World Health Organization. The World Health Organization quality of life assessment (WHOQOL). Position paper from the World Health Organization. Soc Sci Med. 1995;41(10):1403–9. https://doi.org/10.1016/0277-9536(95)00112-K.

Article  Google Scholar 

Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA. 1995;273(1):59–65.

Article  CAS  PubMed  Google Scholar 

Bakas T, McLennon SM, Carpenter JS, Buelow JM, Otte JL, Hanna KM, et al. Systematic review of health-related quality of life models. Health Qual Life Outcomes. 2012;10:134. https://doi.org/10.1186/1477-7525-10-134.

Article  PubMed  PubMed Central  Google Scholar 

Flanagan JC. Measurement of quality of life: current state of the art. Arch Phys Med Rehabil. 1982;63(2):56–9.

CAS  PubMed  Google Scholar 

Makris T, Dorstyn D, Crettenden A. Quality of life in children and adolescents with cerebral palsy: a systematic review with meta-analysis. Disabil Rehabil. 2021;43(3):299–308. https://doi.org/10.1080/09638288.2019.1623852.

Article  PubMed  Google Scholar 

Nicola K, Watter P. The comparison of perceived health-related quality of life between australian children with severe specific language impairment to age and gender-matched peers. BMC Pediatr. 2018;18:62. https://doi.org/10.1186/s12887-018-1058-2.

Article  PubMed  PubMed Central  Google Scholar 

Ow N, Mayo NE. Health-related quality of life scores of typically developing children and adolescents around the world: a meta-analysis with meta-regression. Qual Life Res. 2020;29(9):2311–32. https://doi.org/10.1007/s11136-020-02519-0.

Article  PubMed  Google Scholar 

Schepers SA, van Oers HA, Maurice-Stam H, Huisman J, Verhaak CM, Grootenhuis MA, et al. Health related quality of life in dutch infants, toddlers, and young children. Health Qual Life Outcomes. 2017;15:81. https://doi.org/10.1186/s12955-017-0654-4.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Michel G, Bisegger C, Fuhr DC, Abel T. The KIDSCREEN group. Age and gender differences in health-related quality of life of children and adolescents in Europe: a multilevel analysis. Qual Life Res. 2009;18(9):1147–57. https://doi.org/10.1007/s11136-009-9538-3.

Article  PubMed  Google Scholar 

Chromá J, Slaný J. Quality of life of children with bronchial asthma disease. Cas Lek Cesk. 2011;150(12):660–4.

PubMed  Google Scholar 

Legood R, Coen PG, Knox K, Viner RM, El Bashir H, Christie D. Health related quality of life in survivors of pneumococcal meningitis. Acta Paediatr. 2009;98(3):543–7. https://doi.org/10.1111/j.1651-2227.2008.01136.x.

Article  PubMed  Google Scholar 

Ravens-Sieberer U, Hedman M, Devine J, Otto C, Bullinger M, Rose M, et al. The european KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances. Qual Life Res. 2014;23(3):791–803. https://doi.org/10.1007/s11136-013-0428-3.

Article  PubMed  Google Scholar 

Vella SA, Magee CA, Cliff DP. Trajectories and predictors of health-related quality of life during childhood. J Pediatr. 2015;167(2):422–7. https://doi.org/10.1016/j.jpeds.2015.04.079.

Article  PubMed  Google Scholar 

Sonego M, Llácer A, Galán I, Simón F. The influence of parental education on child mental health in Spain. Qual Life Res. 2013;22(1):203–11. https://doi.org/10.1007/s11136-012-0130-x.

Article  PubMed  Google Scholar 

Ojelabi AO, Graham Y, Haighton C, Ling J. A systematic review of the application of Wilson and Cleary health-related quality of life model in chronic diseases. Health Qual Life Outcomes. 2017;15:241. https://doi.org/10.1186/s12955-017-0818-2.

Article  PubMed  PubMed Central  Google Scholar 

Anie KA, Egunjobi FE, Akinyanju OO. Psychosocial impact of sickle cell disorder: perspectives from a nigerian setting. Global Health. 2010;6:2. https://doi.org/10.1186/1744-8603-6-2.

Article  PubMed  PubMed Central  Google Scholar 

Quiceno JM, Vinaccia S. Calidad de vida relacionada con la salud infantil: una aproximación conceptual. Psicol Salud. 2008;18(1):37–44.

Google Scholar 

Quiceno JM, Vinaccia S. Calidad de vida relacionada con la salud infantil: una aproximación desde la enfermedad crónica. Psychol Av Discip. 2013;7(2):69–86. https://doi.org/10.21500/19002386.1205.

Article  Google Scholar 

Germain N, Aballéa S, Toumi M. Measuring health-related quality of life in young children: how far have we come? J Mark Access Health Policy. 2019;7(1):1618661. https://doi.org/10.1080/20016689.2019.1618661.

Article  PubMed  PubMed Central  Google Scholar 

Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39(8):800–12. https://doi.org/10.1097/00005650-200108000-00006.

Article  CAS  PubMed  Google Scholar 

Ravens-Sieberer U, Bullinger M. KINDL-R. Questionnaire for measuring health-related quality of life in children and adolescents, revised version. Berlin, Germany: University Medical Center Hamburg-Eppendorf; 2000.

