Use of the self- and family management framework and implications for further development

Positive coping and self-assessed levels of health and burden in unpaid caregivers of patients with end stage renal disease receiving hemodialysis therapy.

Nephrology Nursing Journal. 45: 373-379

Reducing risk from chronic illness with life style changes supported by online health self-management.

in: IEEE/ACM 1st International Workshop on Software Engineering for Healthcare (SEH), Montreal, QC, Canada: 73-76https://doi.org/10.1109/SEH.2019.00020Audulv A. Ghahari S. Kephart G. Warner G. Packer T.L.

The taxonomy of everyday self-management strategies (tedss): A framework derived from the literature and refined using empirical data.

Patient Education and Counseling. 102: 367-375https://doi.org/10.1016/j.pec.2018.08.034Baay S. Hemmelgarn B. Tam-Tham H. Finlay J. Elliott M.J. Straus S. Beanlands H. Herrington G. Donald M.

Understanding adults with chronic kidney disease and their caregivers’ self-management experiences: A qualitative study using the theoretical domains framework.

Canadian Journal of Kidney Health and Disease. 22 ()https://doi.org/10.1177/2054358119848126Babler E. Strickland C.J.

Moving the journey towards independence: Adolescents transitioning to successful diabetes self-management.

Journal of Pediatric Nursing. 30: 648-660https://doi.org/10.1016/j.pedn.2015.06.005Bakkalbasi N. Bauer K. Glover J. Wang L.

Three options for citation tracking: Google Scholar, Scopus and Web of Science.

Biomedical Digital Libraries. 3: 60-67https://doi.org/10.1186/1742-5581-3-7Barbarin A.M. Klasnja P. Veinot T.C.

Good or bad, ups and downs, and getting better: Use of personal health data for temporal reflection in chronic illness.

International Journal of Medical Informatics. 94: 237-245https://doi.org/10.1016/j.ijmedinf.2016.06.011Bennett P.N. Wang W. Moore M. Nagle C.

Care partner: A concept analysis.

Nursing Outlook. 65: 184-194https://doi.org/10.1016/j.outlook.2016.11.005Bernhard G. Ose D. Baudendistel I. Seidling H.M. Stützle M. Szecsenyi J. Wensing M. Mahler C.

Understanding challenges, strategies, and the role of support networks in medication self-management among patients with type 2 diabetes.

The Diabetes Educator. 43: 190-205https://doi.org/10.1177/0145721717697243Buck H.G. Kitko L. Hupcey J.E.

Dyadic heart failure care types: qualitative evidence for a novel typology.

Journal of Cardiovascular Nursing. 28: E37-E46https://doi.org/10.1097/JCN.0b013e31827fcc4cBuck H.G. Zambroski C.H. Hupcey J.E.

Assessing the response of patients and spousal/partner caregivers to a new instrument measuring dyadic heart failure care types.

European Journal of Cardiovascular Nursing. 12: 209-213https://doi.org/10.1177/1474515112471479Casida J.M. Aikens J.E. Craddock H. Aldrich M.W. Pagani F.D.

Development and feasibility of self-management application in left-ventricular assist devices.

ASAIO Journal. 64: 159-167https://doi.org/10.1097/mat.0000000000000673Casida J. Aikens J. Pagani F. Ewald G. Craddock H. Pavol M. Schroeder S. Yang J.

Advancing the science of self-management in adults with long-term left ventricular assist devices.

Artificial Organs. 42: 1095-1103https://doi.org/10.1111/aor.13113Casida J.M. Wu H.-S. Abshire M. Ghosh B. Yang J.J.

Cognition and adherence are self-management factors predicting the quality of life of adults living with a left ventricular assist device.

The Journal of Heart and Lung Transplantation. 36: 325-330https://doi.org/10.1016/j.healun.2016.08.023Chan R. Yates P. McCarthy A.

Fatigue self-management behaviors in patients with advanced cancer: A prospective longitudinal survey.

