''Mitigating Cancer Pain: What else Matters?"--A Qualitative Study into the Needs and Concerns of Cancer Patients in Sri Lanka

Abstract

Objectives The overall experience of cancer pain reflects patients’ needs and concerns. Therefore, a thorough understanding of the patient’s needs and concerns is crucial to implementing satisfactory pain outcomes. This study aims to explore the needs and concerns of patients with cancer pain in Sri Lanka.

Methods This study employed a descriptive qualitative approach among purposively selected patients with cancer and registered at the pain management unit. Patients eighteen years older with cancer-related pain were recruited. Noncancerous pain and those with psychological disorders, and brain metastases were excluded. Twenty-one semi-structured interviews were conducted until data saturation using a semi-structured interview guide, each lasting 30-60 minutes. Data were analyzed by Graneheim and Lundman’s content analysis method.

Results The study primarily involved participants aged 51-60 Sinhalese Buddhists. It highlighted two main themes: ‘Changes in normal lifestyle’ and ‘Needs and expectations’. The ‘Changes in normal lifestyle’ theme included subthemes like ‘Functional limitations’, ‘Emotional reactions’, ‘altered interpersonal relationships’, and ‘Socio-financial problems’. The ‘Needs and expectations’ theme covered desires for a ‘Pain-free life’, a return to a ‘Normal lifestyle’, and the ‘Need for a caregiver’. The findings emphasize that the most significant issue for cancer patients is the disruption to their normal lifestyle due to various challenges, while their primary need is to live without pain.

Conclusions ‘Life without pain’ is a cancer sufferer’s greatest need while ‘changes in normal lifestyle’ owing to bio-psycho-social-spiritual problems is their primary concern.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

Yes

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Not Applicable

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

Ethical approval was granted for this study by the Ethics Review Committee (ERC), Faculty of Medical Sciences, University of Sri Jayewardenepura, Sri Lanka (App No: 32/17).

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

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I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

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I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

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Data Availability

All relevant data are within the manuscript and its Supporting Information files.

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