Personal Involvement with Celiac Disease as a Motive for Research among Celiac Disease Researchers

Abstract

Introduction We investigated the frequency of personal involvement with celiac disease (CeD) among CeD researchers and their motive to pursue CeD research, compared to researchers in inflammatory bowel disease (IBD) or type 1 diabetes (T1D) research. Methods An online survey was sent to CeD, IBD and T1D researchers. Results 42% of CeD researchers had an involvement with their research interest, which was similar to T1D (51%) and significantly higher than the IBD respondents (27%, p<0.02). Discussion Personal involvement is common among the CeD researchers. Personal involvement with the disease may be beneficial when conducting patient-oriented research.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

Amelie Therrien was supported by FRQS Phase 2 Fellowship training Award, Douglas Kinnear Award, American College of Gastroenterology Career Development Award Marcela Banegas, Carolina Vigna, David Flores, Jose Emmanuel Gonzalez, Cesar Palacios were supported by International Research Initiative Jocelyn Silvester was supported by NIDDK 1K23DK119584-01

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This study was approved by Boston Children's Hospital Institutional Review Board.

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Data Availability

All data produced in the present study are available upon reasonable request to the authors

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