Kiernan MC, Vucic S, Cheah BC, Turner MR, Eisen A, Hardiman O, Burrell JR, Zoing MC. Amyotrophic lateral sclerosis. Lancet (London, England). 2011;377(9769):942–55. https://doi.org/10.1016/S0140-6736(10)61156-7.

Article  CAS  PubMed  Google Scholar 

Conde B, Martins N, Rodrigues I, Pimenta AC, Winck JC. Functional and endoscopic indicators for percutaneous endoscopic gastrostomy (PEG) in amyotrophic lateral sclerosis patients. J Clin Med. 2018;7(10):352. https://doi.org/10.3390/jcm7100352.

Article  PubMed  PubMed Central  Google Scholar 

Kirker FJ, Oliver DJ. The development and implementation of a standardized policy for the management of dysphagia in motor neurone disease. Palliat Med. 2003;17(4):322–6. https://doi.org/10.1191/0269216303pm748oa.

Article  CAS  PubMed  Google Scholar 

Perry BJ, Stipancic KL, Martino R, Plowman EK, Green JR. Biomechanical biomarkers of tongue impairment during swallowing in persons diagnosed with amyotrophic lateral sclerosis. Dysphagia. 2021;36(1):147–56. https://doi.org/10.1007/s00455-020-10116-z.

Article  PubMed  Google Scholar 

Palovcak M, Mancinelli JM, Elman LB, McCluskey L. Diagnostic and therapeutic methods in the management of dysphagia in the ALS population: issues in efficacy for the out-patient setting. NeuroRehabilitation. 2007;22(6):417–23.

Article  PubMed  Google Scholar 

ProGas Study Group. Gastrostomy in patients with amyotrophic lateral sclerosis (ProGas): a prospective cohort study. The Lancet Neurology. 2015;14(7):702–9. https://doi.org/10.1016/S1474-4422(15)00104-0.

Article  PubMed Central  Google Scholar 

EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis: Andersen PM, Abrahams S, Borasio GD, de Carvalho M, Chio A, Van Damme P, Hardiman O, Kollewe K, Morrison KE, Petri S, Pradat PF, Silani V, Tomik B, Wasner M, Weber M. 2012 EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)--revised report of an EFNS task force. Eur J Neurol. 19(3): 360–75. doi: https://doi.org/10.1111/j.1468-1331.2011.03501.x.

Martin NH, Lawrence V, Murray J, Janssen A, Higginson I, Lyall R, Burman R, Leigh PN, Al-Chalabi A, Goldstein LH. Decision making about gastrostomy and noninvasive ventilation in amyotrophic lateral sclerosis. Qual Health Res. 2016;26(10):1366–81. https://doi.org/10.1177/1049732315583661.

Article  PubMed  Google Scholar 

Stavroulakis T, Baird WO, Baxter SK, Walsh T, Shaw PJ, McDermott CJ. Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease. BMJ Support Palliat Care. 2014;4(1):57–63. https://doi.org/10.1136/bmjspcare-2013-000497.

Article  PubMed  Google Scholar 

Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, Kalra S, Katz JS, Mitsumoto H, Rosenfeld J, Shoesmith C, Strong MJ, Woolley SC, Quality Standards Subcommittee of the American Academy of Neurology. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the quality standards subcommittee of the American academy of neurology. Neurology. 2009;73(15):1218–26. https://doi.org/10.1212/WNL.0b013e3181bc0141.

Article  CAS  PubMed  PubMed Central  Google Scholar 

EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis:, Andersen, P. M., Abrahams, S., Borasio, G. D., de Carvalho, M., Chio, A., Van Damme, P., Hardiman, O., Kollewe, K., Morrison, K. E., Petri, S., Pradat, P. F., Silani, V., Tomik, B., Wasner, M., & Weber, M. (2012). EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)--revised report of an EFNS task force. European journal of neurology, 19(3): 360–375. https://doi.org/10.1111/j.1468-1331.2011.03501.x

Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, Shamseer L, Tetzlaff JM, Akl EA, Brennan SE, Chou R, Glanville J, Grimshaw JM, Hróbjartsson A, Lalu MM, Li T, Loder EW, Mayo-Wilson E, McDonald S, McGuinness LA, Moher D. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ. 2021. https://doi.org/10.1136/bmj.n71.

