Taher AT, Musallam KM, Cappellini MD (2021) β-thalassemias. N Engl J Med 384:727–743

Article  PubMed  Google Scholar 

Cappellini M-D, Cohen A, Porter J, Taher A, Viprakasit V (eds) (2014) Guidelines for the management of transfusion dependent thalassaemia (TDT). Thalassaemia International Federation

Biswas B, Naskar NN, Basu K, Dasgupta A, Basu R, Paul B (2020) Care-related quality of life of caregivers of beta-thalassemia major children: an epidemiological study in Eastern India. J Epidemiol Glob Health 10:168

Article  PubMed  PubMed Central  Google Scholar 

Biswas B, Naskar N, Basu K, Dasgupta A, Basu R, Paul B (2022) Transfusion-transmitted infections, its risk factors and impact on quality of life: an epidemiological study among β-thalassemia major children. Asian J Transfus Sci 16:99

Article  PubMed  PubMed Central  Google Scholar 

Cappellini MD CA, Eleftheriou A (2008) Infections in thalassaemia major. In: Guidelines for the clinical management of thalassaemia

Shah FT, Sayani F, Trompeter S, Drasar E, Piga A (2019) Challenges of blood transfusions in β-thalassemia. Blood Rev 37:100588

Article  PubMed  Google Scholar 

Aguilar Martinez P, Angastiniotis M, Eleftheriou A, Gulbis B, Mañú Pereira MDM, Petrova-Benedict R, Corrons J-LV (2014) Haemoglobinopathies in Europe: health & migration policy perspectives. Orphanet J Rare Dis 9:97

Article  PubMed  PubMed Central  Google Scholar 

Madan N, Sharma S, Sood S, Colah R, Bhatia H (2010) Frequency of β-thalassemia trait and other hemoglobinopathies in northern and western India. Indian J Hum Genet 16:16

Article  CAS  PubMed  PubMed Central  Google Scholar 

Verma IC, Saxena R, Kohli S (2011) Past, present & future scenario of thalassaemic care & control in India. Indian J Med Res 134:507–521

CAS  PubMed  PubMed Central  Google Scholar 

Kattamis A, Forni GL, Aydinok Y, Viprakasit V (2020) Changing patterns in the epidemiology of β-thalassemia. Eur J Haematol 105:692–703

Article  PubMed  PubMed Central  Google Scholar 

Colah R, Italia K, Gorakshakar A (2017) Burden of thalassemia in India: the road map for control. Pediatr Hematol Oncol J 2:79–84

Article  Google Scholar 

Lucarelli G, Isgro A, Sodani P, Gaziev J (2012) Hematopoietic stem cell transplantation in thalassemia and sickle cell anemia. Cold Spring Harb Perspect Med 2:a011825–a011825

Article  PubMed  PubMed Central  Google Scholar 

Badagabettu S, Archana MV, Jomon CU (2022) Awareness on thalassemia and opinion of carrier screening among young women from selected undergraduate colleges of udupi district. Clin Epidemiol Glob Health 14:100978

Article  Google Scholar 

Miri-Moghaddam E, Motaharitabar E, Erfannia L, Dashipour A, Houshvar M (2014) High school knowledge and attitudes towards thalassemia in Southeastern Iran. Int J Hematol-Oncol Stem Cell Res 8:24–30

PubMed  PubMed Central  Google Scholar 

Alam NE, Islam MS, Khabir MIU, Suriea U, Islam MM, Mohiuddin RB, Akter S, Mahamud N, Bappy MNI, Sardar D et al (2022) The scenario of knowledge, attitude and practice of the Bangladeshi population towards thalassemia prevention: a nationwide study. PLOS Glob Public Health 2:e0001177

Article  PubMed  PubMed Central  Google Scholar 

Albagshi MH, Saad M, Aljassem AM, Bushehab AA, Ahmed NH, Alabbad MM, Omer N, Alhamad OA, Sultan TA, Bahgat S (2021) Blood demand and challenges for patients with beta-thalassemia major in Eastern Saudi Arabia. Cureus. https://doi.org/10.7759/cureus.17470

Article  PubMed  PubMed Central  Google Scholar 

Quinonez SC, O’Connor BC, Jacobs MF, Mekonnen Tekleab A, Marye A, Bekele D, Yashar BM, Hanson E, Yeshidinber A, Wedaje G (2021) The introduction of genetic counseling in Ethiopia: results of a training workshop and lessons learned. PLoS ONE 16:e0255278

Article  CAS  PubMed  PubMed Central  Google Scholar 

Maio M, Carrion P, Yaremco E, Austin JC (2013) Awareness of genetic counseling and perceptions of its purpose: a survey of the Canadian public. J Genet Couns 22:762–770

Article  PubMed  PubMed Central  Google Scholar 

Langer ALAM, Feldman J MG (2000) Beta-thalassemia. GeneReviews® [Internet]. University of Washington, Seattle, pp 1993–2023

Balci YIEA, Polat AAT, Utku UKH (2014) Thalassemia premarital screening program: public view, what has been done, what needs to be done? Int J Hematol Oncol 29:247–252

Article  Google Scholar