Psychosocial Experiences Associated with Dysphagia and Relevant Clinical Implications Among Adults with Parkinson Disease

Feigin VL, Nichols E, Alam T, Bannick MS, Beghi E, Blake N, et al. Global, regional, and national burden of neurological disorders, 1990–2016: a systematic analysis for the global burden of Disease Study 2016. Lancet Neurol. 2019;18:459–80.

Article  Google Scholar 

Dorsey ER, Sherer T, Okun MS, Bloem BR. The emerging evidence of the Parkinson pandemic. J Park Dis. 2018;8:S3–8.

Google Scholar 

Schapira AHV, Chaudhuri KR, Jenner P. Non-motor features of Parkinson disease. Nat Rev Neurosci. 2017;18:435–50.

Article  CAS  PubMed  Google Scholar 

Fasano A, Visanji NP, Liu LWC, Lang AE, Pfeiffer RF. Gastrointestinal dysfunction in Parkinson’s disease. Lancet Neurol. 2015;14:625–39.

Article  CAS  PubMed  Google Scholar 

Ali GN, Wallace KL, Schwartz R, DeCarle DJ, Zagami AS, Cook IJ. Mechanisms of oral-pharyngeal dysphagia in patients with Parkinson’s disease. Gastroenterology. 1996;110:383–92.

Article  CAS  PubMed  Google Scholar 

BIRD MR, WOODWARD MC, GIBSON EM, PHYLAND DJ. Asymptomatic swallowing disorders in Elderly patients with Parkinson’s disease: a description of findings on clinical examination and videofluoroscopy in sixteen patients. Age Ageing. 1994;23:251–4.

Article  CAS  PubMed  Google Scholar 

Fuh JL, Lee RC, Wang SJ, Lin CH, Wang PN, Chiang JH, et al. Swallowing difficulty in Parkinson’s disease. Clin Neurol Neurosurg. 1997;99:106–12.

Article  CAS  PubMed  Google Scholar 

Broadfoot CK, Abur D, Hoffmeister JD, Stepp CE, Ciucci MR. Research-based updates in Swallowing and Communication Dysfunction in Parkinson Disease: implications for evaluation and management. Perspect ASHA Spec Interest Groups. 2019;4:825–41.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Kalf JG, de Swart BJM, Bloem BR, Munneke M. Prevalence of oropharyngeal dysphagia in Parkinson’s disease: a meta-analysis. Parkinsonism Relat Disord. 2012;18:311–5.

Article  CAS  PubMed  Google Scholar 

Chen Y-W, Huang C-Y, Chen J-H, Hsiao C-L, Hong C-T, Wu C-Y, et al. Living with Parkinson’s disease: disease and medication experiences of patients and caregivers. Int J Qual Stud Health Well-Being. 2022;17:2018769.

Article  PubMed  PubMed Central  Google Scholar 

Nazzal MS, Khalil H. Living with Parkinson’s disease: a Jordanian perspective. Scand J Occup Ther. 2017;24:74–82.

Article  PubMed  Google Scholar 

Sjödahl Hammarlund C, Westergren A, Åström I, Edberg A-K, Hagell P. The impact of living with Parkinson’s Disease: balancing within a web of needs and demands. Park Dis. 2018;2018:4598651.

Google Scholar 

Wressle E, Turesson C, Granérus A-K. Living with Parkinson’s disease: Elderly patients’ and relatives’ perspective on daily living. Aust Occup Ther J. 2006;54:131–9.

Article  Google Scholar 

Maffoni M, Giardini A, Pierobon A, Ferrazzoli D, Frazzitta G. Stigma experienced by Parkinson’s Disease patients: a descriptive review of qualitative studies. Park Dis. 2017;2017:7203259.

Google Scholar 

Martin SC. Psychosocial challenges experienced by partners of people with Parkinson disease. J Neurosci Nurs. 2015;47:211–23.

Article  PubMed  Google Scholar 

Roger KS, Medved MI. Living with Parkinson’s disease-managing identity together. Int J Qual Stud Health Well-Being. 2010;5.

Armstrong MJ, Rastgardani T, Gagliardi AR, Marras C. The experience of off periods: qualitative analysis of interviews with persons with Parkinson’s and carepartners. Clin Park Relat Disord. 2019;1:31–6.

PubMed  PubMed Central  Google Scholar 

Miller N, Noble E, Jones D, Burn D. Hard to swallow: dysphagia in Parkinson’s disease. Age Ageing. 2006;35:614–8.

Article  PubMed  Google Scholar 

Carneiro D, das Graças Wanderley de Sales, Coriolano M, Belo LR, de Marcos Rabelo AR, Asano AG, Lins OG. Quality of life related to swallowing in Parkinson’s disease. Dysphagia. 2014;29:578–82.

Leow LP, Huckabee M-L, Anderson T, Beckert L. The impact of dysphagia on quality of life in ageing and Parkinson’s disease as measured by the swallowing quality of life (SWAL-QOL) questionnaire. Dysphagia. 2010;25:216–20.

Article  PubMed  Google Scholar 

Plowman-Prine EK, Sapienza CM, Okun MS, Pollock SL, Jacobson C, Wu SS, et al. The Relationship between Quality of Life and Swallowing in Parkinson’s Disease. Mov Disord off J Mov Disord Soc. 2009;24:1352–8.

