.

Pediatric blood & cancer. 2018; 65: e26996Miller E.G. Weaver M.S. Ragsdale L. et al.

Lessons Learned: Identifying Items Felt To Be Critical to Leading a Pediatric Palliative Care Program in the Current Era of Program Development.

J Palliat Med. 2021; 24: 40-45Crandall W. Kappelman M.D. Colletti R.B. et al.

ImproveCareNow: The development of a pediatric inflammatory bowel disease improvement network.

Inflamm Bowel Dis. 2011; 17: 450-457Seid M. Hartley D.M. Dellal G. Myers S. Margolis P.A.

Organizing for collaboration: An actor-oriented architecture in ImproveCareNow.

Learn Health Syst. 2020; 4: e10205Intermediate Improvement Science Series

James M Anderson Center for Health Systems Excellence.

2020 (Published 2020. Accessed October 20)

The Palliative Care Quality Collaborative. https://palliativequality.org/about. Accessed October 19, 2020.

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