Volume 82, August 2024, 154765Author links open overlay panel, , , Section snippetsICU registries and research

There are multiple ways in which a clinical quality registry can facilitate and promote research. Existing governance frameworks can allow ‘pre-approval’ of observational studies or provide pathways for low-risk and expedited ethics reviews. Privacy, security and consent systems already in place within the registry, may be familiar and provide confidence to ethics committees when reviewing prospective and interventional research. Data collection infrastructure can be leveraged to avoid

Funding of registries sustainability

Despite the relevance of ICU registries for critical care in LMICs, its sustainability remains threatened by several factors, among them the lack of secured funding. In a recent survey of 18 ICU registries representing 19 countries we observed that even during a global emergency such as the COVID-19 pandemic only registries based in high-income countries were able to receive funds in a timely way to create a dataset for the characterization of suspected or confirmed COVID cases [15]. Despite

Conclusions

ICU registries have, particularly in low- and middle-income countries, transformative potential for enhancing critical care through data-driven insights and quality improvement initiatives. These registries play an important role by improving patient outcomes, facilitating research, and informing clinical practice. As we move forward, it is imperative to address the sustainability of ICU registries, ensuring they are equipped to adapt to evolving healthcare scenarios. The collective efforts in

Financial support

Dr. Salluh is supported in part by individual research grants from CNPq and FAPERJ.

Competing interests and funding

Salluh is a shareholder of Epimed Solutions, a cloud-based electronic quality improvement system. The other authors declare that they have no conflicts of interest.

Authors' contributions

All authors designed, drafted and revised the present manuscript.

CRediT authorship contribution statement

Jorge I.F. Salluh: Conceptualization, Writing – original draft, Writing – review & editing. Filipe Amado: Visualization, Writing – original draft, Writing – review & editing. David Pilcher: Supervision, Visualization, Writing – review & editing. Madiha Hashmi: Conceptualization, Supervision, Writing – review & editing.

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