Oncology Nursing Forum. 43: 762-771https://doi.org/10.1188/16.onf.762-771Chen W.T. Shiu C. Yang J.P. Chuang P. Zhang L. Bao M. Lu H.

A structural equation model of patient-healthcare provider relationships and HIV-infected patient outcomes in Chinese populations.

AIDS Care. 30: 383-390https://doi.org/10.1080/09540121.2017.1380778Chen W.T. Shiu C. Yang J.P. Wang K. Zhang L. Zhang J. Reynolds N.R. Kennedy H.P. Khoshnood K. Chen L.-C. Bao M. Zhao H. Lu H.

Quality of life in HIV-infected Chinese women and their family caregivers: An intervention study.

AIDS Care. 30: 1572-1579https://doi.org/10.1080/09540121.2018.1510095Chyun D. Lacey K.O. Katten D.M. Talley S. Price W.J. Davey J.A. Melkus G.D.

Glucose and cardiac risk factor control in individuals with type 2 diabetes.

The Diabetes Educator. 32: 925-939https://doi.org/10.1177/0145721706295016Clemmens D.A. Knafl K. Lev E.L. McCorkle R.

Cervical cancer: Patterns of long-term survival.

Oncology Nursing Forum. 35: 897-903https://doi.org/10.1188/08.onf.897-903Coates V.E. McCann A. Posner N. Gunn K. Seers K.

Well, who do I phone?' Preparing for urgent care: a challenge for patients and service providers alike'.

Journal of clinical nursing. 24: 2152-2163https://doi.org/10.1111/jocn.12814Cousino M. Hazen R. MacLeish S. Gubitosi-Klug R. Cuttler L.

Quality of life among youth with poorly controlled type 1 diabetes: Role of family conflict and sharing of treatment responsibility.

Diabetes Management. 3: 449-457https://doi.org/10.2217/dmt.13.47Davila C.M.G. Acelas A.L.R. Montanez W.C.

Editorial: Social support focused on people with diabetes: a need from nursing.

Revista Cuidarte. 10: e697https://doi.org/10.15649/cuidarte.v10i1.697Deatrick J. Feder S. Knafl K. Sawin K. Schiffman R. Schulman-Green D. Where's family in the illness self-management frameworks? [Pre-conference workshop]. International Family Nursing Conference, Washington, DC, United StatesDeek H. Chang S. Newton P.J. Noureddine S. Inglis S.C. Arab G.A. Kabbani S. Chalak W. Timani N. Macdonald P.S. Davidson P.M.

An evaluation of involving family caregivers in the self-care of heart failure patients on hospital readmission: Randomised controlled trial (the FAMILY study).

International Journal of Nursing Studies. 75: 101-111https://doi.org/10.1016/j.ijnurstu.2017.07.015Denham S.A. Ware L.J. Raffle H. Leach K.

Family inclusion in diabetes education: A nationwide survey of diabetes educators.

The Diabetes Educator. 37: 528-535https://doi.org/10.1177/0145721711411312de Paiva M. Tinôco J. Fernandes M. Dantas J.R. Nogueira I. Medeiros A. Lopes M. Lira A.

Ineffective health management in hemodialysis patients: Diagnostic accuracy study.

Clinical Nursing Research. 28: 602-614https://doi.org/10.1177/1054773817754021Donald M. Beanlands H. Straus S. Ronksley P. Tam-Tham H. Finlay J. MacKay J. Elliott M. Herrington G. Harwood L. Large C.A. Large C.L. Waldvogel B. Sparkes D. Delgado M. Tong A. Grill A. Novak M. James M.T. … Hemmelgarn B.R.

Identifying needs for self-management interventions for adults with CKD and their caregivers: A qualitative study.

American Journal of Kidney Diseases. 74: 474-482https://doi.org/10.1053/j.ajkd.2019.02.006Donald M. Gil S. Kahlon B. Beanlands H. Straus S. Herrington G. Manns B. Hemmelgarn B.R.

Overview of self-management resources used by canadian chronic kidney disease clinics: A national survey.

