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Objective The natural extension of inpatient-focused neonatal neurocritical care (NNCC) programs is the evaluation of long-term neurodevelopmental outcomes in the same patient population.
Clinical Design A dedicated and collaborative team of neonatologists, neonatal neurologists, neuropsychologists, neurosurgeons, physical medicine and rehabilitation physicians, and psychologists are necessary to provide personalized medicine, developmental assessments, and parental education for NNCC graduates. To achieve this goal, we devised a two-clinic follow-up model at Children's Wisconsin: HOPE (Healthy Outcomes Post-ICU Engagement) and DREAM: Developmentally Ready: Engagement for Achievement of Milestones) clinics. Those infants with significant neurologic diagnoses attend DREAM clinic, while all other high-risk neonatal intensive care unit (NICU) infants are seen in the HOPE clinic.
Conclusion These clinic models allow for a targeted approach to post-NICU care, which has improved family engagement and perceptions of value.
Key Points
Infants with neurologic compromise are a specialized population with increasing survival.
Interdisciplinary NICU follow-up brings together previously separated outpatient service lines.
Our novel clinic model allows for specialized developmental assessments.
Keywords neonatal neurocritical care - high risk - long-term follow-up - multidisciplinary care model - value - care Authors' ContributionsK.C. and S.C. served as the primary writers and editors of the manuscript. S.A., E.F., A.F., A.H., J.J., I.K., J.K., L.M., and S.S., all played an active role in the two-clinic model described in this manuscript. In addition, these authors contributed to the writing and editing process.
Publication HistoryReceived: 11 October 2022
Accepted: 24 February 2023
Accepted Manuscript online:
14 March 2023
Article published online:
17 April 2023
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