Article  Google Scholar 

Wortman CB, Silver RC. The myths of coping with loss revisited. Handb Bereave Res consequences Coping Care. Washington, DC, US: American Psychological Association; 2001. pp. 405–29.

Google Scholar 

Scheff T. Toward defining Basic emotions. Qual Inq. 2015;21:111–21.

Article  Google Scholar 

Wittkowski J, Scheuchenpflug R. Evidence on the conceptual distinctness of normal grief from Depression. Eur J Health Psychol. 2021;28:101–10.

Article  Google Scholar 

Strada EA. Grief, demoralization, and depression: diagnostic challenges and treatment modalities. Prim Psychiatry. 2009;16:49–55.

Google Scholar 

Wayment HA, Brookshire KA. Mothers’ reactions to their child’s ASD diagnosis: Predictors that discriminate grief from distress. J Autism Dev Disord. 2018;48:1147–58.

Article  PubMed  Google Scholar 

Wayment HA, Kemeny ME. Predictors of grief and depressed Mood among Gay men following an aids-related loss. J Loss Trauma. 2004;9:217–46.

Article  Google Scholar 

Vann-Ward T, Morse JM, Charmaz K. Preserving self: theorizing the Social and psychological processes of living with Parkinson Disease. Qual Health Res. 2017;27:964–82.

Article  PubMed  Google Scholar 

Gardenhire J, Mullet N, Fife S. Living with Parkinson’s: the process of finding optimism. Qual Health Res. 2019;29:1781–93.

Article  PubMed  Google Scholar 

Calhoun LG, Cann A, Tedeschi RG. The posttraumatic growth model: sociocultural considerations. Posttraumatic growth cult competent pract lessons learn Globe. Hoboken, NJ, US: John Wiley & Sons Inc; 2010. pp. 1–14.

Book  Google Scholar 

Wayment HA, Al-Kire R, Brookshire K. Challenged and changed: quiet ego and posttraumatic growth in mothers raising children with autism spectrum disorder. Autism. 2019;23:607–18.

Article  PubMed  Google Scholar 

Folkman S, Lazarus RS, Gruen RJ, DeLongis A. Appraisal, coping, health status, and psychological symptoms. J Pers Soc Psychol. 1986;50:571–9.

Article  CAS  PubMed  Google Scholar 

Lazarus RS, Folkman S. Stress, Appraisal, and coping. Springer Publishing Company; 1984.

Cohen S, Wills TA. Stress, social support, and the buffering hypothesis. Psychol Bull. 1985;98:310–57.

Article  CAS  PubMed  Google Scholar 

Tedeschi RG, Calhoun LG. The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. J Trauma Stress. 1996;9:455–71.

Article  CAS  PubMed  Google Scholar 

Wortman CB, Silver RC. The myths of coping with loss. J Consult Clin Psychol. 1989;57:349–57.

Article  CAS  PubMed  Google Scholar 

Oliffe JL, Kelly MT, Gonzalez Montaner G, Yu Ko WF. Zoom interviews: benefits and concessions. Int J Qual Methods. 2021;20:16094069211053522.

Article  Google Scholar 

Gray L, Wong-Wylie G, Rempel G, Cook K. Expanding qualitative research interviewing strategies: Zoom Video communications. Qual Rep. 2020;25:1292–301.

Google Scholar 

Archibald MM, Ambagtsheer RC, Casey MG, Lawless M. Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods. 2019;18:1609406919874596.

Article  Google Scholar 

Holton G, Toulmin S. Thematic origins of Scientific Thought, Kepler to Einstein. Phys Today. 1974;27:47–8.

Article  Google Scholar 

King N, Brooks J. Thematic analysis in organisational research. SAGE Handb Qual Bus Manag Res methods methods Chall. SAGE Publications Ltd; 2018.

Morse JM. Perfectly healthy, but Dead: the myth of Inter-rater Reliability. Qual Health Res. 1997;7:445–7.

Article  Google Scholar 

O’Connor C, Joffe H. Intercoder Reliability in Qualitative Research: debates and practical guidelines. Int J Qual Methods. 2020;19:160940691989922.

Article  Google Scholar 

Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13:201–16.

Article  Google Scholar 

Fugard A, Potts HWW. Thematic analysis. Sage res methods found. SAGE Publications Ltd; 2019.

Braun VCV. Thematic analysis. SAGE; 2021.

Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.

Article  Google Scholar 

Clarke V, Braun V, Hayfield N. Chapter 4: thematic analysis. APA Handb Res Methods Psychol. 2012;2.

Braun V, Clarke V. Successful qualitative research. SAGE; 2013.

Boyer K, Orpin P, King AC. I come for the friendship’: why social eating matters. Australas J Ageing. 2016;35:E29–31.

Article  PubMed  Google Scholar 

Dunbar RIM. Breaking Bread: the functions of Social Eating. Adapt Hum Behav Physiol. 2017;3:198–211.

Article  CAS  Google Scholar 

Bishop SR, Lau M, Shapiro S, Carlson L, Anderson ND, Carmody J, et al. Mindfulness: a proposed operational definition. Clin Psychol Sci Pract. 2004;11:230–41.

Article  Google Scholar 

Monroe JT. Mindful eating: principles and practice. Am J Lifestyle Med. 2015;9:217–20.

Article 

留言 (0)

沒有登入
gif