Canadian Journal of Kidney Health and Disease. 5https://doi.org/10.1177/2054358118775098

When a parent is chronically ill: Chronic fatigue syndrome.

Nursing Research. 58: 332-339https://doi.org/10.1097/NNR.0b013e3181ac156fDoris S. Lee D.T. Thompson D.R. Jaarsma T. Woo J. Leung E.M.

Psychometric properties of the chinese version of the european heart failure self-care behaviour scale.

International Journal of Nursing Studies. 48: 458-467https://doi.org/10.1016/j.ijnurstu.2010.08.011Dorsey S.G. Resnick B.M. Renn C.L.

Precision health: Use of omics to optimize self-management of chronic pain in aging.

Research in Gerontological Nursing. 11: 7-13https://doi.org/10.3928/19404921-20171128-01Ellis K.R. Young T.L. Carthron D. Simms M. McFarlin S. Davis K.L. Dave G. Corbie-Smith G. Cené C.

Perceptions of rural African American adults about the role of family in understanding and addressing risk factors for cardiovascular disease.

American Journal of Health Promotion. 33: 708-717https://doi.org/10.1177/0890117118799574

The qualitative content analysis process.

Journal of Advanced Nursing. 62: 107-115https://doi.org/10.1111/j.1365-2648.2007.04569.xFinlayson K. Wu M.L. Edwards H.E.

Identifying risk factors and protective factors for venous leg ulcer recurrence using a theoretical approach: A longitudinal study.

International Journal of Nursing Studies. 52: 1042-1051https://doi.org/10.1016/j.ijnurstu.2015.02.016Fu M. Liu S. Lin Y.-K. Chan W.-Y.

Physical activity of chinese american immigrants with type 2 diabetes/prediabetes: A mixed method study.

American Journal of Nursing. 118: 24-32Garnett A. Ploeg J. Markle-Reid M. Strachan P.H.

Self-management of multiple chronic conditions by community-dwelling older adults: A concept analysis.

Sage Open Nursing. 4 (): 16https://doi.org/10.1177/2377960817752471Gerkensmeyer J.E. Johnson C.S. Scott E.L. Oruche U.M. Lindsey L.M. Austin J.K. Perkins S.M.

Problem-solving intervention for caregivers of children with mental health problems.

Archives of Psychiatric Nursing. 27: 112-120https://doi.org/10.1016/j.apnu.2013.01.004Ghezeljeh T.N. Soltandehghan K. Hoseini A.-F.

The effect of self-management education on the quality of life and severity of the disease in patients with severe psoriasis: A non-randomized clinical trial.

Nursing Practice Today. 5: 243-255Goddard L. Mackey S. Davidson P.M.

Functional clinical placements: A driver for change.

Nurse Education Today. 30: 398-404https://doi.org/10.1016/j.nedt.2009.09.012Goldberg J. Hinchey J. Feder S. Schulman-Green D.

Developing and evaluating a self-management intervention for women with breast cancer.

Western Journal of Nursing Research. 38: 1243-1263https://doi.org/10.1177/0193945916650675

Self-management: A comprehensive approach to management of chronic conditions.

American Journal of Public Health. 104: e25-e31https://doi.org/10.2105/ajph.2014.302041

Use of theoretical and conceptual frameworks in qualitative research.

Nurse Researcher. 21: 34-38https://doi.org/10.7748/nr.21.6.34.e1252Grey M. Knafl K. McCorkle R.

A framework for the study of self- and family management of chronic conditions.

Nursing Outlook. 54: 278-286https://doi.org/10.1016/j.outlook.2006.06.004Grey M. Knafl K. Ryan P. Sawin K.J.

Commentary: Self and family management frameworks.

Nursing Outlook. 58: 111-112https://doi.org/10.1016/j.outlook.2009.11.002Grey M. Schulman-Green D. Knafl K. Reynolds N.R.

A revised self- and family management framework.