Article  PubMed  PubMed Central  Google Scholar 

Brooks BR, Miller RG, Swash M, Munsat TL, World Federation of Neurology Research Group on Motor Neuron Diseases. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic lateral sclerosis and other motor neuron disorders: official publication of the World Federation of Neurol, Res Group on Motor Neuron Dis. 2000;1(5):293–9. https://doi.org/10.1080/146608200300079536.

Article  CAS  Google Scholar 

Costa J, Swash M, de Carvalho M. Awaji criteria for the diagnosis of amyotrophic lateral sclerosis: a systematic review. Arch Neurol. 2012;69(11):1410–6. https://doi.org/10.1001/archneurol.2012.254.

Article  PubMed  Google Scholar 

Strand EA, Miller RM, Yorkston KM, Hillel AD. Management of oral-pharyngeal dysphagia symptoms in amyotrophic lateral sclerosis. Dysphagia. 1996;11(2):129–39. https://doi.org/10.1007/BF00417903.

Article  CAS  PubMed  Google Scholar 

Tye CB, Gardner PA, Dion GR, Simpson CB, Dominguez LM. Impact of fiberoptic endoscopic evaluation of swallowing outcomes and dysphagia management in neurodegenerative diseases. Laryngoscope. 2021;131(4):726–30. https://doi.org/10.1002/lary.28791.

Article  PubMed  Google Scholar 

Videnovic A, Babu S, Zhao B, Reda HM, Linnoila JJ. Case 1–2022: A 67-year-old man with motor neuron disease and odd behaviors during sleep. N Engl J Med. 2022;386(2):173–80. https://doi.org/10.1056/NEJMcpc2115844.

Article  PubMed  Google Scholar 

Fasano A, Fini N, Ferraro D, Ferri L, Vinceti M, Errals, & Mandrioli, J. Percutaneous endoscopic gastrostomy, body weight loss and survival in amyotrophic lateral sclerosis: a population-based registry study. Amyotrophic lateral sclerosis & frontotemporal degeneration. 2017;18(3–4):233–42. https://doi.org/10.1080/21678421.2016.1270325.

Article  Google Scholar 

Mariani L, Ruoppolo G, Cilfone A, Cocchi C, Preziosi Standoli J, Longo L, Ceccanti M, Greco A, Inghilleri M. Progression of oropharyngeal dysphagia in amyotrophic lateral sclerosis: a retrospective cohort study. Dysphagia. 2022;37(4):868–78. https://doi.org/10.1007/s00455-021-10346-9.

Article  PubMed  Google Scholar 

Shaw AS, Ampong MA, Rio A, Al-Chalabi A, Sellars ME, Ellis C, Shaw CE, Leigh NP, Sidhu PS. Survival of patients with ALS following institution of enteral feeding is related to pre-procedure oximetry: a retrospective review of 98 patients in a single centre. Amyotrophic lateral sclerosis: official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases. 2006;7(1):16–21. https://doi.org/10.1080/14660820510012013.

Article  PubMed  Google Scholar 

Luchesi KF, Kitamua S, Mourão LF. Amyotrophic lateral sclerosis survival analysis: swallowing and non-oral feeding. NeuroRehabilitation. 2014;35(3):535–42. https://doi.org/10.3233/NRE-141149.

Article  CAS  PubMed  Google Scholar 

Suh JH, Park D, Kim IS, Kim H, Shin CM, Ryu JS. Feasibility of high-resolution manometry for decision of feeding methods in patients with amyotrophic lateral sclerosis. Medicine. 2019;98(23): e15781. https://doi.org/10.1097/MD.0000000000015781.

Article  PubMed  PubMed Central  Google Scholar 

Labra J, Hogden A, Power E, James N, Flood VM. Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients’ decision making. BMJ Open. 2020;10(2): e034751. https://doi.org/10.1136/bmjopen-2019-034751.

