National Cancer Institute (NCI). Survivorship. 2021; Available from https://www.cancer.gov/publications/dictionaries/cancer-terms/def/survivorship

Miller KD, Nogueira L, Mariotto AB, Rowland JH, Yabroff KR, Alfano CM, Jemal A, Kramer JL, Siegel RL (2019) Cancer treatment and survivorship statistics, 2019. CA Cancer J Clin 69(5):363–385

Article  PubMed  Google Scholar 

Trentham-Dietz A, Hunter Chapman C, Bird J, Gangnon RE (2021) Recent changes in the patterns of breast cancer as a proportion of all deaths according to race and ethnicity. Epidemiology 32(6):904–913

Article  PubMed  PubMed Central  Google Scholar 

Hendrick RE, Monticciolo DL, Biggs KW, Malak SF (2021) Age distributions of breast cancer diagnosis and mortality by race and ethnicity in US women. Cancer 127(23):4384–4392

Article  PubMed  Google Scholar 

American Cancer Society (ACS). Triple-negative breast cancer. 2022; Available from https://www.cancer.org/cancer/breast-cancer/about/types-of-breast-cancer/triple-negative.html

Zavala VA, Bracci PM, Carethers JM et al (2021) Cancer health disparities in racial/ethnic minorities in the United States. Brit J Cancer 124:315–332

Article  PubMed  Google Scholar 

Reeder-Hayes KE, Wheeler SB, Mayer DK (2015) Health disparities across the breast cancer continuum. Semin Oncol Nurs 31(2):170–177

Article  PubMed  PubMed Central  Google Scholar 

Daly B, Olopade O (2015) A perfect storm: How tumor biology, genomics, and health care delivery patterns collide to create a racial survival disparity in breast cancer and proposed interventions for change. CA Cancer J Clin 65(3):221–238

Article  PubMed  Google Scholar 

Krok-Schoen JL, Naughton MJ, Noonan AM, Pisegna J, DeSalvo J, Lustberg MB (2020) Perspectives of survivorship care plans among older breast cancer survivors: a pilot study. Cancer Control 27(1):1–7

Article  Google Scholar 

Burke NJ, Napoles TM, Banks PJ, Orenstein FS, Luce JA, Joseph G (2016) Survivorship care plan information needs: perspectives of safety-net breast cancer patients. PLoS ONE 11(12):e0168383

Article  PubMed  PubMed Central  Google Scholar 

Tompkins C, Scanlon K, Scott E, Ream E, Harding S, Armes J (2016) Survivorship care and support following treatment for breast cancer: A multi-ethnic comparative qualitative study of women’s experiences. BMC Health Serv Res 16:401

Article  PubMed  PubMed Central  Google Scholar 

Surbone A, Halpern MT (2016) Unequal cancer survivorship care: Addressing cultural and sociodemographic disparities in the clinic. Support Care Cancer 24(12):4831–4833

Article  PubMed  Google Scholar 

Lovelace DL, McDaniel LR, Golden D (2019) Long-term effects of breast cancer surgery, treatment, and survivor care. J Midwifery Womens Health 64(6):713–724

Article  PubMed  Google Scholar 

Silber JH, Rosenbaum PR, Ross RN et al (2018) Disparities in breast cancer survival by socioeconomic status despite Medicare and Medicaid insurance. Millbank Q 96(4):706–754

Article  Google Scholar 

Halpern MT, McCabe MS, Burg MA (2016) The cancer survivorship journey: Models of care, disparities, barriers, and future directions. Am Soc Clin Oncol Educ Book 35:231–239

Article  PubMed  Google Scholar 

Dreyer MS, Nattinger AB, McGinley EL, Pezzin LE (2018) Socioeconomic status and breast cancer treatment. Breast Cancer Res Treat 167(1):1–8

Article  PubMed  Google Scholar 

Griggs JJ, Culakova E, Sorbero MES et al (2007) Effect of patient socioeconomic status and body mass index on the quality of breast cancer adjuvant chemotherapy. J Clin Oncol 25(3):277–284

Article  PubMed  Google Scholar 

National Cancer Institute (NCI). SEER-CAHPS linked data resource. 2022; Available from: https://healthcaredelivery.cancer.gov/seer-cahps/

Chawla N, Urato M, AMbs A et al (2015) Unveiling SEER-CAHPS: A new data resource for quality of care research. J Gen Intern Med 30(5):641–650

Article  PubMed  PubMed Central  Google Scholar 

Halpern MT, Urato MP, Kent EE (2017) The health care experience of patients with cancer during the last year of life: analysis of the SEER-CAHPS data set. Cancer 123(2):336–344

Article  PubMed  Google Scholar 

Damiano PC, Elliott M, Tyler MC (2004) Differential use of the CAHPS 0–10 global rating scale by Medicaid and commercial populations. Health Serv Outcomes Res Method 5:193–205

Article  Google Scholar 

National Cancer Institute (NCI). Approaches to using CAHPS items and composites. 2022; Available from: https://healthcaredelivery.cancer.gov/seer-cahps/researchers/approaches_guidance.html

Paddison CAM, Elliot MC, Haviland AM et al (2013) Experiences of care among Medicare beneficiaries with ESRD - Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey results. Am J Kidney Dis 61(3):440–449. https://doi.org/10.1053/j.ajkd.2012.10.009

Article  PubMed  Google Scholar 

National Cancer Institute (NCI). Case-mix adjustment guide. 2022; Available from: https://healthcaredelivery.cancer.gov/seer-cahps/researchers/adjustment_guidance.html

Centers for Medicare & Medicaid Services (CMS). Chronic conditions. 2022; Available from: https://www.cms.gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/Chronic-Conditions/CC_Main

StataCorp. Stata Statistical Software: Release 16. 2019: College Station, TX.

Tometich DB, Hyland KA, Soliman H, Jim HSL, Oswald L (2020) Living with metastatic cancer: A roadmap for future research. Cancers 12(12):3684

Article  PubMed  PubMed Central  Google Scholar 

Greco C (2022) The uncertain presence: Experiences of living with metastatic breast cancer. Med Anthropol 41(2):129–140

Article  PubMed  Google Scholar 

Gallicchio L, Devasia TP, Tonorezos E, Mollica MA, Mariotto A (2022) Estimation of the numbers of individuals living with metastatic cancer in the United States. J Natl Cancer Inst. https://doi.org/10.1093/jnci/djac158

Article  PubMed  PubMed Central  Google Scholar 

American Cancer Society (ACS). Breast cancer facts and figures 2019–2020. 2019; Available from: https://www.cancer.org/research/cancer-facts-statistics/breast-cancer-facts-figures.html

Coughlin SS (2019) Social determinants of breast cancer risk, stage, and survival. Breast Cancer Res Treat 177:537–548

Article  PubMed  Google Scholar 

Dibble KE, Deng Z, Jin M, Connor AE. Evaluation of racial/ethnic disparities in survivorship care experiences among older women with breast cancer: A SEER-CAHPS analysis. Cancer Epidemiol Biomarkers Prev, under review.

Mollica MA, Buckenmaier SS, Halpern MT, McNeel TS, Weaver SJ, Doose M, Kent EE (2021) Perceptions of care coordination among older adult cancer survivors: A SEER-CAHPS study. J Geriatr Oncol 12(3):446–452

Article  CAS  PubMed  Google Scholar 

Noone AM, Lund JL, Mariotto A, Cronin K, McNeel T, Deapen D, Warren JL (2016) Comparison of SEER treatment data with Medicare claims. Med Care 54(9):e55–e64

Article  PubMed  PubMed Central  Google Scholar