Nursing Outlook. 63: 162-170https://doi.org/10.1016/j.outlook.2014.10.003Hack T.F. Crooks D. Plohman J. Kepron E.

Research citation analysis of nursing academics in Canada: Identifying success indicators.

Journal of Advanced Nursing. 66: 2542-2549https://doi.org/10.1111/j.1365-2648.2010.05429.xHellqvist C. Dizdar N. Hagell P. Bertero C. Sund-Levander M.

Improving self-management for persons with parkinson's disease through education focusing on management of daily life: Patients' and relatives' experience of the swedish national parkinson school.

Journal of Clinical Nursing. 27: 3719-3728https://doi.org/10.1111/jocn.14522Hickey K.T. Bakken S. Byrne M.W. Bailey D.C.E. Demiris G. Docherty S.L. Dorsey S.G. Guthrie B.J. Heitkemper M.M. Jacelon C.S. Kelechi T.J. Moore S.M. Redeker N.S. Renn C.L. Resnick B. Starkweather A. Thompson H. Ward T.M. McCloskey D.J. Austin J.K. Grady P.A.

Precision health: Advancing symptom and self-management science.

Nursing Outlook. 67: 462-475https://doi.org/10.1016/j.outlook.2019.01.003Hinchey J. Goldberg J. Linsky S. Linsky R. Jeon S. Schulman-Green D.

Knowledge of cancer stage among women with nonmetastatic breast cancer.

Journal of Palliative Medicine. 19: 314-317https://doi.org/10.1089/jpm.2015.0133Hu H.S. Fu Mei R. Liu S. Lin Y.K. Chang W.Y.

Original research: Physical activity among Chinese American immigrants with prediabetes or type 2 diabetes.

American Journal of Nursing. 118: 24-32https://doi.org/10.1097/01.NAJ.0000530221.87469.86Ichikawa C.R. Bousso R.S. Misko M.D. Mendes-Castillo A.M. Bianchi E.R. Damião E.B.

Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases.

Revista latino-americana de enfermagem. 22: 115-122https://doi.org/10.1590/0104-1169.2978.2379Jacelon C.S. Furman E. Rea A. Macdonald B. Donoghue L.C.

Creating a professional practice model for postacute care.

Journal of Gerontological Nursing. 37: 53-60https://doi.org/10.3928/00989134-20100831-02Jenerette C.M. Funk M. Ruff C. Grey M. Adderley-Kelly B. McCorkle R.

Models of inter-institutional collaboration to build research capacity for reducing health disparities.

Nursing Outlook. 56: 16-24https://doi.org/10.1016/j.outlook.2007.11.001Keough L. Sullivan-Bolyai S. Crawford S. Schilling L. Dixon J.

Self-management of type 1 diabetes across adolescence.

The Diabetes Educator. 37: 486-500https://doi.org/10.1177/0145721711406140Knafl K. Deatrick J.A. Gallo A.M.

The interplay of concepts, data, and methods in the development of the Family Management Style Framework.

Journal of Family Nursing. 14: 412-428https://doi.org/10.1177/1074840708327138Knafl K.A. Deatrick J.A. Havill N.L.

Continued development of the Family Management Style Framework.

Journal of Family Nursing. 18: 11-34https://doi.org/10.1177/1074840711427294

A patient-focused framework integrating self-management and informatics.

Journal of Nursing Scholarship. 46: 91-97Ko D. Bratzke L.C. Roberts T.

Self-management assessment in multiple chronic conditions: A narrative review of literature.

International Journal of Nursing Studies. 83: 83-90https://doi.org/10.1016/j.ijnurstu.2018.04.009Künzler-Heule P. Beckmann S. Mahrer-Imhof R. Semela D. Händler-Schuster D.

Being an informal caregiver for a relative with liver cirrhosis and overt hepatic encephalopathy: A phenomenological study.

Journal of clinical nursing. 25: 2559-2568Leung W.Y. Adelman J. Bates D.W. Businger A. Dykes J.S. Ergai A. Hurley A. Katsulis Z. Khorasani S. Scanlan M. Schenkel L. Rai A. Dykes P.C.

