The impact of research results feedback on the lived experiences of elderly participants in the DIMAMO health demographic site: a case of AWI-Gen Participants

Abstract

Backgrounds The concept of engaging the community on the results if research or returning individual result to the respective participants seems more of an afterthought than an integral part of research processes. Therefore, the current study aims to assess the impact of research results feedback among study participants from a rural black community of low socio-economic status.

Methods The study was qualitative. The consolidated criteria for reporting qualitative research (COREQ) guiding principle was used to present study findings. Data was collected through qualitative face-to-face in-depth interviews using an interview guide, between September and October 2024 in the Dikgale area, Limpopo province, South Africa. The transcripts were anonymized before entering them into QSR NVivo 10 (QSR International, Warrington, UK) to aid in analysis. The interview data was analyzed using a deductive content analysis method to develop themes.

Results The present study included about 31 individuals of which 79% were women and 29% were men. Most participants in the present study had high school qualification as their highest level of education (74.20%) followed by those with no formal education and primary school level education at 16.15% and 12.90% respectively. Themes, identified through deductive analysis include health and lifestyle awareness, perceived benefits of research participation, community perception of health research, economic and social motivations, and challenges and concerns.

Conclusion The present study shed light on the importance of retaining individual results for participants in health research. The themes that were generated showed that participants altered their lives and health-seeking behavior because of the information they got from participating in research a situation that would not have happened if they did not have the results back.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This study did not receive any funding

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

The Turfloop Research Ethics Committee under the reference TREC/545/2023 granted approval for ethical considerations: IR.

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

Yes

Data Availability

All data produced in the present study are available upon reasonable request to the authors

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