Barriers and enablers to participation in a proposed online lifestyle intervention for older adults with age-related macular degeneration

Abstract

Age-related macular degeneration (AMD) is a blinding condition associated with depression and loneliness. This facilitates unhealthy lifestyle behaviours which drives AMD progression. We developed the first online lifestyle intervention for AMD, called Movement, Interaction and Nutrition for Greater Lifestyles in the Elderly (MINGLE) to promote positive lifestyle changes, reduce loneliness and depression. This qualitative study explored enablers and barriers to participation in MINGLE for older Australians with AMD. Thirty-one participants with AMD were interviewed using a semi-structured in-depth approach. Thematic analysis revealed nine themes. Enablers to participation were: socialising and learning about AMD, motivation to improve health, program accessibility and structure. Barriers were: lack of time, unfamiliarity with technology, limited knowledge regarding holistic interventions, vision-related issues, mobility and negative perception of group interactions. Multiple factors influence the participation of AMD patients in MINGLE and these must be considered when developing and implementing the MINGLE program to maximise participation.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This study was funded by the Macular Disease Foundation Australia

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

Human Research Ethics Committee of Macquarie University gave ethical approval for this work (ID = 10007)

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

Yes

Data Availability

All data produced in the present study are available upon reasonable request to the authors

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