Validating fall prevention icons to support patient-centered education.

Journal of Patient Safety. ()https://doi.org/10.1097/PTS.0000000000000354Lindau S.T. Makelarski J.A. Abramsohn E.M. Beiser D.G. Boyd K. Chou C. Giurcanu M. Huang E.S. Liao C. Schumm L.P. Tung E.L.

CommunityRx: A real-world controlled clinical trial of a scalable, low-intensity community resource referral intervention.

American Journal of Public Health. 109: 600-606https://doi.org/10.2105/ajph.2018.304905Litchfield I. Andrews R.C. Narendran P. Greenfield S.

Patient and healthcare professionals perspectives on the delivery of exercise education for patients with type 1 diabetes.

Frontiers in Endocrinology. 10: 76https://doi.org/10.3389/fendo.2019.00076Litchfield I. Jones L.L. Moiemen N. Andrews N. Greenfield S. Mathers J.

The role of self-management in burns aftercare: A qualitative research study.

Burns. 45: 825-834https://doi.org/10.1016/j.burns.2018.10.020

Self-management education: History, definition, outcomes, and mechanisms.

Annals of Behavioral Medicine. 26: 1-7https://doi.org/10.1207/s15324796abm2601_01Lou Y. Yates P. McCarthy A. Wang H.M.

Fatigue self-management: A survey of chinese cancer patients undergoing chemotherapy.

Journal of Clinical Nursing. 22: 1053-1065https://doi.org/10.1111/jocn.12174Lou Y. Yates P. McCarthy A. Wang H.M.

Self-management of chemotherapy-related nausea and vomiting.

Cancer Nursing. 37: 126-138https://doi.org/10.1097/ncc.0b013e318291b6f5Lukewich J. Mann E. VanDenKerkhof E. Tranmer J.

Self-management support for chronic pain in primary care: A cross-sectional study of patient experiences and nursing roles.

Journal of Advanced Nursing. 71: 2551-2562https://doi.org/10.1111/jan.12717

The theory of dyadic illness management.

Journal of Family Nursing. 24: 8-28https://doi.org/10.1177/1074840717745669Mann E.G. Harrison M.B. LeFort S. VanDenKerkhof E.G.

What are the barriers and facilitators for the self-management of chronic pain with and without neuropathic characteristics?.

Pain Management Nursing. 18: 295-308https://doi.org/10.1016/j.pmn.2017.04.006Martin K.R. Schoster B. Woodard J. Callahan L.F.

What community resources do older community-dwelling adults use to manage their osteoarthritis? A formative examination.

Journal of Applied Gerontology. 31: 661-684https://doi.org/10.1177/0733464810397613Masquillier C. Wouters E. Mortelmans D. van Wyk B.

On the road to HIV/AIDS competence in the household: Building a health-enabling environment for people living with HIV/AIDS.

International Journal of Environmental Research and Public Health. 12: 3264-3292https://doi.org/10.3390/ijerph120303264Masquillier C. Wouters E. Mortelmans D. van Wyk B. Hausler H. Van Damme W.

HIV/AIDS competent households: Interaction between a health-enabling environment and community-based treatment adherence support for people living with HIV/AIDS in South Africa.

PLOS ONE. 11e0151379https://doi.org/10.1371/journal.pone.0151379Masquillier C. Wouters E. Mortelmans D. Van Wyk B. Hausler H. Van Damme W. Towards a modified socio-ecological model for community-based hiv care. Proceedings of the European society for health and medical sociology 16th biennial congress, 27-29 June 2016, Geneva, SwitzerlandMcKechnie A.C. Waldrop J. Matsuda Y. Martinez M. Baker M.J. Beeber L.

Mothers' perspectives on managing the developmental delay of a child with considerations for contextual influences and maternal functioning.

Journal of Family Nursing. 24: 405-442https://doi.org/10.1177/1074840718780474Modi A.C. Monahan S. Daniels D. Glauser T.A.

