A Qualitative Study of the Ethical Issues Encountered at end-of-life care at a University Teaching Hospital in Nigeria

Abstract

Background End-of-life (EOL) care involves providing quality medical attention to the dying patient. It is fraught with some ethical challenges, often under-explored in African settings. This communication presents a qualitative analysis of ethical issues encountered by caregivers and their patients who are receiving end-of-life care in a teaching hospital in Nigeria.

Methods Ethical issues in EOL care encountered by 40 people (dying patients, their families, nurses, and doctors) at the University of Nigeria Teaching Hospital, Enugu (UNTH-E) Enugu State, Nigeria was explored over two months. The Participants’ socio-demographic data was analyzed using descriptive statistics, while qualitative data was analyzed using a thematic framework. The coding of transcripts was done with NVivo 12 software.

Results All participant groups encountered commonly reported ethical challenges in end-of-life (EOL) care, including issues of medical futility, treatment refusal, truthful disclosures, families requesting that a competent patient not be informed about their condition, confidentiality, limiting or withdrawing a treatment, limited or insufficient pain management, conflicting interests in care, an unfair financial burden without the patient consent, and an unfair burden on the healthcare system. Additionally, the uncommon issues included the patient’s unwillingness to discussions about their terminal status; families withdrawing due care and support prematurely, and delayed referrals.

Conclusion Ethical issues are commonly encountered in caring for the patient at EOL in the Nigerian environment notwithstanding the paucity of literature on them. This underscores the importance of adopting known preventive measures to eliminate or minimize these issues.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This study (a Masters in Public Health (Bioethics) dissertation), was funded by the Fogarty International Center (FIC) and the National Human Genome Research Institute (NHGRI) of the United States National Institutes of Health (NIH) under Award Number R25 TW0010514.

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

Ethics committee/IRB of the University of Nigeria Teaching Hospital gave ethical approval for this work.

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

Yes

Data Availability

All data produced in the present study are available upon reasonable request to the authors

留言 (0)

沒有登入
gif