Experiences of physiotherapists working with adults living with Long COVID in Canada: a qualitative study

ABSTRACT

Objectives To explore experiences of physiotherapists working with adults living with Long COVID in Canada.

Design Cross-sectional descriptive qualitative study involving online semi-structured interviews.

Participants We recruited physiotherapists in Canada who self-identified as having clinically treated one or more adults living with Long COVID in the past year.

Data collection Using an interview guide, we inquired about physiotherapists’ knowledge of Long COVID, assessment and treatment experiences, perspectives on physiotherapists’ roles, contextual and implementation factors influencing rehabilitative outcomes, and their recommendations for Long COVID rehabilitation. Interviews were audio-recorded, transcribed verbatim, and analyzed using a group-based thematic analytical approach. We administered a demographic questionnaire to describe sample characteristics.

Results Thirteen physiotherapists from five provinces participated; most were women (n=8;62%) and practised in urban settings (n=11;85%). Participants reported variable amounts of knowledge of existing guidelines and experiences working with adults living with Long COVID in the past year. Physiotherapists characterized their experiences working with adults living with Long COVID as a dynamic process involving: 1) a disruption to the profession (encountering a new patient population and pivoting to new models of care delivery), followed by 2) a cyclical process of learning curves and evolving roles of physiotherapists working with persons living with Long COVID (navigating uncertainty, keeping up with rapidly-emerging evidence, trial and error, adapting mindset and rehabilitative approaches, and growing prominence of roles as advocate and collaborator). Participants recommended the need for education and training, active and open-minded listening with patients, interdisciplinary models of care, and organizational- and system-level improvements to foster access to care.

Conclusions Physiotherapists’ experiences involved a disruption to the profession followed by a dynamic process of learning curves and evolving roles in Long COVID rehabilitation. Not all participants demonstrated an in-depth understanding of existing Long COVID rehabilitation guidelines. Results may help inform physiotherapy education in Long COVID rehabilitation.

STRENGTHS AND LIMITATIONS OF THIS STUDY

To our knowledge, this is one of the first qualitative studies to explore experiences of physiotherapists working with patients living with Long COVID in Canada.

Our qualitative approach, involving online semi-structured interviews, enabled an in-depth exploration into Canadian physiotherapists’ perceived roles in Long COVID care, experiences with assessment and treatment, knowledge acquisition, and facilitators and barriers to delivery of rehabilitation services.

Our team-based analytical approach and partnership with physiotherapists living with Long COVID as part of our process provided valuable collaboration, guidance, and advice for refining the interview guide and demographic questionnaire and fostering student researcher interview skills to increase the quality of the study.

The diversity of participants’ characteristics working in different practice settings across five Canadian provinces and the variability in the number of individuals with Long COVID treated by participants were strengths of the study. However, as most participants practised in urban settings in Canada, transferability to other geographical contexts including rural settings and other countries may be limited, especially those with larger differences in healthcare systems.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This work was supported by a catalyst grant from the Rehabilitation Science Research Network for COVID, Temerty Faculty of Medicine, University of Toronto. Kelly K. O Brien is supported by a Canada Research Chair in Episodic Disability and Rehabilitation from the Canada Research Chairs Program.

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

This study protocol was approved by the University of Toronto Health Sciences Research Ethics Board (Protocol #00043692).

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

Yes

Footnotes

# Co-Senior responsible authors.

calebb.kimmail.utoronto.ca, chantal.linmail.utoronto.ca, michellem.wongmail.utoronto.ca, shahd.aljaradmail.utoronto.ca, amyh.gaomail.utoronto.ca, nicole.kaufmanmail.utoronto.ca, kiera.mcduffmail.utoronto.ca, darren.brown11nhs.net, saul.cobbingutoronto.ca, alyssaerin86gmail.com, chansymcmaster.ca, kelly.obrienutoronto.ca

Data Availability

All data relevant to the study are included in the article or uploaded as supplementary information. Selected anonymized qualitative data from the interviews could be made available on request.

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