Google Scholar 

Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M, the DISABKIDS group. The european DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005;3:70. https://doi.org/10.1186/1477-7525-3-70.

Article  PubMed  PubMed Central  Google Scholar 

Raat H, Landgraf JM, Oostenbrink R, Moll HA, Essink-Bot M-L. Reliability and validity of the infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Qual Life Res. 2007;16(3):445–60. https://doi.org/10.1007/s11136-006-9134-8.

Article  PubMed  Google Scholar 

Spencer NJ, Coe C. Validation of the Warwick Child Health and Morbidity profile in routine child health surveillance. Child Care Health Dev. 2000;26(4):323–36. https://doi.org/10.1046/j.1365-2214.2000.00148.x.

Article  CAS  PubMed  Google Scholar 

Stein RE, Jessop DJ. Functional status II (R). A measure of child health status. Med Care. 1990;28(11):1041–55. https://doi.org/10.1097/00005650-199011000-00006.

Article  CAS  PubMed  Google Scholar 

Fekkes M, Theunissen NC, Brugman E, Veen S, Verrips EG, Koopman HM, et al. Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1-5-year-old children. Qual Life Res. 2000;9(8):961–72. https://doi.org/10.1023/a:1008981603178.

Article  CAS  PubMed  Google Scholar 

Lindström B, Eriksson B. Quality of life among children in the nordic countries. Qual Life Res. 1993;2(1):23–32. https://doi.org/10.1007/BF00642886.

Article  PubMed  Google Scholar 

Roizen M, Rodríguez S, Bauer G, Medin G, Bevilacqua S, Varni JW, et al. Initial validation of the argentinean spanish version of the PedsQL™ 4.0 generic core scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings. Health Qual Life Outcomes. 2008;6:59. https://doi.org/10.1186/1477-7525-6-59.

Article  PubMed  PubMed Central  Google Scholar 

Klatcholan DA, Len CA, Terreri MTRA, Silva M, Itamoto C, Ciconelli RM, et al. Quality of life of children and adolescents from São Paulo: reliabily and validity of the brazilian version of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales. J Pediatr. 2008;84(4):308–15. https://doi.org/10.2223/JPED.1788.

Article  Google Scholar 

Kook SH, Varni JW. Validation of the korean version of the pediatric quality of life inventory™ 4.0 (PedsQL™) generic core scales in school children and adolescents using the rasch model. Health Qual Life Outcomes. 2008;6:41. https://doi.org/10.1186/1477-7525-6-41.

Article  PubMed  PubMed Central  Google Scholar 

Ji Y, Chen S, Li K, Xiao N, Yang X, Zheng S, et al. Measuring health-related quality of life in children with cancer living in maindland China: feasibility, reliability and validity of the chinese mandarin version of PedsQL 4.0 generic core scales and 3.0 Cancer Module. Health Qual Life Outcomes. 2011;9:103. https://doi.org/10.1186/1477-7525-9-103.

Article  PubMed  PubMed Central  Google Scholar 

Muñiz J, Fonseca-Pedrero E. Diez pasos para la construcción de un test. Psicothema. 2019;31(1):7–16. https://doi.org/10.7334/psicothema2018.291.

Article  PubMed  Google Scholar 

Fernández SP. Determinación del tamaño muestral. Cuad At Primar. 1996;3(3):138–41.

Google Scholar 

Rajmil L, Serra-Sutton V, Fernandez-Lopez J, Berra S, Aymeric M, Cieza A, et al. The spanish version of the german health-related quality of life questionnaire for children and adolescents: the kindl. An Pediatr. 2004;60(6):514–21. https://doi.org/10.1016/S1695-4033(04)78320-4.

Article  CAS  Google Scholar 

Orgilés M, Melero S, Penosa P, Espada JP, Morales A. Parent-reported health-related quality of life in spanish pre-schoolers: psychometric properties of the Kiddy-KINDL-R. An Pediatr. (English Edition). 2019;90(5):263–71. https://doi.org/10.1016/j.anpede.2018.04.005.

Article  Google Scholar 

Schermelleh-Engell K, Moosbrugger H, Müller H. Evaluating the fit of structural equation models: tests of significance and descriptive goodness-of-fit measures. Methods Psychol Res. 2003;8(2):23–74.

Google Scholar 

Bentler PM. Comparative fit indexes in structural models. Psychol Bull. 1990;107(2):238–46. https://doi.org/10.1037/0033-2909.107.2.238.

Article  CAS  PubMed  Google Scholar 

Weston R, Gore PA. A brief guide to structural equation modelling. Couns Psychol. 2006;34(5):719–751. doi10.1177/0011000006286345.

Gkoltsiou K, Kimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y. Measuring health-related quality of life in greek children version of the Pediatric Quality of Life Inventory ™ 4.0 generic core scales. Qual Life Res. 2008;17(2):299–305. https://doi.org/10.1007/s11136-007-9294-1.

Article  PubMed  Google Scholar 

Reinfjell T, Diseth TH, Veenstra M, Vikan A. Measuring health-related quality of life in in young adolescents: reliability and validity in the norwegian version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes. 2006;4:61. https://doi.org/10.1186/1477-7525-4-61.

Article