Development and validation of the pediatric epilepsy medication self-management questionnaire.

Epilepsy & Behavior. 18: 94-99https://doi.org/10.1016/j.yebeh.2010.03.009Modi A.C. Pai A.L. Hommel K.A. Hood K.K. Cortina S. Hilliard M.E. Guilfoyle S.M. Gray W.N. Drotar D.

Pediatric self-management: A framework for research, practice, and policy.

Pediatrics. 129: e473-e485https://doi.org/10.1542/peds.2011-1635Moher D. Liberati A. Tetzlaff J. Altman D.G.

Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement.

PLoS Medicine. 6e1000097https://doi.org/10.1371/journal.pmed.1000097Moore S.M. Musil C.M. Jack A.I. Alder M.L. Fresco D.M. Webel A. Wright K.D. Sattar A. Higgins P.

Characterization of brain signatures to add precision to self-management health information interventions.

Nursing Research. 68: 127-134https://doi.org/10.1097/nnr.0000000000000331Moore S.M. Schiffman R. Waldrop-Valverde D. Redeker N.S. McCloskey D.J. Kim M.T. Heitkemper M.M. Guthrie B.J. Dorsey S.G. Docherty S.L.

Recommendations of common data elements to advance the science of self-management of chronic conditions.

Journal of Nursing Scholarship. 48: 437-447https://doi.org/10.1111/jnu.12233Ness M.M. Saylor J. Selekman J.

Maternal experiences of transitioning their emerging adult with type 1 diabetes to college.

Diabetes Educator. 44: 178-187https://doi.org/10.1177/0145721718759980Niesen C.R. Olson D.M. Nowdesha K.D. Tynsky D.A. Loftus C.G. Meiers S.J.

Enhancing self-management for adults with functional abdominal pain.

Gastroenterology Nursing. 41: 321-332https://doi.org/10.1097/sga.0000000000000322Nightingale J.M. Marshall G.

Citation analysis as a measure of article quality, journal influence and individual researcher performance.

Radiography. 18: 60-67https://doi.org/10.1016/j.radi.2011.10.044

National Institute of Nursing Research (2020). Mission and strategic plan: NINR strategic plan (2022-2026) Under development. Retrieved November 18, 2020, from https://www.ninr.nih.gov/aboutninr/ninr-mission-and-strategic-plan

O'Conor R. Benavente J.Y. Kwasny M.J. Eldeirawi K. Hasnain-Wynia R. Federman A.D. Hebert-Beirne J. Wolf M.S.

Daily routine: Associations with health status and urgent health care utilization among older adults.

The Gerontologist. 59: 947-955https://doi.org/10.1093/geront/gny117Oruche U.M. Gerkensmeyer J. Stephan L. Wheeler C.A. Hanna K.M.

The described experience of primary caregivers of children with mental health needs.

Archives of Psychiatric Nursing. 26: 382-391https://doi.org/10.1016/j.apnu.2011.12.006Oruche U.M. Robb S.L. Draucker C.B. Aalsma M. Pescosolido B. Chacko A. Ofner S. Bakoyannis G. Brown-Podgorski B.

Pilot randomized trial of a family management efficacy intervention for caregivers of African American adolescents with disruptive behaviors.

Child & Youth Care Forum. 47: 803-827https://doi.org/10.1007/s10566-018-9462-1Peñarrieta M.I. Flores-Barrios F. Gutiérrez-Gómez T. Piñones-Martínez S. Resendiz-Gonzalez E. Quintero-Valle L.M.

Self-management and family support in chronic diseases.

Journal of Nursing Education and Practice. 5: 73-80https://doi.org/10.5430/jnep.v5n11p73Psihogios A.M. Murray C. Zebracki K. Acevedo L. Holmbeck G.N.

Testing the utility of a bio-neuropsychosocial model for predicting medical adherence and responsibility during early adolescence in youth with spina bifida.

Journal of pediatric psychology.

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