Article  PubMed  PubMed Central  Google Scholar 

Rugaitienė M, Damulevičienė G, Lesauskaitė V, Ulozienė I. Oropharyngeal dysphagia as the main expression of amyotrophic lateral sclerosis. Medicina (Kaunas). 2022;58(5):647. https://doi.org/10.3390/medicina58050647.

Article  PubMed  Google Scholar 

Crary MA, Mann GD, Groher ME. Initial psychometric assessment of a functional oral intake scale for dysphagia in stroke patients. Arch Phys Med Rehabil. 2005;86(8):1516–20. https://doi.org/10.1016/j.apmr.2004.11.049.

Article  PubMed  Google Scholar 

Belafsky PC, Mouadeb DA, Rees CJ, Pryor JC, Postma GN, Allen J, Leonard RJ. Validity and reliability of the eating assessment tool (EAT-10). Ann Otol Rhinol Laryngol. 2008;117(12):919–24. https://doi.org/10.1177/000348940811701210.

Article  PubMed  Google Scholar 

Castanheira A, Swash M, De Carvalho M. Percutaneous gastrostomy in amyotrophic lateral sclerosis: a review. Amyotroph Lateral Scler Front Degener. 2022;23(3–4):176–89. https://doi.org/10.1080/21678421.2021.1946089.

Article  Google Scholar 

Rooney J, Burke T, Vajda A, Heverin M, Hardiman O. What does the ALSFRS-R really measure? A longitudinal and survival analysis of functional dimension subscores in amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatry. 2017;88(5):381–5. https://doi.org/10.1136/jnnp-2016-314661.

Article  PubMed  Google Scholar 

Xia X, Zhang W, Guo J, Chang X, Zhao R, Wang J, Pang X, Zhang J. Diagnostic utility of different dysphagia screening tools to detect dysphagia in individuals with amyotrophic lateral sclerosis. Neurological Sci: Official J Italian Neurological Soc Italian Soc Clin Neurophysiol. 2023. https://doi.org/10.1007/s10072-023-06918-2.

Article  Google Scholar 

Plowman EK, Tabor LC, Robison R, Gaziano J, Dion C, Watts SA, Vu T, Gooch C. Discriminant ability of the eating assessment tool-10 to detect aspiration in individuals with amyotrophic lateral sclerosis. Neurogastroenterol Motil. 2016;28(1):85–90. https://doi.org/10.1111/nmo.12700.

Article  CAS  PubMed  Google Scholar 

Speyer R, Cordier R, Kertscher B, Heijnen BJ. Psychometric properties of questionnaires on functional health status in oropharyngeal dysphagia: a systematic literature review. Biomed Res Int. 2014;2014: 458678. https://doi.org/10.1155/2014/458678.

Article  PubMed  PubMed Central  Google Scholar 

Fattori B, Siciliano G, Mancini V, Bastiani L, Bongioanni P, Caldarazzo Ienco E, Barillari MR, Romeo SO, Nacci A. Dysphagia in amyotrophic lateral sclerosis: relationships between disease progression and fiberoptic endoscopic evaluation of swallowing. Auris Nasus Larynx. 2017;44(3):306–12. https://doi.org/10.1016/j.anl.2016.07.002.

Article  PubMed  Google Scholar 

Hadjikoutis S, Pickersgill TP, Dawson K, Wiles CM. Abnormal patterns of breathing during swallowing in neurological disorders. Brain: J Neurol. 2000. https://doi.org/10.1093/brain/123.9.1863.

Article  Google Scholar 

Javad Mousavi SA, Zamani B, Shahabi Shahmiri S, Rohani M, Shahidi GA, Mostafapour E, Hemasian H, Raji H. Pulmonary function tests in patients with amyotrophic lateral sclerosis and the association between these tests and survival. Iran J Neurol. 2014;13(3):131–7.

PubMed  PubMed Central  Google Scholar 

Lechtzin N, Cudkowicz ME, de Carvalho M, Genge A, Hardiman O, Mitsumoto H, Mora JS, Shefner J, Van den Berg LH, Andrews JA. Respiratory measures in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration. 2018;19(5–6):321–30. https://doi.org/10.1080/21678421.2018.1452945.

Article